Characteristics and Management of Feeding Problems of Young Children with Cerebral Palsy / Sheena REILLY in Developmental Medicine & Child Neurology, 34-5 (May 1992)

Public ISBD [article]  inDevelopmental Medicine & Child Neurology > 34-5 (May 1992) . - p.379-388 Titre : Characteristics and Management of Feeding Problems of Young Children with Cerebral Palsy Type de document : Texte imprimé et/ou numérique Auteurs : Sheena REILLY, Auteur ; David H. SKUSE, Auteur Année de publication : 1992 Article en page(s) : p.379-388 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Caractéristiques et prise en charge des problèmes d'alimentation chez les jeunes enfants présentant des troubles moteurs d'origine cérébrale La nature et l'importance des difficultés d'alimentation associés à des troubles moteurs d'origine cérébrale ont été appréciées chez 12 nourrissons présentant une dysfonction oro-motrice de modérée à sévère, et comparées avec un groupe contrôle. Les données ont été recueillies au domicile des nourrissons par entrevue et observation directe des repas. Les résultats ont révélés des problèmes variés et datant de longtemps, et pour lesquels peu d'avis avaient été donnés. La plupart des nourrissons étaient mal installés; les sièges spéciaux n'étaient pas utilisés. La durée moyenne des repas ne différait pas significativement entre index et contrôles. Les nourrissons index mangeaient moins et se voyaient offrir moins de nourriture que les contrôles. Les problèmes d'alimentation dataient habituellement de la naissance et étaient associés à une insuffisance d'évolution pondérale. Une évaluation multidisciplinaire des difficultés d'alimentation sévères chez ces enfants est indiquée. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=137 [article] Characteristics and Management of Feeding Problems of Young Children with Cerebral Palsy [Texte imprimé et/ou numérique] / Sheena REILLY, Auteur ; David H. SKUSE, Auteur . - 1992 . - p.379-388. Langues : Anglais (eng) in Developmental Medicine & Child Neurology > 34-5 (May 1992) . - p.379-388 Index. décimale : PER Périodiques Résumé : Caractéristiques et prise en charge des problèmes d'alimentation chez les jeunes enfants présentant des troubles moteurs d'origine cérébrale La nature et l'importance des difficultés d'alimentation associés à des troubles moteurs d'origine cérébrale ont été appréciées chez 12 nourrissons présentant une dysfonction oro-motrice de modérée à sévère, et comparées avec un groupe contrôle. Les données ont été recueillies au domicile des nourrissons par entrevue et observation directe des repas. Les résultats ont révélés des problèmes variés et datant de longtemps, et pour lesquels peu d'avis avaient été donnés. La plupart des nourrissons étaient mal installés; les sièges spéciaux n'étaient pas utilisés. La durée moyenne des repas ne différait pas significativement entre index et contrôles. Les nourrissons index mangeaient moins et se voyaient offrir moins de nourriture que les contrôles. Les problèmes d'alimentation dataient habituellement de la naissance et étaient associés à une insuffisance d'évolution pondérale. Une évaluation multidisciplinaire des difficultés d'alimentation sévères chez ces enfants est indiquée. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=137

Clinician Proposed Predictors of Spoken Language Outcomes for Minimally Verbal Children with Autism Spectrum Disorder / David TREMBATH in Journal of Autism and Developmental Disorders, 51-2 (February 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-2 (February 2021) . - p.564-575 Titre : Clinician Proposed Predictors of Spoken Language Outcomes for Minimally Verbal Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : David TREMBATH, Auteur ; Rebecca SUTHERLAND, Auteur ; Teena CAITHNESS, Auteur ; Cheryl DISSANAYAKE, Auteur ; Valsamma EAPEN, Auteur ; Kathryn FORDYCE, Auteur ; Grace FROST, Auteur ; Teresa IACONO, Auteur ; Nicole MAHLER, Auteur ; Anne MASI, Auteur ; Jessica PAYNTER, Auteur ; Katherine PYE, Auteur ; Sheena REILLY, Auteur ; Veronica ROSE, Auteur ; Stephanie SIEVERS, Auteur ; Abirami THIRUMANICKAM, Auteur ; Marleen F. WESTERVELD, Auteur ; Madonna TUCKER, Auteur Article en page(s) : p.564-575 Langues : Anglais (eng) Mots-clés : Autism  Communication  Minimally verbal  Predictor  Speech pathology Index. décimale : PER Périodiques Résumé : Our aim was to explore insights from clinical practice that may inform efforts to understand and account for factors that predict spoken language outcomes for children with Autism Spectrum Disorder who use minimal verbal language. We used a qualitative design involving three focus groups with 14 speech pathologists to explore their views and experiences. Using the Framework Method of analysis, we identified 9 themes accounting for 183 different participant references to potential factors. Participants highlighted the relevance of clusters of fine-grained social, communication, and learning behaviours, including novel insights into prelinguistic vocal behaviours. The participants suggested the potential value of dynamic assessment in predicting spoken language outcomes. The findings can inform efforts to developing clinically relevant methods for predicting children's communication outcomes. En ligne : http://dx.doi.org/10.1007/s10803-020-04550-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440 [article] Clinician Proposed Predictors of Spoken Language Outcomes for Minimally Verbal Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / David TREMBATH, Auteur ; Rebecca SUTHERLAND, Auteur ; Teena CAITHNESS, Auteur ; Cheryl DISSANAYAKE, Auteur ; Valsamma EAPEN, Auteur ; Kathryn FORDYCE, Auteur ; Grace FROST, Auteur ; Teresa IACONO, Auteur ; Nicole MAHLER, Auteur ; Anne MASI, Auteur ; Jessica PAYNTER, Auteur ; Katherine PYE, Auteur ; Sheena REILLY, Auteur ; Veronica ROSE, Auteur ; Stephanie SIEVERS, Auteur ; Abirami THIRUMANICKAM, Auteur ; Marleen F. WESTERVELD, Auteur ; Madonna TUCKER, Auteur . - p.564-575. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-2 (February 2021) . - p.564-575 Mots-clés : Autism  Communication  Minimally verbal  Predictor  Speech pathology Index. décimale : PER Périodiques Résumé : Our aim was to explore insights from clinical practice that may inform efforts to understand and account for factors that predict spoken language outcomes for children with Autism Spectrum Disorder who use minimal verbal language. We used a qualitative design involving three focus groups with 14 speech pathologists to explore their views and experiences. Using the Framework Method of analysis, we identified 9 themes accounting for 183 different participant references to potential factors. Participants highlighted the relevance of clusters of fine-grained social, communication, and learning behaviours, including novel insights into prelinguistic vocal behaviours. The participants suggested the potential value of dynamic assessment in predicting spoken language outcomes. The findings can inform efforts to developing clinically relevant methods for predicting children's communication outcomes. En ligne : http://dx.doi.org/10.1007/s10803-020-04550-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440

Development of a Video-based Evaluation Tool in Rett Syndrome / Sue FYFE in Journal of Autism and Developmental Disorders, 37-9 (October 2007)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 37-9 (October 2007) . - p.1636-1646 Titre : Development of a Video-based Evaluation Tool in Rett Syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Sue FYFE, Auteur ; Michael E. MSALL, Auteur ; Hayley C. LEONARD, Auteur ; Jenny DOWNS, Auteur ; C. ELLAWAY, Auteur ; Walter E. KAUFMANN, Auteur ; C. PHILIPPE, Auteur ; C. L. LAURVICK, Auteur ; J. LISTER, Auteur ; B. BURFORD, Auteur ; O. MCILROY, Auteur ; Sheena REILLY, Auteur Année de publication : 2007 Article en page(s) : p.1636-1646 Langues : Anglais (eng) Mots-clés : Rett-syndrome Video-analysis Functional-ability Movement-disorder Behavioural-phenotype Participatory-research Index. décimale : PER Périodiques Résumé : This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. Ninety-seven of the 169 families who initially agreed to participate returned a videotape within 8 months of the first request. Subjects whose videos were returned had a similar age profile to those who did not provide a video but were more likely to have classical than atypical RTT. Evidence of the content and social validity and inter-rater reliability on 11 videos is provided. Video may provide detailed, objective assessment of function and behaviour in RTT. En ligne : http://dx.doi.org/10.1007/s10803-006-0293-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=174 [article] Development of a Video-based Evaluation Tool in Rett Syndrome [Texte imprimé et/ou numérique] / Sue FYFE, Auteur ; Michael E. MSALL, Auteur ; Hayley C. LEONARD, Auteur ; Jenny DOWNS, Auteur ; C. ELLAWAY, Auteur ; Walter E. KAUFMANN, Auteur ; C. PHILIPPE, Auteur ; C. L. LAURVICK, Auteur ; J. LISTER, Auteur ; B. BURFORD, Auteur ; O. MCILROY, Auteur ; Sheena REILLY, Auteur . - 2007 . - p.1636-1646. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 37-9 (October 2007) . - p.1636-1646 Mots-clés : Rett-syndrome Video-analysis Functional-ability Movement-disorder Behavioural-phenotype Participatory-research Index. décimale : PER Périodiques Résumé : This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. Ninety-seven of the 169 families who initially agreed to participate returned a videotape within 8 months of the first request. Subjects whose videos were returned had a similar age profile to those who did not provide a video but were more likely to have classical than atypical RTT. Evidence of the content and social validity and inter-rater reliability on 11 videos is provided. Video may provide detailed, objective assessment of function and behaviour in RTT. En ligne : http://dx.doi.org/10.1007/s10803-006-0293-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=174

Early indicators of autism spectrum disorders at 12 and 24 months of age: A prospective, longitudinal comparative study / Carly VENESS in Autism, 16-2 (March 2012)  

Public ISBD [article]  inAutism > 16-2 (March 2012) . - p.163-177 Titre : Early indicators of autism spectrum disorders at 12 and 24 months of age: A prospective, longitudinal comparative study Type de document : Texte imprimé et/ou numérique Auteurs : Carly VENESS, Auteur ; Margot PRIOR, Auteur ; Edith L. BAVIN, Auteur ; Patricia EADIE, Auteur ; Eileen CINI, Auteur ; Sheena REILLY, Auteur Année de publication : 2012 Article en page(s) : p.163-177 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  communication  early identification  gesture  infant behaviour Index. décimale : PER Périodiques Résumé : Prospective questionnaire data from a longitudinal population sample on children with autism spectrum disorders (ASD), developmental delay, specific language impairment, or typical development (TD), were collected at ages eight, 12 and 24 months, via the Communication and Symbolic Behavior Scale Developmental Profile (CSBS) – Infant Toddler Checklist, and the Actions and Gesture section of the MacArthur-Bates Communicative Development Inventory (CDI):Words and Gestures. The four groups were compared at four years of age to identify whether any early behaviours differentiated the groups. While children with ASD differed from TD children on most social communicative measures by 12 months of age, the only social communication characteristic which could differentiate the children with ASD from the other groups were gesture scores on the CDI at 12 months and the CSBS at 24 months. Significant markers of ASD were identifiable in this community sample at an early age, although discrimination between clinical groups was rarely evident. En ligne : http://dx.doi.org/10.1177/1362361311399936 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=155 [article] Early indicators of autism spectrum disorders at 12 and 24 months of age: A prospective, longitudinal comparative study [Texte imprimé et/ou numérique] / Carly VENESS, Auteur ; Margot PRIOR, Auteur ; Edith L. BAVIN, Auteur ; Patricia EADIE, Auteur ; Eileen CINI, Auteur ; Sheena REILLY, Auteur . - 2012 . - p.163-177. Langues : Anglais (eng) in Autism > 16-2 (March 2012) . - p.163-177 Mots-clés : autism spectrum disorders  communication  early identification  gesture  infant behaviour Index. décimale : PER Périodiques Résumé : Prospective questionnaire data from a longitudinal population sample on children with autism spectrum disorders (ASD), developmental delay, specific language impairment, or typical development (TD), were collected at ages eight, 12 and 24 months, via the Communication and Symbolic Behavior Scale Developmental Profile (CSBS) – Infant Toddler Checklist, and the Actions and Gesture section of the MacArthur-Bates Communicative Development Inventory (CDI):Words and Gestures. The four groups were compared at four years of age to identify whether any early behaviours differentiated the groups. While children with ASD differed from TD children on most social communicative measures by 12 months of age, the only social communication characteristic which could differentiate the children with ASD from the other groups were gesture scores on the CDI at 12 months and the CSBS at 24 months. Significant markers of ASD were identifiable in this community sample at an early age, although discrimination between clinical groups was rarely evident. En ligne : http://dx.doi.org/10.1177/1362361311399936 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=155

Health-related quality of life of children with low language from early childhood to adolescence: results from an Australian longitudinal population-based study / Ha N. D. LE in Journal of Child Psychology and Psychiatry, 62-3 (March 2021)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 62-3 (March 2021) . - p.349-356 Titre : Health-related quality of life of children with low language from early childhood to adolescence: results from an Australian longitudinal population-based study Type de document : Texte imprimé et/ou numérique Auteurs : Ha N. D. LE, Auteur ; Fiona MENSAH, Auteur ; Patricia EADIE, Auteur ; Cristina MCKEAN, Auteur ; Emma SCIBERRAS, Auteur ; Edith L. BAVIN, Auteur ; Sheena REILLY, Auteur ; Lisa GOLD, Auteur Article en page(s) : p.349-356 Langues : Anglais (eng) Mots-clés : HRQoL  children  low language Index. décimale : PER Périodiques Résumé : BACKGROUND: Low language abilities are known to be associated with significant adverse long-term outcomes. However, associations between low language and health-related quality of life (HRQoL) are unclear. We aimed to (a) examine the association between low language and HRQoL from 4 to 13 years and (b) classify the children's trajectories of HRQoL and language and examine the association between language and HRQoL trajectories. METHODS: Data were from an Australian community-based cohort of children. HRQoL was measured at ages 4-13 years using the parent-reported Pediatric Quality of Life Inventory 4.0. Language was assessed using the Clinical Evaluation of Language Fundamentals (CELF)-Preschool 2nd edition at 4 years and the CELF-4th edition at 5, 7 and 11 years. Multivariable linear regression and mixed effect modelling were used to estimate cross-sectional and longitudinal associations between low language and HRQoL from 4 to 13 years. A joint group-based trajectory model was used to characterize associations between HRQoL and language trajectories over childhood. RESULTS: Children with low language had substantially lower HRQoL than children with typical language from 4 to 13 years. Higher language scores were associated with better HRQoL, particularly in social and school functioning. Three HRQoL trajectories were identified: stable-high (51% of children), reduced with slow decline (40%) and low with rapid decline (9%). Children with low language were less likely to follow a stable-high HRQoL trajectory (40%) while 26% and 34% followed the reduced with slow decline and low with rapid decline trajectories, respectively. CONCLUSIONS: Children with low language experienced reduced HRQoL from 4 to 13 years. More than half had declining trajectories in HRQoL highlighting the need to monitor these children over time. Interventions should not only aim to improve children's language ability but also address the wider functional impacts of low language. En ligne : http://dx.doi.org/10.1111/jcpp.13277 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443 [article] Health-related quality of life of children with low language from early childhood to adolescence: results from an Australian longitudinal population-based study [Texte imprimé et/ou numérique] / Ha N. D. LE, Auteur ; Fiona MENSAH, Auteur ; Patricia EADIE, Auteur ; Cristina MCKEAN, Auteur ; Emma SCIBERRAS, Auteur ; Edith L. BAVIN, Auteur ; Sheena REILLY, Auteur ; Lisa GOLD, Auteur . - p.349-356. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 62-3 (March 2021) . - p.349-356 Mots-clés : HRQoL  children  low language Index. décimale : PER Périodiques Résumé : BACKGROUND: Low language abilities are known to be associated with significant adverse long-term outcomes. However, associations between low language and health-related quality of life (HRQoL) are unclear. We aimed to (a) examine the association between low language and HRQoL from 4 to 13 years and (b) classify the children's trajectories of HRQoL and language and examine the association between language and HRQoL trajectories. METHODS: Data were from an Australian community-based cohort of children. HRQoL was measured at ages 4-13 years using the parent-reported Pediatric Quality of Life Inventory 4.0. Language was assessed using the Clinical Evaluation of Language Fundamentals (CELF)-Preschool 2nd edition at 4 years and the CELF-4th edition at 5, 7 and 11 years. Multivariable linear regression and mixed effect modelling were used to estimate cross-sectional and longitudinal associations between low language and HRQoL from 4 to 13 years. A joint group-based trajectory model was used to characterize associations between HRQoL and language trajectories over childhood. RESULTS: Children with low language had substantially lower HRQoL than children with typical language from 4 to 13 years. Higher language scores were associated with better HRQoL, particularly in social and school functioning. Three HRQoL trajectories were identified: stable-high (51% of children), reduced with slow decline (40%) and low with rapid decline (9%). Children with low language were less likely to follow a stable-high HRQoL trajectory (40%) while 26% and 34% followed the reduced with slow decline and low with rapid decline trajectories, respectively. CONCLUSIONS: Children with low language experienced reduced HRQoL from 4 to 13 years. More than half had declining trajectories in HRQoL highlighting the need to monitor these children over time. Interventions should not only aim to improve children's language ability but also address the wider functional impacts of low language. En ligne : http://dx.doi.org/10.1111/jcpp.13277 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443

Language growth in verbal autistic children from 5 to 11?years / Amanda BRIGNELL in Autism Research, 17-10 (October 2024)  

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No Differences in Code-Related Emergent Literacy Skills in Well-Matched 4-Year-Old Children With and Without ASD / Marleen F. WESTERVELD in Journal of Autism and Developmental Disorders, 50-8 (August 2020)  

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Oral-Motor Dysfunction and Feeding Disorders of Infants with Turner Syndrome / Berenice MATHISEN in Developmental Medicine & Child Neurology, 34-2 (February 1992)

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Parent-reported patterns of loss and gain in communication in 1- to 2-year-old children are not unique to autism spectrum disorder / Amanda BRIGNELL in Autism, 21-2 (February 2017)  

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Parent-reported patterns of loss and gain in communication in 1- to 2-year-old children are not unique to autism spectrum disorder / Amanda BRIGNELL in Autism, 21-3 (April 2017)  

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Subgroups in language trajectories from 4 to 11 years: the nature and predictors of stable, improving and decreasing language trajectory groups / Cristina MCKEAN in Journal of Child Psychology and Psychiatry, 58-10 (October 2017)  

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Using machine-learning methods to identify early-life predictors of 11-year language outcome / Loretta GASPARINI in Journal of Child Psychology and Psychiatry, 64-8 (August 2023)  

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