Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder? / Ruth L FISCHBACH in Autism, 20-3 (April 2016)  

Public ISBD [article]  inAutism > 20-3 (April 2016) . - p.353-363 Titre : Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder? Type de document : Texte imprimé et/ou numérique Auteurs : Ruth L FISCHBACH, Auteur ; Mark J HARRIS, Auteur ; Michelle S. BALLAN, Auteur ; Gerald D FISCHBACH, Auteur ; Bruce G LINK, Auteur Article en page(s) : p.353-363 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  concordance  communication  genetic testing  incidental findings  stigma  vaccines Index. décimale : PER Périodiques Résumé : There is no reported investigation comparing concordance in attitudes and beliefs about autism spectrum disorder between parents of children with autism spectrum disorder and scientists who research autism spectrum disorder. To investigate the level of concordance between these groups on causes of autism, priorities of research, perceived stigma, and disclosure of genetic test results, telephone interviews were conducted. Parents (n?=?502) were recruited from the Simons Simplex Collection, and research scientists (n?=?60) were recruited from investigators funded by the Simons Foundation. Response rates were notable (parents 91%, scientists 80%). Parents and scientists differed significantly regarding beliefs of the likely major cause of autism (p?=?0.007) and priorities for further research (p? En ligne : http://dx.doi.org/10.1177/1362361315585310 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285 [article] Is there concordance in attitudes and beliefs between parents and scientists about autism spectrum disorder? [Texte imprimé et/ou numérique] / Ruth L FISCHBACH, Auteur ; Mark J HARRIS, Auteur ; Michelle S. BALLAN, Auteur ; Gerald D FISCHBACH, Auteur ; Bruce G LINK, Auteur . - p.353-363. Langues : Anglais (eng) in Autism > 20-3 (April 2016) . - p.353-363 Mots-clés : autism spectrum disorder  concordance  communication  genetic testing  incidental findings  stigma  vaccines Index. décimale : PER Périodiques Résumé : There is no reported investigation comparing concordance in attitudes and beliefs about autism spectrum disorder between parents of children with autism spectrum disorder and scientists who research autism spectrum disorder. To investigate the level of concordance between these groups on causes of autism, priorities of research, perceived stigma, and disclosure of genetic test results, telephone interviews were conducted. Parents (n?=?502) were recruited from the Simons Simplex Collection, and research scientists (n?=?60) were recruited from investigators funded by the Simons Foundation. Response rates were notable (parents 91%, scientists 80%). Parents and scientists differed significantly regarding beliefs of the likely major cause of autism (p?=?0.007) and priorities for further research (p? En ligne : http://dx.doi.org/10.1177/1362361315585310 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=285

Parental Perspectives of Communication about Sexuality in Families of Children with Autism Spectrum Disorders / Michelle S. BALLAN in Journal of Autism and Developmental Disorders, 42-5 (May 2012)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 42-5 (May 2012) . - p.676-684 Titre : Parental Perspectives of Communication about Sexuality in Families of Children with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Michelle S. BALLAN, Auteur Année de publication : 2012 Article en page(s) : p.676-684 Langues : Anglais (eng) Mots-clés : Sexuality  Parent communication  Autism spectrum disorders Index. décimale : PER Périodiques Résumé : To explore the content of communication about sexuality between parents and children with autism spectrum disorders, semi-structured interviews were conducted with 18 parents of children ages 6–13. Content analysis and ethnographic summary were used to interpret the data. Findings suggest that parent’s perceptions of a child’s behaviors and comprehension are associated with the likelihood that communication occurs. However, parents recognize the risks their children experience, with the greatest fears being sexual victimization and misperceptions related to the intent of their child’s behaviors. This study provides information on the nature of communication about sexuality in families of children with autism spectrum disorders and can help tailor interventions aimed at assisting parents to communicate sexuality information effectively. En ligne : http://dx.doi.org/10.1007/s10803-011-1293-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=154 [article] Parental Perspectives of Communication about Sexuality in Families of Children with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Michelle S. BALLAN, Auteur . - 2012 . - p.676-684. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 42-5 (May 2012) . - p.676-684 Mots-clés : Sexuality  Parent communication  Autism spectrum disorders Index. décimale : PER Périodiques Résumé : To explore the content of communication about sexuality between parents and children with autism spectrum disorders, semi-structured interviews were conducted with 18 parents of children ages 6–13. Content analysis and ethnographic summary were used to interpret the data. Findings suggest that parent’s perceptions of a child’s behaviors and comprehension are associated with the likelihood that communication occurs. However, parents recognize the risks their children experience, with the greatest fears being sexual victimization and misperceptions related to the intent of their child’s behaviors. This study provides information on the nature of communication about sexuality in families of children with autism spectrum disorders and can help tailor interventions aimed at assisting parents to communicate sexuality information effectively. En ligne : http://dx.doi.org/10.1007/s10803-011-1293-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=154

Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives / Sydney H. KINNEAR in Journal of Autism and Developmental Disorders, 46-3 (March 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.942-953 Titre : Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives Type de document : Texte imprimé et/ou numérique Auteurs : Sydney H. KINNEAR, Auteur ; Bruce G. LINK, Auteur ; Michelle S. BALLAN, Auteur ; Ruth L. FISCHBACH, Auteur Article en page(s) : p.942-953 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Stigma  Stereotyping  Rejection  Exclusion  Discrimination  Scales  Regression analysis Index. décimale : PER Périodiques Résumé : Stigma is widely perceived in the lives of families with autism spectrum disorder (ASD) yet large, systematic studies have not been undertaken. Following Link and Phelan’s (Ann Rev Sociol 27:363–385, 2001) model, this study of 502 Simons Simplex Collection families details how different factors contribute to stigma and how each appears to increase the overall difficulty of raising a child with ASD. The model begins with the child’s behavioral symptoms and then specifies stigma processes of stereotyping, rejection, and exclusion. Autism behaviors contribute both to the difficulty families experience raising a child with autism and to the stigma processes associated with those behaviors. Stigma also plays a significant role (.282, p < .001) in predicting how difficult life is overall for parents. En ligne : http://dx.doi.org/10.1007/s10803-015-2637-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281 [article] Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives [Texte imprimé et/ou numérique] / Sydney H. KINNEAR, Auteur ; Bruce G. LINK, Auteur ; Michelle S. BALLAN, Auteur ; Ruth L. FISCHBACH, Auteur . - p.942-953. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-3 (March 2016) . - p.942-953 Mots-clés : Autism spectrum disorder  Stigma  Stereotyping  Rejection  Exclusion  Discrimination  Scales  Regression analysis Index. décimale : PER Périodiques Résumé : Stigma is widely perceived in the lives of families with autism spectrum disorder (ASD) yet large, systematic studies have not been undertaken. Following Link and Phelan’s (Ann Rev Sociol 27:363–385, 2001) model, this study of 502 Simons Simplex Collection families details how different factors contribute to stigma and how each appears to increase the overall difficulty of raising a child with ASD. The model begins with the child’s behavioral symptoms and then specifies stigma processes of stereotyping, rejection, and exclusion. Autism behaviors contribute both to the difficulty families experience raising a child with autism and to the stigma processes associated with those behaviors. Stigma also plays a significant role (.282, p < .001) in predicting how difficult life is overall for parents. En ligne : http://dx.doi.org/10.1007/s10803-015-2637-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=281

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