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Auteur Kathy LEADBITTER |
Documents disponibles écrits par cet auteur (14)
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Acceptability and feasibility of a parent-mediated social-communication therapy for young autistic children in Brazil: A qualitative implementation study of Paediatric Autism Communication Therapy / Lorna MCWILLIAMS ; Leticia RODRIGUES DA SILVEIRA ; Mirian DE CESARO REVERS BIASÃO ; Fernanda SPEGGIORIN PEREIRA ALARCÃO ; Leonardo SEDA ; Renata GENEROSO CAMPOLI ; Holan LIANG ; Gauri DIVAN ; Kathy LEADBITTER in Autism, 28-1 (January 2024)
[article]
Titre : Acceptability and feasibility of a parent-mediated social-communication therapy for young autistic children in Brazil: A qualitative implementation study of Paediatric Autism Communication Therapy Type de document : Texte imprimé et/ou numérique Auteurs : Lorna MCWILLIAMS, Auteur ; Leticia RODRIGUES DA SILVEIRA, Auteur ; Mirian DE CESARO REVERS BIASÃO, Auteur ; Fernanda SPEGGIORIN PEREIRA ALARCÃO, Auteur ; Leonardo SEDA, Auteur ; Renata GENEROSO CAMPOLI, Auteur ; Holan LIANG, Auteur ; Gauri DIVAN, Auteur ; Kathy LEADBITTER, Auteur Article en page(s) : p.123?137 Mots-clés : autism Brazil implementation study Paediatric Autism Communication Therapy qualitative study Index. décimale : PER Périodiques Résumé : Effective support for autistic individuals is lacking in Brazil. Few centres offer services and those that do are limited in therapeutic options and geographical location. Paediatric Autism Communication Therapy is a low-intensity, evidence-based parent-mediated social-communication intervention that may be useful for this scenario. This implementation study aimed to assess the acceptability and feasibility of Paediatric Autism Communication Therapy for young autistic children (aged 2?10?years) in Brazil. Parents (n?=?18) of 2- to 10-year-old autistic children and clinicians (n?=?20) who work with autistic children in Brazil were interviewed and the data analysed using thematic analysis to explore their perceptions concerning the acceptability and feasibility of Paediatric Autism Communication Therapy. In addition, Paediatric Autism Communication Therapy was delivered to a case series of 15 further parent?child dyads; these parents were interviewed at the end of the therapy, and the data were analysed using thematic analysis. All parents and clinicians had favourable opinions about the acceptability, feasibility and perceived effectiveness of a parent-mediated intervention conducted mainly in the home. However, they also highlighted obstacles concerning the implementation of Paediatric Autism Communication Therapy in Brazil, especially related to engaging Brazilian parents in a parent-mediated model of therapy. Based on these data, minor adaptations were made to the original Paediatric Autism Communication Therapy protocol to facilitate the implementation of the intervention in Brazil. Lay abstract Parents of autistic children and health professionals who work with autistic children in Brazil had positive views about introducing Paediatric Autism Communication Therapy as a therapy for autistic children in Brazil. The parents and clinicians also mentioned some difficulties about using Paediatric Autism Communication Therapy in Brazil. We made adaptations to Paediatric Autism Communication Therapy to address these difficulties. Paediatric Autism Communication Therapy is a therapy to support the development of social and communication skills for autistic children aged 2?10 years. The therapy is conducted with the autistic child?s parent. Paediatric Autism Communication Therapy has not been used in Brazil before. There are few therapy options available for autistic children in Brazil and we believed that Paediatric Autism Communication Therapy may be useful. We asked three groups of people in Brazil about their views of Paediatric Autism Communication Therapy, after explaining how the therapy works. Group 1 included 18 parents of autistic children aged 2?10 years. Group 2 included 20 health professionals such as psychologists who work with autistic children. Group 3 included 15 parents of autistic children aged 2?7 years who received the Paediatric Autism Communication Therapy. We learned that parents and clinicians felt that Paediatric Autism Communication Therapy would be a beneficial therapy for autistic children in Brazil. We also found out about the challenges of using Paediatric Autism Communication Therapy in Brazil. We used these findings to make small cultural adaptations to Paediatric Autism Communication Therapy to make it more suitable for Brazil. En ligne : https://dx.doi.org/10.1177/13623613221144501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Autism > 28-1 (January 2024) . - p.123?137[article] Acceptability and feasibility of a parent-mediated social-communication therapy for young autistic children in Brazil: A qualitative implementation study of Paediatric Autism Communication Therapy [Texte imprimé et/ou numérique] / Lorna MCWILLIAMS, Auteur ; Leticia RODRIGUES DA SILVEIRA, Auteur ; Mirian DE CESARO REVERS BIASÃO, Auteur ; Fernanda SPEGGIORIN PEREIRA ALARCÃO, Auteur ; Leonardo SEDA, Auteur ; Renata GENEROSO CAMPOLI, Auteur ; Holan LIANG, Auteur ; Gauri DIVAN, Auteur ; Kathy LEADBITTER, Auteur . - p.123?137.
in Autism > 28-1 (January 2024) . - p.123?137
Mots-clés : autism Brazil implementation study Paediatric Autism Communication Therapy qualitative study Index. décimale : PER Périodiques Résumé : Effective support for autistic individuals is lacking in Brazil. Few centres offer services and those that do are limited in therapeutic options and geographical location. Paediatric Autism Communication Therapy is a low-intensity, evidence-based parent-mediated social-communication intervention that may be useful for this scenario. This implementation study aimed to assess the acceptability and feasibility of Paediatric Autism Communication Therapy for young autistic children (aged 2?10?years) in Brazil. Parents (n?=?18) of 2- to 10-year-old autistic children and clinicians (n?=?20) who work with autistic children in Brazil were interviewed and the data analysed using thematic analysis to explore their perceptions concerning the acceptability and feasibility of Paediatric Autism Communication Therapy. In addition, Paediatric Autism Communication Therapy was delivered to a case series of 15 further parent?child dyads; these parents were interviewed at the end of the therapy, and the data were analysed using thematic analysis. All parents and clinicians had favourable opinions about the acceptability, feasibility and perceived effectiveness of a parent-mediated intervention conducted mainly in the home. However, they also highlighted obstacles concerning the implementation of Paediatric Autism Communication Therapy in Brazil, especially related to engaging Brazilian parents in a parent-mediated model of therapy. Based on these data, minor adaptations were made to the original Paediatric Autism Communication Therapy protocol to facilitate the implementation of the intervention in Brazil. Lay abstract Parents of autistic children and health professionals who work with autistic children in Brazil had positive views about introducing Paediatric Autism Communication Therapy as a therapy for autistic children in Brazil. The parents and clinicians also mentioned some difficulties about using Paediatric Autism Communication Therapy in Brazil. We made adaptations to Paediatric Autism Communication Therapy to address these difficulties. Paediatric Autism Communication Therapy is a therapy to support the development of social and communication skills for autistic children aged 2?10 years. The therapy is conducted with the autistic child?s parent. Paediatric Autism Communication Therapy has not been used in Brazil before. There are few therapy options available for autistic children in Brazil and we believed that Paediatric Autism Communication Therapy may be useful. We asked three groups of people in Brazil about their views of Paediatric Autism Communication Therapy, after explaining how the therapy works. Group 1 included 18 parents of autistic children aged 2?10 years. Group 2 included 20 health professionals such as psychologists who work with autistic children. Group 3 included 15 parents of autistic children aged 2?7 years who received the Paediatric Autism Communication Therapy. We learned that parents and clinicians felt that Paediatric Autism Communication Therapy would be a beneficial therapy for autistic children in Brazil. We also found out about the challenges of using Paediatric Autism Communication Therapy in Brazil. We used these findings to make small cultural adaptations to Paediatric Autism Communication Therapy to make it more suitable for Brazil. En ligne : https://dx.doi.org/10.1177/13623613221144501 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews / Gauri DIVAN in Journal of Child Psychology and Psychiatry, 62-5 (May 2021)
[article]
Titre : Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews Type de document : Texte imprimé et/ou numérique Auteurs : Gauri DIVAN, Auteur ; Supriya BHAVNANI, Auteur ; Kathy LEADBITTER, Auteur ; Ceri ELLIS, Auteur ; Jayashree DASGUPTA, Auteur ; Amina ABUBAKAR, Auteur ; Mayada ELSABBAGH, Auteur ; Syed Usman HAMDANI, Auteur ; Chiara SERVILI, Auteur ; Vikram PATEL, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.514-535 Langues : Anglais (eng) Mots-clés : Autism detection gap low- and middle-income countries low-resource settings scoping review treatment gap Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism presents with similar prevalence and core impairments in diverse populations. We conducted a scoping review of reviews to determine key barriers and innovative strategies which can contribute to attaining universal health coverage (UHC), from early detection to effective interventions for autism in low- and middle-income countries (LAMIC). METHODS: A systematic literature search of review articles was conducted. Reviews relevant to the study research question were included if they incorporated papers from LAMIC and focused on children ( En ligne : http://dx.doi.org/10.1111/jcpp.13404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445
in Journal of Child Psychology and Psychiatry > 62-5 (May 2021) . - p.514-535[article] Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews [Texte imprimé et/ou numérique] / Gauri DIVAN, Auteur ; Supriya BHAVNANI, Auteur ; Kathy LEADBITTER, Auteur ; Ceri ELLIS, Auteur ; Jayashree DASGUPTA, Auteur ; Amina ABUBAKAR, Auteur ; Mayada ELSABBAGH, Auteur ; Syed Usman HAMDANI, Auteur ; Chiara SERVILI, Auteur ; Vikram PATEL, Auteur ; Jonathan GREEN, Auteur . - p.514-535.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 62-5 (May 2021) . - p.514-535
Mots-clés : Autism detection gap low- and middle-income countries low-resource settings scoping review treatment gap Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism presents with similar prevalence and core impairments in diverse populations. We conducted a scoping review of reviews to determine key barriers and innovative strategies which can contribute to attaining universal health coverage (UHC), from early detection to effective interventions for autism in low- and middle-income countries (LAMIC). METHODS: A systematic literature search of review articles was conducted. Reviews relevant to the study research question were included if they incorporated papers from LAMIC and focused on children ( En ligne : http://dx.doi.org/10.1111/jcpp.13404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 Anti-ableist language is fully compatible with high-quality autism research: Response to Singer et al. (2023) / Heini M. NATRI in Autism Research, 16-4 (April 2023)
Are child autism symptoms, developmental level and adaptive function associated with caregiver feelings of wellbeing and efficacy in the parenting role? / Lauren J. TAYLOR in Research in Autism Spectrum Disorders, 83 (May 2021)
[article]
Titre : Are child autism symptoms, developmental level and adaptive function associated with caregiver feelings of wellbeing and efficacy in the parenting role? Type de document : Texte imprimé et/ou numérique Auteurs : Lauren J. TAYLOR, Auteur ; Sze Y. L. LUK, Auteur ; Kathy LEADBITTER, Auteur ; Heather L. MOORE, Auteur ; Tony CHARMAN, Auteur Article en page(s) : 101738 Langues : Anglais (eng) Mots-clés : Parent Mental wellbeing Self-efficacy Child functioning Autism symptoms Index. décimale : PER Périodiques Résumé : Background Many parents of children with autism have low levels of mental wellbeing, which may be related to low self-efficacy in the parenting role. Few studies have investigated the impact that child characteristics such as autism symptoms, development and functioning have on parental wellbeing and self-efficacy. In this study, we investigated associations between parental mental wellbeing, self-efficacy and child measures of behaviour and function, for families participating in the Paediatric Autism Communication Trial-Generalised (PACT-G). Method Parents of children with autism (N = 248, aged 2–11 years) completed self-report measures of mental wellbeing and self-efficacy. We used a range of parent-report and researcher administered assessments of autism symptoms, child development, emotional and behavioural difficulties, language and adaptive skills. Nonparametric tests (Spearman’s correlations) and multiple linear regression analyses were used to examine the associations between child characteristics and parent wellbeing and parental self-efficacy. Results Parent mental wellbeing and self-efficacy were highly related. Results of bivariate analyses showed significant negative associations between parent-reported child autism symptoms and parental self-efficacy. Higher child adaptive behaviour was also associated with better parental-self-efficacy. However, in a multivariate regression model, only high parent reported autism symptoms were associated with lower parental self-efficacy. Parent wellbeing was not related to any feature of the child’s profile. Conclusion These findings indicate that parent-reported autism symptoms are associated with parental self-efficacy, and that self-efficacy may be an important secondary outcome of interventions for children with autism. En ligne : https://doi.org/10.1016/j.rasd.2021.101738 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446
in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101738[article] Are child autism symptoms, developmental level and adaptive function associated with caregiver feelings of wellbeing and efficacy in the parenting role? [Texte imprimé et/ou numérique] / Lauren J. TAYLOR, Auteur ; Sze Y. L. LUK, Auteur ; Kathy LEADBITTER, Auteur ; Heather L. MOORE, Auteur ; Tony CHARMAN, Auteur . - 101738.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101738
Mots-clés : Parent Mental wellbeing Self-efficacy Child functioning Autism symptoms Index. décimale : PER Périodiques Résumé : Background Many parents of children with autism have low levels of mental wellbeing, which may be related to low self-efficacy in the parenting role. Few studies have investigated the impact that child characteristics such as autism symptoms, development and functioning have on parental wellbeing and self-efficacy. In this study, we investigated associations between parental mental wellbeing, self-efficacy and child measures of behaviour and function, for families participating in the Paediatric Autism Communication Trial-Generalised (PACT-G). Method Parents of children with autism (N = 248, aged 2–11 years) completed self-report measures of mental wellbeing and self-efficacy. We used a range of parent-report and researcher administered assessments of autism symptoms, child development, emotional and behavioural difficulties, language and adaptive skills. Nonparametric tests (Spearman’s correlations) and multiple linear regression analyses were used to examine the associations between child characteristics and parent wellbeing and parental self-efficacy. Results Parent mental wellbeing and self-efficacy were highly related. Results of bivariate analyses showed significant negative associations between parent-reported child autism symptoms and parental self-efficacy. Higher child adaptive behaviour was also associated with better parental-self-efficacy. However, in a multivariate regression model, only high parent reported autism symptoms were associated with lower parental self-efficacy. Parent wellbeing was not related to any feature of the child’s profile. Conclusion These findings indicate that parent-reported autism symptoms are associated with parental self-efficacy, and that self-efficacy may be an important secondary outcome of interventions for children with autism. En ligne : https://doi.org/10.1016/j.rasd.2021.101738 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446 Autism Spectrum Disorder in Children Adopted After Early Care Breakdown / Jonathan GREEN in Journal of Autism and Developmental Disorders, 46-4 (April 2016)
[article]
Titre : Autism Spectrum Disorder in Children Adopted After Early Care Breakdown Type de document : Texte imprimé et/ou numérique Auteurs : Jonathan GREEN, Auteur ; Kathy LEADBITTER, Auteur ; Catherine KAY, Auteur ; Kishan SHARMA, Auteur Article en page(s) : p.1392-1402 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Adoption Neglect Maltreatment Early adversity Pre-natal adversity Index. décimale : PER Périodiques Résumé : Syndromic autism has been described in children adopted after orphanage rearing. We investigated whether the same existed in children adopted after family breakdown. Families of 54/60 adopted children aged 6–11 years (mean 102 months; SD 20; 45 % male) returned screening questionnaires for autism spectrum disorder (ASD); 21/54 (39 %) screened positive. Detailed in-person phenotyping of screen positive cases showed ASD in 6/54 (11 %), Broad ASD (sub threshold traits) in 10/54 (18.5 %); 5/54 (9 %) screened false positive. The ASD group showed impairments across both social communication and restrictive repetitive behaviour domains, Broad ASD was more mixed. These rates, much higher than population prevalence, are comparable with institutionalised samples. There are implications for developmental science, and assessment, treatment and policy for adopted children. En ligne : http://dx.doi.org/10.1007/s10803-015-2680-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284
in Journal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1392-1402[article] Autism Spectrum Disorder in Children Adopted After Early Care Breakdown [Texte imprimé et/ou numérique] / Jonathan GREEN, Auteur ; Kathy LEADBITTER, Auteur ; Catherine KAY, Auteur ; Kishan SHARMA, Auteur . - p.1392-1402.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-4 (April 2016) . - p.1392-1402
Mots-clés : Autism spectrum disorder Adoption Neglect Maltreatment Early adversity Pre-natal adversity Index. décimale : PER Périodiques Résumé : Syndromic autism has been described in children adopted after orphanage rearing. We investigated whether the same existed in children adopted after family breakdown. Families of 54/60 adopted children aged 6–11 years (mean 102 months; SD 20; 45 % male) returned screening questionnaires for autism spectrum disorder (ASD); 21/54 (39 %) screened positive. Detailed in-person phenotyping of screen positive cases showed ASD in 6/54 (11 %), Broad ASD (sub threshold traits) in 10/54 (18.5 %); 5/54 (9 %) screened false positive. The ASD group showed impairments across both social communication and restrictive repetitive behaviour domains, Broad ASD was more mixed. These rates, much higher than population prevalence, are comparable with institutionalised samples. There are implications for developmental science, and assessment, treatment and policy for adopted children. En ligne : http://dx.doi.org/10.1007/s10803-015-2680-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=284 Embracing gestalt language development as a fundamental neurodiversity-affirmative practice / Amanda HAYDOCK in Autism, 28-5 (May 2024)
Permalink"I?m not mad, bad, and dangerous ? simply wired differently": Exploring factors contributing to good quality of life with autistic women / Arianna PARICOS in Research in Autism Spectrum Disorders, 112 (April 2024)
PermalinkMediation of 6-year mid-childhood follow-up outcomes after pre-school social communication (PACT) therapy for autistic children: randomised controlled trial / Andrew PICKLES ; Tony CHARMAN ; Helen MCCONACHIE ; Ann LE COUTEUR ; Vicky SLONIMS ; Patricia HOWLIN ; Rachel COLLUM ; Erica SALOMONE ; Hannah TOBIN ; Isobel GAMMER ; Jessica MAXWELL ; Catherine ALDRED ; Jeremy PARR ; Kathy LEADBITTER ; Jonathan GREEN in Journal of Child Psychology and Psychiatry, 65-2 (February 2024)
PermalinkNeurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships / Yulin CHENG in Autism, 27-3 (April 2023)
PermalinkParent perceptions of participation in a parent-mediated communication-focussed intervention with their young child with autism spectrum disorder / Kathy LEADBITTER in Autism, 24-8 (November 2020)
PermalinkParental experience of parent-mediated intervention for children with ASD: A systematic review and qualitative evidence synthesis / Lucie JUREK in Autism, 27-3 (April 2023)
PermalinkRestricted and Repetitive Behaviors in Autism Spectrum Disorders and Typical Development: Cross-Sectional and Longitudinal Comparisons / Clare HARROP in Journal of Autism and Developmental Disorders, 44-5 (May 2014)
PermalinkService and Wider Societal Costs of Very Young Children with Autism in the UK / Barbara BARRETT in Journal of Autism and Developmental Disorders, 42-5 (May 2012)
PermalinkUsing implementation science frameworks to explore barriers and facilitators for parents' use of therapeutic strategies following a parent-mediated autism intervention / Sophie CARRUTHERS in Autism, 27-4 (May 2023)
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