Symptom Recognition to Diagnosis of Autism in Nepal / Merina SHRESTHA in Journal of Autism and Developmental Disorders, 44-6 (June 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1483-1485 Titre : Symptom Recognition to Diagnosis of Autism in Nepal Type de document : texte imprimé Auteurs : Merina SHRESTHA, Auteur ; Rena SHRESTHA, Auteur Article en page(s) : p.1483-1485 Langues : Anglais (eng) Mots-clés : Autism  Early intervention  Health seeking Index. décimale : PER Périodiques Résumé : Awareness and knowledge about autism is almost non-existent in Nepal. Children who eventually get the diagnosis often miss their opportunity for early intervention. The current study shows that medical help was seeked at mean age of 27.9 + 14.5 months and most of them were for delayed language and the first preference for parents were pediatricians. The mean age of diagnosis of autism was 55.6 months. The time length between help seeking to diagnosis was 29.4 months with longest time lag of 13 years. Delay in recognition of symptoms, delay in health seeking and lack of awareness even in treating physicians might be the reason for advanced age at diagnosis of autism in Nepal. En ligne : http://dx.doi.org/10.1007/s10803-013-2005-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 [article] Symptom Recognition to Diagnosis of Autism in Nepal [texte imprimé] / Merina SHRESTHA, Auteur ; Rena SHRESTHA, Auteur . - p.1483-1485. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1483-1485 Mots-clés : Autism  Early intervention  Health seeking Index. décimale : PER Périodiques Résumé : Awareness and knowledge about autism is almost non-existent in Nepal. Children who eventually get the diagnosis often miss their opportunity for early intervention. The current study shows that medical help was seeked at mean age of 27.9 + 14.5 months and most of them were for delayed language and the first preference for parents were pediatricians. The mean age of diagnosis of autism was 55.6 months. The time length between help seeking to diagnosis was 29.4 months with longest time lag of 13 years. Delay in recognition of symptoms, delay in health seeking and lack of awareness even in treating physicians might be the reason for advanced age at diagnosis of autism in Nepal. En ligne : http://dx.doi.org/10.1007/s10803-013-2005-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233

The Estimated Prevalence of Autism in School-Aged Children Living in Rural Nepal Using a Population-Based Screening Tool / Michelle HEYS in Journal of Autism and Developmental Disorders, 48-10 (October 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-10 (October 2018) . - p.3483-3498 Titre : The Estimated Prevalence of Autism in School-Aged Children Living in Rural Nepal Using a Population-Based Screening Tool Type de document : texte imprimé Auteurs : Michelle HEYS, Auteur ; Felicity GIBBONS, Auteur ; Ed HAWORTH, Auteur ; Emilie MEDEIROS, Auteur ; Kirti Man TUMBAHANGPHE, Auteur ; Mary WICKENDEN, Auteur ; Merina SHRESTHA, Auteur ; Anthony COSTELLO, Auteur ; Dharma MANANDHAR, Auteur ; Elizabeth PELLICANO, Auteur Année de publication : 2018 Article en page(s) : p.3483-3498 Langues : Anglais (eng) Mots-clés : Autism  Prevalence  Screening Index. décimale : PER Périodiques Résumé : Few data exist on the prevalence of autism in low-income countries. We translated, adapted and tested the acceptability of a Nepali-language version of a screening tool for autism (Autism Quotient-10). Using this tool, we estimated autism prevalence in 4098 rural Nepali children aged 9-13 years. Fourteen children scored > 6 out of 10, indicative of elevated autistic symptomatology, of which 13 also screened positive for disability. If the AQ-10 screening tool is as sensitive and specific in the Nepali population as it is in the UK, this would yield an estimated true prevalence of 3 in 1000 (95% confidence interval 2-5 in 1000). Future research is required to validate this tool through in-depth assessments of high-scoring children. En ligne : http://dx.doi.org/10.1007/s10803-018-3610-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 [article] The Estimated Prevalence of Autism in School-Aged Children Living in Rural Nepal Using a Population-Based Screening Tool [texte imprimé] / Michelle HEYS, Auteur ; Felicity GIBBONS, Auteur ; Ed HAWORTH, Auteur ; Emilie MEDEIROS, Auteur ; Kirti Man TUMBAHANGPHE, Auteur ; Mary WICKENDEN, Auteur ; Merina SHRESTHA, Auteur ; Anthony COSTELLO, Auteur ; Dharma MANANDHAR, Auteur ; Elizabeth PELLICANO, Auteur . - 2018 . - p.3483-3498. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-10 (October 2018) . - p.3483-3498 Mots-clés : Autism  Prevalence  Screening Index. décimale : PER Périodiques Résumé : Few data exist on the prevalence of autism in low-income countries. We translated, adapted and tested the acceptability of a Nepali-language version of a screening tool for autism (Autism Quotient-10). Using this tool, we estimated autism prevalence in 4098 rural Nepali children aged 9-13 years. Fourteen children scored > 6 out of 10, indicative of elevated autistic symptomatology, of which 13 also screened positive for disability. If the AQ-10 screening tool is as sensitive and specific in the Nepali population as it is in the UK, this would yield an estimated true prevalence of 3 in 1000 (95% confidence interval 2-5 in 1000). Future research is required to validate this tool through in-depth assessments of high-scoring children. En ligne : http://dx.doi.org/10.1007/s10803-018-3610-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369

Understanding parents’ and professionals’ knowledge and awareness of autism in Nepal / Michelle HEYS in Autism, 21-4 (May 2017)  

Public ISBD [article]  inAutism > 21-4 (May 2017) . - p.436-449 Titre : Understanding parents’ and professionals’ knowledge and awareness of autism in Nepal Type de document : texte imprimé Auteurs : Michelle HEYS, Auteur ; Amy ALEXANDER, Auteur ; Emilie MEDEIROS, Auteur ; Kirti M. TUMBAHANGPHE, Auteur ; Felicity GIBBONS, Auteur ; Rita SHRESTHA, Auteur ; Mangala MANANDHAR, Auteur ; Mary WICKENDEN, Auteur ; Merina SHRESTHA, Auteur ; Anthony COSTELLO, Auteur ; Dharma MANANDHAR, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : p.436-449 Langues : Anglais (eng) Mots-clés : autism  child development  focus group  low-income country  qualitative Index. décimale : PER Périodiques Résumé : Autism is a global phenomenon. Yet, there is a dearth of knowledge of how it is understood and its impact in low-income countries. We examined parents’ and professionals’ understanding of autism in one low-income country, Nepal. We conducted focus groups and semi-structured interviews with parents of autistic and non-autistic children and education and health professionals from urban and rural settings (n = 106), asking questions about typical and atypical development and presenting vignettes of children to prompt discussion. Overall, parents of typically developing children and professionals had little explicit awareness of autism. They did, however, use some distinctive terms to describe children with autism from children with other developmental conditions. Furthermore, most participants felt that environmental factors, including in-utero stressors and birth complications, parenting style and home or school environment were key causes of atypical child development and further called for greater efforts to raise awareness and build community capacity to address autism. This is the first study to show the striking lack of awareness of autism by parents and professionals alike. These results have important implications for future work in Nepal aiming both to estimate the prevalence of autism and to enhance support available for autistic children and their families. En ligne : http://dx.doi.org/10.1177/1362361316646558 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305 [article] Understanding parents’ and professionals’ knowledge and awareness of autism in Nepal [texte imprimé] / Michelle HEYS, Auteur ; Amy ALEXANDER, Auteur ; Emilie MEDEIROS, Auteur ; Kirti M. TUMBAHANGPHE, Auteur ; Felicity GIBBONS, Auteur ; Rita SHRESTHA, Auteur ; Mangala MANANDHAR, Auteur ; Mary WICKENDEN, Auteur ; Merina SHRESTHA, Auteur ; Anthony COSTELLO, Auteur ; Dharma MANANDHAR, Auteur ; Elizabeth PELLICANO, Auteur . - p.436-449. Langues : Anglais (eng) in Autism > 21-4 (May 2017) . - p.436-449 Mots-clés : autism  child development  focus group  low-income country  qualitative Index. décimale : PER Périodiques Résumé : Autism is a global phenomenon. Yet, there is a dearth of knowledge of how it is understood and its impact in low-income countries. We examined parents’ and professionals’ understanding of autism in one low-income country, Nepal. We conducted focus groups and semi-structured interviews with parents of autistic and non-autistic children and education and health professionals from urban and rural settings (n = 106), asking questions about typical and atypical development and presenting vignettes of children to prompt discussion. Overall, parents of typically developing children and professionals had little explicit awareness of autism. They did, however, use some distinctive terms to describe children with autism from children with other developmental conditions. Furthermore, most participants felt that environmental factors, including in-utero stressors and birth complications, parenting style and home or school environment were key causes of atypical child development and further called for greater efforts to raise awareness and build community capacity to address autism. This is the first study to show the striking lack of awareness of autism by parents and professionals alike. These results have important implications for future work in Nepal aiming both to estimate the prevalence of autism and to enhance support available for autistic children and their families. En ligne : http://dx.doi.org/10.1177/1362361316646558 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305

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