Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol / Renske HOEFMAN in Journal of Autism and Developmental Disorders, 44-8 (August 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-8 (August 2014) . - p.1933-1945 Titre : Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol Type de document : texte imprimé Auteurs : Renske HOEFMAN, Auteur ; Nalin PAYAKACHAT, Auteur ; Job VAN EXEL, Auteur ; Karen A. KUHLTHAU, Auteur ; Erica KOVACS, Auteur ; Jeffrey M. PYNE, Auteur ; J. Mick TILFORD, Auteur Article en page(s) : p.1933-1945 Langues : Anglais (eng) Mots-clés : Family caregiving  Subjective burden  Autism spectrum disorders (ASDs)  Quality of life  CarerQol  Construct validation Index. décimale : PER Périodiques Résumé : This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs. En ligne : http://dx.doi.org/10.1007/s10803-014-2066-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236 [article] Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol [texte imprimé] / Renske HOEFMAN, Auteur ; Nalin PAYAKACHAT, Auteur ; Job VAN EXEL, Auteur ; Karen A. KUHLTHAU, Auteur ; Erica KOVACS, Auteur ; Jeffrey M. PYNE, Auteur ; J. Mick TILFORD, Auteur . - p.1933-1945. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-8 (August 2014) . - p.1933-1945 Mots-clés : Family caregiving  Subjective burden  Autism spectrum disorders (ASDs)  Quality of life  CarerQol  Construct validation Index. décimale : PER Périodiques Résumé : This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs. En ligne : http://dx.doi.org/10.1007/s10803-014-2066-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=236

Effortful control as a moderator of the relation between contextual risk factors and growth in adjustment problems / Liliana J. LENGUA in Development and Psychopathology, 20-2 (Spring 2008)  

Public ISBD [article]  inDevelopment and Psychopathology > 20-2 (Spring 2008) . - p.509-528 Titre : Effortful control as a moderator of the relation between contextual risk factors and growth in adjustment problems Type de document : texte imprimé Auteurs : Liliana J. LENGUA, Auteur ; Anna C. LONG, Auteur ; Nicole R. BUSH, Auteur ; Erica KOVACS, Auteur ; Anika M. TRANCIK, Auteur Année de publication : 2008 Article en page(s) : p.509-528 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Effortful control was examined as a moderator of the relations of three domains of contextual risk factors to growth in internalizing and externalizing problems in a community sample (N = 189) of children (8–12 years at Time 1). Socioeconomic, maternal, and environmental risk factors were examined as predictors of initial levels and growth in children's adjustment problems across 3 years. The effects of the risk factors depended on children's level of effortful control. For children lower in effortful control, socioeconomic risk was related to significantly higher initial levels of internalizing and externalizing problems and decreases over time. However, children lower in effortful control had higher levels of problems at all three time points than children higher in effortful control. Maternal risk was associated with increases in internalizing for children lower in effortful control, and environmental risk was related to increases in internalizing and externalizing problems for children lower in effortful control, but not those higher in effortful control. Children who were lower in effortful control appeared to experience more adverse effects of contextual risk than those higher in effortful control, suggesting that interventions aimed at improving children's effortful control might serve to protect children from increased risk of adjustment problems associated with contextual risk factors. En ligne : http://dx.doi.org/10.1017/s0954579408000254 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=412 [article] Effortful control as a moderator of the relation between contextual risk factors and growth in adjustment problems [texte imprimé] / Liliana J. LENGUA, Auteur ; Anna C. LONG, Auteur ; Nicole R. BUSH, Auteur ; Erica KOVACS, Auteur ; Anika M. TRANCIK, Auteur . - 2008 . - p.509-528. Langues : Anglais (eng) in Development and Psychopathology > 20-2 (Spring 2008) . - p.509-528 Index. décimale : PER Périodiques Résumé : Effortful control was examined as a moderator of the relations of three domains of contextual risk factors to growth in internalizing and externalizing problems in a community sample (N = 189) of children (8–12 years at Time 1). Socioeconomic, maternal, and environmental risk factors were examined as predictors of initial levels and growth in children's adjustment problems across 3 years. The effects of the risk factors depended on children's level of effortful control. For children lower in effortful control, socioeconomic risk was related to significantly higher initial levels of internalizing and externalizing problems and decreases over time. However, children lower in effortful control had higher levels of problems at all three time points than children higher in effortful control. Maternal risk was associated with increases in internalizing for children lower in effortful control, and environmental risk was related to increases in internalizing and externalizing problems for children lower in effortful control, but not those higher in effortful control. Children who were lower in effortful control appeared to experience more adverse effects of contextual risk than those higher in effortful control, suggesting that interventions aimed at improving children's effortful control might serve to protect children from increased risk of adjustment problems associated with contextual risk factors. En ligne : http://dx.doi.org/10.1017/s0954579408000254 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=412

Health-related quality of life for children with ASD: Associations with behavioral characteristics / Karen A. KUHLTHAU in Research in Autism Spectrum Disorders, 7-9 (September 2013)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 7-9 (September 2013) . - p.1035-1042 Titre : Health-related quality of life for children with ASD: Associations with behavioral characteristics Type de document : texte imprimé Auteurs : Karen A. KUHLTHAU, Auteur ; Erica KOVACS, Auteur ; Trevor A. HALL, Auteur ; Traci CLEMMONS, Auteur ; Felice ORLICH, Auteur ; Jennifer DELAHAYE, Auteur ; Darryn SIKORA, Auteur Article en page(s) : p.1035-1042 Langues : Anglais (eng) Mots-clés : Health-related quality of life  Behavior Index. décimale : PER Périodiques Résumé : Abstract This paper examines health-related quality of life (HRQoL) of children age 6–11 years with an autism spectrum disorder (ASD) using the Child Health and Illness Profile – Child Edition (CHIP–CE). We further examine associations of HRQoL scores with measures of behavior using regression models. Overall HRQoL scores are lower than those for normative samples. We find that both externalizing and internalizing behaviors (measured with the Child Behavior Checklist) are correlated with HRQoL as are several of the subscales of the aberrant behavior checklist. These results suggest that some potentially modifiable aspects of ASD, in particular ASD-related and aberrant behaviors, are associated with HRQoL. These associations are suggestive of the potential for improvements in behaviors in some domains having the potential to improve HRQoL. Future studies should determine whether improvements in behaviors are associated with improvements in HRQoL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=210 [article] Health-related quality of life for children with ASD: Associations with behavioral characteristics [texte imprimé] / Karen A. KUHLTHAU, Auteur ; Erica KOVACS, Auteur ; Trevor A. HALL, Auteur ; Traci CLEMMONS, Auteur ; Felice ORLICH, Auteur ; Jennifer DELAHAYE, Auteur ; Darryn SIKORA, Auteur . - p.1035-1042. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 7-9 (September 2013) . - p.1035-1042 Mots-clés : Health-related quality of life  Behavior Index. décimale : PER Périodiques Résumé : Abstract This paper examines health-related quality of life (HRQoL) of children age 6–11 years with an autism spectrum disorder (ASD) using the Child Health and Illness Profile – Child Edition (CHIP–CE). We further examine associations of HRQoL scores with measures of behavior using regression models. Overall HRQoL scores are lower than those for normative samples. We find that both externalizing and internalizing behaviors (measured with the Child Behavior Checklist) are correlated with HRQoL as are several of the subscales of the aberrant behavior checklist. These results suggest that some potentially modifiable aspects of ASD, in particular ASD-related and aberrant behaviors, are associated with HRQoL. These associations are suggestive of the potential for improvements in behaviors in some domains having the potential to improve HRQoL. Future studies should determine whether improvements in behaviors are associated with improvements in HRQoL. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=210

Health-Related Quality of Life in Children with Autism Spectrum Disorders: Results from the Autism Treatment Network / Karen A. KUHLTHAU in Journal of Autism and Developmental Disorders, 40-6 (June 2010)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 40-6 (June 2010) . - p.721-729 Titre : Health-Related Quality of Life in Children with Autism Spectrum Disorders: Results from the Autism Treatment Network Type de document : texte imprimé Auteurs : Karen A. KUHLTHAU, Auteur ; Trevor A. HALL, Auteur ; Darryn M. SIKORA, Auteur ; Erica KOVACS, Auteur ; Felice ORLICH, Auteur ; Jennifer DELAHAYE, Auteur ; Traci E. CLEMONS, Auteur Année de publication : 2010 Article en page(s) : p.721-729 Langues : Anglais (eng) Mots-clés : Autism Quality-of-life Behavior Adaptive-behavior Index. décimale : PER Périodiques Résumé : We examined data collected as a part of the Autism Treatment Network, a group of 15 autism centers across the United States and Canada. Mean Health-Related Quality of Life (HRQoL) scores of the 286 children assessed were significantly lower than those of healthy populations (according to published norms). When compared to normative data from children with chronic conditions, children with ASD demonstrated worse HRQoL for total, psychosocial, emotional and social functioning, but did not demonstrate differing scores for physical and school functioning. HRQoL was not consistently related to ASD diagnosis or intellectual ability. However, it was consistently related to internalizing and externalizing problems as well as repetitive behaviors, social responsiveness, and adaptive behaviors. Associations among HRQoL and behavioral characteristics suggest that treatments aimed at improvements in these behaviors may improve HRQoL. En ligne : http://dx.doi.org/10.1007/s10803-009-0921-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=102 [article] Health-Related Quality of Life in Children with Autism Spectrum Disorders: Results from the Autism Treatment Network [texte imprimé] / Karen A. KUHLTHAU, Auteur ; Trevor A. HALL, Auteur ; Darryn M. SIKORA, Auteur ; Erica KOVACS, Auteur ; Felice ORLICH, Auteur ; Jennifer DELAHAYE, Auteur ; Traci E. CLEMONS, Auteur . - 2010 . - p.721-729. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 40-6 (June 2010) . - p.721-729 Mots-clés : Autism Quality-of-life Behavior Adaptive-behavior Index. décimale : PER Périodiques Résumé : We examined data collected as a part of the Autism Treatment Network, a group of 15 autism centers across the United States and Canada. Mean Health-Related Quality of Life (HRQoL) scores of the 286 children assessed were significantly lower than those of healthy populations (according to published norms). When compared to normative data from children with chronic conditions, children with ASD demonstrated worse HRQoL for total, psychosocial, emotional and social functioning, but did not demonstrate differing scores for physical and school functioning. HRQoL was not consistently related to ASD diagnosis or intellectual ability. However, it was consistently related to internalizing and externalizing problems as well as repetitive behaviors, social responsiveness, and adaptive behaviors. Associations among HRQoL and behavioral characteristics suggest that treatments aimed at improvements in these behaviors may improve HRQoL. En ligne : http://dx.doi.org/10.1007/s10803-009-0921-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=102

Predicting Health Utilities for Children With Autism Spectrum Disorders / Nalin PAYAKACHAT in Autism Research, 7-6 (December 2014)  

Public ISBD [article]  inAutism Research > 7-6 (December 2014) . - p.649-663 Titre : Predicting Health Utilities for Children With Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Nalin PAYAKACHAT, Auteur ; J. Mick TILFORD, Auteur ; Karen A. KUHLTHAU, Auteur ; N. Job VAN EXEL, Auteur ; Erica KOVACS, Auteur ; Jayne BELLANDO, Auteur ; Jeffrey M. PYNE, Auteur ; Werner B.F. BROUWER, Auteur Article en page(s) : p.649-663 Langues : Anglais (eng) Mots-clés : mapping  predictive algorithms  equating measure  autism  health utilities  clinical measure  behavioral measure  quality of life measure Index. décimale : PER Périodiques Résumé : Comparative effectiveness of interventions for children with autism spectrum disorders (ASDs) that incorporates costs is lacking due to the scarcity of information on health utility scores or preference-weighted outcomes typically used for calculating quality-adjusted life years (QALYs). This study created algorithms for mapping clinical and behavioral measures for children with ASDs to health utility scores. The algorithms could be useful for estimating the value of different interventions and treatments used in the care of children with ASDs. Participants were recruited from two Autism Treatment Network sites. Health utility data based on the Health Utilities Index Mark 3 (HUI3) for the child were obtained from the primary caregiver (proxy-reported) through a survey (N = 224). During the initial clinic visit, proxy-reported measures of the Child Behavior Checklist, Vineland II Adaptive Behavior Scales, and the Pediatric Quality of Life Inventory 4.0 (start measures) were obtained and then merged with the survey data. Nine mapping algorithms were developed using the HUI3 scores as dependent variables in ordinary least squares regressions along with the start measures, the Autism Diagnostic Observation Schedule, to measure severity, child age, and cognitive ability as independent predictors. In-sample cross-validation was conducted to evaluate predictive accuracy. Multiple imputation techniques were used for missing data. The average age for children with ASDs in this study was 8.4 (standard deviation = 3.5) years. Almost half of the children (47%) had cognitive impairment (IQ ≤ 70). Total scores for all of the outcome measures were significantly associated with the HUI3 score. The algorithms can be applied to clinical studies containing start measures of children with ASDs to predict QALYs gained from interventions. En ligne : http://dx.doi.org/10.1002/aur.1409 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=256 [article] Predicting Health Utilities for Children With Autism Spectrum Disorders [texte imprimé] / Nalin PAYAKACHAT, Auteur ; J. Mick TILFORD, Auteur ; Karen A. KUHLTHAU, Auteur ; N. Job VAN EXEL, Auteur ; Erica KOVACS, Auteur ; Jayne BELLANDO, Auteur ; Jeffrey M. PYNE, Auteur ; Werner B.F. BROUWER, Auteur . - p.649-663. Langues : Anglais (eng) in Autism Research > 7-6 (December 2014) . - p.649-663 Mots-clés : mapping  predictive algorithms  equating measure  autism  health utilities  clinical measure  behavioral measure  quality of life measure Index. décimale : PER Périodiques Résumé : Comparative effectiveness of interventions for children with autism spectrum disorders (ASDs) that incorporates costs is lacking due to the scarcity of information on health utility scores or preference-weighted outcomes typically used for calculating quality-adjusted life years (QALYs). This study created algorithms for mapping clinical and behavioral measures for children with ASDs to health utility scores. The algorithms could be useful for estimating the value of different interventions and treatments used in the care of children with ASDs. Participants were recruited from two Autism Treatment Network sites. Health utility data based on the Health Utilities Index Mark 3 (HUI3) for the child were obtained from the primary caregiver (proxy-reported) through a survey (N = 224). During the initial clinic visit, proxy-reported measures of the Child Behavior Checklist, Vineland II Adaptive Behavior Scales, and the Pediatric Quality of Life Inventory 4.0 (start measures) were obtained and then merged with the survey data. Nine mapping algorithms were developed using the HUI3 scores as dependent variables in ordinary least squares regressions along with the start measures, the Autism Diagnostic Observation Schedule, to measure severity, child age, and cognitive ability as independent predictors. In-sample cross-validation was conducted to evaluate predictive accuracy. Multiple imputation techniques were used for missing data. The average age for children with ASDs in this study was 8.4 (standard deviation = 3.5) years. Almost half of the children (47%) had cognitive impairment (IQ ≤ 70). Total scores for all of the outcome measures were significantly associated with the HUI3 score. The algorithms can be applied to clinical studies containing start measures of children with ASDs to predict QALYs gained from interventions. En ligne : http://dx.doi.org/10.1002/aur.1409 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=256

Quality of life for parents of children with autism spectrum disorders / Karen A. KUHLTHAU in Research in Autism Spectrum Disorders, 8-10 (October 2014)  

Permalink

The relationship between family functioning and behavior problems in children with autism spectrum disorders / Darryn M. SIKORA in Research in Autism Spectrum Disorders, 7-2 (February 2013)  

Permalink

The relationship between Health-Related Quality of Life and sleep problems in children with Autism Spectrum Disorders / Jennifer DELAHAYE in Research in Autism Spectrum Disorders, 8-3 (March 2014)  

Permalink

Treatment for Sleep Problems in Children with Autism and Caregiver Spillover Effects / J. Mick TILFORD in Journal of Autism and Developmental Disorders, 45-11 (November 2015)  

Permalink

---

1 (1 - 9 / 9) Par page : 25 50 100 200