Autism comes to the hospital: The experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals / Barbara MUSKAT in Autism, 19-4 (May 2015)  

Public ISBD [article]  inAutism > 19-4 (May 2015) . - p.482-490 Titre : Autism comes to the hospital: The experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals Type de document : Texte imprimé et/ou numérique Auteurs : Barbara MUSKAT, Auteur ; Priscilla BURNHAM RIOSA, Auteur ; David B NICHOLAS, Auteur ; Wendy ROBERTS, Auteur ; Kevin P. STODDART, Auteur ; Lonnie ZWAIGENBAUM, Auteur Article en page(s) : p.482-490 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Youth with autism spectrum disorder are a vulnerable, often poorly understood patient group, who may experience periodic and chronic health challenges, in addition to their primary developmental social and communication problems. Developmental and behavioural challenges can complicate management of acute health-care needs. To date, there is an absence of empirical research exploring the hospital experiences of children and youth with autism spectrum disorder, their families and their health-care providers. Therefore, the purpose of this study was to understand these experiences in order to inform hospital-based care. A total of 42 participants were interviewed (youth with autism spectrum disorder, their parents and health-care providers) at one of two Canadian paediatric hospitals, representing 20 distinct cases of patients with autism spectrum disorder. Results from the qualitative analyses indicated that patients with autism spectrum disorder faced several challenges in the context of health-care delivery in the hospital setting, as did their families and health-care provider team. Problems identified included communication and sensory challenges, and the degree of flexibility of health-care providers and the hospital organization. Supportive health-care providers were those who acknowledged parents as experts, inquired about the requirements of patients with autism spectrum disorder and implemented strategies that accommodated the unique clinical presentation of the individual patient. These recommendations have wide-reaching utility for hospital and health-care practices involving this patient group. En ligne : http://dx.doi.org/10.1177/1362361314531341 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=257 [article] Autism comes to the hospital: The experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals [Texte imprimé et/ou numérique] / Barbara MUSKAT, Auteur ; Priscilla BURNHAM RIOSA, Auteur ; David B NICHOLAS, Auteur ; Wendy ROBERTS, Auteur ; Kevin P. STODDART, Auteur ; Lonnie ZWAIGENBAUM, Auteur . - p.482-490. Langues : Anglais (eng) in Autism > 19-4 (May 2015) . - p.482-490 Index. décimale : PER Périodiques Résumé : Youth with autism spectrum disorder are a vulnerable, often poorly understood patient group, who may experience periodic and chronic health challenges, in addition to their primary developmental social and communication problems. Developmental and behavioural challenges can complicate management of acute health-care needs. To date, there is an absence of empirical research exploring the hospital experiences of children and youth with autism spectrum disorder, their families and their health-care providers. Therefore, the purpose of this study was to understand these experiences in order to inform hospital-based care. A total of 42 participants were interviewed (youth with autism spectrum disorder, their parents and health-care providers) at one of two Canadian paediatric hospitals, representing 20 distinct cases of patients with autism spectrum disorder. Results from the qualitative analyses indicated that patients with autism spectrum disorder faced several challenges in the context of health-care delivery in the hospital setting, as did their families and health-care provider team. Problems identified included communication and sensory challenges, and the degree of flexibility of health-care providers and the hospital organization. Supportive health-care providers were those who acknowledged parents as experts, inquired about the requirements of patients with autism spectrum disorder and implemented strategies that accommodated the unique clinical presentation of the individual patient. These recommendations have wide-reaching utility for hospital and health-care practices involving this patient group. En ligne : http://dx.doi.org/10.1177/1362361314531341 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=257

Brief Report of Preliminary Outcomes of an Emotion Regulation Intervention for Children with Autism Spectrum Disorder / Kendra THOMSON in Journal of Autism and Developmental Disorders, 45-11 (November 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-11 (November 2015) . - p.3487-3495 Titre : Brief Report of Preliminary Outcomes of an Emotion Regulation Intervention for Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Kendra THOMSON, Auteur ; Priscilla BURNHAM RIOSA, Auteur ; Jonathan A. WEISS, Auteur Article en page(s) : p.3487-3495 Langues : Anglais (eng) Mots-clés : Emotion regulation  Autism spectrum disorder  Cognitive behavior therapy  Intervention  Individual therapy Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) often present with comorbid psychopathology including problems with emotion regulation. The goal of the present research was to investigate the feasibility of a multicomponent manualized cognitive behavior therapy treatment program for improving emotion regulation in youth with ASD 8–12 years of age. Thirteen males and their parents participated in the intervention, reporting high satisfaction with the activities and program overall, and attending all sessions. Preliminary outcomes regarding emotion regulation and psychopathology, and feasibility of the intervention, are summarized and discussed. En ligne : http://dx.doi.org/10.1007/s10803-015-2446-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 [article] Brief Report of Preliminary Outcomes of an Emotion Regulation Intervention for Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Kendra THOMSON, Auteur ; Priscilla BURNHAM RIOSA, Auteur ; Jonathan A. WEISS, Auteur . - p.3487-3495. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-11 (November 2015) . - p.3487-3495 Mots-clés : Emotion regulation  Autism spectrum disorder  Cognitive behavior therapy  Intervention  Individual therapy Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) often present with comorbid psychopathology including problems with emotion regulation. The goal of the present research was to investigate the feasibility of a multicomponent manualized cognitive behavior therapy treatment program for improving emotion regulation in youth with ASD 8–12 years of age. Thirteen males and their parents participated in the intervention, reporting high satisfaction with the activities and program overall, and attending all sessions. Preliminary outcomes regarding emotion regulation and psychopathology, and feasibility of the intervention, are summarized and discussed. En ligne : http://dx.doi.org/10.1007/s10803-015-2446-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270

How my life is unique: Sibling perspectives of autism / Priscilla BURNHAM RIOSA in Autism, 27-6 (August 2023)  

Public ISBD [article]  inAutism > 27-6 (August 2023) . - p.1575-1587 Titre : How my life is unique: Sibling perspectives of autism Type de document : Texte imprimé et/ou numérique Auteurs : Priscilla BURNHAM RIOSA, Auteur ; Rebecca ENSOR, Auteur ; Brynn JICHICI, Auteur ; Brittany DAVY, Auteur Article en page(s) : p.1575-1587 Langues : Anglais (eng) Mots-clés : autism spectrum disorder;family;interpretative phenomenological analysis;sibling Index. décimale : PER Périodiques Résumé : The impact of autism on the family is an area of study that merits further research attention. Much of the existing literature has focused on the parent perspective, with less emphasis on the experiences of other family members, particularly non-autistic siblings. This study aimed to explore the lived experiences of a sample of nine 8- to 17-year-old non-autistic siblings of children and youth on the autism spectrum. We interviewed siblings and analysed transcripts using interpretative phenomenological analysis. Our results revealed the following Group Experiential Themes: (1) Role disparities, different expectations; (2) Connection and disconnection; and (3) Our family is (extra)ordinary. Our study findings highlight the unique and collective perspectives of siblings regarding their brother or sister on the spectrum within the broader family dynamic. We discuss the implications of these results on siblings of autistic children and youth.Lay abstractThe impact of autism on the family is an important area of study. Much of the existing literature has focused on the parent perspective, with less emphasis on the experiences of other family members, especially non-autistic siblings. This study aimed to explore the lived experiences of a sample of nine 8- to 17-year-old non-autistic siblings of children and youth on the autism spectrum. We interviewed non-autistic siblings and analysed the written transcripts. Our results revealed the following themes: (1) Role disparities, different expectations; (2) Connection and disconnection; and (3) Our family is (extra)ordinary. Our study findings highlight siblings' unique and collective perspectives regarding their brother or sister on the spectrum within the broader family unit. We discuss the implications of these results on siblings of autistic children and youth. En ligne : http://dx.doi.org/10.1177/13623613221142385 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509 [article] How my life is unique: Sibling perspectives of autism [Texte imprimé et/ou numérique] / Priscilla BURNHAM RIOSA, Auteur ; Rebecca ENSOR, Auteur ; Brynn JICHICI, Auteur ; Brittany DAVY, Auteur . - p.1575-1587. Langues : Anglais (eng) in Autism > 27-6 (August 2023) . - p.1575-1587 Mots-clés : autism spectrum disorder;family;interpretative phenomenological analysis;sibling Index. décimale : PER Périodiques Résumé : The impact of autism on the family is an area of study that merits further research attention. Much of the existing literature has focused on the parent perspective, with less emphasis on the experiences of other family members, particularly non-autistic siblings. This study aimed to explore the lived experiences of a sample of nine 8- to 17-year-old non-autistic siblings of children and youth on the autism spectrum. We interviewed siblings and analysed transcripts using interpretative phenomenological analysis. Our results revealed the following Group Experiential Themes: (1) Role disparities, different expectations; (2) Connection and disconnection; and (3) Our family is (extra)ordinary. Our study findings highlight the unique and collective perspectives of siblings regarding their brother or sister on the spectrum within the broader family dynamic. We discuss the implications of these results on siblings of autistic children and youth.Lay abstractThe impact of autism on the family is an important area of study. Much of the existing literature has focused on the parent perspective, with less emphasis on the experiences of other family members, especially non-autistic siblings. This study aimed to explore the lived experiences of a sample of nine 8- to 17-year-old non-autistic siblings of children and youth on the autism spectrum. We interviewed non-autistic siblings and analysed the written transcripts. Our results revealed the following themes: (1) Role disparities, different expectations; (2) Connection and disconnection; and (3) Our family is (extra)ordinary. Our study findings highlight siblings' unique and collective perspectives regarding their brother or sister on the spectrum within the broader family unit. We discuss the implications of these results on siblings of autistic children and youth. En ligne : http://dx.doi.org/10.1177/13623613221142385 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509

A randomized waitlist-controlled trial of cognitive behavior therapy to improve emotion regulation in children with autism / J. A. WEISS in Journal of Child Psychology and Psychiatry, 59-11 (November 2018)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 59-11 (November 2018) . - p.1180-1191 Titre : A randomized waitlist-controlled trial of cognitive behavior therapy to improve emotion regulation in children with autism Type de document : Texte imprimé et/ou numérique Auteurs : J. A. WEISS, Auteur ; K. THOMSON, Auteur ; Priscilla BURNHAM RIOSA, Auteur ; Carly ALBAUM, Auteur ; Victoria CHAN, Auteur ; A. MAUGHAN, Auteur ; Paula TABLON-MODICA, Auteur ; Karen R. BLACK, Auteur Article en page(s) : p.1180-1191 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  cognitive behavior therapy  emotion regulation  mental health  treatment Index. décimale : PER Périodiques Résumé : BACKGROUND: Mental health problems are common among individuals with autism spectrum disorder (ASD), and difficulties with emotion regulation processes may underlie these issues. Cognitive behavior therapy (CBT) is considered an efficacious treatment for anxiety in children with ASD. Additional research is needed to examine the efficacy of a transdiagnostic treatment approach, whereby the same treatment can be applied to multiple emotional problems, beyond solely anxiety. The purpose of the present study was to examine the efficacy of a manualized and individually delivered 10-session, transdiagnostic CBT intervention, aimed at improving emotion regulation and mental health difficulties in children with ASD. METHODS: Sixty-eight children (M age = 9.75, SD = 1.27) and their parents participated in the study, randomly allocated to either a treatment immediate (n = 35) or waitlist control condition (n = 33) (ISRCTN #67079741). Parent-, child-, and clinician-reported measures of emotion regulation and mental health were administered at baseline, postintervention/postwaitlist, and at 10-week follow-up. RESULTS: Children in the treatment immediate condition demonstrated significant improvements on measures of emotion regulation (i.e., emotionality, emotion regulation abilities with social skills) and aspects of psychopathology (i.e., a composite measure of internalizing and externalizing symptoms, adaptive behaviors) compared to those in the waitlist control condition. Treatment gains were maintained at follow-up. CONCLUSIONS: This study is the first transdiagnostic CBT efficacy trial for children with ASD. Additional investigations are needed to further establish its relative efficacy compared to more traditional models of CBT for children with ASD and other neurodevelopmental conditions. En ligne : http://dx.doi.org/10.1111/jcpp.12915 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] A randomized waitlist-controlled trial of cognitive behavior therapy to improve emotion regulation in children with autism [Texte imprimé et/ou numérique] / J. A. WEISS, Auteur ; K. THOMSON, Auteur ; Priscilla BURNHAM RIOSA, Auteur ; Carly ALBAUM, Auteur ; Victoria CHAN, Auteur ; A. MAUGHAN, Auteur ; Paula TABLON-MODICA, Auteur ; Karen R. BLACK, Auteur . - p.1180-1191. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 59-11 (November 2018) . - p.1180-1191 Mots-clés : Autism spectrum disorder  cognitive behavior therapy  emotion regulation  mental health  treatment Index. décimale : PER Périodiques Résumé : BACKGROUND: Mental health problems are common among individuals with autism spectrum disorder (ASD), and difficulties with emotion regulation processes may underlie these issues. Cognitive behavior therapy (CBT) is considered an efficacious treatment for anxiety in children with ASD. Additional research is needed to examine the efficacy of a transdiagnostic treatment approach, whereby the same treatment can be applied to multiple emotional problems, beyond solely anxiety. The purpose of the present study was to examine the efficacy of a manualized and individually delivered 10-session, transdiagnostic CBT intervention, aimed at improving emotion regulation and mental health difficulties in children with ASD. METHODS: Sixty-eight children (M age = 9.75, SD = 1.27) and their parents participated in the study, randomly allocated to either a treatment immediate (n = 35) or waitlist control condition (n = 33) (ISRCTN #67079741). Parent-, child-, and clinician-reported measures of emotion regulation and mental health were administered at baseline, postintervention/postwaitlist, and at 10-week follow-up. RESULTS: Children in the treatment immediate condition demonstrated significant improvements on measures of emotion regulation (i.e., emotionality, emotion regulation abilities with social skills) and aspects of psychopathology (i.e., a composite measure of internalizing and externalizing symptoms, adaptive behaviors) compared to those in the waitlist control condition. Treatment gains were maintained at follow-up. CONCLUSIONS: This study is the first transdiagnostic CBT efficacy trial for children with ASD. Additional investigations are needed to further establish its relative efficacy compared to more traditional models of CBT for children with ASD and other neurodevelopmental conditions. En ligne : http://dx.doi.org/10.1111/jcpp.12915 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Thriving in Youth with Autism Spectrum Disorder and Intellectual Disability / Jonathan A. WEISS in Journal of Autism and Developmental Disorders, 45-8 (August 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2474-2486 Titre : Thriving in Youth with Autism Spectrum Disorder and Intellectual Disability Type de document : Texte imprimé et/ou numérique Auteurs : Jonathan A. WEISS, Auteur ; Priscilla BURNHAM RIOSA, Auteur Année de publication : 2015 Article en page(s) : p.2474-2486 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Intellectual disability  Special Olympics  Thriving  Mental health  Positive psychology  Positive outcomes Index. décimale : PER Périodiques Résumé : Most research on mental health in individuals with autism spectrum disorder (ASD) and intellectual disability (ID) has focused on deficits. We examined individual (i.e., sociocommunicative skills, adaptive behavior, functional cognitive skills) and contextual (i.e., home, school, and community participation) correlates of thriving in 330 youth with ID and ASD compared to youth with ID only, 11–22 years of age (M = 16.74, SD = 2.95). Youth with ASD and ID were reported to thrive less than peers with ID only. Group differences in sociocommunicative ability and school participation mediated the relationship between ASD and less thriving. Research is needed to further elucidate a developmental-contextual framework that can inform interventions to promote mental health and wellness in individuals with ASD and ID. En ligne : http://dx.doi.org/10.1007/s10803-015-2412-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263 [article] Thriving in Youth with Autism Spectrum Disorder and Intellectual Disability [Texte imprimé et/ou numérique] / Jonathan A. WEISS, Auteur ; Priscilla BURNHAM RIOSA, Auteur . - 2015 . - p.2474-2486. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2474-2486 Mots-clés : Autism spectrum disorder  Intellectual disability  Special Olympics  Thriving  Mental health  Positive psychology  Positive outcomes Index. décimale : PER Périodiques Résumé : Most research on mental health in individuals with autism spectrum disorder (ASD) and intellectual disability (ID) has focused on deficits. We examined individual (i.e., sociocommunicative skills, adaptive behavior, functional cognitive skills) and contextual (i.e., home, school, and community participation) correlates of thriving in 330 youth with ID and ASD compared to youth with ID only, 11–22 years of age (M = 16.74, SD = 2.95). Youth with ASD and ID were reported to thrive less than peers with ID only. Group differences in sociocommunicative ability and school participation mediated the relationship between ASD and less thriving. Research is needed to further elucidate a developmental-contextual framework that can inform interventions to promote mental health and wellness in individuals with ASD and ID. En ligne : http://dx.doi.org/10.1007/s10803-015-2412-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263

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