Feedback from Individuals on the Autism Spectrum about the Experience & Outcome of Education / Emma GOODALL

Public ISBD in The SAGE Handbook of Autism and Education / Rita JORDAN Titre : Feedback from Individuals on the Autism Spectrum about the Experience & Outcome of Education Type de document : Texte imprimé et/ou numérique Auteurs : Emma GOODALL, Auteur Année de publication : 2019 Importance : p.558-561 Langues : Anglais (eng) Index. décimale : APP-D APP-D - Interventions Educatives - Généralités Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=417 in The SAGE Handbook of Autism and Education / Rita JORDAN Feedback from Individuals on the Autism Spectrum about the Experience & Outcome of Education [Texte imprimé et/ou numérique] / Emma GOODALL, Auteur . - 2019 . - p.558-561. Langues : Anglais (eng) Index. décimale : APP-D APP-D - Interventions Educatives - Généralités Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=417

Exemplaires

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'I?m sick of being the problem': Autistic mothers' experiences of interacting with schools for their autistic children / Aspasia Stacey RABBA in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1034-1046 Titre : 'I?m sick of being the problem': Autistic mothers' experiences of interacting with schools for their autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Aspasia Stacey RABBA, Auteur ; Jodie SMITH, Auteur ; Gabrielle HALL, Auteur ; Vanessa ALEXANDER, Auteur ; Kate BATTY, Auteur ; Poulomee DATTA, Auteur ; Emma GOODALL, Auteur ; Melanie HEYWORTH, Auteur ; Siobhan LAMB, Auteur ; Wenn LAWSON, Auteur ; Rozanna LILLEY, Auteur ; Katy REID, Auteur ; Najeeba SYEDA, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : p.1034-1046 Langues : Anglais (eng) Mots-clés : autistic parents  autistic students  parent-teacher partnerships  participatory research  school experiences Index. décimale : PER Périodiques Résumé : Successful partnerships between families and schools can substantially improve children?s success in and out of school. Yet parents of autistic children often report considerable challenges with their children?s education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences of autistic parents' interactions with schools for their autistic children. We conducted semi-structured interviews with 31 autistic mothers of autistic children engaged in education in Australia. We analysed the data using reflexive thematic analysis. Autistic mothers repeatedly expressed feeling like they were in a 'war zone', fighting ongoing battles to gain the necessary support for their autistic child and were 'sick of being [viewed as] the problem'. They also felt that their expertise as parents - and experiential expertise as autistic parents - was often overlooked or ignored. All of this had negative effects on their and their children?s mental health. Despite these negative experiences, autistic mothers who had experienced positive interactions with schools highlighted the importance of mutual respect in establishing and maintaining successful school partnerships and how their own determination and self-advocacy helped to foster these relationships. This research sheds light on the critical ingredients of effective home-school partnerships for autistic families.Lay abstract Good relationships between families and schools make a difference to children?s learning - and the same goes for autistic children. But parents of autistic children often find it very stressful interacting with teachers and school staff. In this study, we focused on autistic parents of autistic children. We wanted to know about their experiences of interacting with schools and the impact these had on them and their children. We spoke to 31 autistic mothers of autistic children about their experiences. They told us that they felt they were constantly fighting with schools to get the support needed for their autistic children and compared it to like being in a 'war zone'. They were 'sick of being [viewed as] the problem' and felt that their views and autistic expertise were not taken seriously by teachers and schools. This was damaging to their autistic children?s mental health as well as their own. Autistic mothers did share some positive experiences too. They spoke about the value of mutual respect and its impact on successful school partnerships. Autistic mothers also spoke about standing up for themselves and their children and how this advocacy and self-advocacy helped them to build better relationships with schools. This research showed how difficult it can be for autistic families to interact with teachers and schools and the impact this can have on the whole family. It also showed us that strong, trusting relationships between school and families are possible - when autistic parents feel safe, and when their knowledge and lived experience are taken seriously by educators. En ligne : https://dx.doi.org/10.1177/13623613241297223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] 'I?m sick of being the problem': Autistic mothers' experiences of interacting with schools for their autistic children [Texte imprimé et/ou numérique] / Aspasia Stacey RABBA, Auteur ; Jodie SMITH, Auteur ; Gabrielle HALL, Auteur ; Vanessa ALEXANDER, Auteur ; Kate BATTY, Auteur ; Poulomee DATTA, Auteur ; Emma GOODALL, Auteur ; Melanie HEYWORTH, Auteur ; Siobhan LAMB, Auteur ; Wenn LAWSON, Auteur ; Rozanna LILLEY, Auteur ; Katy REID, Auteur ; Najeeba SYEDA, Auteur ; Elizabeth PELLICANO, Auteur . - p.1034-1046. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1034-1046 Mots-clés : autistic parents  autistic students  parent-teacher partnerships  participatory research  school experiences Index. décimale : PER Périodiques Résumé : Successful partnerships between families and schools can substantially improve children?s success in and out of school. Yet parents of autistic children often report considerable challenges with their children?s education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences of autistic parents' interactions with schools for their autistic children. We conducted semi-structured interviews with 31 autistic mothers of autistic children engaged in education in Australia. We analysed the data using reflexive thematic analysis. Autistic mothers repeatedly expressed feeling like they were in a 'war zone', fighting ongoing battles to gain the necessary support for their autistic child and were 'sick of being [viewed as] the problem'. They also felt that their expertise as parents - and experiential expertise as autistic parents - was often overlooked or ignored. All of this had negative effects on their and their children?s mental health. Despite these negative experiences, autistic mothers who had experienced positive interactions with schools highlighted the importance of mutual respect in establishing and maintaining successful school partnerships and how their own determination and self-advocacy helped to foster these relationships. This research sheds light on the critical ingredients of effective home-school partnerships for autistic families.Lay abstract Good relationships between families and schools make a difference to children?s learning - and the same goes for autistic children. But parents of autistic children often find it very stressful interacting with teachers and school staff. In this study, we focused on autistic parents of autistic children. We wanted to know about their experiences of interacting with schools and the impact these had on them and their children. We spoke to 31 autistic mothers of autistic children about their experiences. They told us that they felt they were constantly fighting with schools to get the support needed for their autistic children and compared it to like being in a 'war zone'. They were 'sick of being [viewed as] the problem' and felt that their views and autistic expertise were not taken seriously by teachers and schools. This was damaging to their autistic children?s mental health as well as their own. Autistic mothers did share some positive experiences too. They spoke about the value of mutual respect and its impact on successful school partnerships. Autistic mothers also spoke about standing up for themselves and their children and how this advocacy and self-advocacy helped them to build better relationships with schools. This research showed how difficult it can be for autistic families to interact with teachers and schools and the impact this can have on the whole family. It also showed us that strong, trusting relationships between school and families are possible - when autistic parents feel safe, and when their knowledge and lived experience are taken seriously by educators. En ligne : https://dx.doi.org/10.1177/13623613241297223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Non-pharmacological interventions for autistic children: An umbrella review / David TREMBATH in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.275-295 Titre : Non-pharmacological interventions for autistic children: An umbrella review Type de document : Texte imprimé et/ou numérique Auteurs : David TREMBATH, Auteur ; Kandice J. VARCIN, Auteur ; Hannah WADDINGTON, Auteur ; Rhylee SULEK, Auteur ; Cathy BENT, Auteur ; Jill ASHBURNER, Auteur ; Valsamma EAPEN, Auteur ; Emma GOODALL, Auteur ; Kristelle HUDRY, Auteur ; Jacqueline ROBERTS, Auteur ; Natalie SILOVE, Auteur ; Andrew J. O. WHITEHOUSE, Auteur Article en page(s) : p.275-295 Langues : Anglais (eng) Mots-clés : autism  evidence  intervention  non-pharmacological  review Index. décimale : PER Périodiques Résumé : The breadth of available non-pharmacological interventions for autistic children, with varying evidence for efficacy summarised in multiple systematic reviews, creates challenges for parents, practitioners, and policymakers in navigating the research evidence. In this article, we report the findings of an umbrella review of 58 systematic reviews of non-pharmacological interventions for autistic children (aged 0 “12 years). Positive therapeutic effects were identified for Behavioural interventions, Developmental interventions, Naturalistic Developmental Behavioural Interventions, Technology-based interventions, and Cognitive Behaviour Therapy across several child and family outcomes. Positive effects for certain practices within Sensory-based interventions and ˜other’ interventions were limited to select child and family outcomes. Both inconsistent and null intervention effects were found for Treatment and Education of Autistic and related Communication-handicapped Children, and Animal-assisted interventions across outcomes. The possible influence of child (chronological age, core autism characteristics, and related skills) and delivery (agent, mode, format, and amount) characteristics on intervention effects was rarely examined, and inconsistent where reported. Twenty-seven systematic reviews (47%) were rated as ˜high’ quality. Few systematic reviews examined children’s participation and quality of life or adverse effects. The findings highlight the need for individualised evidence-based decision-making when selecting interventions for autistic children. En ligne : http://dx.doi.org/10.1177/13623613221119368 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Non-pharmacological interventions for autistic children: An umbrella review [Texte imprimé et/ou numérique] / David TREMBATH, Auteur ; Kandice J. VARCIN, Auteur ; Hannah WADDINGTON, Auteur ; Rhylee SULEK, Auteur ; Cathy BENT, Auteur ; Jill ASHBURNER, Auteur ; Valsamma EAPEN, Auteur ; Emma GOODALL, Auteur ; Kristelle HUDRY, Auteur ; Jacqueline ROBERTS, Auteur ; Natalie SILOVE, Auteur ; Andrew J. O. WHITEHOUSE, Auteur . - p.275-295. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.275-295 Mots-clés : autism  evidence  intervention  non-pharmacological  review Index. décimale : PER Périodiques Résumé : The breadth of available non-pharmacological interventions for autistic children, with varying evidence for efficacy summarised in multiple systematic reviews, creates challenges for parents, practitioners, and policymakers in navigating the research evidence. In this article, we report the findings of an umbrella review of 58 systematic reviews of non-pharmacological interventions for autistic children (aged 0 “12 years). Positive therapeutic effects were identified for Behavioural interventions, Developmental interventions, Naturalistic Developmental Behavioural Interventions, Technology-based interventions, and Cognitive Behaviour Therapy across several child and family outcomes. Positive effects for certain practices within Sensory-based interventions and ˜other’ interventions were limited to select child and family outcomes. Both inconsistent and null intervention effects were found for Treatment and Education of Autistic and related Communication-handicapped Children, and Animal-assisted interventions across outcomes. The possible influence of child (chronological age, core autism characteristics, and related skills) and delivery (agent, mode, format, and amount) characteristics on intervention effects was rarely examined, and inconsistent where reported. Twenty-seven systematic reviews (47%) were rated as ˜high’ quality. Few systematic reviews examined children’s participation and quality of life or adverse effects. The findings highlight the need for individualised evidence-based decision-making when selecting interventions for autistic children. En ligne : http://dx.doi.org/10.1177/13623613221119368 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

The Autistic Trans Guide to Life / Yenn PURKIS

Public ISBD Titre : The Autistic Trans Guide to Life Type de document : Texte imprimé et/ou numérique Auteurs : Yenn PURKIS, Auteur ; Wenn LAWSON, Auteur ; Emma GOODALL, Préfacier, etc. Editeur : Londres [Angleterre] : Jessica Kingsley Publishers Année de publication : 2021 Importance : 208 p. Format : 13,5 cm × 21,5 cm × 1,5 cm ISBN/ISSN/EAN : 978-1-78775-391-4 Note générale : Bibliogr., Index Langues : Anglais (eng) Index. décimale : ASP-C ASP-C - Asperger - Affectivité - Sexualité Résumé : This essential survival guide gives autistic trans and/or non-binary adults all the tools and strategies they need to live as their very best self. Blending personal accounts with evidence-based insights and up-to-date information, and written from a perspective of empowerment and self-acceptance, the book promotes pride, strength and authenticity, covering topics including self-advocacy, mental health and camouflaging and masking as well as key moments in life such as coming out or transitioning socially and/or physically. Written by two leading autistic trans activists, this book honestly charts what life is like as an autistic trans person and is vital, life-affirming reading. [Résumé d'Auteur/Editeur] Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=532 The Autistic Trans Guide to Life [Texte imprimé et/ou numérique] / Yenn PURKIS, Auteur ; Wenn LAWSON, Auteur ; Emma GOODALL, Préfacier, etc. . - Londres [Angleterre] : Jessica Kingsley Publishers, 2021 . - 208 p. ; 13,5 cm × 21,5 cm × 1,5 cm. ISBN : 978-1-78775-391-4 Bibliogr., Index Langues : Anglais (eng) Index. décimale : ASP-C ASP-C - Asperger - Affectivité - Sexualité Résumé : This essential survival guide gives autistic trans and/or non-binary adults all the tools and strategies they need to live as their very best self. Blending personal accounts with evidence-based insights and up-to-date information, and written from a perspective of empowerment and self-acceptance, the book promotes pride, strength and authenticity, covering topics including self-advocacy, mental health and camouflaging and masking as well as key moments in life such as coming out or transitioning socially and/or physically. Written by two leading autistic trans activists, this book honestly charts what life is like as an autistic trans person and is vital, life-affirming reading. [Résumé d'Auteur/Editeur] Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=532

Exemplaires (1)

Code-barres	Cote	Support	Localisation	Section	Disponibilité
DOC0007309	ASP-C PUR	Livre	Centre d'Information et de Documentation du CRA Rhône-Alpes	ASP - Syndrome d'Asperger - Autisme de haut niveau	Disponible

Les abonnés qui ont emprunté ce document ont également emprunté :

Le trouble de déficit de l'attention chez l'adulte	MOULTON SARKIS, Stephanie
Connecting With Your Asperger Partner	WESTON, Louise
Autistics' Guide to Dating	RAMEY, Emilia Murry

Towards an Agenda for Research for Lesbian, Gay, Bisexual, Transgendered and/or Intersexed People with an Autism Spectrum Diagnosis / Matthew BENNETT in Journal of Autism and Developmental Disorders, 46-9 (September 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-9 (September 2016) . - p.3190-3192 Titre : Towards an Agenda for Research for Lesbian, Gay, Bisexual, Transgendered and/or Intersexed People with an Autism Spectrum Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Matthew BENNETT, Auteur ; Emma GOODALL, Auteur Article en page(s) : p.3190-3192 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-016-2844-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292 [article] Towards an Agenda for Research for Lesbian, Gay, Bisexual, Transgendered and/or Intersexed People with an Autism Spectrum Diagnosis [Texte imprimé et/ou numérique] / Matthew BENNETT, Auteur ; Emma GOODALL, Auteur . - p.3190-3192. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-9 (September 2016) . - p.3190-3192 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-016-2844-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292

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