Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child / Jake MEADS in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2411-2417 Titre : Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child Type de document : Texte imprimé et/ou numérique Auteurs : Jake MEADS, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur Article en page(s) : p.2411-2417 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The current study was a secondary analysis of cross-sectional data collected in New Zealand. Parents (n = 291) of an autistic child completed an online survey that included temporal/demographic questions relating to the parent and child, and parent ratings of the child?s core ASD symptoms, their parenting stress, and psychological well-being. Child and parent ages were related to ASD core symptoms, parenting stress, and psychological well-being, the parent-child age gap was not. Diagnostic delay was only positively associated with parent depression and negatively associated with child communication impairment. Findings indicated that temporal variables can be predictive of parent well-being and child autism symptoms. The findings suggest that focusing interventions on communication abilities may have positive impacts parental mental health. En ligne : https://doi.org/10.1007/s10803-022-05642-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Brief Report: Investigating Temporal Factors in the Context of Parenting an Autistic Child [Texte imprimé et/ou numérique] / Jake MEADS, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur . - p.2411-2417. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2411-2417 Index. décimale : PER Périodiques Résumé : The current study was a secondary analysis of cross-sectional data collected in New Zealand. Parents (n = 291) of an autistic child completed an online survey that included temporal/demographic questions relating to the parent and child, and parent ratings of the child?s core ASD symptoms, their parenting stress, and psychological well-being. Child and parent ages were related to ASD core symptoms, parenting stress, and psychological well-being, the parent-child age gap was not. Diagnostic delay was only positively associated with parent depression and negatively associated with child communication impairment. Findings indicated that temporal variables can be predictive of parent well-being and child autism symptoms. The findings suggest that focusing interventions on communication abilities may have positive impacts parental mental health. En ligne : https://doi.org/10.1007/s10803-022-05642-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Brief Report: Training New Zealand Well Child/Tamariki Ora Nurses on Early Autism Signs Using the Social Attention and Communication Surveillance-Revised / Hannah WADDINGTON in Journal of Autism and Developmental Disorders, 52-11 (November 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.5050-5057 Titre : Brief Report: Training New Zealand Well Child/Tamariki Ora Nurses on Early Autism Signs Using the Social Attention and Communication Surveillance-Revised Type de document : Texte imprimé et/ou numérique Auteurs : Hannah WADDINGTON, Auteur ; Daniel SHEPHERD, Auteur ; Larah VAN DER MEER, Auteur ; Naomi POWELL-HECTOR, Auteur ; Eleanor WILSON, Auteur ; Josephine BARBARO, Auteur Article en page(s) : p.5050-5057 Langues : Anglais (eng) Mots-clés : Attention  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Clinical Competence  Communication  Humans  New Zealand  Autism spectrum disorder  Developmental surveillance  Early detection  Early identification  Knowledge Index. décimale : PER Périodiques Résumé : Universal developmental surveillance is considered best practice for early identification of autism. We analysed data from 175 New Zealand Well-Child/Tamariki Ora nurses who attended a 1-day training in developmental surveillance for autism using the social attention and communication surveillance-revised (SACS-R) tool. We used a survey to measure nurses' knowledge of typical development, knowledge of early signs of autism, general autism knowledge, and confidence in identifying and discussing early signs, prior to the workshop, after the workshop, and at follow-up. We measured perceived acceptability of the SACS-R after the workshop and at follow-up. Nurses showed improvements on all measures from pre-workshop to post-workshop and pre-workshop to follow-up. Implementation of the SACS-R across different contexts appears feasible and acceptable. En ligne : http://dx.doi.org/10.1007/s10803-021-05344-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Brief Report: Training New Zealand Well Child/Tamariki Ora Nurses on Early Autism Signs Using the Social Attention and Communication Surveillance-Revised [Texte imprimé et/ou numérique] / Hannah WADDINGTON, Auteur ; Daniel SHEPHERD, Auteur ; Larah VAN DER MEER, Auteur ; Naomi POWELL-HECTOR, Auteur ; Eleanor WILSON, Auteur ; Josephine BARBARO, Auteur . - p.5050-5057. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.5050-5057 Mots-clés : Attention  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Clinical Competence  Communication  Humans  New Zealand  Autism spectrum disorder  Developmental surveillance  Early detection  Early identification  Knowledge Index. décimale : PER Périodiques Résumé : Universal developmental surveillance is considered best practice for early identification of autism. We analysed data from 175 New Zealand Well-Child/Tamariki Ora nurses who attended a 1-day training in developmental surveillance for autism using the social attention and communication surveillance-revised (SACS-R) tool. We used a survey to measure nurses' knowledge of typical development, knowledge of early signs of autism, general autism knowledge, and confidence in identifying and discussing early signs, prior to the workshop, after the workshop, and at follow-up. We measured perceived acceptability of the SACS-R after the workshop and at follow-up. Nurses showed improvements on all measures from pre-workshop to post-workshop and pre-workshop to follow-up. Implementation of the SACS-R across different contexts appears feasible and acceptable. En ligne : http://dx.doi.org/10.1007/s10803-021-05344-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Commentary on: Towards a neurodiversity-affirmative conceptualisation of psycho-education in the context of autism / Daniel SHEPHERD in Research in Autism Spectrum Disorders, 119 (January 2025)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 119 (January 2025) . - p.102517 Titre : Commentary on: Towards a neurodiversity-affirmative conceptualisation of psycho-education in the context of autism Type de document : Texte imprimé et/ou numérique Auteurs : Daniel SHEPHERD, Auteur Article en page(s) : p.102517 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102517 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545 [article] Commentary on: Towards a neurodiversity-affirmative conceptualisation of psycho-education in the context of autism [Texte imprimé et/ou numérique] / Daniel SHEPHERD, Auteur . - p.102517. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 119 (January 2025) . - p.102517 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102517 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545

How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism / Sonja GOEDEKE in Research in Autism Spectrum Disorders, 60 (April 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 60 (April 2019) . - p.36-47 Titre : How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism Type de document : Texte imprimé et/ou numérique Auteurs : Sonja GOEDEKE, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Steve TAYLOR, Auteur Article en page(s) : p.36-47 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Perceived support  Care-related stress  ASD symptoms Index. décimale : PER Périodiques Résumé : Background Caring for a child with autism spectrum disorder (ASD) may be stressful and subsequently affect parents’ ability to manage their child’s symptoms. In this research, we explore the effects of perceived levels of support on parents’ care-related stress and on ASD symptoms. Method Participants (n?=?585) completed an online survey which included ratings of support (partner, family, friend, professionals), how they perceived their child’s symptoms, their care-related stress, and ratings of their child’s interventions. Results Results indicate that parents perceive partners and families as providing greater support than friends and professionals. However, perceptions of family support decrease with both parent and child age. Perceived family support did not appear to influence parents’ perceptions of their child’s symptoms, although partner support moderated the relationship between particular symptom subsets and care-related stress. Professional support was related to a decrease in care-related stress levels. Finally, some sources of support were associated with perceived effectiveness and stress reduction in relation to specific interventions. Conclusions Partners and family provide an important support role for parents yet may need education and support to assist them in this role on an ongoing basis. Understanding how professionals can better support parents in their caregiving role is also important. En ligne : https://doi.org/10.1016/j.rasd.2019.01.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387 [article] How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism [Texte imprimé et/ou numérique] / Sonja GOEDEKE, Auteur ; Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Steve TAYLOR, Auteur . - p.36-47. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 60 (April 2019) . - p.36-47 Mots-clés : Autism spectrum disorders  Perceived support  Care-related stress  ASD symptoms Index. décimale : PER Périodiques Résumé : Background Caring for a child with autism spectrum disorder (ASD) may be stressful and subsequently affect parents’ ability to manage their child’s symptoms. In this research, we explore the effects of perceived levels of support on parents’ care-related stress and on ASD symptoms. Method Participants (n?=?585) completed an online survey which included ratings of support (partner, family, friend, professionals), how they perceived their child’s symptoms, their care-related stress, and ratings of their child’s interventions. Results Results indicate that parents perceive partners and families as providing greater support than friends and professionals. However, perceptions of family support decrease with both parent and child age. Perceived family support did not appear to influence parents’ perceptions of their child’s symptoms, although partner support moderated the relationship between particular symptom subsets and care-related stress. Professional support was related to a decrease in care-related stress levels. Finally, some sources of support were associated with perceived effectiveness and stress reduction in relation to specific interventions. Conclusions Partners and family provide an important support role for parents yet may need education and support to assist them in this role on an ongoing basis. Understanding how professionals can better support parents in their caregiving role is also important. En ligne : https://doi.org/10.1016/j.rasd.2019.01.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=387

Parents’ assessments of their child’s autism-related interventions / Daniel SHEPHERD in Research in Autism Spectrum Disorders, 50 (June 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 50 (June 2018) . - p.1-10 Titre : Parents’ assessments of their child’s autism-related interventions Type de document : Texte imprimé et/ou numérique Auteurs : Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur ; Rita CSAKO, Auteur Année de publication : 2018 Article en page(s) : p.1-10 Langues : Anglais (eng) Mots-clés : Parent report  Autism spectrum disorder  Intervention effectiveness  Parenting stress Index. décimale : PER Périodiques Résumé : Background Interventions for autism spectrum disorders (ASD) are typically evaluated on the basis of symptom-focused outcome measures. These measures tend to be clinician rated and derived in clinical studies, whilst broader parental experiences are often neglected. Method Here we report a study of 585 parents of children diagnosed with ASD, focusing on their assessments of their child’s ASD Interventions, and how they are perceived to impact parental stress. Results Overall, high proportions of parents reported disengagement with treatment. The highest completion rates were evident with speech-language therapy, and the lowest with intensive applied behaviour analysis (iABA). However, parents reported the highest expectations, satisfaction and stress reduction with iABA. These paradoxical findings are perhaps due to the relative cost and lack of funding directed towards iABA. Conclusions Our research suggests that parental expectations and the factors influencing them are worthy of further investigation. More pertinently, parental ratings of intervention effectiveness along with current intervention engagement are a vital and often overlooked component of understanding the effects of interventions on children with ASD and their families. En ligne : https://doi.org/10.1016/j.rasd.2018.02.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=356 [article] Parents’ assessments of their child’s autism-related interventions [Texte imprimé et/ou numérique] / Daniel SHEPHERD, Auteur ; Jason LANDON, Auteur ; Sonja GOEDEKE, Auteur ; Kelly TY, Auteur ; Rita CSAKO, Auteur . - 2018 . - p.1-10. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 50 (June 2018) . - p.1-10 Mots-clés : Parent report  Autism spectrum disorder  Intervention effectiveness  Parenting stress Index. décimale : PER Périodiques Résumé : Background Interventions for autism spectrum disorders (ASD) are typically evaluated on the basis of symptom-focused outcome measures. These measures tend to be clinician rated and derived in clinical studies, whilst broader parental experiences are often neglected. Method Here we report a study of 585 parents of children diagnosed with ASD, focusing on their assessments of their child’s ASD Interventions, and how they are perceived to impact parental stress. Results Overall, high proportions of parents reported disengagement with treatment. The highest completion rates were evident with speech-language therapy, and the lowest with intensive applied behaviour analysis (iABA). However, parents reported the highest expectations, satisfaction and stress reduction with iABA. These paradoxical findings are perhaps due to the relative cost and lack of funding directed towards iABA. Conclusions Our research suggests that parental expectations and the factors influencing them are worthy of further investigation. More pertinently, parental ratings of intervention effectiveness along with current intervention engagement are a vital and often overlooked component of understanding the effects of interventions on children with ASD and their families. En ligne : https://doi.org/10.1016/j.rasd.2018.02.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=356

A qualitative study of noise sensitivity in adults with autism spectrum disorder / Jason LANDON in Research in Autism Spectrum Disorders, 32 (December 2016)  

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The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

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The Types and Functions of Social Supports Used by Parents Caring for a Child With Autism Spectrum Disorder / Daniel SHEPHERD in Journal of Autism and Developmental Disorders, 50-4 (April 2020)  

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