Autism Spectrum Disorders Discourse on Social Media Platforms: A Topic Modeling Study of Reddit Posts / Seraphina FONG in Autism Research, 18-8 (August 2025)  

Public ISBD [article]  inAutism Research > 18-8 (August 2025) . - p.1608-1619 Titre : Autism Spectrum Disorders Discourse on Social Media Platforms: A Topic Modeling Study of Reddit Posts Type de document : texte imprimé Auteurs : Seraphina FONG, Auteur ; Alessandro CAROLLO, Auteur ; Giacomo VIVANTI, Auteur ; Daniel S. MESSINGER, Auteur ; Dagmara DIMITRIOU, Auteur ; Gianluca ESPOSITO, Auteur Article en page(s) : p.1608-1619 Langues : Anglais (eng) Mots-clés : autism  autism spectrum disorders  BERTopic  natural language processing  neurodevelopmental conditions  social media  social networking sites  topic modeling Index. décimale : PER Périodiques Résumé : ABSTRACT Social media platforms play a crucial role in shaping public perceptions of neurodevelopmental conditions, such as autism spectrum disorders, by providing spaces for community interaction and content sharing. These platforms hold the potential to foster connections and support among autistic individuals while offering valuable insights into their personal experiences and diverse perspectives. However, knowledge is limited on autism-related content shared within Reddit, one of the most prominent social media outlets. In this study, we aimed to examine discussions and narratives shared on Reddit about autism, with the dual objectives of identifying the main topics of discussion and exploring the lived experiences of autistic individuals. To achieve this, we utilized state-of-the-art natural language processing techniques to perform a topic modeling analysis on 740,042 autism-related posts collected from Reddit. Converging themes emerged when comparing the largest and most general subreddit in the dataset (r/autism) with 15 additional autism-related subreddits. The most prominent topics of discussion included challenges in social relationships, behaviors such as stimming, and sensory sensitivities. Additional themes highlighted specific emotional experiences and practical concerns, such as managing a diagnosis, navigating intervention options, and coping with daily life. These findings were organized and discussed in relation to social communication differences and restricted, repetitive behaviors, which are frequently highlighted in discussions about autism. At the same time, we acknowledge the perspective of autistic communities, which view these traits as differences rather than deficits, with many challenges arising from societal expectations and the pressure to mask neurodivergent traits. Together, the results provide a comprehensive overview of the most common topics discussed within autism-related social media content and offer valuable insights into the lived experiences and motivations for social media engagement among autistic individuals. En ligne : https://doi.org/10.1002/aur.70066 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] Autism Spectrum Disorders Discourse on Social Media Platforms: A Topic Modeling Study of Reddit Posts [texte imprimé] / Seraphina FONG, Auteur ; Alessandro CAROLLO, Auteur ; Giacomo VIVANTI, Auteur ; Daniel S. MESSINGER, Auteur ; Dagmara DIMITRIOU, Auteur ; Gianluca ESPOSITO, Auteur . - p.1608-1619. Langues : Anglais (eng) in Autism Research > 18-8 (August 2025) . - p.1608-1619 Mots-clés : autism  autism spectrum disorders  BERTopic  natural language processing  neurodevelopmental conditions  social media  social networking sites  topic modeling Index. décimale : PER Périodiques Résumé : ABSTRACT Social media platforms play a crucial role in shaping public perceptions of neurodevelopmental conditions, such as autism spectrum disorders, by providing spaces for community interaction and content sharing. These platforms hold the potential to foster connections and support among autistic individuals while offering valuable insights into their personal experiences and diverse perspectives. However, knowledge is limited on autism-related content shared within Reddit, one of the most prominent social media outlets. In this study, we aimed to examine discussions and narratives shared on Reddit about autism, with the dual objectives of identifying the main topics of discussion and exploring the lived experiences of autistic individuals. To achieve this, we utilized state-of-the-art natural language processing techniques to perform a topic modeling analysis on 740,042 autism-related posts collected from Reddit. Converging themes emerged when comparing the largest and most general subreddit in the dataset (r/autism) with 15 additional autism-related subreddits. The most prominent topics of discussion included challenges in social relationships, behaviors such as stimming, and sensory sensitivities. Additional themes highlighted specific emotional experiences and practical concerns, such as managing a diagnosis, navigating intervention options, and coping with daily life. These findings were organized and discussed in relation to social communication differences and restricted, repetitive behaviors, which are frequently highlighted in discussions about autism. At the same time, we acknowledge the perspective of autistic communities, which view these traits as differences rather than deficits, with many challenges arising from societal expectations and the pressure to mask neurodivergent traits. Together, the results provide a comprehensive overview of the most common topics discussed within autism-related social media content and offer valuable insights into the lived experiences and motivations for social media engagement among autistic individuals. En ligne : https://doi.org/10.1002/aur.70066 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

Maximizing the Quality and Reporting Standards of Autism Intervention Science / Shannon LAPOINT in Autism Research, 18-11 (November 2025)  

Public ISBD [article]  inAutism Research > 18-11 (November 2025) . - p.2166-2173 Titre : Maximizing the Quality and Reporting Standards of Autism Intervention Science Type de document : texte imprimé Auteurs : Shannon LAPOINT, Auteur ; Claire Brito KLEIN, Auteur ; Micheal SANDBANK, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur ; Sue FLETCHER-WATSON, Auteur ; Gauri DIVAN, Auteur ; Dagmara DIMITRIOU, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Mette Elmose ANDERSEN, Auteur ; Amanda BINNS, Auteur ; Tony CHARMAN, Auteur ; Jasper A. ESTABILLO, Auteur ; Stephanie M. FECTEAU, Auteur ; Anna FERRARI, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Lauren H. HAMPTON, Auteur ; Sabri HERGUNER, Auteur ; Emily S. KUSCHNER, Auteur ; Jia Ying Sarah LEE, Auteur ; Julie SEGERS, Auteur ; Deanna SWAIN, Auteur ; Sarah VEJNOSKA, Auteur ; Giacomo VIVANTI, Auteur ; Chongying WANG, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.2166-2173 Langues : Anglais (eng) Mots-clés : autism  INSAR  intervention  reporting standards  special interest group  trial Index. décimale : PER Périodiques Résumé : ABSTRACT Although there are clear international standards for intervention science and reporting in healthcare, implementation and uptake have been limited within autism intervention research. To address this concern, a Special Interest Group (SIG) was convened at the International Society for Autism Research (INSAR) Annual Meetings in May 2023 and May 2024. This SIG comprised members of the autistic community, senior clinical scientists, clinicians, advanced researchers, and early career researchers, who discussed and debated quality standards for autism intervention trials. This commentary summarizes relevant literature highlighted by SIG panelists and recommendations generated from small breakout groups and larger group discussions with SIG attendees. We recommend that all journals publishing autism intervention findings, especially autism-focused journals, institute mandatory reporting practices (e.g., trial registration, protocol, analysis plan) to facilitate transparency and rigorous autism intervention science, as well as related education initiatives in support of this goal. Findings from the SIG offer practical, actionable recommendations that we advocate be systematically adopted across autism-focused journals. En ligne : https://doi.org/10.1002/aur.70126 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571 [article] Maximizing the Quality and Reporting Standards of Autism Intervention Science [texte imprimé] / Shannon LAPOINT, Auteur ; Claire Brito KLEIN, Auteur ; Micheal SANDBANK, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur ; Sue FLETCHER-WATSON, Auteur ; Gauri DIVAN, Auteur ; Dagmara DIMITRIOU, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Mette Elmose ANDERSEN, Auteur ; Amanda BINNS, Auteur ; Tony CHARMAN, Auteur ; Jasper A. ESTABILLO, Auteur ; Stephanie M. FECTEAU, Auteur ; Anna FERRARI, Auteur ; Marie-Maude GEOFFRAY, Auteur ; Lauren H. HAMPTON, Auteur ; Sabri HERGUNER, Auteur ; Emily S. KUSCHNER, Auteur ; Jia Ying Sarah LEE, Auteur ; Julie SEGERS, Auteur ; Deanna SWAIN, Auteur ; Sarah VEJNOSKA, Auteur ; Giacomo VIVANTI, Auteur ; Chongying WANG, Auteur ; Jonathan GREEN, Auteur . - p.2166-2173. Langues : Anglais (eng) in Autism Research > 18-11 (November 2025) . - p.2166-2173 Mots-clés : autism  INSAR  intervention  reporting standards  special interest group  trial Index. décimale : PER Périodiques Résumé : ABSTRACT Although there are clear international standards for intervention science and reporting in healthcare, implementation and uptake have been limited within autism intervention research. To address this concern, a Special Interest Group (SIG) was convened at the International Society for Autism Research (INSAR) Annual Meetings in May 2023 and May 2024. This SIG comprised members of the autistic community, senior clinical scientists, clinicians, advanced researchers, and early career researchers, who discussed and debated quality standards for autism intervention trials. This commentary summarizes relevant literature highlighted by SIG panelists and recommendations generated from small breakout groups and larger group discussions with SIG attendees. We recommend that all journals publishing autism intervention findings, especially autism-focused journals, institute mandatory reporting practices (e.g., trial registration, protocol, analysis plan) to facilitate transparency and rigorous autism intervention science, as well as related education initiatives in support of this goal. Findings from the SIG offer practical, actionable recommendations that we advocate be systematically adopted across autism-focused journals. En ligne : https://doi.org/10.1002/aur.70126 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=571

A scientometric analysis investigating melatonin and cortisol in the context of sleep in autism / Alessandro CAROLLO ; Gianluca ESPOSITO ; Stephen MANGAR ; Dagmara DIMITRIOU in Research in Autism, 127 (September 2025)  

Public ISBD [article]  inResearch in Autism > 127 (September 2025) . - p.202664 Titre : A scientometric analysis investigating melatonin and cortisol in the context of sleep in autism Type de document : texte imprimé Auteurs : Alessandro CAROLLO, Auteur ; Gianluca ESPOSITO, Auteur ; Stephen MANGAR, Auteur ; Dagmara DIMITRIOU, Auteur Article en page(s) : p.202664 Langues : Anglais (eng) Mots-clés : Autism  ASD  Sleep  Cortisol  Melatonin Index. décimale : PER Périodiques En ligne : https://doi.org/10.1016/j.reia.2025.202664 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567 [article] A scientometric analysis investigating melatonin and cortisol in the context of sleep in autism [texte imprimé] / Alessandro CAROLLO, Auteur ; Gianluca ESPOSITO, Auteur ; Stephen MANGAR, Auteur ; Dagmara DIMITRIOU, Auteur . - p.202664. Langues : Anglais (eng) in Research in Autism > 127 (September 2025) . - p.202664 Mots-clés : Autism  ASD  Sleep  Cortisol  Melatonin Index. décimale : PER Périodiques En ligne : https://doi.org/10.1016/j.reia.2025.202664 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567

Simple Mindreading Abilities Predict Complex Theory of Mind: Developmental Delay in Autism Spectrum Disorders / Maria Chiara PINO in Journal of Autism and Developmental Disorders, 47-9 (September 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-9 (September 2017) . - p.2743-2756 Titre : Simple Mindreading Abilities Predict Complex Theory of Mind: Developmental Delay in Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Maria Chiara PINO, Auteur ; Monica MAZZA, Auteur ; Melania MARIANO, Auteur ; Sara PERETTI, Auteur ; Dagmara DIMITRIOU, Auteur ; Francesco MASEDU, Auteur ; Marco VALENTI, Auteur ; Fabia FRANCO, Auteur Article en page(s) : p.2743-2756 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders (ASD)  Developmental trajectories approach  Eyes task Comic strip test (CST)  Theory of mind (ToM) Index. décimale : PER Périodiques Résumé : Theory of mind (ToM) is impaired in individuals with autism spectrum disorders (ASD). The aims of this study were to: (i) examine the developmental trajectories of ToM abilities in two different mentalizing tasks in children with ASD compared to TD children; and (ii) to assess if a ToM simple test known as eyes-test could predict performance on the more advanced ToM task, i.e. comic strip test. Based on a sample of 37 children with ASD and 55 TD children, our results revealed slower development at varying rates in all ToM measures in children with ASD, with delayed onset compared to TD children. These results could stimulate new treatments for social abilities, which would lessen the social deficit in ASD. En ligne : https://doi.org/10.1007/s10803-017-3194-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=315 [article] Simple Mindreading Abilities Predict Complex Theory of Mind: Developmental Delay in Autism Spectrum Disorders [texte imprimé] / Maria Chiara PINO, Auteur ; Monica MAZZA, Auteur ; Melania MARIANO, Auteur ; Sara PERETTI, Auteur ; Dagmara DIMITRIOU, Auteur ; Francesco MASEDU, Auteur ; Marco VALENTI, Auteur ; Fabia FRANCO, Auteur . - p.2743-2756. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-9 (September 2017) . - p.2743-2756 Mots-clés : Autism spectrum disorders (ASD)  Developmental trajectories approach  Eyes task Comic strip test (CST)  Theory of mind (ToM) Index. décimale : PER Périodiques Résumé : Theory of mind (ToM) is impaired in individuals with autism spectrum disorders (ASD). The aims of this study were to: (i) examine the developmental trajectories of ToM abilities in two different mentalizing tasks in children with ASD compared to TD children; and (ii) to assess if a ToM simple test known as eyes-test could predict performance on the more advanced ToM task, i.e. comic strip test. Based on a sample of 37 children with ASD and 55 TD children, our results revealed slower development at varying rates in all ToM measures in children with ASD, with delayed onset compared to TD children. These results could stimulate new treatments for social abilities, which would lessen the social deficit in ASD. En ligne : https://doi.org/10.1007/s10803-017-3194-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=315

The treatment of sleep problems in autistic adults in the United Kingdom / Elizabeth HALSTEAD in Autism, 25-8 (November 2021)  

Public ISBD [article]  inAutism > 25-8 (November 2021) . - p.2412-2417 Titre : The treatment of sleep problems in autistic adults in the United Kingdom Type de document : texte imprimé Auteurs : Elizabeth HALSTEAD, Auteur ; Emma SULLIVAN, Auteur ; Zoe ZAMBELLI, Auteur ; Jason G. ELLIS, Auteur ; Dagmara DIMITRIOU, Auteur Article en page(s) : p.2412-2417 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder/complications/therapy  Humans  Quality of Life  Sleep Wake Disorders/therapy  United Kingdom  autism spectrum disorders  health services  melatonin  sleep Index. décimale : PER Périodiques Résumé : Sleep problems are one of the most common complaints by autistic adults. This study aimed to report the perspectives of autistic adults on treatment of their sleep problems; 288 autistic adults living in the United Kingdom completed an online survey which assessed their sleep quality. We also gathered data on experiences and preferences of sleep treatment with UK healthcare professionals and their experiences of self-management of their sleep; 58% of autistic adults never had a visit with a healthcare professional regarding their sleep problem, despite 90% meeting the criteria for poor sleep quality. Some of those who attended a consultation for their sleep were prescribed medication (72%), but 60% were not satisfied with the outcome. The participants also reported that sleep self-management was not effective (80%); 41% reported a preference for non-medication including education, advice and talking therapies for sleep treatment. This report highlights the need for a fundamental shift in treatment of sleep problems in autistic adults. The current treatments are not resolving sleep issues; hence, it is imperative to develop management strategies that considers autistic adults' preferences, reduces sleep problems and thus improves quality of life for autistic adults. En ligne : http://dx.doi.org/10.1177/13623613211007226 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] The treatment of sleep problems in autistic adults in the United Kingdom [texte imprimé] / Elizabeth HALSTEAD, Auteur ; Emma SULLIVAN, Auteur ; Zoe ZAMBELLI, Auteur ; Jason G. ELLIS, Auteur ; Dagmara DIMITRIOU, Auteur . - p.2412-2417. Langues : Anglais (eng) in Autism > 25-8 (November 2021) . - p.2412-2417 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder/complications/therapy  Humans  Quality of Life  Sleep Wake Disorders/therapy  United Kingdom  autism spectrum disorders  health services  melatonin  sleep Index. décimale : PER Périodiques Résumé : Sleep problems are one of the most common complaints by autistic adults. This study aimed to report the perspectives of autistic adults on treatment of their sleep problems; 288 autistic adults living in the United Kingdom completed an online survey which assessed their sleep quality. We also gathered data on experiences and preferences of sleep treatment with UK healthcare professionals and their experiences of self-management of their sleep; 58% of autistic adults never had a visit with a healthcare professional regarding their sleep problem, despite 90% meeting the criteria for poor sleep quality. Some of those who attended a consultation for their sleep were prescribed medication (72%), but 60% were not satisfied with the outcome. The participants also reported that sleep self-management was not effective (80%); 41% reported a preference for non-medication including education, advice and talking therapies for sleep treatment. This report highlights the need for a fundamental shift in treatment of sleep problems in autistic adults. The current treatments are not resolving sleep issues; hence, it is imperative to develop management strategies that considers autistic adults' preferences, reduces sleep problems and thus improves quality of life for autistic adults. En ligne : http://dx.doi.org/10.1177/13623613211007226 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

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