Adult Siblings Who Have a Brother or Sister with Autism: Between-Family and Within-Family Variations in Sibling Relationships / G. I. ORSMOND in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4090-4102 Titre : Adult Siblings Who Have a Brother or Sister with Autism: Between-Family and Within-Family Variations in Sibling Relationships Type de document : Texte imprimé et/ou numérique Auteurs : G. I. ORSMOND, Auteur ; D. FULFORD, Auteur Article en page(s) : p.4090-4102 Langues : Anglais (eng) Mots-clés : Adulthood  Autism spectrum disorder  Sibling relationship Index. décimale : PER Périodiques Résumé : Prior research on the sibling relationship in the context of autism spectrum disorder (ASD) has included only one sibling per family. We used multi-level modeling to examine aspects of the sibling relationship in 207 adults who have a brother or sister with ASD from 125 families, investigating variability in sibling relationship quality and pessimism within and between families. We found that there was greater variability in aspects of the sibling relationship with the brother or sister with ASD within families than between families. Sibling individual-level factors were associated with positive affect in the sibling relationship, while family-level factors were associated with the sibling's pessimism about their brother or sister's future. The findings illustrate the unique experiences of siblings within families. En ligne : http://dx.doi.org/10.1007/s10803-018-3669-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] Adult Siblings Who Have a Brother or Sister with Autism: Between-Family and Within-Family Variations in Sibling Relationships [Texte imprimé et/ou numérique] / G. I. ORSMOND, Auteur ; D. FULFORD, Auteur . - p.4090-4102. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4090-4102 Mots-clés : Adulthood  Autism spectrum disorder  Sibling relationship Index. décimale : PER Périodiques Résumé : Prior research on the sibling relationship in the context of autism spectrum disorder (ASD) has included only one sibling per family. We used multi-level modeling to examine aspects of the sibling relationship in 207 adults who have a brother or sister with ASD from 125 families, investigating variability in sibling relationship quality and pessimism within and between families. We found that there was greater variability in aspects of the sibling relationship with the brother or sister with ASD within families than between families. Sibling individual-level factors were associated with positive affect in the sibling relationship, while family-level factors were associated with the sibling's pessimism about their brother or sister's future. The findings illustrate the unique experiences of siblings within families. En ligne : http://dx.doi.org/10.1007/s10803-018-3669-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

Parents' future visions for their autistic transition-age youth: Hopes and expectations / J. CHEN in Autism, 23-6 (August 2019)  

Public ISBD [article]  inAutism > 23-6 (August 2019) . - p.1363-1372 Titre : Parents' future visions for their autistic transition-age youth: Hopes and expectations Type de document : Texte imprimé et/ou numérique Auteurs : J. CHEN, Auteur ; E. S. COHN, Auteur ; G. I. ORSMOND, Auteur Article en page(s) : p.1363-1372 Langues : Anglais (eng) Mots-clés : adolescent  autism  hope  parent  transition Index. décimale : PER Périodiques Résumé : Researchers have documented that young adults with autism spectrum disorder have poor outcomes in employment, post-secondary education, social participation, independent living, and community participation. There is a need to further explore contributing factors to such outcomes to better support successful transitions to adulthood. Parents play a critical role in transition planning, and parental expectations appear to impact young adult outcomes for autistic individuals. The aim of this study was to explore how parents express their future visions (i.e. hopes and expectations) for their autistic transition-age youth. Data were collected through focus groups and individual interviews with 18 parents. Parents' hopes and expectations focused on eight primary domains. In addition, parents often qualified or tempered their stated hope with expressions of fears, uncertainty, realistic expectations, and the perceived lack of guidance. We discuss our conceptualization of the relations among these themes and implications for service providers and research. En ligne : http://dx.doi.org/10.1177/1362361318812141 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Parents' future visions for their autistic transition-age youth: Hopes and expectations [Texte imprimé et/ou numérique] / J. CHEN, Auteur ; E. S. COHN, Auteur ; G. I. ORSMOND, Auteur . - p.1363-1372. Langues : Anglais (eng) in Autism > 23-6 (August 2019) . - p.1363-1372 Mots-clés : adolescent  autism  hope  parent  transition Index. décimale : PER Périodiques Résumé : Researchers have documented that young adults with autism spectrum disorder have poor outcomes in employment, post-secondary education, social participation, independent living, and community participation. There is a need to further explore contributing factors to such outcomes to better support successful transitions to adulthood. Parents play a critical role in transition planning, and parental expectations appear to impact young adult outcomes for autistic individuals. The aim of this study was to explore how parents express their future visions (i.e. hopes and expectations) for their autistic transition-age youth. Data were collected through focus groups and individual interviews with 18 parents. Parents' hopes and expectations focused on eight primary domains. In addition, parents often qualified or tempered their stated hope with expressions of fears, uncertainty, realistic expectations, and the perceived lack of guidance. We discuss our conceptualization of the relations among these themes and implications for service providers and research. En ligne : http://dx.doi.org/10.1177/1362361318812141 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

The Sisters' Advantage? Broader Autism Phenotype Characteristics and Young Adults' Sibling Support / A. C. JENSEN in Journal of Autism and Developmental Disorders, 49-10 (October 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4256-4267 Titre : The Sisters' Advantage? Broader Autism Phenotype Characteristics and Young Adults' Sibling Support Type de document : Texte imprimé et/ou numérique Auteurs : A. C. JENSEN, Auteur ; G. I. ORSMOND, Auteur Article en page(s) : p.4256-4267 Langues : Anglais (eng) Mots-clés : Broader autism phenotype  Multi-level model  Siblings  Support  Within family  Young adulthood Index. décimale : PER Périodiques Résumé : Siblings often oversee the well-being of an adult with autism spectrum disorder (ASD). The current study contributes to the literature by examining correlates of support provided to siblings in young adulthood in the context of the broader autism phenotype (BAP). Young adults (n = 866; Mage = 25.43, SD = 2.54; 55% female) reported on support provided to and the BAP characteristics of 1198 different siblings (Mage = 28.56, SD = 8.87; 50% female). Findings showed that young adults provided more emotional and practical support to sisters that they perceived to be higher in BAP characteristics. These findings suggest that sisters who have characteristics associated with ASD may be at an advantage in receiving support. En ligne : http://dx.doi.org/10.1007/s10803-019-04139-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] The Sisters' Advantage? Broader Autism Phenotype Characteristics and Young Adults' Sibling Support [Texte imprimé et/ou numérique] / A. C. JENSEN, Auteur ; G. I. ORSMOND, Auteur . - p.4256-4267. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-10 (October 2019) . - p.4256-4267 Mots-clés : Broader autism phenotype  Multi-level model  Siblings  Support  Within family  Young adulthood Index. décimale : PER Périodiques Résumé : Siblings often oversee the well-being of an adult with autism spectrum disorder (ASD). The current study contributes to the literature by examining correlates of support provided to siblings in young adulthood in the context of the broader autism phenotype (BAP). Young adults (n = 866; Mage = 25.43, SD = 2.54; 55% female) reported on support provided to and the BAP characteristics of 1198 different siblings (Mage = 28.56, SD = 8.87; 50% female). Findings showed that young adults provided more emotional and practical support to sisters that they perceived to be higher in BAP characteristics. These findings suggest that sisters who have characteristics associated with ASD may be at an advantage in receiving support. En ligne : http://dx.doi.org/10.1007/s10803-019-04139-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

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