ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder / Micah O MAZUREK in Autism, 24-3 (April 2020)  

Public ISBD [article]  inAutism > 24-3 (April 2020) . - p.633-644 Titre : ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Micah O MAZUREK, Auteur ; Gary STOBBE, Auteur ; Rachel LOFTIN, Auteur ; Beth A. MALOW, Auteur ; Mavara M. AGRAWAL, Auteur ; Mark TAPIA, Auteur ; Amy HESS, Auteur ; Justin FARMER, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Karen A. KUHLTHAU, Auteur ; Kristin SOHL, Auteur Article en page(s) : p.633-644 Langues : Anglais (eng) Mots-clés : adolescents  adults  autism spectrum disorders  health services  medical comorbidity  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice. En ligne : http://dx.doi.org/10.1177/1362361319879616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 [article] ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Micah O MAZUREK, Auteur ; Gary STOBBE, Auteur ; Rachel LOFTIN, Auteur ; Beth A. MALOW, Auteur ; Mavara M. AGRAWAL, Auteur ; Mark TAPIA, Auteur ; Amy HESS, Auteur ; Justin FARMER, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Karen A. KUHLTHAU, Auteur ; Kristin SOHL, Auteur . - p.633-644. Langues : Anglais (eng) in Autism > 24-3 (April 2020) . - p.633-644 Mots-clés : adolescents  adults  autism spectrum disorders  health services  medical comorbidity  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice. En ligne : http://dx.doi.org/10.1177/1362361319879616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422

Self-determination in young adults with autism spectrum disorder / Nancy C. CHEAK-ZAMORA in Autism, 24-3 (April 2020)  

Public ISBD [article]  inAutism > 24-3 (April 2020) . - p.605-616 Titre : Self-determination in young adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Nancy C. CHEAK-ZAMORA, Auteur ; Anna MAURER-BATJER, Auteur ; Beth A. MALOW, Auteur ; Ann COLEMAN, Auteur Article en page(s) : p.605-616 Langues : Anglais (eng) Mots-clés : autism  independence  self-determination  transition  young adults Index. décimale : PER Périodiques Résumé : This study examined rates of and contributing factors to self-determination among young adults with autism spectrum disorder. Caregivers of young adults with autism spectrum disorder, 16-25 years, from five Autism Treatment Network sites completed surveys about their young adults' transition experiences including the American Institutes for Research Self-Determination measure. Data were analyzed using univariate and multivariate analysis. Caregivers (n = 479) reported their young adults with autism spectrum disorder as having moderate overall self-determination (x = 38; standard deviation = 9.04) with low capacity (x = 15.3; standard deviation = 5.67) and high opportunities at home (x = 23.1; standard deviation = 4.59). Young adults with autism spectrum disorder with intellectual disability or severe autism spectrum disorder symptomology experience significant disparities in overall self-determination compared to those without intellectual disability and less frequent symptom expression and severity. Barring severity indicators, there were few significant predictors of self-determination. Findings show a breakdown in self-determination skill-building. Young adults with autism spectrum disorder with intellectual disability or severe symptomology experienced significant disparities in self-determination. These findings show that current promotion of self-determination is not meeting the needs of young adults with autism spectrum disorder. Future interventions must identify what supports young adults with autism spectrum disorder need to capitalize on these opportunities to be independent and exert autonomy in their daily lives. En ligne : http://dx.doi.org/10.1177/1362361319877329 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 [article] Self-determination in young adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Nancy C. CHEAK-ZAMORA, Auteur ; Anna MAURER-BATJER, Auteur ; Beth A. MALOW, Auteur ; Ann COLEMAN, Auteur . - p.605-616. Langues : Anglais (eng) in Autism > 24-3 (April 2020) . - p.605-616 Mots-clés : autism  independence  self-determination  transition  young adults Index. décimale : PER Périodiques Résumé : This study examined rates of and contributing factors to self-determination among young adults with autism spectrum disorder. Caregivers of young adults with autism spectrum disorder, 16-25 years, from five Autism Treatment Network sites completed surveys about their young adults' transition experiences including the American Institutes for Research Self-Determination measure. Data were analyzed using univariate and multivariate analysis. Caregivers (n = 479) reported their young adults with autism spectrum disorder as having moderate overall self-determination (x = 38; standard deviation = 9.04) with low capacity (x = 15.3; standard deviation = 5.67) and high opportunities at home (x = 23.1; standard deviation = 4.59). Young adults with autism spectrum disorder with intellectual disability or severe autism spectrum disorder symptomology experience significant disparities in overall self-determination compared to those without intellectual disability and less frequent symptom expression and severity. Barring severity indicators, there were few significant predictors of self-determination. Findings show a breakdown in self-determination skill-building. Young adults with autism spectrum disorder with intellectual disability or severe symptomology experienced significant disparities in self-determination. These findings show that current promotion of self-determination is not meeting the needs of young adults with autism spectrum disorder. Future interventions must identify what supports young adults with autism spectrum disorder need to capitalize on these opportunities to be independent and exert autonomy in their daily lives. En ligne : http://dx.doi.org/10.1177/1362361319877329 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422

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