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Auteur Kristin SOHL |
Documents disponibles écrits par cet auteur (7)
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ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults / Beth A. MALOW in Autism Research, 16-8 (August 2023)
[article]
Titre : ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Beth A. MALOW, Auteur ; Micah MAZUREK, Auteur ; Gary STOBBE, Auteur ; Mavara M. AGRAWAL, Auteur ; Rachel LOFTIN, Auteur ; David CAUDEL, Auteur ; Amy HESS, Auteur ; Alexander WESTPHAL, Auteur ; Joshua SMITH, Auteur ; Janet SHOUSE, Auteur ; Nancy CHEAK-ZAMORA, Auteur ; Kristin SOHL, Auteur Article en page(s) : p.1619-1629 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Autistic adults experience significant unmet healthcare needs, with opportunities for improvement in both the systems and the practitioners who serve this population. Primary care physicians/practitioners (PCPs) are a natural choice to provide comprehensive care to autistic adults but often lack experience in serving this population. This pilot study developed and tested an Extension for Community Healthcare Outcomes (ECHO) Autism model adapted from our previous work, focused specifically on training PCPs in best-practice care for autistic adults. The project was informed directly by the perspectives and preferences of autistic adults, caregivers, and PCPs. Two consecutive cohorts of PCPs participated in ECHO Autism Adult Healthcare sessions. Each cohort met 1?h twice a month for 6?months, with 37 PCPs (n=20 in Cohort 1, and n=17 in Cohort 2) participating. Based on findings from the first cohort, adjustments were made to refine the session preparation, curriculum, conduct of the ECHO, resources, and evaluation. After participation in the ECHO Autism program, PCP self-efficacy and satisfaction improved, while the number of perceived barriers did not change. Knowledge did not improve significantly in Cohort 1, but after adjustments to the training model, participants in Cohort 2 showed significant knowledge gains. While attention to systems of care is critical to addressing barriers in healthcare in the autistic population, the ECHO Autism Adult Healthcare model is feasible and holds promise for improving PCP satisfaction and self-efficacy in working with autistic adults. En ligne : https://doi.org/10.1002/aur.2996 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510
in Autism Research > 16-8 (August 2023) . - p.1619-1629[article] ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults [Texte imprimé et/ou numérique] / Beth A. MALOW, Auteur ; Micah MAZUREK, Auteur ; Gary STOBBE, Auteur ; Mavara M. AGRAWAL, Auteur ; Rachel LOFTIN, Auteur ; David CAUDEL, Auteur ; Amy HESS, Auteur ; Alexander WESTPHAL, Auteur ; Joshua SMITH, Auteur ; Janet SHOUSE, Auteur ; Nancy CHEAK-ZAMORA, Auteur ; Kristin SOHL, Auteur . - p.1619-1629.
Langues : Anglais (eng)
in Autism Research > 16-8 (August 2023) . - p.1619-1629
Index. décimale : PER Périodiques Résumé : Abstract Autistic adults experience significant unmet healthcare needs, with opportunities for improvement in both the systems and the practitioners who serve this population. Primary care physicians/practitioners (PCPs) are a natural choice to provide comprehensive care to autistic adults but often lack experience in serving this population. This pilot study developed and tested an Extension for Community Healthcare Outcomes (ECHO) Autism model adapted from our previous work, focused specifically on training PCPs in best-practice care for autistic adults. The project was informed directly by the perspectives and preferences of autistic adults, caregivers, and PCPs. Two consecutive cohorts of PCPs participated in ECHO Autism Adult Healthcare sessions. Each cohort met 1?h twice a month for 6?months, with 37 PCPs (n=20 in Cohort 1, and n=17 in Cohort 2) participating. Based on findings from the first cohort, adjustments were made to refine the session preparation, curriculum, conduct of the ECHO, resources, and evaluation. After participation in the ECHO Autism program, PCP self-efficacy and satisfaction improved, while the number of perceived barriers did not change. Knowledge did not improve significantly in Cohort 1, but after adjustments to the training model, participants in Cohort 2 showed significant knowledge gains. While attention to systems of care is critical to addressing barriers in healthcare in the autistic population, the ECHO Autism Adult Healthcare model is feasible and holds promise for improving PCP satisfaction and self-efficacy in working with autistic adults. En ligne : https://doi.org/10.1002/aur.2996 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder / Micah O MAZUREK in Autism, 24-3 (April 2020)
[article]
Titre : ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Micah O MAZUREK, Auteur ; Gary STOBBE, Auteur ; Rachel LOFTIN, Auteur ; Beth A. MALOW, Auteur ; Mavara M. AGRAWAL, Auteur ; Mark TAPIA, Auteur ; Amy HESS, Auteur ; Justin FARMER, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Karen A. KUHLTHAU, Auteur ; Kristin SOHL, Auteur Article en page(s) : p.633-644 Langues : Anglais (eng) Mots-clés : adolescents adults autism spectrum disorders health services medical comorbidity psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice. En ligne : http://dx.doi.org/10.1177/1362361319879616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422
in Autism > 24-3 (April 2020) . - p.633-644[article] ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder [Texte imprimé et/ou numérique] / Micah O MAZUREK, Auteur ; Gary STOBBE, Auteur ; Rachel LOFTIN, Auteur ; Beth A. MALOW, Auteur ; Mavara M. AGRAWAL, Auteur ; Mark TAPIA, Auteur ; Amy HESS, Auteur ; Justin FARMER, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Karen A. KUHLTHAU, Auteur ; Kristin SOHL, Auteur . - p.633-644.
Langues : Anglais (eng)
in Autism > 24-3 (April 2020) . - p.633-644
Mots-clés : adolescents adults autism spectrum disorders health services medical comorbidity psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice. En ligne : http://dx.doi.org/10.1177/1362361319879616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 Evaluating Autism diagnosis agreement between primary care physicians/practitioners and experts through ECHO Autism STAT / Rachel BROWN ; Valeria NANCLARES-NOGUÉS ; Melinda ODUM ; Amanda BARRETT ; Micah O. MAZUREK ; Kristin SOHL in Research in Autism Spectrum Disorders, 109 (November 2023)
[article]
Titre : Evaluating Autism diagnosis agreement between primary care physicians/practitioners and experts through ECHO Autism STAT Type de document : Texte imprimé et/ou numérique Auteurs : Rachel BROWN, Auteur ; Valeria NANCLARES-NOGUÉS, Auteur ; Melinda ODUM, Auteur ; Amanda BARRETT, Auteur ; Micah O. MAZUREK, Auteur ; Kristin SOHL, Auteur Article en page(s) : 102276 Langues : Anglais (eng) Mots-clés : Autism Autism spectrum disorder Primary care provider Diagnosis ECHO Autism Index. décimale : PER Périodiques Résumé : Background Even though early intervention leads to improved outcomes for children with autism spectrum disorder (ASD), delays in diagnosis can have an impact on both children and families. ASD diagnostic practices have significantly evolved over time, in part, because of the lack of specialists to meet the demand. ECHO Autism STAT is one innovative model that increased the capacity of community primary care providers (PCPs) to reliably diagnose ASD within their own practices via hands-on training and virtual guidance and support from ASD specialists. The current study evaluated PCPs agreement with ECHO Autism experts in making independent clinical decisions related to ASD diagnosis in unambiguous cases. Method After obtaining reliability on the STAT and attending 6 mo of ECHO Autism sessions, PCPs agreement with expert impressions was evaluated for (a) diagnosing unambiguous ASD and (b) identifying symptoms that met DSM-5 criteria. Results The proportion of cases that achieved the highest PCP agreement score with ASD experts for overall ASD diagnostic impressions was 90% across all cases, 94% across unambiguous cases, and 84% across more complex cases. PCP agreement for DSM-5 symptom impressions was 79%, 87%, and 66% across all, unambiguous, and more complex cases, respectively. Results were significant for unambiguous cases when compared to more complex cases. Conclusions PCPs can develop clinical expertise in the evaluation and diagnosis of young children with unambiguous ASD that is accurate and reliable. Development of this expertise can expand access for community-based diagnosis that is critical for early detection of ASD. En ligne : https://doi.org/10.1016/j.rasd.2023.102276 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517
in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102276[article] Evaluating Autism diagnosis agreement between primary care physicians/practitioners and experts through ECHO Autism STAT [Texte imprimé et/ou numérique] / Rachel BROWN, Auteur ; Valeria NANCLARES-NOGUÉS, Auteur ; Melinda ODUM, Auteur ; Amanda BARRETT, Auteur ; Micah O. MAZUREK, Auteur ; Kristin SOHL, Auteur . - 102276.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 109 (November 2023) . - 102276
Mots-clés : Autism Autism spectrum disorder Primary care provider Diagnosis ECHO Autism Index. décimale : PER Périodiques Résumé : Background Even though early intervention leads to improved outcomes for children with autism spectrum disorder (ASD), delays in diagnosis can have an impact on both children and families. ASD diagnostic practices have significantly evolved over time, in part, because of the lack of specialists to meet the demand. ECHO Autism STAT is one innovative model that increased the capacity of community primary care providers (PCPs) to reliably diagnose ASD within their own practices via hands-on training and virtual guidance and support from ASD specialists. The current study evaluated PCPs agreement with ECHO Autism experts in making independent clinical decisions related to ASD diagnosis in unambiguous cases. Method After obtaining reliability on the STAT and attending 6 mo of ECHO Autism sessions, PCPs agreement with expert impressions was evaluated for (a) diagnosing unambiguous ASD and (b) identifying symptoms that met DSM-5 criteria. Results The proportion of cases that achieved the highest PCP agreement score with ASD experts for overall ASD diagnostic impressions was 90% across all cases, 94% across unambiguous cases, and 84% across more complex cases. PCP agreement for DSM-5 symptom impressions was 79%, 87%, and 66% across all, unambiguous, and more complex cases, respectively. Results were significant for unambiguous cases when compared to more complex cases. Conclusions PCPs can develop clinical expertise in the evaluation and diagnosis of young children with unambiguous ASD that is accurate and reliable. Development of this expertise can expand access for community-based diagnosis that is critical for early detection of ASD. En ligne : https://doi.org/10.1016/j.rasd.2023.102276 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=517 A Practice Pathway for the Treatment of Night Wakings in Children with Autism Spectrum Disorder / Justin G. FARMER ; Heidi V. CONNOLLY ; Virginia D. ALLHUSEN ; Amanda BENNETT ; Daniel L. COURY ; Janet LAM ; Ann M. NEUMEYER ; Kristin SOHL ; Manisha WITMANS ; Beth A. MALOW ; Committee AUTISM TREATMENT NETWORK/AUTISM INTERVENTION RESEARCH NETWORK ON PHYSICAL HEALTH SLEEP in Journal of Autism and Developmental Disorders, 54-8 (August 2024)
[article]
Titre : A Practice Pathway for the Treatment of Night Wakings in Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Justin G. FARMER, Auteur ; Heidi V. CONNOLLY, Auteur ; Virginia D. ALLHUSEN, Auteur ; Amanda BENNETT, Auteur ; Daniel L. COURY, Auteur ; Janet LAM, Auteur ; Ann M. NEUMEYER, Auteur ; Kristin SOHL, Auteur ; Manisha WITMANS, Auteur ; Beth A. MALOW, Auteur ; Committee AUTISM TREATMENT NETWORK/AUTISM INTERVENTION RESEARCH NETWORK ON PHYSICAL HEALTH SLEEP, Auteur Article en page(s) : p.2926-2945 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) report high rates of sleep problems. In 2012, the Autism Treatment Network/ Autism Intervention Research Network on Physical Health (ATN/AIR-P) Sleep Committee developed a pathway to address these concerns. Since its publication, ATN/AIR-P clinicians and parents have identified night wakings as a refractory problem unaddressed by the pathway. We reviewed the existing literature and identified 76 scholarly articles that provided data on night waking in children with ASD. Based on the available literature, we propose an updated practice pathway to identify and treat night wakings in children with ASD. En ligne : https://doi.org/10.1007/s10803-023-06026-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534
in Journal of Autism and Developmental Disorders > 54-8 (August 2024) . - p.2926-2945[article] A Practice Pathway for the Treatment of Night Wakings in Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Justin G. FARMER, Auteur ; Heidi V. CONNOLLY, Auteur ; Virginia D. ALLHUSEN, Auteur ; Amanda BENNETT, Auteur ; Daniel L. COURY, Auteur ; Janet LAM, Auteur ; Ann M. NEUMEYER, Auteur ; Kristin SOHL, Auteur ; Manisha WITMANS, Auteur ; Beth A. MALOW, Auteur ; Committee AUTISM TREATMENT NETWORK/AUTISM INTERVENTION RESEARCH NETWORK ON PHYSICAL HEALTH SLEEP, Auteur . - p.2926-2945.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 54-8 (August 2024) . - p.2926-2945
Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) report high rates of sleep problems. In 2012, the Autism Treatment Network/ Autism Intervention Research Network on Physical Health (ATN/AIR-P) Sleep Committee developed a pathway to address these concerns. Since its publication, ATN/AIR-P clinicians and parents have identified night wakings as a refractory problem unaddressed by the pathway. We reviewed the existing literature and identified 76 scholarly articles that provided data on night waking in children with ASD. Based on the available literature, we propose an updated practice pathway to identify and treat night wakings in children with ASD. En ligne : https://doi.org/10.1007/s10803-023-06026-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 Psychophysiological Associations with Gastrointestinal Symptomatology in Autism Spectrum Disorder / Bradley J. FERGUSON in Autism Research, 10-2 (February 2017)
[article]
Titre : Psychophysiological Associations with Gastrointestinal Symptomatology in Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Bradley J. FERGUSON, Auteur ; Sarah MARLER, Auteur ; Lily L. ALTSTEIN, Auteur ; Evon BATEY LEE, Auteur ; Jill AKERS, Auteur ; Kristin SOHL, Auteur ; Aaron MCLAUGHLIN, Auteur ; Kaitlyn HARTNETT, Auteur ; Briana KILLE, Auteur ; Micah MAZUREK, Auteur ; Eric A. MACKLIN, Auteur ; Erin MCDONNELL, Auteur ; Mariah BARSTOW, Auteur ; Margaret L. BAUMAN, Auteur ; Kara Gross MARGOLIS, Auteur ; Jeremy VEENSTRA-VANDERWEELE, Auteur ; David Q. BEVERSDORF, Auteur Article en page(s) : p.276-288 Langues : Anglais (eng) Mots-clés : autism spectrum disorder gastrointestinal autonomic nervous system sympathetic parasympathetic anxiety constipation Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is often accompanied by gastrointestinal disturbances, which also may impact behavior. Alterations in autonomic nervous system functioning are also frequently observed in ASD. The relationship between these findings in ASD is not known. We examined the relationship between gastrointestinal symptomatology, examining upper and lower gastrointestinal tract symptomatology separately, and autonomic nervous system functioning, as assessed by heart rate variability and skin conductance level, in a sample of 120 individuals with ASD. Relationships with co-occurring medical and psychiatric symptoms were also examined. While the number of participants with significant upper gastrointestinal tract problems was small in this sample, 42.5% of participants met criteria for functional constipation, a disorder of the lower gastrointestinal tract. Heart rate variability, a measure of parasympathetic modulation of cardiac activity, was found to be positively associated with lower gastrointestinal tract symptomatology at baseline. This relationship was particularly strong for participants with co-occurring diagnoses of anxiety disorder and for those with a history of regressive ASD or loss of previously acquired skills. These findings suggest that autonomic function and gastrointestinal problems are intertwined in children with ASD; although it is not possible to assess causality in this data set. Future work should examine the impact of treatment of gastrointestinal problems on autonomic function and anxiety, as well as the impact of anxiety treatment on gastrointestinal problems. Clinicians should be aware that gastrointestinal problems, anxiety, and autonomic dysfunction may cluster in children with ASD and should be addressed in a multidisciplinary treatment plan. En ligne : http://dx.doi.org/10.1002/aur.1646 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303
in Autism Research > 10-2 (February 2017) . - p.276-288[article] Psychophysiological Associations with Gastrointestinal Symptomatology in Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Bradley J. FERGUSON, Auteur ; Sarah MARLER, Auteur ; Lily L. ALTSTEIN, Auteur ; Evon BATEY LEE, Auteur ; Jill AKERS, Auteur ; Kristin SOHL, Auteur ; Aaron MCLAUGHLIN, Auteur ; Kaitlyn HARTNETT, Auteur ; Briana KILLE, Auteur ; Micah MAZUREK, Auteur ; Eric A. MACKLIN, Auteur ; Erin MCDONNELL, Auteur ; Mariah BARSTOW, Auteur ; Margaret L. BAUMAN, Auteur ; Kara Gross MARGOLIS, Auteur ; Jeremy VEENSTRA-VANDERWEELE, Auteur ; David Q. BEVERSDORF, Auteur . - p.276-288.
Langues : Anglais (eng)
in Autism Research > 10-2 (February 2017) . - p.276-288
Mots-clés : autism spectrum disorder gastrointestinal autonomic nervous system sympathetic parasympathetic anxiety constipation Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is often accompanied by gastrointestinal disturbances, which also may impact behavior. Alterations in autonomic nervous system functioning are also frequently observed in ASD. The relationship between these findings in ASD is not known. We examined the relationship between gastrointestinal symptomatology, examining upper and lower gastrointestinal tract symptomatology separately, and autonomic nervous system functioning, as assessed by heart rate variability and skin conductance level, in a sample of 120 individuals with ASD. Relationships with co-occurring medical and psychiatric symptoms were also examined. While the number of participants with significant upper gastrointestinal tract problems was small in this sample, 42.5% of participants met criteria for functional constipation, a disorder of the lower gastrointestinal tract. Heart rate variability, a measure of parasympathetic modulation of cardiac activity, was found to be positively associated with lower gastrointestinal tract symptomatology at baseline. This relationship was particularly strong for participants with co-occurring diagnoses of anxiety disorder and for those with a history of regressive ASD or loss of previously acquired skills. These findings suggest that autonomic function and gastrointestinal problems are intertwined in children with ASD; although it is not possible to assess causality in this data set. Future work should examine the impact of treatment of gastrointestinal problems on autonomic function and anxiety, as well as the impact of anxiety treatment on gastrointestinal problems. Clinicians should be aware that gastrointestinal problems, anxiety, and autonomic dysfunction may cluster in children with ASD and should be addressed in a multidisciplinary treatment plan. En ligne : http://dx.doi.org/10.1002/aur.1646 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=303 Sleep and Behavioral Problems in Children with Autism Spectrum Disorder / Micah O. MAZUREK in Journal of Autism and Developmental Disorders, 46-6 (June 2016)
PermalinkThey deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum / Micah O. MAZUREK in Research in Autism Spectrum Disorders, 89 (November 2021)
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