Caregiver employment changes and care coordination in families with children with autism / Andrea J. JAFFE in Research in Autism, 135 (July 2026)  

Public ISBD [article]  inResearch in Autism > 135 (July 2026) . - 202930 Titre : Caregiver employment changes and care coordination in families with children with autism Type de document : texte imprimé Auteurs : Andrea J. JAFFE, Auteur ; Anne M. ROUX, Auteur ; Kristy A. ANDERSON, Auteur ; Vijay VASUDEVAN, Auteur ; Arianna ESPOSITO, Auteur ; Stuart SPIELMAN, Auteur ; Jessica E. RAST, Auteur Année de publication : 2026 Article en page(s) : 202930 Langues : Anglais (eng) Mots-clés : Autism  Parental employment  Care coordination  Children with special health care needs Index. décimale : PER Périodiques Résumé : Purpose To examine changes in employment of caregivers of children with autism and children with special health care needs (CSHCN). Methods This study used the National Survey of Children’s Health to examine the prevalence of employment changes of caregivers, including reducing hours or stopping work and avoiding changing jobs to maintain insurance. We used multivariable logistic regression to estimate associations of care coordination with both employment outcomes. Finally, we examined differences by age and insurance type, stratified by care coordination status, to examine potential interaction of these variables in children with autism and CSHCN. Results Caregivers of children with autism were more likely to experience changes in their employment than CSHCN. Caregivers who did not receive needed care coordination had 2.21 times the odds of reducing hours or stopping work than those who received needed care coordination (95% CI 1.89, 2.58). Age was also associated with employment changes for caregivers of children and autism and CSHCN. For caregivers of children with autism ages 3–5 years, the rate of reduced hours or stopped working was triple for those who did not receive needed care coordination (59%) compared to those who did (21%). Conclusions Caregivers may reduce employment to support their child in receiving needed care. The findings from this study demonstrate the need for further research to examine the provision of care coordination and the cost-benefit analysis of public funding for care coordination to improve caregiver employment outcomes and create more support for families with a child with autism. En ligne : https://doi.org/10.1016/j.reia.2026.202930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588 [article] Caregiver employment changes and care coordination in families with children with autism [texte imprimé] / Andrea J. JAFFE, Auteur ; Anne M. ROUX, Auteur ; Kristy A. ANDERSON, Auteur ; Vijay VASUDEVAN, Auteur ; Arianna ESPOSITO, Auteur ; Stuart SPIELMAN, Auteur ; Jessica E. RAST, Auteur . - 2026 . - 202930. Langues : Anglais (eng) in Research in Autism > 135 (July 2026) . - 202930 Mots-clés : Autism  Parental employment  Care coordination  Children with special health care needs Index. décimale : PER Périodiques Résumé : Purpose To examine changes in employment of caregivers of children with autism and children with special health care needs (CSHCN). Methods This study used the National Survey of Children’s Health to examine the prevalence of employment changes of caregivers, including reducing hours or stopping work and avoiding changing jobs to maintain insurance. We used multivariable logistic regression to estimate associations of care coordination with both employment outcomes. Finally, we examined differences by age and insurance type, stratified by care coordination status, to examine potential interaction of these variables in children with autism and CSHCN. Results Caregivers of children with autism were more likely to experience changes in their employment than CSHCN. Caregivers who did not receive needed care coordination had 2.21 times the odds of reducing hours or stopping work than those who received needed care coordination (95% CI 1.89, 2.58). Age was also associated with employment changes for caregivers of children and autism and CSHCN. For caregivers of children with autism ages 3–5 years, the rate of reduced hours or stopped working was triple for those who did not receive needed care coordination (59%) compared to those who did (21%). Conclusions Caregivers may reduce employment to support their child in receiving needed care. The findings from this study demonstrate the need for further research to examine the provision of care coordination and the cost-benefit analysis of public funding for care coordination to improve caregiver employment outcomes and create more support for families with a child with autism. En ligne : https://doi.org/10.1016/j.reia.2026.202930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=588

Characteristics of Two-Year College Students on the Autism Spectrum and Their Support Services Experiences / Anne M. ROUX in Autism Research and Treatment, 2015 (2015)  

Public ISBD [article]  inAutism Research and Treatment > 2015 (2015) Titre : Characteristics of Two-Year College Students on the Autism Spectrum and Their Support Services Experiences Type de document : texte imprimé Auteurs : Anne M. ROUX, Auteur ; Paul T. SHATTUCK, Auteur ; Jessica E. RAST, Auteur ; J.A. RAVA, Auteur ; A. David EDWARDS, Auteur ; Xin WEI, Auteur ; Mary MCCRACKEN, Auteur ; Jennifer W. YU, Auteur Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Approximately 80% of college-going youth with autism in the US attend a 2-year college at some point. These community-based, universally accessible institutions offer both academic and vocational courses and have experience in teaching diverse learners. This study used nationally representative survey data from the National Longitudinal Transition Study-2 to describe the characteristics and services experiences of adults with autism who attended postsecondary education after high school, focusing on those who attended a 2-year college. Over 60% of those who attended 2-year colleges had little to no trouble conversing or performing functional skills like counting change during high school, and extracurricular participation was common (93.8%). Most 2-year college attenders (85.7%) were able to navigate to places outside the home versus 43.9% of those with no postsecondary education. Over half took vocational courses at 2-year colleges, while one-quarter pursued academic study. Less than half (48.6%) of those who disclosed their disability to the school reported receiving services, accommodations, or other help. Most (87.3%) felt they received enough help, but fewer (68.0%) felt the services they received were useful. Future research should delineate specific needs of students with autism in 2-year college settings and identify what supports are needed to improve persistence and completion rates. En ligne : http://dx.doi.org/10.1155/2015/391693 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=332 [article] Characteristics of Two-Year College Students on the Autism Spectrum and Their Support Services Experiences [texte imprimé] / Anne M. ROUX, Auteur ; Paul T. SHATTUCK, Auteur ; Jessica E. RAST, Auteur ; J.A. RAVA, Auteur ; A. David EDWARDS, Auteur ; Xin WEI, Auteur ; Mary MCCRACKEN, Auteur ; Jennifer W. YU, Auteur. Langues : Anglais (eng) in Autism Research and Treatment > 2015 (2015) Index. décimale : PER Périodiques Résumé : Approximately 80% of college-going youth with autism in the US attend a 2-year college at some point. These community-based, universally accessible institutions offer both academic and vocational courses and have experience in teaching diverse learners. This study used nationally representative survey data from the National Longitudinal Transition Study-2 to describe the characteristics and services experiences of adults with autism who attended postsecondary education after high school, focusing on those who attended a 2-year college. Over 60% of those who attended 2-year colleges had little to no trouble conversing or performing functional skills like counting change during high school, and extracurricular participation was common (93.8%). Most 2-year college attenders (85.7%) were able to navigate to places outside the home versus 43.9% of those with no postsecondary education. Over half took vocational courses at 2-year colleges, while one-quarter pursued academic study. Less than half (48.6%) of those who disclosed their disability to the school reported receiving services, accommodations, or other help. Most (87.3%) felt they received enough help, but fewer (68.0%) felt the services they received were useful. Future research should delineate specific needs of students with autism in 2-year college settings and identify what supports are needed to improve persistence and completion rates. En ligne : http://dx.doi.org/10.1155/2015/391693 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=332

Completion of Upper Secondary Mainstream School in Autistic Students in Sweden / Isidora STARK in Journal of Autism and Developmental Disorders, 55-10 (October 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3622-3630 Titre : Completion of Upper Secondary Mainstream School in Autistic Students in Sweden Type de document : texte imprimé Auteurs : Isidora STARK, Auteur ; Jessica E. RAST, Auteur ; Michael LUNDBERG, Auteur ; Nora DÖRING, Auteur ; Anna OHLIS, Auteur ; Selma IDRING NORDSTRÖM, Auteur ; Dheeraj RAI, Auteur ; Cecilia MAGNUSSON, Auteur Article en page(s) : p.3622-3630 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Higher education is an increasingly necessary achievement to attain employment. However, even in cases where a student has the academic skills to succeed, educational environments may not support students across all other domains necessary for education success, including social and communication needs. This is especially true for students with disabilities and autistic students, where the rate of completion of non-compulsory education is unknown. We used the Stockholm Youth Cohort (children aged 0–17 years from 2001 to 2011), a total population cohort (N = 736,180) including 3,918 autistic individuals, to investigate the association between autism without intellectual disability and completion of upper secondary education. We assessed the impact of sex and co-occurring Attention-Deficit/Hyperactivity Disorder (ADHD) on this association. By age 20 years (the expected age of completion), 68% of autistic students and 91% of non-autistic students admitted to upper secondary education had completed. In logistic regression models adjusted for student demographics, autistic students had almost five-fold higher odds of not completing secondary school (OR 4.90, 95% CI 4.56 5.26) compared to their non-autistic peers. Autistic students with ADHD had particularly high odds of non-completion of upper secondary school. Autistic students without intellectual disability attending mainstream education are substantially less likely to complete upper secondary education as compared to their peers. These findings have implications for the appraisal of how inclusive school policies serve autistic students’ academic and social needs, ultimately addressing population health and independent living. En ligne : https://doi.org/10.1007/s10803-024-06470-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568 [article] Completion of Upper Secondary Mainstream School in Autistic Students in Sweden [texte imprimé] / Isidora STARK, Auteur ; Jessica E. RAST, Auteur ; Michael LUNDBERG, Auteur ; Nora DÖRING, Auteur ; Anna OHLIS, Auteur ; Selma IDRING NORDSTRÖM, Auteur ; Dheeraj RAI, Auteur ; Cecilia MAGNUSSON, Auteur . - p.3622-3630. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-10 (October 2025) . - p.3622-3630 Index. décimale : PER Périodiques Résumé : Higher education is an increasingly necessary achievement to attain employment. However, even in cases where a student has the academic skills to succeed, educational environments may not support students across all other domains necessary for education success, including social and communication needs. This is especially true for students with disabilities and autistic students, where the rate of completion of non-compulsory education is unknown. We used the Stockholm Youth Cohort (children aged 0–17 years from 2001 to 2011), a total population cohort (N = 736,180) including 3,918 autistic individuals, to investigate the association between autism without intellectual disability and completion of upper secondary education. We assessed the impact of sex and co-occurring Attention-Deficit/Hyperactivity Disorder (ADHD) on this association. By age 20 years (the expected age of completion), 68% of autistic students and 91% of non-autistic students admitted to upper secondary education had completed. In logistic regression models adjusted for student demographics, autistic students had almost five-fold higher odds of not completing secondary school (OR 4.90, 95% CI 4.56 5.26) compared to their non-autistic peers. Autistic students with ADHD had particularly high odds of non-completion of upper secondary school. Autistic students without intellectual disability attending mainstream education are substantially less likely to complete upper secondary education as compared to their peers. These findings have implications for the appraisal of how inclusive school policies serve autistic students’ academic and social needs, ultimately addressing population health and independent living. En ligne : https://doi.org/10.1007/s10803-024-06470-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568

Correction to: State-Level Variation in Vocational Rehabilitation Service Use and Related Outcomes Among Transition-Age Youth on the Autism Spectrum / Anne M. ROUX in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-7 (July 2020) . - p.2462-2463 Titre : Correction to: State-Level Variation in Vocational Rehabilitation Service Use and Related Outcomes Among Transition-Age Youth on the Autism Spectrum Type de document : texte imprimé Auteurs : Anne M. ROUX, Auteur ; Jessica E. RAST, Auteur ; Paul T. SHATTUCK, Auteur Article en page(s) : p.2462-2463 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The original version of this article unfortunately contained mistakes in Table 1 values. Some of the values in "TAY-ASD who received services" were incorrect. The corrected Table 1 is given below. En ligne : http://dx.doi.org/10.1007/s10803-019-03991-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426 [article] Correction to: State-Level Variation in Vocational Rehabilitation Service Use and Related Outcomes Among Transition-Age Youth on the Autism Spectrum [texte imprimé] / Anne M. ROUX, Auteur ; Jessica E. RAST, Auteur ; Paul T. SHATTUCK, Auteur . - p.2462-2463. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-7 (July 2020) . - p.2462-2463 Index. décimale : PER Périodiques Résumé : The original version of this article unfortunately contained mistakes in Table 1 values. Some of the values in "TAY-ASD who received services" were incorrect. The corrected Table 1 is given below. En ligne : http://dx.doi.org/10.1007/s10803-019-03991-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426

Disparities by Race and Ethnicity in Inpatient Hospitalizations Among Autistic Adults / Jessica E. RAST in Journal of Autism and Developmental Disorders, 54-5 (May 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.1672-1679 Titre : Disparities by Race and Ethnicity in Inpatient Hospitalizations Among Autistic Adults Type de document : texte imprimé Auteurs : Jessica E. RAST, Auteur ; Sherira J. FERNANDES, Auteur ; Whitney SCHOTT, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : p.1672-1679 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : This study examined hospitalizations in a large, all-payer, nationally representative sample of inpatient hospitalizations in the US and identified differences in rates of hospitalization for conditions by race and ethnicity in autistic adults. Conditions examined included mood disorders, epilepsy, schizophrenia, and ambulatory care sensitive conditions (ACSCs). Compared to white, non-Hispanic autistic adults, Black, Hispanic, Asian or Pacific Islander (API), and autistic adults of another race had lower prevalence of admission for a principal diagnosis of a mood disorder. Conversely, Black, Hispanic, API, and autistic adults of another race had higher odds of admission for epilepsy than white autistic adults. Black and Hispanic autistic adults were more likely to have schizophrenia as a principal diagnosis compared to white autistic adults, but only Black autistic adults had increased odds for admission for an ACSCs compared to white autistic adults. Differences in diagnosis prevalence among hospitalized autistic adults may suggest differential access to comprehensive outpatient care that could prevent such hospitalizations, while also pointing to concerns of differential validity of diagnostic tools and treatment approaches. Insurance policy and programs should prioritize optimizing outpatient care to ensure access to care and emphasize the need for equitable treatment. En ligne : https://doi.org/10.1007/s10803-023-05911-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Disparities by Race and Ethnicity in Inpatient Hospitalizations Among Autistic Adults [texte imprimé] / Jessica E. RAST, Auteur ; Sherira J. FERNANDES, Auteur ; Whitney SCHOTT, Auteur ; Lindsay L. SHEA, Auteur . - p.1672-1679. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.1672-1679 Index. décimale : PER Périodiques Résumé : This study examined hospitalizations in a large, all-payer, nationally representative sample of inpatient hospitalizations in the US and identified differences in rates of hospitalization for conditions by race and ethnicity in autistic adults. Conditions examined included mood disorders, epilepsy, schizophrenia, and ambulatory care sensitive conditions (ACSCs). Compared to white, non-Hispanic autistic adults, Black, Hispanic, Asian or Pacific Islander (API), and autistic adults of another race had lower prevalence of admission for a principal diagnosis of a mood disorder. Conversely, Black, Hispanic, API, and autistic adults of another race had higher odds of admission for epilepsy than white autistic adults. Black and Hispanic autistic adults were more likely to have schizophrenia as a principal diagnosis compared to white autistic adults, but only Black autistic adults had increased odds for admission for an ACSCs compared to white autistic adults. Differences in diagnosis prevalence among hospitalized autistic adults may suggest differential access to comprehensive outpatient care that could prevent such hospitalizations, while also pointing to concerns of differential validity of diagnostic tools and treatment approaches. Insurance policy and programs should prioritize optimizing outpatient care to ensure access to care and emphasize the need for equitable treatment. En ligne : https://doi.org/10.1007/s10803-023-05911-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Evidence from the Autism Transitions Research Project (2017-2022): Capstone review and services research recommendations / Anne M. ROUX in Autism Research, 16-3 (March 2023)  

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National and State Trends in autistic Adult Supplemental Security Income Awardees: 2005-2019 / Kristy A. ANDERSON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

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Prevalence of Substance Use Disorder Among Autistic Youth With and Without Co-Occurring Mental Health Conditions and a History of Trauma / Jeanette M. GARCIA in Autism Research, 18-8 (August 2025)  

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Psychotropic Medication Use in Children and Youth with Autism Enrolled in Medicaid / Jessica E. RAST ; Sha TAO ; Whitney SCHOTT ; Lindsay L. SHEA ; Edward S. BRODKIN ; Connor M. KERNS ; Charles E. LEONARD ; Michael J. MURRAY ; Brian K. LEE in Journal of Autism and Developmental Disorders, 55-1 (January 2025)  

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State-Level Variation in Vocational Rehabilitation Service Use and Related Outcomes Among Transition-Age Youth on the Autism Spectrum / Anne M. ROUX in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

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The Economic Impacts of COVID-19 on Autistic Children and Their Families / Kristy A. ANDERSON in Journal of Autism and Developmental Disorders, 55-4 (April 2024)  

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The Medical Home and Use of Mental and Non-mental Specialty Services Among Children with Autism Spectrum Disorder (ASD) / Tobechukwu H. EZEH in Journal of Autism and Developmental Disorders, 53-3 (March 2023)  

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The Prevalence and Correlates of Involvement in the Criminal Justice System Among Youth on the Autism Spectrum / Julianna RAVA in Journal of Autism and Developmental Disorders, 47-2 (February 2017)  

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Use of Vocational Rehabilitation Supports for Postsecondary Education Among Transition-Age Youth on the Autism Spectrum / Jessica E. RAST in Journal of Autism and Developmental Disorders, 50-6 (June 2020)  

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Vocational Rehabilitation Service Utilization and Employment Outcomes Among Secondary Students on the Autism Spectrum / Anne M. ROUX in Journal of Autism and Developmental Disorders, 51-1 (January 2021)  

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