
- <Centre d'Information et de documentation du CRA Rhône-Alpes
- CRA
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Centre d'information et de documentation
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du CRA Rhône-Alpes
Centre Hospitalier le Vinatier
bât 211
95, Bd Pinel
69678 Bron CedexLundi au Vendredi
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9h00-12h00 13h30-16h00Tél: +33(0)4 37 91 54 65
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Fax: +33(0)4 37 91 54 37
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Adresse
Auteur Wendy MACDONALD
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Documents disponibles écrits par cet auteur (2)
Faire une suggestion Affiner la rechercheParent perceptions of participation in a parent-mediated communication-focussed intervention with their young child with autism spectrum disorder / Kathy LEADBITTER in Autism, 24-8 (November 2020)
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[article]
Titre : Parent perceptions of participation in a parent-mediated communication-focussed intervention with their young child with autism spectrum disorder Type de document : texte imprimé Auteurs : Kathy LEADBITTER, Auteur ; Wendy MACDONALD, Auteur ; Carol TAYLOR, Auteur ; Karen Leneh BUCKLE, Auteur Article en page(s) : p.2129-2141 Langues : Anglais (eng) Mots-clés : *Autism spectrum disorders *communication and language *interventions *parent-mediated *pre-school children *psychosocial/behavioural *qualitative research of interest with respect to the research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Paediatric Autism Communication Therapy is an intervention for young children with autism spectrum disorder that focuses on parent-child communication. In Paediatric Autism Communication Therapy, the therapist and parent watch videos of the parent and child playing together. The therapist coaches the parent to carefully observe the child's communication and to interact with their child in a more sensitive and responsive way. Parents are encouraged to use the strategies with their child at home. Paediatric Autism Communication Therapy has been shown to lead to long-term improvements in parent-child communication and family quality of life. This study aimed to explore parents' perceptions of their participation in Paediatric Autism Communication Therapy. Interviews were carried out by an independent researcher with 18 parents. Parents discussed the learning processes they went through when working with Paediatric Autism Communication Therapy therapists and carrying out home practice. Some parents described initial doubts about the approach and hesitations about being videoed and analysing video material. In time, most parents came to really value the therapy and their relationship with the therapist. They reported positive changes in their interaction and relationship with their child and improvements to their child's communication and interaction. Some also highlighted poignant realisations and emotional challenges associated with taking part in this post-diagnosis therapy. Practical difficulties were also emphasised, including the time commitment, accessibility of therapy venues and difficulties in occupying the child during therapist-parent discussion. Implications for the clinical practice of parent-mediated interventions are discussed. En ligne : http://dx.doi.org/10.1177/1362361320936394 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431
in Autism > 24-8 (November 2020) . - p.2129-2141[article] Parent perceptions of participation in a parent-mediated communication-focussed intervention with their young child with autism spectrum disorder [texte imprimé] / Kathy LEADBITTER, Auteur ; Wendy MACDONALD, Auteur ; Carol TAYLOR, Auteur ; Karen Leneh BUCKLE, Auteur . - p.2129-2141.
Langues : Anglais (eng)
in Autism > 24-8 (November 2020) . - p.2129-2141
Mots-clés : *Autism spectrum disorders *communication and language *interventions *parent-mediated *pre-school children *psychosocial/behavioural *qualitative research of interest with respect to the research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Paediatric Autism Communication Therapy is an intervention for young children with autism spectrum disorder that focuses on parent-child communication. In Paediatric Autism Communication Therapy, the therapist and parent watch videos of the parent and child playing together. The therapist coaches the parent to carefully observe the child's communication and to interact with their child in a more sensitive and responsive way. Parents are encouraged to use the strategies with their child at home. Paediatric Autism Communication Therapy has been shown to lead to long-term improvements in parent-child communication and family quality of life. This study aimed to explore parents' perceptions of their participation in Paediatric Autism Communication Therapy. Interviews were carried out by an independent researcher with 18 parents. Parents discussed the learning processes they went through when working with Paediatric Autism Communication Therapy therapists and carrying out home practice. Some parents described initial doubts about the approach and hesitations about being videoed and analysing video material. In time, most parents came to really value the therapy and their relationship with the therapist. They reported positive changes in their interaction and relationship with their child and improvements to their child's communication and interaction. Some also highlighted poignant realisations and emotional challenges associated with taking part in this post-diagnosis therapy. Practical difficulties were also emphasised, including the time commitment, accessibility of therapy venues and difficulties in occupying the child during therapist-parent discussion. Implications for the clinical practice of parent-mediated interventions are discussed. En ligne : http://dx.doi.org/10.1177/1362361320936394 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431 The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention / Kathy LEADBITTER in Journal of Autism and Developmental Disorders, 48-4 (April 2018)
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[article]
Titre : The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention Type de document : texte imprimé Auteurs : Kathy LEADBITTER, Auteur ; Catherine ALDRED, Auteur ; Helen MCCONACHIE, Auteur ; Ann LE COUTEUR, Auteur ; Dharmi KAPADIA, Auteur ; Tony CHARMAN, Auteur ; Wendy MACDONALD, Auteur ; Erica SALOMONE, Auteur ; Richard EMSLEY, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.1052-1062 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Family experience Intervention Parent Quality of Life Wellbeing Index. décimale : PER Périodiques Résumé : There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up. En ligne : http://dx.doi.org/10.1007/s10803-017-3350-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351
in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1052-1062[article] The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention [texte imprimé] / Kathy LEADBITTER, Auteur ; Catherine ALDRED, Auteur ; Helen MCCONACHIE, Auteur ; Ann LE COUTEUR, Auteur ; Dharmi KAPADIA, Auteur ; Tony CHARMAN, Auteur ; Wendy MACDONALD, Auteur ; Erica SALOMONE, Auteur ; Richard EMSLEY, Auteur ; Jonathan GREEN, Auteur . - p.1052-1062.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1052-1062
Mots-clés : Autism Spectrum Disorder Family experience Intervention Parent Quality of Life Wellbeing Index. décimale : PER Périodiques Résumé : There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and reflected parental priorities. It was then administered to the parents of children enrolled in the Pre-school Autism Communication Trial and its 6-year follow-up study. The AFEQ showed good convergent validity with well-established measures of child adaptive functioning, parental mental health and parental wellbeing. It was sensitive to change in response to a parent-mediated intervention for young children with autism, showing treatment effect at treatment endpoint which increased at six-year follow-up. En ligne : http://dx.doi.org/10.1007/s10803-017-3350-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351

