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Quality of Life Among Malaysian Parents with Autism Spectrum Disorder Child: The Double ABCX Model Approach / M. F. ISMAIL in Journal of Autism and Developmental Disorders, 52-1 (January 2022)
[article]
Titre : Quality of Life Among Malaysian Parents with Autism Spectrum Disorder Child: The Double ABCX Model Approach Type de document : Texte imprimé et/ou numérique Auteurs : M. F. ISMAIL, Auteur ; R. SAFII, Auteur ; R. SAIMON, Auteur ; M. M. RAHMAN, Auteur Article en page(s) : p.113-123 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Child Family Humans Parents Quality of Life ABCX model Autism spectrum disorder QoL Index. décimale : PER Périodiques Résumé : This paper reported the quality of life (QoL) of 260 Malaysian parents with autism spectrum disorder (ASD) and factors which influencing it. About half of these parents reported to having good QoL. The factors identified in the double ABCX model showed that perceived social support and sense of coherence (SOC) were mediated by coping strategies and had a positive direct and indirect effect on parents' QoL. These finding reiterate the importance of social support, coping skills, and strong SOC reflection skills in influencing the QoL of parents with ASD child. We therefore suggest parents to utilize the widely available social and organization supports to gain good QoL, which is also important for the wellbeing of their child. En ligne : http://dx.doi.org/10.1007/s10803-021-04929-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454
in Journal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.113-123[article] Quality of Life Among Malaysian Parents with Autism Spectrum Disorder Child: The Double ABCX Model Approach [Texte imprimé et/ou numérique] / M. F. ISMAIL, Auteur ; R. SAFII, Auteur ; R. SAIMON, Auteur ; M. M. RAHMAN, Auteur . - p.113-123.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.113-123
Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Child Family Humans Parents Quality of Life ABCX model Autism spectrum disorder QoL Index. décimale : PER Périodiques Résumé : This paper reported the quality of life (QoL) of 260 Malaysian parents with autism spectrum disorder (ASD) and factors which influencing it. About half of these parents reported to having good QoL. The factors identified in the double ABCX model showed that perceived social support and sense of coherence (SOC) were mediated by coping strategies and had a positive direct and indirect effect on parents' QoL. These finding reiterate the importance of social support, coping skills, and strong SOC reflection skills in influencing the QoL of parents with ASD child. We therefore suggest parents to utilize the widely available social and organization supports to gain good QoL, which is also important for the wellbeing of their child. En ligne : http://dx.doi.org/10.1007/s10803-021-04929-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 Quality of life and coping strategies used by parents of children with autism spectrum disorder in Oman / Alya Mohammed Said ALBUSAIDI in Autism & Developmental Language Impairments, 7 (January-December 2022)
[article]
Titre : Quality of life and coping strategies used by parents of children with autism spectrum disorder in Oman Type de document : Texte imprimé et/ou numérique Auteurs : Alya Mohammed Said ALBUSAIDI, Auteur ; Salima Ali Saud ALMASROORI, Auteur ; Balqees Mohammed Said AWLADTHANI, Auteur ; Sumaiya Abdullah ALKHALDI, Auteur ; Noof AL ALAWI, Auteur ; Asma Ali AL SALMANI, Auteur Langues : Anglais (eng) Mots-clés : Autism spectrum disorder parents children quality of life coping strategies Oman Index. décimale : PER Périodiques Résumé : Objective Raising a child with autism spectrum disorder (ASD) can have a significant impact on quality of life (QOL). This study was conducted to assess the QOL and coping strategies of parents of children with ASD in Oman. Method This descriptive cross-sectional study was conducted at Al-Masarra psychiatric hospital. Telephone interviews were conducted with the parents of all children diagnosed with ASD and attending Al-Masarra Hospital between January 2018 and October 2021. Data were collected using the Ways of Coping Checklist-Revised and World Health Organization Quality of Life Assessment-Brief. Results A total of 304 parents participated in the study (response rate: 100%), of which 59.5% were female. The mean age of the parents and children with ASD was 40.4Â+ 6.9 and 8.4Â+ 2.3 years, respectively. Most children with ASD were male (78.3%) and entirely dependent upon their parents (18.1%). Seeking social support was the most common coping strategy (75.53Â+ 13.99), while escape avoidance was the least common (51.78Â+ 8.04). Most parents (48.7%) rated their QOL as good to very good, with acceptable scores in the psychological (70.92Â+ 11.22) and social (73.27Â+ 11.46) domains, borderline in the physical health domain (63.51Â+ 7.77), and poor in the environmental domain (58.31Â+ 11.00). Conclusions Omani parents of children with ASD utilize various coping strategies, with coping skills considered a positive index for mental health in general. No significant differences were observed between Omani fathers and mothers in terms of QOL or coping strategies. En ligne : http://dx.doi.org/10.1177/23969415221142262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491
in Autism & Developmental Language Impairments > 7 (January-December 2022)[article] Quality of life and coping strategies used by parents of children with autism spectrum disorder in Oman [Texte imprimé et/ou numérique] / Alya Mohammed Said ALBUSAIDI, Auteur ; Salima Ali Saud ALMASROORI, Auteur ; Balqees Mohammed Said AWLADTHANI, Auteur ; Sumaiya Abdullah ALKHALDI, Auteur ; Noof AL ALAWI, Auteur ; Asma Ali AL SALMANI, Auteur.
Langues : Anglais (eng)
in Autism & Developmental Language Impairments > 7 (January-December 2022)
Mots-clés : Autism spectrum disorder parents children quality of life coping strategies Oman Index. décimale : PER Périodiques Résumé : Objective Raising a child with autism spectrum disorder (ASD) can have a significant impact on quality of life (QOL). This study was conducted to assess the QOL and coping strategies of parents of children with ASD in Oman. Method This descriptive cross-sectional study was conducted at Al-Masarra psychiatric hospital. Telephone interviews were conducted with the parents of all children diagnosed with ASD and attending Al-Masarra Hospital between January 2018 and October 2021. Data were collected using the Ways of Coping Checklist-Revised and World Health Organization Quality of Life Assessment-Brief. Results A total of 304 parents participated in the study (response rate: 100%), of which 59.5% were female. The mean age of the parents and children with ASD was 40.4Â+ 6.9 and 8.4Â+ 2.3 years, respectively. Most children with ASD were male (78.3%) and entirely dependent upon their parents (18.1%). Seeking social support was the most common coping strategy (75.53Â+ 13.99), while escape avoidance was the least common (51.78Â+ 8.04). Most parents (48.7%) rated their QOL as good to very good, with acceptable scores in the psychological (70.92Â+ 11.22) and social (73.27Â+ 11.46) domains, borderline in the physical health domain (63.51Â+ 7.77), and poor in the environmental domain (58.31Â+ 11.00). Conclusions Omani parents of children with ASD utilize various coping strategies, with coping skills considered a positive index for mental health in general. No significant differences were observed between Omani fathers and mothers in terms of QOL or coping strategies. En ligne : http://dx.doi.org/10.1177/23969415221142262 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 Quality of life as a mediator between behavioral challenges and autistic traits for adults with intellectual disabilities / Domingo GARCIA-VILLAMISAR in Research in Autism Spectrum Disorders, 7-5 (May 2013)
[article]
Titre : Quality of life as a mediator between behavioral challenges and autistic traits for adults with intellectual disabilities Type de document : Texte imprimé et/ou numérique Auteurs : Domingo GARCIA-VILLAMISAR, Auteur ; John DATTILO, Auteur ; Johnny L. MATSON, Auteur Article en page(s) : p.624-629 Mots-clés : Autism spectrum disorders Intellectual disabilities Behavioral challenges Quality of life Index. décimale : PER Périodiques Résumé : A multiple mediation model was proposed to integrate core concepts of challenging behaviors with autistic traits to increase understanding of their relationship to quality of life (QoL). It was hypothesized that QoL is a possible mediator between the severity of challenging behaviors and autistic traits in adults with intellectual disability. These constructs are of vital importance because they are essential variables for people with autism, and obviously they influence their psychosocial development. Participants were 70 adults with autism spectrum disorders (ASD) and moderate intellectual disabilities (ID). Results indicated that several dimensions of QoL mediated the relationships between autistic traits and challenging behaviors. The dimensions of QoL, Satisfaction, Competence/Productivity, and Autonomy/Independence are mediators between autistic traits and challenging behaviors. Implications of these data are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.12.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194
in Research in Autism Spectrum Disorders > 7-5 (May 2013) . - p.624-629[article] Quality of life as a mediator between behavioral challenges and autistic traits for adults with intellectual disabilities [Texte imprimé et/ou numérique] / Domingo GARCIA-VILLAMISAR, Auteur ; John DATTILO, Auteur ; Johnny L. MATSON, Auteur . - p.624-629.
in Research in Autism Spectrum Disorders > 7-5 (May 2013) . - p.624-629
Mots-clés : Autism spectrum disorders Intellectual disabilities Behavioral challenges Quality of life Index. décimale : PER Périodiques Résumé : A multiple mediation model was proposed to integrate core concepts of challenging behaviors with autistic traits to increase understanding of their relationship to quality of life (QoL). It was hypothesized that QoL is a possible mediator between the severity of challenging behaviors and autistic traits in adults with intellectual disability. These constructs are of vital importance because they are essential variables for people with autism, and obviously they influence their psychosocial development. Participants were 70 adults with autism spectrum disorders (ASD) and moderate intellectual disabilities (ID). Results indicated that several dimensions of QoL mediated the relationships between autistic traits and challenging behaviors. The dimensions of QoL, Satisfaction, Competence/Productivity, and Autonomy/Independence are mediators between autistic traits and challenging behaviors. Implications of these data are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2012.12.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=194 Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households / Tomomi MCAULIFFE in Journal of Autism and Developmental Disorders, 47-10 (October 2017)
[article]
Titre : Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households Type de document : Texte imprimé et/ou numérique Auteurs : Tomomi MCAULIFFE, Auteur ; Reinie CORDIER, Auteur ; Sharmila VAZ, Auteur ; Yvonne THOMAS, Auteur ; Torbjörn FALKMER, Auteur Article en page(s) : p.3189-3203 Langues : Anglais (eng) Mots-clés : ASD Single and coupled mothers Time use Quality of life Stress Coping Index. décimale : PER Périodiques Résumé : This study aimed to examine the influence of differences in household status on the parental stress, coping, time use and quality of life (QoL) among mothers of children with autism spectrum disorders. Forty-three single and 164 coupled mothers completed the survey. Data were analysed using multivariate logistic regression. We found that single mothers were 1.05 times more likely to report lower levels of environmental QoL. Whilst they were 1.73 times more likely to use acceptance coping style, this association did not persist after adjusting for total number of children, household income and employment status. There was no difference in time use and stress between these mothers. Possible environmental issues for single mothers and implications for future research are discussed. En ligne : https://doi.org/10.1007/s10803-017-3240-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319
in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.3189-3203[article] Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households [Texte imprimé et/ou numérique] / Tomomi MCAULIFFE, Auteur ; Reinie CORDIER, Auteur ; Sharmila VAZ, Auteur ; Yvonne THOMAS, Auteur ; Torbjörn FALKMER, Auteur . - p.3189-3203.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.3189-3203
Mots-clés : ASD Single and coupled mothers Time use Quality of life Stress Coping Index. décimale : PER Périodiques Résumé : This study aimed to examine the influence of differences in household status on the parental stress, coping, time use and quality of life (QoL) among mothers of children with autism spectrum disorders. Forty-three single and 164 coupled mothers completed the survey. Data were analysed using multivariate logistic regression. We found that single mothers were 1.05 times more likely to report lower levels of environmental QoL. Whilst they were 1.73 times more likely to use acceptance coping style, this association did not persist after adjusting for total number of children, household income and employment status. There was no difference in time use and stress between these mothers. Possible environmental issues for single mothers and implications for future research are discussed. En ligne : https://doi.org/10.1007/s10803-017-3240-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319 Quality of life for older autistic people: The impact of mental health difficulties / D. MASON in Research in Autism Spectrum Disorders, 63 (July 2019)
[article]
Titre : Quality of life for older autistic people: The impact of mental health difficulties Type de document : Texte imprimé et/ou numérique Auteurs : D. MASON, Auteur ; J. MACKINTOSH, Auteur ; H. MCCONACHIE, Auteur ; J. RODGERS, Auteur ; T. FINCH, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.13-22 Langues : Anglais (eng) Mots-clés : Quality of life Ageing Mental health Normative outcomes Lifecourse goals Index. décimale : PER Périodiques Résumé : Background Having a mental health condition is related to significantly lower subjective Quality of Life (QoL) for people on the autism spectrum. Many autistic people do not participate in so-called ‘normative’ outcomes, i.e. the achievement of lifecourse goals judged to be important by adults in the general population (e.g. being employed). This study aimed to investigate whether there is an association between the presence of mental health conditions, subjective QoL and participation in normative outcomes in older autistic people. Methods 69 autistic people (n?=?48 males) aged 55 years and over were identified from two studies that are part of the UK Autism Spectrum Adulthood and Ageing research programme. Participants provided demographic data to establish normative outcome participation, and completed the World Health Organisation (WHO) QoL measure (WHOQoL-BREF) and the Hospital Anxiety and Depression Scale (HADS). Illustrative quotes focusing on normative outcomes were available from in-depth interviews (n?=?8). Results QoL scores across all domains were lower for individuals who met indicative clinical cut-offs for depression (F(8,126)?=?6.171, p?0.001); findings were similar for anxiety (F(8,126)?=?3.902, p?0.001). Subjective QoL did not differ according to participation in normative outcomes (F(12,124.64)?=?1.363, p?=?0.192). The illustrative quotes suggested that aspects of daily life were related to QoL (i.e. friendships). Conclusions For older autistic people, the presence and severity of a likely mental health condition (i.e anxiety and depression) were associated with poorer QoL. However, participation in general population lifecourse goals may not well represent QoL of older autistic people, suggesting that service supports should be individually responsive. En ligne : https://doi.org/10.1016/j.rasd.2019.02.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=394
in Research in Autism Spectrum Disorders > 63 (July 2019) . - p.13-22[article] Quality of life for older autistic people: The impact of mental health difficulties [Texte imprimé et/ou numérique] / D. MASON, Auteur ; J. MACKINTOSH, Auteur ; H. MCCONACHIE, Auteur ; J. RODGERS, Auteur ; T. FINCH, Auteur ; Jeremy R. PARR, Auteur . - p.13-22.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 63 (July 2019) . - p.13-22
Mots-clés : Quality of life Ageing Mental health Normative outcomes Lifecourse goals Index. décimale : PER Périodiques Résumé : Background Having a mental health condition is related to significantly lower subjective Quality of Life (QoL) for people on the autism spectrum. Many autistic people do not participate in so-called ‘normative’ outcomes, i.e. the achievement of lifecourse goals judged to be important by adults in the general population (e.g. being employed). This study aimed to investigate whether there is an association between the presence of mental health conditions, subjective QoL and participation in normative outcomes in older autistic people. Methods 69 autistic people (n?=?48 males) aged 55 years and over were identified from two studies that are part of the UK Autism Spectrum Adulthood and Ageing research programme. Participants provided demographic data to establish normative outcome participation, and completed the World Health Organisation (WHO) QoL measure (WHOQoL-BREF) and the Hospital Anxiety and Depression Scale (HADS). Illustrative quotes focusing on normative outcomes were available from in-depth interviews (n?=?8). Results QoL scores across all domains were lower for individuals who met indicative clinical cut-offs for depression (F(8,126)?=?6.171, p?0.001); findings were similar for anxiety (F(8,126)?=?3.902, p?0.001). Subjective QoL did not differ according to participation in normative outcomes (F(12,124.64)?=?1.363, p?=?0.192). The illustrative quotes suggested that aspects of daily life were related to QoL (i.e. friendships). Conclusions For older autistic people, the presence and severity of a likely mental health condition (i.e anxiety and depression) were associated with poorer QoL. However, participation in general population lifecourse goals may not well represent QoL of older autistic people, suggesting that service supports should be individually responsive. En ligne : https://doi.org/10.1016/j.rasd.2019.02.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=394 Quality of Life for Transition-Age Youth with Autism or Intellectual Disability / Elizabeth E. BIGGS in Journal of Autism and Developmental Disorders, 46-1 (January 2016)
PermalinkQuality of life in autism across the lifespan: A meta-analysis / Barbara F.C. VAN HEIJST in Autism, 19-2 (February 2015)
PermalinkQuality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis / Gazi F. AZAD in Journal of Autism and Developmental Disorders, 50-4 (April 2020)
PermalinkQuality of life of caregivers of children with autism in Qatar / Nadir KHEIR in Autism, 16-3 (May 2012)
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