Family adaptation among parents of children on the autism spectrum without a comorbid intellectual disability: A test of the Double ABCX model / Jane MELEADY in Research in Autism Spectrum Disorders, 78 (October 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 78 (October 2020) . - 101637 Titre : Family adaptation among parents of children on the autism spectrum without a comorbid intellectual disability: A test of the Double ABCX model Type de document : Texte imprimé et/ou numérique Auteurs : Jane MELEADY, Auteur ; Finiki NEARCHOU, Auteur ; Jessica BRAMHAM, Auteur ; Alan CARR, Auteur Article en page(s) : 101637 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders (ASD)  Parent  Positive contributions  Family quality of life  Double ABCX Index. décimale : PER Périodiques Résumé : Background This study examined family adaptation among parents of school age children with autism spectrum disorder (ASD) who do not have a comorbid diagnosis of intellectual disability (ID). Family adaptation was measured by parents’ perceived family quality of life and satisfaction with life. Associated factors were derived from the Double ABCX model of family adaptation (i.e. autism symptom severity, problem behaviours, pile-up life demands, social support, cognitive appraisals and coping strategies). In particular, we were interested in the potential association between positive contributions directly associated with this caregiving experience and outcomes. Method Participants (N = 104) were parents of school age children who had a diagnosis of ASD and no comorbid ID. Parents completed a battery of self-report questionnaires via online survey. Results All variables within the model were associated with one or both of the outcomes, with the exception of problem focused coping. Social support, positive contributions and passive-avoidance coping remained significant unique predictors of both outcomes within multiple regression analyses. Passive avoidance coping was found to moderate the relationship between symptom severity and parents’ satisfaction with life. Conclusions The Double ABCX Model provides a useful framework in identifying risk and protective factors for parents. Support was provided for inclusion of both positive predictor and outcome variables, at the individual and family level. Proximal variables, such as maladaptive coping strategies, may explain associations between stressors and wellbeing. Methodological considerations and implications for clinical practice are discussed. En ligne : https://doi.org/10.1016/j.rasd.2020.101637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433 [article] Family adaptation among parents of children on the autism spectrum without a comorbid intellectual disability: A test of the Double ABCX model [Texte imprimé et/ou numérique] / Jane MELEADY, Auteur ; Finiki NEARCHOU, Auteur ; Jessica BRAMHAM, Auteur ; Alan CARR, Auteur . - 101637. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 78 (October 2020) . - 101637 Mots-clés : Autism spectrum disorders (ASD)  Parent  Positive contributions  Family quality of life  Double ABCX Index. décimale : PER Périodiques Résumé : Background This study examined family adaptation among parents of school age children with autism spectrum disorder (ASD) who do not have a comorbid diagnosis of intellectual disability (ID). Family adaptation was measured by parents’ perceived family quality of life and satisfaction with life. Associated factors were derived from the Double ABCX model of family adaptation (i.e. autism symptom severity, problem behaviours, pile-up life demands, social support, cognitive appraisals and coping strategies). In particular, we were interested in the potential association between positive contributions directly associated with this caregiving experience and outcomes. Method Participants (N = 104) were parents of school age children who had a diagnosis of ASD and no comorbid ID. Parents completed a battery of self-report questionnaires via online survey. Results All variables within the model were associated with one or both of the outcomes, with the exception of problem focused coping. Social support, positive contributions and passive-avoidance coping remained significant unique predictors of both outcomes within multiple regression analyses. Passive avoidance coping was found to moderate the relationship between symptom severity and parents’ satisfaction with life. Conclusions The Double ABCX Model provides a useful framework in identifying risk and protective factors for parents. Support was provided for inclusion of both positive predictor and outcome variables, at the individual and family level. Proximal variables, such as maladaptive coping strategies, may explain associations between stressors and wellbeing. Methodological considerations and implications for clinical practice are discussed. En ligne : https://doi.org/10.1016/j.rasd.2020.101637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433

Positive contributions among parents of children on the autism spectrum: A Systematic review / Jane MELEADY in Research in Autism Spectrum Disorders, 78 (October 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 78 (October 2020) . - 101635 Titre : Positive contributions among parents of children on the autism spectrum: A Systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Jane MELEADY, Auteur ; Colette CLYNE, Auteur ; Jessica BRAHAM, Auteur ; Alan CARR, Auteur Article en page(s) : 101635 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders (ASD)  Parent  Positive contributions  Benefit finding  Posttraumatic growth  Systematic review Index. décimale : PER Périodiques Résumé : Background Previous research has suggested that parents can experience positive contributions as a result of raising a child on the autism spectrum. A better understanding of positive contributions among this population can inform clinicians and policymakers and lead to improved outcomes for families. This review aimed to systematically examine studies measuring positive contributions among parents of children with ASD (<18 years) and to subsequently summarise the conceptualisations and measurements of positive contributions within the literature and investigate associated child, parental, family and contextual factors. Method An electronic database search was conducted using Medline, Psycinfo, CINAHL, ERIC and Embase: 94 articles were identified for full text review and 26 studies were selected. The quality of studies were appraised and data were synthesised according to the review aims. Results Positive contributions were conceptualised in nine different ways across selected studies. Ten standardised self-report questionnaires, one unstandardised questionnaire and one closed question were used to measure these constructs. Variables associated with higher positive contributions within this group included older age of child, being of an ethnic minority group, being a mother, higher psychological wellbeing and personal resources, relationship satisfaction, social support and narrative writing. Conclusions This review verified previous reports of positive contributions among parents of children with ASD and highlighted potential areas of support. Strengths and limitations of the studies are highlighted and implications for future research and clinical practice are discussed. En ligne : https://doi.org/10.1016/j.rasd.2020.101635 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433 [article] Positive contributions among parents of children on the autism spectrum: A Systematic review [Texte imprimé et/ou numérique] / Jane MELEADY, Auteur ; Colette CLYNE, Auteur ; Jessica BRAHAM, Auteur ; Alan CARR, Auteur . - 101635. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 78 (October 2020) . - 101635 Mots-clés : Autism spectrum disorders (ASD)  Parent  Positive contributions  Benefit finding  Posttraumatic growth  Systematic review Index. décimale : PER Périodiques Résumé : Background Previous research has suggested that parents can experience positive contributions as a result of raising a child on the autism spectrum. A better understanding of positive contributions among this population can inform clinicians and policymakers and lead to improved outcomes for families. This review aimed to systematically examine studies measuring positive contributions among parents of children with ASD (<18 years) and to subsequently summarise the conceptualisations and measurements of positive contributions within the literature and investigate associated child, parental, family and contextual factors. Method An electronic database search was conducted using Medline, Psycinfo, CINAHL, ERIC and Embase: 94 articles were identified for full text review and 26 studies were selected. The quality of studies were appraised and data were synthesised according to the review aims. Results Positive contributions were conceptualised in nine different ways across selected studies. Ten standardised self-report questionnaires, one unstandardised questionnaire and one closed question were used to measure these constructs. Variables associated with higher positive contributions within this group included older age of child, being of an ethnic minority group, being a mother, higher psychological wellbeing and personal resources, relationship satisfaction, social support and narrative writing. Conclusions This review verified previous reports of positive contributions among parents of children with ASD and highlighted potential areas of support. Strengths and limitations of the studies are highlighted and implications for future research and clinical practice are discussed. En ligne : https://doi.org/10.1016/j.rasd.2020.101635 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433

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