Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 / Maarten VAN 'T HOF in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.862-873 Titre : Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 Type de document : Texte imprimé et/ou numérique Auteurs : Maarten VAN 'T HOF, Auteur ; Chanel TISSEUR, Auteur ; Ina VAN BERCKELEAR-ONNES, Auteur ; Annemyn VAN NIEUWENHUYZEN, Auteur ; Amy M. DANIELS, Auteur ; Mathijs DEEN, Auteur ; Hans W HOEK, Auteur ; Wietske A. ESTER, Auteur Article en page(s) : p.862-873 Langues : Anglais (eng) Mots-clés : age at diagnosis  autism spectrum disorder  influencing factors  meta-analysis  review Index. décimale : PER Périodiques Résumé : We currently assume that the global mean age at diagnosis of autism spectrum disorder ranges from 38 to 120?months. However, this range is based on studies from 1991 to 2012 and measures have since been introduced to reduce the age at autism spectrum disorder diagnosis. We performed a systematic review and meta-analysis (statistical analysis that combines the results of multiple scientific studies) for studies published between 2012 and 2019 to evaluate the current age at autism spectrum disorder diagnosis. We included 56 studies that reported the age at diagnosis for 40 countries (containing 120,540 individuals with autism spectrum disorder). Results showed the current mean age at diagnosis to be 60.48?months (range: 30.90-234.57?months) and 43.18?months (range: 30.90-74.70?months) for studies that only included children aged ?10?years. Numerous factors that may influence age at diagnosis (e.g. type of autism spectrum disorder diagnosis, additional diagnoses and gender) were reported by 46 studies, often with conflicting or inconclusive results. Our study is the first to determine the global average age at autism spectrum disorder diagnosis from a meta-analysis. Although progress is being made in the earlier detection of autism spectrum disorder, it requires our constant attention. En ligne : http://dx.doi.org/10.1177/1362361320971107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 [Texte imprimé et/ou numérique] / Maarten VAN 'T HOF, Auteur ; Chanel TISSEUR, Auteur ; Ina VAN BERCKELEAR-ONNES, Auteur ; Annemyn VAN NIEUWENHUYZEN, Auteur ; Amy M. DANIELS, Auteur ; Mathijs DEEN, Auteur ; Hans W HOEK, Auteur ; Wietske A. ESTER, Auteur . - p.862-873. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.862-873 Mots-clés : age at diagnosis  autism spectrum disorder  influencing factors  meta-analysis  review Index. décimale : PER Périodiques Résumé : We currently assume that the global mean age at diagnosis of autism spectrum disorder ranges from 38 to 120?months. However, this range is based on studies from 1991 to 2012 and measures have since been introduced to reduce the age at autism spectrum disorder diagnosis. We performed a systematic review and meta-analysis (statistical analysis that combines the results of multiple scientific studies) for studies published between 2012 and 2019 to evaluate the current age at autism spectrum disorder diagnosis. We included 56 studies that reported the age at diagnosis for 40 countries (containing 120,540 individuals with autism spectrum disorder). Results showed the current mean age at diagnosis to be 60.48?months (range: 30.90-234.57?months) and 43.18?months (range: 30.90-74.70?months) for studies that only included children aged ?10?years. Numerous factors that may influence age at diagnosis (e.g. type of autism spectrum disorder diagnosis, additional diagnoses and gender) were reported by 46 studies, often with conflicting or inconclusive results. Our study is the first to determine the global average age at autism spectrum disorder diagnosis from a meta-analysis. Although progress is being made in the earlier detection of autism spectrum disorder, it requires our constant attention. En ligne : http://dx.doi.org/10.1177/1362361320971107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Early detection of young children at risk of autism spectrum disorder at well-baby clinics in the Netherlands: Perspectives of preventive care physicians / Michelle Ij SNIJDER in Autism, 26-7 (October 2022)  

Public ISBD [article]  inAutism > 26-7 (October 2022) . - p.2012-2024 Titre : Early detection of young children at risk of autism spectrum disorder at well-baby clinics in the Netherlands: Perspectives of preventive care physicians Type de document : Texte imprimé et/ou numérique Auteurs : Michelle Ij SNIJDER, Auteur ; Shireen P. T. KAIJADOE, Auteur ; Maarten VAN 'T HOF, Auteur ; Wietske A. ESTER, Auteur ; Jan K. BUITELAAR, Auteur ; Iris J. OOSTERLING, Auteur Article en page(s) : p.2012-2024 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Child, Preschool  Early Diagnosis  Humans  Infant  Mass Screening  Netherlands  Physicians  autism spectrum disorder  early detection  guideline adherence  preventive care  screening Index. décimale : PER Périodiques Résumé : To improve early detection of autism spectrum disorder in preventive care, a Dutch guideline was developed 5years ago. The guideline provides preventive care physicians at well-baby clinics action-oriented advice and describes a step-by-step approach for children identified at an increased risk for autism spectrum disorder during general healthcare surveillance. The present qualitative study evaluated adherence to the guideline and studied barriers regarding early detection of autism spectrum disorder at well-baby clinics. Interviews were undertaken with 12 preventive care physicians (one representative per province). It was found that the vast majority of participants did not follow-up general surveillance with an autism spectrum disorder -specific screener as prescribed by the guideline. Six barriers (limited knowledge about autism spectrum disorder symptoms in infant and toddlerhood, professional attitude toward early detection, problems in discussing initial worries with parents, limited use of screening instruments, perceptions toward cultural and language differences and constraints regarding availability of healthcare services) were found. The results of this study highlight the importance of an integrative approach, raising awareness of the benefits regarding early detection of autism spectrum disorder in preventive care, the need of continuous investment in easy and accessible training and active screening, and a closer collaboration between preventive care organizations and autism spectrum disorder experts. En ligne : http://dx.doi.org/10.1177/13623613211009345 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Early detection of young children at risk of autism spectrum disorder at well-baby clinics in the Netherlands: Perspectives of preventive care physicians [Texte imprimé et/ou numérique] / Michelle Ij SNIJDER, Auteur ; Shireen P. T. KAIJADOE, Auteur ; Maarten VAN 'T HOF, Auteur ; Wietske A. ESTER, Auteur ; Jan K. BUITELAAR, Auteur ; Iris J. OOSTERLING, Auteur . - p.2012-2024. Langues : Anglais (eng) in Autism > 26-7 (October 2022) . - p.2012-2024 Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Child, Preschool  Early Diagnosis  Humans  Infant  Mass Screening  Netherlands  Physicians  autism spectrum disorder  early detection  guideline adherence  preventive care  screening Index. décimale : PER Périodiques Résumé : To improve early detection of autism spectrum disorder in preventive care, a Dutch guideline was developed 5years ago. The guideline provides preventive care physicians at well-baby clinics action-oriented advice and describes a step-by-step approach for children identified at an increased risk for autism spectrum disorder during general healthcare surveillance. The present qualitative study evaluated adherence to the guideline and studied barriers regarding early detection of autism spectrum disorder at well-baby clinics. Interviews were undertaken with 12 preventive care physicians (one representative per province). It was found that the vast majority of participants did not follow-up general surveillance with an autism spectrum disorder -specific screener as prescribed by the guideline. Six barriers (limited knowledge about autism spectrum disorder symptoms in infant and toddlerhood, professional attitude toward early detection, problems in discussing initial worries with parents, limited use of screening instruments, perceptions toward cultural and language differences and constraints regarding availability of healthcare services) were found. The results of this study highlight the importance of an integrative approach, raising awareness of the benefits regarding early detection of autism spectrum disorder in preventive care, the need of continuous investment in easy and accessible training and active screening, and a closer collaboration between preventive care organizations and autism spectrum disorder experts. En ligne : http://dx.doi.org/10.1177/13623613211009345 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Effectivity of Play-Based Interventions in Children with Autism Spectrum Disorder and Their Parents: A Systematic Review / Leanne DIJKSTRA-DE NEIJS in Journal of Autism and Developmental Disorders, 53-4 (April 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1588-1617 Titre : Effectivity of Play-Based Interventions in Children with Autism Spectrum Disorder and Their Parents: A Systematic Review Type de document : Texte imprimé et/ou numérique Auteurs : Leanne DIJKSTRA-DE NEIJS, Auteur ; Chanel TISSEUR, Auteur ; Laura A. KLUWEN, Auteur ; Ina A. VAN BERCKELAER-ONNES, Auteur ; Hanna SWAAB, Auteur ; Wietske A. ESTER, Auteur Article en page(s) : p.1588-1617 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Evidence of the effectivity of play-based interventions in children with autism spectrum disorder (ASD) was evaluated by PRISMA-based literature study and a Risk of Bias (RoB) assessment. Many of the 32 eligible randomized controlled trials (RCT) reported improved social interaction, communication, daily functioning and play behaviour. They also reported decreased problem behaviour, better parental attunement and parent-child interaction. We assessed 25/32 of the RCTs with high RoB, mainly related to homogeneity of the study population, lack of power, and performance bias. We concluded with due care that the effectivity of play-based interventions differed across RCTs, most reported improvements are found in ASD symptoms, everyday functioning, and parental attunement. In future research, findings should be replicated, taking account of the RoB. En ligne : https://doi.org/10.1007/s10803-021-05357-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Effectivity of Play-Based Interventions in Children with Autism Spectrum Disorder and Their Parents: A Systematic Review [Texte imprimé et/ou numérique] / Leanne DIJKSTRA-DE NEIJS, Auteur ; Chanel TISSEUR, Auteur ; Laura A. KLUWEN, Auteur ; Ina A. VAN BERCKELAER-ONNES, Auteur ; Hanna SWAAB, Auteur ; Wietske A. ESTER, Auteur . - p.1588-1617. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1588-1617 Index. décimale : PER Périodiques Résumé : Evidence of the effectivity of play-based interventions in children with autism spectrum disorder (ASD) was evaluated by PRISMA-based literature study and a Risk of Bias (RoB) assessment. Many of the 32 eligible randomized controlled trials (RCT) reported improved social interaction, communication, daily functioning and play behaviour. They also reported decreased problem behaviour, better parental attunement and parent-child interaction. We assessed 25/32 of the RCTs with high RoB, mainly related to homogeneity of the study population, lack of power, and performance bias. We concluded with due care that the effectivity of play-based interventions differed across RCTs, most reported improvements are found in ASD symptoms, everyday functioning, and parental attunement. In future research, findings should be replicated, taking account of the RoB. En ligne : https://doi.org/10.1007/s10803-021-05357-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

How do primary care providers and autistic adults want to improve their primary care? A Delphi-study / Wietske A. ESTER ; Hilde M. GEURTS ; Robert RJM VERMEIREN ; Laura A. NOOTEBOOM in Autism, 28-2 (February 2024)  

Public ISBD [article]  inAutism > 28-2 (February 2024) . - p.449?460 Titre : How do primary care providers and autistic adults want to improve their primary care? A Delphi-study Type de document : Texte imprimé et/ou numérique Auteurs : Wietske A. ESTER, Auteur ; Hilde M. GEURTS, Auteur ; Robert RJM VERMEIREN, Auteur ; Laura A. NOOTEBOOM, Auteur Article en page(s) : p.449?460 Mots-clés : autism  barriers  general practice  healthcare access  primary care  recommendations Index. décimale : PER Périodiques Résumé : Autistic adults often experience health problems and a range of healthcare barriers. Therefore, the aim of this study was to evaluate barriers and explore how primary care providers and autistic adults want to improve their primary healthcare. Semi-structured interviews with three autistic adults, two parents of autistic children and six care providers, were performed to evaluate barriers in Dutch healthcare. Next, in a three-round Delphi-study, 21 autistic adults and 20 primary care providers rated barriers in primary healthcare and assessed recommendations based on usefulness and feasibility. In the thematically analysed interviews, 20 barriers in Dutch healthcare for autistic people were identified. In the Delphi-study, the primary care providers rated the negative impact of most barriers lower than the autistic adults. The Delphi-study resulted in 22 recommendations to improve primary healthcare for autistic adults, focused on: primary care providers (i.e. education in collaboration with autistic people), autistic adults (i.e. improvement of preparation for general practitioner-appointments) and organization of general practice (i.e. enhancement of continuity in care). In conclusion, primary care providers seem to assess healthcare barriers as less impactful than autistic adults. With the use of the Delphi-method, useful and feasible recommendations to improve primary healthcare for autistic adults were identified, based on the needs of autistic adults and primary care providers. Lay abstract Autistic adults often encounter different types of healthcare barriers. Because autistic adults also have an increased risk for health problems, the aim of this study was to evaluate barriers and to explore how primary care providers and autistic adults want to improve their primary healthcare. In this co-created study, semi-structured interviews with three autistic adults, two parents of autistic children and six care providers were performed to evaluate barriers in Dutch healthcare. Next, in the survey-study (using the Delphi-method including controlled feedback in three consecutive questionnaires), 21 autistic adults and 20 primary care providers rated the impact of barriers and the usefulness and feasibility of recommendations to improve primary healthcare. In the interviews, 20 barriers in Dutch healthcare for autistic people were found. In the survey-study, the primary care providers rated the negative impact of most barriers lower than the autistic adults. This survey-study resulted in 22 recommendations to improve primary healthcare focused on: primary care providers (including education in collaboration with autistic people), autistic adults (including improvement of preparation for general practitioner-appointments) and organization of general practice (including improvement of continuity in care). In conclusion, primary care providers seem to view healthcare barriers as less impactful than autistic adults. In this co-created study, recommendations to improve primary healthcare for autistic adults were identified, based on the needs of autistic adults and primary care providers. These recommendations provide a basis for primary care providers, autistic adults and their support network to start conversations about, for example, strategies to improve primary care providers? knowledge, autistic adults? preparation for a general practitioner-appointment and organization of primary care. En ligne : https://dx.doi.org/10.1177/13623613231172865 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 [article] How do primary care providers and autistic adults want to improve their primary care? A Delphi-study [Texte imprimé et/ou numérique] / Wietske A. ESTER, Auteur ; Hilde M. GEURTS, Auteur ; Robert RJM VERMEIREN, Auteur ; Laura A. NOOTEBOOM, Auteur . - p.449?460. in Autism > 28-2 (February 2024) . - p.449?460 Mots-clés : autism  barriers  general practice  healthcare access  primary care  recommendations Index. décimale : PER Périodiques Résumé : Autistic adults often experience health problems and a range of healthcare barriers. Therefore, the aim of this study was to evaluate barriers and explore how primary care providers and autistic adults want to improve their primary healthcare. Semi-structured interviews with three autistic adults, two parents of autistic children and six care providers, were performed to evaluate barriers in Dutch healthcare. Next, in a three-round Delphi-study, 21 autistic adults and 20 primary care providers rated barriers in primary healthcare and assessed recommendations based on usefulness and feasibility. In the thematically analysed interviews, 20 barriers in Dutch healthcare for autistic people were identified. In the Delphi-study, the primary care providers rated the negative impact of most barriers lower than the autistic adults. The Delphi-study resulted in 22 recommendations to improve primary healthcare for autistic adults, focused on: primary care providers (i.e. education in collaboration with autistic people), autistic adults (i.e. improvement of preparation for general practitioner-appointments) and organization of general practice (i.e. enhancement of continuity in care). In conclusion, primary care providers seem to assess healthcare barriers as less impactful than autistic adults. With the use of the Delphi-method, useful and feasible recommendations to improve primary healthcare for autistic adults were identified, based on the needs of autistic adults and primary care providers. Lay abstract Autistic adults often encounter different types of healthcare barriers. Because autistic adults also have an increased risk for health problems, the aim of this study was to evaluate barriers and to explore how primary care providers and autistic adults want to improve their primary healthcare. In this co-created study, semi-structured interviews with three autistic adults, two parents of autistic children and six care providers were performed to evaluate barriers in Dutch healthcare. Next, in the survey-study (using the Delphi-method including controlled feedback in three consecutive questionnaires), 21 autistic adults and 20 primary care providers rated the impact of barriers and the usefulness and feasibility of recommendations to improve primary healthcare. In the interviews, 20 barriers in Dutch healthcare for autistic people were found. In the survey-study, the primary care providers rated the negative impact of most barriers lower than the autistic adults. This survey-study resulted in 22 recommendations to improve primary healthcare focused on: primary care providers (including education in collaboration with autistic people), autistic adults (including improvement of preparation for general practitioner-appointments) and organization of general practice (including improvement of continuity in care). In conclusion, primary care providers seem to view healthcare barriers as less impactful than autistic adults. In this co-created study, recommendations to improve primary healthcare for autistic adults were identified, based on the needs of autistic adults and primary care providers. These recommendations provide a basis for primary care providers, autistic adults and their support network to start conversations about, for example, strategies to improve primary care providers? knowledge, autistic adults? preparation for a general practitioner-appointment and organization of primary care. En ligne : https://dx.doi.org/10.1177/13623613231172865 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519

Stress, Eating Behavior and Adverse Health in Parents of Young Children with Autism Spectrum Disorder / Hanna SWAAB ; Robert R. J. M. VERMEIREN ; Wietske A. ESTER in Journal of Autism and Developmental Disorders, 54-2 (February 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.662-672 Titre : Stress, Eating Behavior and Adverse Health in Parents of Young Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Hanna SWAAB, Auteur ; Robert R. J. M. VERMEIREN, Auteur ; Wietske A. ESTER, Auteur Article en page(s) : p.662-672 Index. décimale : PER Périodiques Résumé : Mothers of children with Autism Spectrum Disorder (ASD) often experience chronic stress and are at risk for adverse health. However, little is known about fathers, especially when their child is in early childhood. Parenting stress, eating behavior and physical health was evaluated in mothers (n?=?48) and fathers (n?=?43) of young children (3?7 years) with ASD by questionnaires and physical measurements. Mother?s prevalence rates of obesity (39.1%), abdominal obesity (59.6%) and metabolic syndrome (21.6%) were higher than the norm. In fathers, the prevalence rate of clinical parenting stress (33%) was higher than the norm. Parenting stress was positively related to disinhibited eating in mothers, not in fathers. It is crucial to monitor stress and health of parents of children with ASD. En ligne : https://doi.org/10.1007/s10803-022-05825-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520 [article] Stress, Eating Behavior and Adverse Health in Parents of Young Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Hanna SWAAB, Auteur ; Robert R. J. M. VERMEIREN, Auteur ; Wietske A. ESTER, Auteur . - p.662-672. in Journal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.662-672 Index. décimale : PER Périodiques Résumé : Mothers of children with Autism Spectrum Disorder (ASD) often experience chronic stress and are at risk for adverse health. However, little is known about fathers, especially when their child is in early childhood. Parenting stress, eating behavior and physical health was evaluated in mothers (n?=?48) and fathers (n?=?43) of young children (3?7 years) with ASD by questionnaires and physical measurements. Mother?s prevalence rates of obesity (39.1%), abdominal obesity (59.6%) and metabolic syndrome (21.6%) were higher than the norm. In fathers, the prevalence rate of clinical parenting stress (33%) was higher than the norm. Parenting stress was positively related to disinhibited eating in mothers, not in fathers. It is crucial to monitor stress and health of parents of children with ASD. En ligne : https://doi.org/10.1007/s10803-022-05825-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520

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