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Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers / R. CHOUEIRI in Journal of Autism and Developmental Disorders, 51-11 (November 2021)
[article]
Titre : Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers Type de document : Texte imprimé et/ou numérique Auteurs : R. CHOUEIRI, Auteur ; A. LINDENBAUM, Auteur ; M. RAVI, Auteur ; W. ROBSKY, Auteur ; J. FLAHIVE, Auteur ; W. GARRISON, Auteur Article en page(s) : p.3937-3945 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis Autistic Disorder Checklist Child, Preschool Humans Infant Mass Screening Access Autism Community Cultural diversity Early intervention Interactive RITA-T (Rapid Interactive Screening Test of Autism in Toddlers) Screening Toddlers Underserved screening Test for Autism in Toddlers (RITA-T) with a collaboration with Early Intervention (EI) to improve early identification and access of toddlers to diagnosis and thus to treatment. We have since then replicated this work to other EI Programs and further developed the model. This work was presented as a poster at the International Meeting for Autism Research in Montreal (2019), and in RITA-T training workshops locally, in the US or internationally. All authors have reviewed the manuscript and agree to its contents. All authors, except Dr.Choueiri, do not report any conflict of interest with respect to the material. Index. décimale : PER Périodiques Résumé : The objective of this study was to test a screening model that employs the Rapid Interactive Screening Test for Autism in Toddlers (RITA-T), in an underserved community to improve ASD detection. We collaborated with a large Early Intervention (EI) program and trained 4 providers reliably on the RITA-T. Toddlers received the Modified Checklist for Autism in Toddlers (MCHAT-R/F), the RITA-T, developmental and autism testing, and a best-estimate clinical diagnosis. Eighty-One toddlers were enrolled: 57 with ASD and 24 with Developmental Delay (DD) non-ASD. Wait-time for diagnosis was on average 6 weeks. The RITA-T correlated highly with autism measures and EI staff integrated this model easily. The RITA-T significantly improved the identification and wait time for ASD in this underserved community. En ligne : http://dx.doi.org/10.1007/s10803-020-04851-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454
in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3937-3945[article] Improving Early Identification and Access to Diagnosis of Autism Spectrum Disorder in Toddlers in a Culturally Diverse Community with the Rapid Interactive screening Test for Autism in Toddlers [Texte imprimé et/ou numérique] / R. CHOUEIRI, Auteur ; A. LINDENBAUM, Auteur ; M. RAVI, Auteur ; W. ROBSKY, Auteur ; J. FLAHIVE, Auteur ; W. GARRISON, Auteur . - p.3937-3945.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3937-3945Provider perspectives on equity in use of mobile health autism screening tools / Luis Andres RIVAS VAZQUEZ ; Yesenia MORALES SANTOS ; Plyce FUCHU ; Sarabeth BRODER-FINGERT ; Jill K. DOLATA ; Steven BEDRICK ; Jasmine FERNANDEZ ; Eric FOMBONNE ; Benjamin W. SANDERS in Autism, 28-8 (August 2024)
[article]
Titre : Provider perspectives on equity in use of mobile health autism screening tools Type de document : Texte imprimé et/ou numérique Auteurs : Luis Andres RIVAS VAZQUEZ, Auteur ; Yesenia MORALES SANTOS, Auteur ; Plyce FUCHU, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Jasmine FERNANDEZ, Auteur ; Eric FOMBONNE, Auteur ; Benjamin W. SANDERS, Auteur Article en page(s) : p.1947-1958 Langues : Anglais (eng) Mots-clés : autism spectrum disorder digital divide disparities mass screening mobile applications providers Index. décimale : PER Périodiques Résumé : Mobile health (mHealth) screening tools for autism are gaining in prevalence, and have benefits such as video content and direct resources linkage. However, it is unclear whether such tools will ameliorate autism inequities or will help only those already advantaged in autism care. To investigate this issue, we conducted semi-structured qualitative interviews with 18 primary care and Early Intervention/Early Childhood Special Education providers in six US states. Providers were given hypothetical scenarios in which a family presents to care with results from one of 9 mHealth autism screening tools. Providers discussed their clinical approach and assessed the tool?s fit with their patient/client population. Each transcript was audio-recorded, transcribed, and coded; a phenomenological approach was used to develop key themes. 4 themes and 18 subthemes emerged. These included Clinical and business factors (e.g. scope of practice concerns and clinical efficiency), Validity and trustworthiness (e.g. familiarity, data privacy/security), Family interaction quality (e.g. supporting family advocacy, provision of information, affecting family anxiety, and emotional support), and Accessibility (e.g. English proficiency/language issues, cultural inclusivity, and literacy/educational level). Providers suggested modifications to enhance equity, such as portraying diverse families, reducing the reading level of text, and making tools shorter to better fit clinical context. Lay Abstract Families may find information about autism online, and health care and education providers may use online tools to screen for autism. However, we do not know if online autism screening tools are easily used by families and providers. We interviewed primary care and educational providers, asking them to review results from online tools that screen for autism. Providers had concerns about how usable and accessible these tools are for diverse families and suggested changes to make tools easier to use. En ligne : https://dx.doi.org/10.1177/13623613231215399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533
in Autism > 28-8 (August 2024) . - p.1947-1958[article] Provider perspectives on equity in use of mobile health autism screening tools [Texte imprimé et/ou numérique] / Luis Andres RIVAS VAZQUEZ, Auteur ; Yesenia MORALES SANTOS, Auteur ; Plyce FUCHU, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Jasmine FERNANDEZ, Auteur ; Eric FOMBONNE, Auteur ; Benjamin W. SANDERS, Auteur . - p.1947-1958.
Langues : Anglais (eng)
in Autism > 28-8 (August 2024) . - p.1947-1958
Mots-clés : autism spectrum disorder digital divide disparities mass screening mobile applications providers Index. décimale : PER Périodiques Résumé : Mobile health (mHealth) screening tools for autism are gaining in prevalence, and have benefits such as video content and direct resources linkage. However, it is unclear whether such tools will ameliorate autism inequities or will help only those already advantaged in autism care. To investigate this issue, we conducted semi-structured qualitative interviews with 18 primary care and Early Intervention/Early Childhood Special Education providers in six US states. Providers were given hypothetical scenarios in which a family presents to care with results from one of 9 mHealth autism screening tools. Providers discussed their clinical approach and assessed the tool?s fit with their patient/client population. Each transcript was audio-recorded, transcribed, and coded; a phenomenological approach was used to develop key themes. 4 themes and 18 subthemes emerged. These included Clinical and business factors (e.g. scope of practice concerns and clinical efficiency), Validity and trustworthiness (e.g. familiarity, data privacy/security), Family interaction quality (e.g. supporting family advocacy, provision of information, affecting family anxiety, and emotional support), and Accessibility (e.g. English proficiency/language issues, cultural inclusivity, and literacy/educational level). Providers suggested modifications to enhance equity, such as portraying diverse families, reducing the reading level of text, and making tools shorter to better fit clinical context. Lay Abstract Families may find information about autism online, and health care and education providers may use online tools to screen for autism. However, we do not know if online autism screening tools are easily used by families and providers. We interviewed primary care and educational providers, asking them to review results from online tools that screen for autism. Providers had concerns about how usable and accessible these tools are for diverse families and suggested changes to make tools easier to use. En ligne : https://dx.doi.org/10.1177/13623613231215399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533 Screening Effects of the National Health Screening Program on Developmental Disorders / S. S. RAH in Journal of Autism and Developmental Disorders, 51-7 (July 2021)
[article]
Titre : Screening Effects of the National Health Screening Program on Developmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : S. S. RAH, Auteur ; S. B. HONG, Auteur ; J. Y. YOON, Auteur Article en page(s) : p.2461-2474 Langues : Anglais (eng) Mots-clés : Child Child, Preschool Developmental Disabilities/diagnosis/epidemiology Female Humans Male Mass Screening National Health Programs Prevalence Republic of Korea Developmental disabilities Diagnostic screening programs Epidemiologic studies Infant Index. décimale : PER Périodiques Résumé : As the prevalence of developmental disorders (DDs) has increased, many OECD countries provide a national screening examination for early detection and intervention for DDs. This study examined effects of the National Health Screening Program in Korea. 65,334 children (39%) were DD-screened and 35,466 children (21%) received a false negative among the 167,050 study subjects. The DD-screened rate had increased from 3208 (27.2%) in 2008 to 8471 (47.3%) in 2012, then decreased to 5544 (29.8%) in 2017. Changes in the false negative rates increased from 2.7% in 2008 to 23.8% in 2017 were one of the most influential factors in these fluctuations. The DD-screened rate was influenced by demo-geographic and economic factors as well as by age-related characteristics of the subconditions. En ligne : http://dx.doi.org/10.1007/s10803-020-04712-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2461-2474[article] Screening Effects of the National Health Screening Program on Developmental Disorders [Texte imprimé et/ou numérique] / S. S. RAH, Auteur ; S. B. HONG, Auteur ; J. Y. YOON, Auteur . - p.2461-2474.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2461-2474
Mots-clés : Child Child, Preschool Developmental Disabilities/diagnosis/epidemiology Female Humans Male Mass Screening National Health Programs Prevalence Republic of Korea Developmental disabilities Diagnostic screening programs Epidemiologic studies Infant Index. décimale : PER Périodiques Résumé : As the prevalence of developmental disorders (DDs) has increased, many OECD countries provide a national screening examination for early detection and intervention for DDs. This study examined effects of the National Health Screening Program in Korea. 65,334 children (39%) were DD-screened and 35,466 children (21%) received a false negative among the 167,050 study subjects. The DD-screened rate had increased from 3208 (27.2%) in 2008 to 8471 (47.3%) in 2012, then decreased to 5544 (29.8%) in 2017. Changes in the false negative rates increased from 2.7% in 2008 to 23.8% in 2017 were one of the most influential factors in these fluctuations. The DD-screened rate was influenced by demo-geographic and economic factors as well as by age-related characteristics of the subconditions. En ligne : http://dx.doi.org/10.1007/s10803-020-04712-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 Short caregiver interview and play observation for early screening of autism spectrum disorder: Behavior development screening for toddlers (BeDevel) / Guiyoung BONG in Autism Research, 14-7 (July 2021)
[article]
Titre : Short caregiver interview and play observation for early screening of autism spectrum disorder: Behavior development screening for toddlers (BeDevel) Type de document : Texte imprimé et/ou numérique Auteurs : Guiyoung BONG, Auteur ; S. Y. KIM, Auteur ; D. Y. SONG, Auteur ; J. H. KIM, Auteur ; Y. HONG, Auteur ; N. H. YOON, Auteur ; H. SUNWOO, Auteur ; J. Y. JANG, Auteur ; M. OH, Auteur ; J. M. KIM, Auteur ; K. S. LEE, Auteur ; S. JUNG, Auteur ; C. W. CHOI, Auteur ; J. S. RYU, Auteur ; H. J. YOO, Auteur Article en page(s) : p.1472-1483 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis Autistic Disorder Caregivers Child Child, Preschool Humans Infant Male Mass Screening Reproducibility of Results autism spectrum disorder early detection screening social referencing Index. décimale : PER Périodiques Résumé : This study validates behavior development screening for toddlers (BeDevel), which utilizes a combination of short caregiver interviews (BeDevel-I) and semistructured play observations (BeDevel-P). The data of 431 toddlers (male 66.2%; mean age (SD) = 29.11 (8.59) months; ASD, n = 201; developmental delay, n = 46; typically developing, n = 184), aged 18?~?42?months, were included in the validation of BeDevel. The best clinical estimate diagnosis, screening rate, validity, sensitivity, and reliability of BeDevel were determined based on data cross-sectionally collected using BeDevel and existing diagnostic/screening instruments: autism diagnostic observation schedule (ADOS), autism diagnostic interview (ADI-R), Vineland adaptive behavior scales-II (VABS-II), social response scales (SRS), sequenced language scale for infants (SELSI), Korean childhood autism rating scale (K-CARS), and Korean social communication questionnaire (K-SCQ). The k values of BeDevel-I and BeDevel-P were 0.055?~?0.732 and 0.291?~?0.752, respectively. Items related to social referencing in BeDevel-P had a particularly high diagnostic validity (k = 0.483?~?0.684). Reliabilities of BeDevel-I and BeDevel-P were sufficient (Cronbach's alpha = 0.86?~?0.88 and 0.92?~?0.95, respectively). BeDevel-I and BeDevel-P showed high sensitivity (BeDevel-I: 85.00?~?89.29%; BeDevel-P: 85.00?~?91.75%), specificity (BeDevel-I: 77.55?~?89.55%; BeDevel-P: 85.09?~?97.01%), PPV (BeDevel-I: 70.83?~?88.54%; BeDevel-P: 81.52?~?94.68%), and NPV (BeDevel-I: 76.00?~?95.24%; BeDevel-P: 84.62?~?95.45%). The agreement between the composite BeDevel score and ADOS, ADI-R, K-CARS, and K-SCQ was >67.6% (range = 67.6?~?90.8%). Combining a short caregiver interview and direct play observation is a valid and reliable screening process. More studies on social referencing as an important early marker are needed. BeDevel can be utilized as a secondary screening instrument before diagnostic confirmation in clinical and community settings. LAY SUMMARY: BeDevel, which consists of a short caregiver interview and direct play observation, is a valid and reliable screening instrument for autism spectrum disorder (ASD). We suggest that BeDevel can be utilized as a secondary instrument before administering diagnostic assessments in clinical and community settings. More studies examining social referencing as a potential behavioral marker of ASD are needed. En ligne : http://dx.doi.org/10.1002/aur.2510 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-7 (July 2021) . - p.1472-1483[article] Short caregiver interview and play observation for early screening of autism spectrum disorder: Behavior development screening for toddlers (BeDevel) [Texte imprimé et/ou numérique] / Guiyoung BONG, Auteur ; S. Y. KIM, Auteur ; D. Y. SONG, Auteur ; J. H. KIM, Auteur ; Y. HONG, Auteur ; N. H. YOON, Auteur ; H. SUNWOO, Auteur ; J. Y. JANG, Auteur ; M. OH, Auteur ; J. M. KIM, Auteur ; K. S. LEE, Auteur ; S. JUNG, Auteur ; C. W. CHOI, Auteur ; J. S. RYU, Auteur ; H. J. YOO, Auteur . - p.1472-1483.
Langues : Anglais (eng)
in Autism Research > 14-7 (July 2021) . - p.1472-1483
Mots-clés : Autism Spectrum Disorder/diagnosis Autistic Disorder Caregivers Child Child, Preschool Humans Infant Male Mass Screening Reproducibility of Results autism spectrum disorder early detection screening social referencing Index. décimale : PER Périodiques Résumé : This study validates behavior development screening for toddlers (BeDevel), which utilizes a combination of short caregiver interviews (BeDevel-I) and semistructured play observations (BeDevel-P). The data of 431 toddlers (male 66.2%; mean age (SD) = 29.11 (8.59) months; ASD, n = 201; developmental delay, n = 46; typically developing, n = 184), aged 18?~?42?months, were included in the validation of BeDevel. The best clinical estimate diagnosis, screening rate, validity, sensitivity, and reliability of BeDevel were determined based on data cross-sectionally collected using BeDevel and existing diagnostic/screening instruments: autism diagnostic observation schedule (ADOS), autism diagnostic interview (ADI-R), Vineland adaptive behavior scales-II (VABS-II), social response scales (SRS), sequenced language scale for infants (SELSI), Korean childhood autism rating scale (K-CARS), and Korean social communication questionnaire (K-SCQ). The k values of BeDevel-I and BeDevel-P were 0.055?~?0.732 and 0.291?~?0.752, respectively. Items related to social referencing in BeDevel-P had a particularly high diagnostic validity (k = 0.483?~?0.684). Reliabilities of BeDevel-I and BeDevel-P were sufficient (Cronbach's alpha = 0.86?~?0.88 and 0.92?~?0.95, respectively). BeDevel-I and BeDevel-P showed high sensitivity (BeDevel-I: 85.00?~?89.29%; BeDevel-P: 85.00?~?91.75%), specificity (BeDevel-I: 77.55?~?89.55%; BeDevel-P: 85.09?~?97.01%), PPV (BeDevel-I: 70.83?~?88.54%; BeDevel-P: 81.52?~?94.68%), and NPV (BeDevel-I: 76.00?~?95.24%; BeDevel-P: 84.62?~?95.45%). The agreement between the composite BeDevel score and ADOS, ADI-R, K-CARS, and K-SCQ was >67.6% (range = 67.6?~?90.8%). Combining a short caregiver interview and direct play observation is a valid and reliable screening process. More studies on social referencing as an important early marker are needed. BeDevel can be utilized as a secondary screening instrument before diagnostic confirmation in clinical and community settings. LAY SUMMARY: BeDevel, which consists of a short caregiver interview and direct play observation, is a valid and reliable screening instrument for autism spectrum disorder (ASD). We suggest that BeDevel can be utilized as a secondary instrument before administering diagnostic assessments in clinical and community settings. More studies examining social referencing as a potential behavioral marker of ASD are needed. En ligne : http://dx.doi.org/10.1002/aur.2510 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives / M. PETRUCCELLI in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
[article]
Titre : A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives Type de document : Texte imprimé et/ou numérique Auteurs : M. PETRUCCELLI, Auteur ; L. RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. C. SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; A. EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; T. I. MACKIE, Auteur Article en page(s) : p.647-673 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis Child Child, Preschool Early Intervention, Educational Humans Mass Screening Parents Pediatricians Autism spectrum disorder Harms Healthcare providers Qualitative methods Screening first-stage screeners used in this study. He conducts research related to this instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but receives no royalties. She is also co-creator of the BITSEA, which is one of the two first-stage screeners used in this study. Dr. Carter receives royalties on the sale of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673[article] A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives [Texte imprimé et/ou numérique] / M. PETRUCCELLI, Auteur ; L. RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. C. SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; A. EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; T. I. MACKIE, Auteur . - p.647-673.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673
Mots-clés : Autism Spectrum Disorder/diagnosis Child Child, Preschool Early Intervention, Educational Humans Mass Screening Parents Pediatricians Autism spectrum disorder Harms Healthcare providers Qualitative methods Screening first-stage screeners used in this study. He conducts research related to this instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but receives no royalties. She is also co-creator of the BITSEA, which is one of the two first-stage screeners used in this study. Dr. Carter receives royalties on the sale of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 The Early Screening for Autism and Communication Disorders: Field-testing an autism-specific screening tool for children 12 to 36 months of age / Amy M. WETHERBY in Autism, 25-7 (October 2021)
PermalinkThe Early Screening for Autism and Communication Disorders: Field-testing an autism-specific screening tool for children 12 to 36 months of age / Amy M. WETHERBY in Autism, 26-7 (October 2022)
PermalinkAutism Spectrum Disorder Alertness in Dutch Youth and Family Center Physicians: Effects of a Live Online Educational Program / M. VAN 'T HOF in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
PermalinkBrief Report: Cumulative Incidence of Autism Spectrum Disorder Before School Entry in a Thoroughly Screened Population / Daimei SASAYAMA in Journal of Autism and Developmental Disorders, 51-4 (April 2021)
PermalinkBrief Report: Specificity of Interpersonal Synchrony Deficits to Autism Spectrum Disorder and Its Potential for Digitally Assisted Diagnostics / Jana Christina KOEHLER in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
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