The untold perspective: Parents' experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis / L. A. BENDIK in Autism, 25-6 (August 2021)  

Public ISBD [article]  inAutism > 25-6 (August 2021) . - p.1761-1770 Titre : The untold perspective: Parents' experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : L. A. BENDIK, Auteur ; Freya SPICER-WHITE, Auteur Article en page(s) : p.1761-1770 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Emotions  Family  Humans  Parents  assessment  autism spectrum disorder  diagnosis  interpretative phenomenological analysis  parents  professional development  qualitative research Index. décimale : PER Périodiques Résumé : Autism is diagnosed by a process of child assessment and parental interview. It has been well-documented by parents of children who received a diagnosis of autism, that the process can be lengthy and cause distress for families. Nevertheless, the outcome often compensated for the difficult assessment journey as it enables families to gain access to further information, support and intervention. However, less is known about the assessment process from parents who undertake the same process but at the end are told their child does not meet the diagnostic criteria, meaning no diagnosis is given. We interviewed six parents in North Wales, whose child did not receive a diagnostic of autism following an assessment. During the interview, parents were asked about their experience of the autism assessment process. We found that parents reflected on their experience according to three themes: (1) parents tried to navigate how they could make sense of their child being different despite not receiving a diagnosis; (2) parents referred to the assessment process as a journey, which encompassed many emotional and psychological components and (3) parents discussed what it was like to hear a non-diagnosis outcome, in terms of feeling relieved, confused and raising questions for the child's future. These findings are important for professionals working in autism assessment services to help improve the assessment process for families, particularly when the assessment does not result in a diagnosis. En ligne : http://dx.doi.org/10.1177/13623613211003741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] The untold perspective: Parents' experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis [Texte imprimé et/ou numérique] / L. A. BENDIK, Auteur ; Freya SPICER-WHITE, Auteur . - p.1761-1770. Langues : Anglais (eng) in Autism > 25-6 (August 2021) . - p.1761-1770 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Emotions  Family  Humans  Parents  assessment  autism spectrum disorder  diagnosis  interpretative phenomenological analysis  parents  professional development  qualitative research Index. décimale : PER Périodiques Résumé : Autism is diagnosed by a process of child assessment and parental interview. It has been well-documented by parents of children who received a diagnosis of autism, that the process can be lengthy and cause distress for families. Nevertheless, the outcome often compensated for the difficult assessment journey as it enables families to gain access to further information, support and intervention. However, less is known about the assessment process from parents who undertake the same process but at the end are told their child does not meet the diagnostic criteria, meaning no diagnosis is given. We interviewed six parents in North Wales, whose child did not receive a diagnostic of autism following an assessment. During the interview, parents were asked about their experience of the autism assessment process. We found that parents reflected on their experience according to three themes: (1) parents tried to navigate how they could make sense of their child being different despite not receiving a diagnosis; (2) parents referred to the assessment process as a journey, which encompassed many emotional and psychological components and (3) parents discussed what it was like to hear a non-diagnosis outcome, in terms of feeling relieved, confused and raising questions for the child's future. These findings are important for professionals working in autism assessment services to help improve the assessment process for families, particularly when the assessment does not result in a diagnosis. En ligne : http://dx.doi.org/10.1177/13623613211003741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

The untold perspective: Parents' experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis / Lesley-Anne BENDIK in Autism, 26-6 (August 2022)  

Public ISBD [article]  inAutism > 26-6 (August 2022) . - p.1761-1770 Titre : The untold perspective: Parents' experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Lesley-Anne BENDIK, Auteur ; Freya SPICER-WHITE, Auteur Article en page(s) : p.1761-1770 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Emotions  Family  Humans  Parents  assessment  autism spectrum disorder  diagnosis  interpretative phenomenological analysis  professional development  qualitative research Index. décimale : PER Périodiques Résumé : Autism is diagnosed by a process of child assessment and parental interview. It has been well-documented by parents of children who received a diagnosis of autism, that the process can be lengthy and cause distress for families. Nevertheless, the outcome often compensated for the difficult assessment journey as it enables families to gain access to further information, support and intervention. However, less is known about the assessment process from parents who undertake the same process but at the end are told their child does not meet the diagnostic criteria, meaning no diagnosis is given. We interviewed six parents in North Wales, whose child did not receive a diagnostic of autism following an assessment. During the interview, parents were asked about their experience of the autism assessment process. We found that parents reflected on their experience according to three themes: (1) parents tried to navigate how they could make sense of their child being different despite not receiving a diagnosis; (2) parents referred to the assessment process as a journey, which encompassed many emotional and psychological components and (3) parents discussed what it was like to hear a non-diagnosis outcome, in terms of feeling relieved, confused and raising questions for the child's future. These findings are important for professionals working in autism assessment services to help improve the assessment process for families, particularly when the assessment does not result in a diagnosis. En ligne : http://dx.doi.org/10.1177/13623613211003741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] The untold perspective: Parents' experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis [Texte imprimé et/ou numérique] / Lesley-Anne BENDIK, Auteur ; Freya SPICER-WHITE, Auteur . - p.1761-1770. Langues : Anglais (eng) in Autism > 26-6 (August 2022) . - p.1761-1770 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Emotions  Family  Humans  Parents  assessment  autism spectrum disorder  diagnosis  interpretative phenomenological analysis  professional development  qualitative research Index. décimale : PER Périodiques Résumé : Autism is diagnosed by a process of child assessment and parental interview. It has been well-documented by parents of children who received a diagnosis of autism, that the process can be lengthy and cause distress for families. Nevertheless, the outcome often compensated for the difficult assessment journey as it enables families to gain access to further information, support and intervention. However, less is known about the assessment process from parents who undertake the same process but at the end are told their child does not meet the diagnostic criteria, meaning no diagnosis is given. We interviewed six parents in North Wales, whose child did not receive a diagnostic of autism following an assessment. During the interview, parents were asked about their experience of the autism assessment process. We found that parents reflected on their experience according to three themes: (1) parents tried to navigate how they could make sense of their child being different despite not receiving a diagnosis; (2) parents referred to the assessment process as a journey, which encompassed many emotional and psychological components and (3) parents discussed what it was like to hear a non-diagnosis outcome, in terms of feeling relieved, confused and raising questions for the child's future. These findings are important for professionals working in autism assessment services to help improve the assessment process for families, particularly when the assessment does not result in a diagnosis. En ligne : http://dx.doi.org/10.1177/13623613211003741 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

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