Brief Report: The Experiences of Families of Children with an Autism Spectrum Disorder When Seeking Patient-and Family-Centered Care / Jennifer L. KOUO in Journal of Autism and Developmental Disorders, 52-9 (September 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4172-4180 Titre : Brief Report: The Experiences of Families of Children with an Autism Spectrum Disorder When Seeking Patient-and Family-Centered Care Type de document : texte imprimé Auteurs : Jennifer L. KOUO, Auteur ; Theodore S. KOUO, Auteur ; Jillian GALLOGLY, Auteur Article en page(s) : p.4172-4180 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Child  Delivery of Health Care  Health Personnel  Humans  Patient-Centered Care  Acute care settings  Autism spectrum disorder  Families  Healthcare  Patient- and family-centered care  Perspectives Index. décimale : PER Périodiques Résumé : Patient-and family-centered care (PFCC) is a partnership among healthcare professionals, patients, and families that is grounded in mutual respect and is an approach that impacts delivery of care, decision-making, and information sharing. PFCC should be implemented for all, including individuals with Autism Spectrum Disorders (ASD), who experience adverse medical encounters despite increased prevalence and healthcare utilization. Insights into the experiences of families during medical experiences can inform clinical practice by increasing healthcare professionals' understanding of the population. Using a mixed-methods approach, the perspectives of 40 families were analyzed. The themes include barriers and opportunities to improve upon the delivery of PFCC, which help to advance healthcare interactions and inform solution-based initiatives to facilitate medical visits that may benefit all patients. En ligne : http://dx.doi.org/10.1007/s10803-021-05272-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Brief Report: The Experiences of Families of Children with an Autism Spectrum Disorder When Seeking Patient-and Family-Centered Care [texte imprimé] / Jennifer L. KOUO, Auteur ; Theodore S. KOUO, Auteur ; Jillian GALLOGLY, Auteur . - p.4172-4180. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-9 (September 2022) . - p.4172-4180 Mots-clés : Autism Spectrum Disorder/therapy  Child  Delivery of Health Care  Health Personnel  Humans  Patient-Centered Care  Acute care settings  Autism spectrum disorder  Families  Healthcare  Patient- and family-centered care  Perspectives Index. décimale : PER Périodiques Résumé : Patient-and family-centered care (PFCC) is a partnership among healthcare professionals, patients, and families that is grounded in mutual respect and is an approach that impacts delivery of care, decision-making, and information sharing. PFCC should be implemented for all, including individuals with Autism Spectrum Disorders (ASD), who experience adverse medical encounters despite increased prevalence and healthcare utilization. Insights into the experiences of families during medical experiences can inform clinical practice by increasing healthcare professionals' understanding of the population. Using a mixed-methods approach, the perspectives of 40 families were analyzed. The themes include barriers and opportunities to improve upon the delivery of PFCC, which help to advance healthcare interactions and inform solution-based initiatives to facilitate medical visits that may benefit all patients. En ligne : http://dx.doi.org/10.1007/s10803-021-05272-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

A Scoping Review of Targeted Interventions and Training to Facilitate Medical Encounters for School-Aged Patients with an Autism Spectrum Disorder / Jennifer L. KOUO in Journal of Autism and Developmental Disorders, 51-8 (August 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2829-2851 Titre : A Scoping Review of Targeted Interventions and Training to Facilitate Medical Encounters for School-Aged Patients with an Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Jennifer L. KOUO, Auteur ; Theodore S. KOUO, Auteur Article en page(s) : p.2829-2851 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/psychology/therapy  Child  Early Intervention, Educational/methods  Health Personnel/education/psychology  Humans  Patient-Centered Care/methods  Schools  Students/psychology  Autism spectrum disorder  Evidence-based practices  Healthcare provider training  Medical encounters Index. décimale : PER Périodiques Résumé : Individuals with an autism spectrum disorder (ASD) have a greater number of healthcare provider interactions than individuals without ASD. The obstacles to patient-centered care for this population, which include inflexibility of hospital environments, limited resources, and inadequate training, has been documented. However, there is little knowledge on efforts to address such concerns. A scoping review was conducted and the systematic search of the literature resulted in 23 relevant studies. The predominant themes include the use of data collection instruments, application of evidence-based practices and resources, and training of providers. The results of this review have implications for practitioners and future research to adapt and improve upon the provision of medical care for individuals with ASD across the lifespan. En ligne : http://dx.doi.org/10.1007/s10803-020-04716-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] A Scoping Review of Targeted Interventions and Training to Facilitate Medical Encounters for School-Aged Patients with an Autism Spectrum Disorder [texte imprimé] / Jennifer L. KOUO, Auteur ; Theodore S. KOUO, Auteur . - p.2829-2851. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2829-2851 Mots-clés : Autism Spectrum Disorder/diagnosis/psychology/therapy  Child  Early Intervention, Educational/methods  Health Personnel/education/psychology  Humans  Patient-Centered Care/methods  Schools  Students/psychology  Autism spectrum disorder  Evidence-based practices  Healthcare provider training  Medical encounters Index. décimale : PER Périodiques Résumé : Individuals with an autism spectrum disorder (ASD) have a greater number of healthcare provider interactions than individuals without ASD. The obstacles to patient-centered care for this population, which include inflexibility of hospital environments, limited resources, and inadequate training, has been documented. However, there is little knowledge on efforts to address such concerns. A scoping review was conducted and the systematic search of the literature resulted in 23 relevant studies. The predominant themes include the use of data collection instruments, application of evidence-based practices and resources, and training of providers. The results of this review have implications for practitioners and future research to adapt and improve upon the provision of medical care for individuals with ASD across the lifespan. En ligne : http://dx.doi.org/10.1007/s10803-020-04716-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

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