Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial / Julie Lounds TAYLOR in Autism Research, 16-10 (October 2023)  

Public ISBD [article]  inAutism Research > 16-10 (October 2023) . - p.1976-1988 Titre : Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial Type de document : Texte imprimé et/ou numérique Auteurs : Julie Lounds TAYLOR, Auteur ; Leann Smith DAWALT, Auteur ; Meghan M. BURKE, Auteur ; James C. SLAUGHTER, Auteur ; Meng XU, Auteur Article en page(s) : p.1976-1988 Index. décimale : PER Périodiques Résumé : Abstract Youth with autism face challenges accessing services as they transition to adulthood. Improving parents' ability to advocate for services on behalf of their youth may be an effective way to improve service access and ultimately transition outcomes in this group. In this study, we tested whether participating in an advocacy intervention improved parents' ability to advocate for services for their transition-aged youth with autism. One hundred and eighty-five parents of youth with autism ages 16-26, recruited across three states in the U.S., were randomized to one of two experimental conditions. The treatment condition received the ASSIST program, a 12-week (24-h) group-based intervention. The control condition received the same written materials as the treatment condition. Primary outcomes for this report-parent advocacy ability-were collected at baseline (prior to randomization) and post-test (immediately after the treatment group finished the 12-week program) by survey. After taking ASSIST, the treatment condition had greater gains than controls in knowledge of adult services (B?=??1.62, CI?=??2.33 to ?0.90) and perceived advocacy skills (B?=??0.19, CI?=??0.33 to ?0.04). Participants who had less knowledge, lower perceived advocacy skills, and less active coping styles at baseline had the greatest treatment gains. Findings suggest that ASSIST is effective in improving parent advocacy ability and may be most beneficial for parents who experience greater challenges advocating for their son/daughter with autism. Future research will examine whether gains in parent advocacy ability leads to improvements in service access and post-school outcomes for transition-age youth with autism. En ligne : https://doi.org/10.1002/aur.3001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513 [article] Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial [Texte imprimé et/ou numérique] / Julie Lounds TAYLOR, Auteur ; Leann Smith DAWALT, Auteur ; Meghan M. BURKE, Auteur ; James C. SLAUGHTER, Auteur ; Meng XU, Auteur . - p.1976-1988. in Autism Research > 16-10 (October 2023) . - p.1976-1988 Index. décimale : PER Périodiques Résumé : Abstract Youth with autism face challenges accessing services as they transition to adulthood. Improving parents' ability to advocate for services on behalf of their youth may be an effective way to improve service access and ultimately transition outcomes in this group. In this study, we tested whether participating in an advocacy intervention improved parents' ability to advocate for services for their transition-aged youth with autism. One hundred and eighty-five parents of youth with autism ages 16-26, recruited across three states in the U.S., were randomized to one of two experimental conditions. The treatment condition received the ASSIST program, a 12-week (24-h) group-based intervention. The control condition received the same written materials as the treatment condition. Primary outcomes for this report-parent advocacy ability-were collected at baseline (prior to randomization) and post-test (immediately after the treatment group finished the 12-week program) by survey. After taking ASSIST, the treatment condition had greater gains than controls in knowledge of adult services (B?=??1.62, CI?=??2.33 to ?0.90) and perceived advocacy skills (B?=??0.19, CI?=??0.33 to ?0.04). Participants who had less knowledge, lower perceived advocacy skills, and less active coping styles at baseline had the greatest treatment gains. Findings suggest that ASSIST is effective in improving parent advocacy ability and may be most beneficial for parents who experience greater challenges advocating for their son/daughter with autism. Future research will examine whether gains in parent advocacy ability leads to improvements in service access and post-school outcomes for transition-age youth with autism. En ligne : https://doi.org/10.1002/aur.3001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513

A Longitudinal RCT of P-ESDM With and Without Parental Mindfulness Based Stress Reduction: Impact on Child Outcomes / Amy S. WEITLAUF in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5403-5413 Titre : A Longitudinal RCT of P-ESDM With and Without Parental Mindfulness Based Stress Reduction: Impact on Child Outcomes Type de document : Texte imprimé et/ou numérique Auteurs : Amy S. WEITLAUF, Auteur ; Neill BRODERICK, Auteur ; J. ALACIA STAINBROOK, Auteur ; James C. SLAUGHTER, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Catherine G. HERRINGTON, Auteur ; Amy G. NICHOLSON, Auteur ; Madeline SANTULLI, Auteur ; Kristin DORRIS, Auteur ; LaTamara Jackson GARRETT, Auteur ; Michelle HOPTON, Auteur ; Amy KINSMAN, Auteur ; Mary MORTON, Auteur ; Ashley VOGEL, Auteur ; Elisabeth M. DYKENS, Auteur ; A. PABLO JUAREZ, Auteur ; Zachary WARREN, Auteur Année de publication : 2022 Article en page(s) : p.5403-5413 Langues : Anglais (eng) Mots-clés : Child  Humans  Autism Spectrum Disorder/diagnosis  Mindfulness  Parents/psychology  Early Intervention, Educational  Autistic Disorder/therapy  Autism spectrum disorder  P-esdm  Young children  conflicts of interest relevant to this article to disclose. Index. décimale : PER Périodiques Résumé : This randomized controlled trial (NCT03889821) examined Mindfulness Based Stress Reduction (MBSR) in conjunction with the Parent-implemented Early Start Denver Model (P-ESDM). A previous report described improved metrics of parental distress (Weitlauf et al. in Pediatrics 145(Supplement 1):S81-S92, 2020). This manuscript examines child outcomes. 63 children with ASD (< 36 months) and their parents received 12 P-ESDM sessions. Half of parents also received MBSR. Longitudinal examination of whole sample means revealed modest improvements in autism severity, cognitive, and adaptive skills. There was not a significant time × group interaction for children whose parents received MBSR. Future work should examine more proximal markers of child or dyadic change to enhance understanding of the impact of providing direct treatment for parents as part of early intervention initiatives. En ligne : http://dx.doi.org/10.1007/s10803-021-05399-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] A Longitudinal RCT of P-ESDM With and Without Parental Mindfulness Based Stress Reduction: Impact on Child Outcomes [Texte imprimé et/ou numérique] / Amy S. WEITLAUF, Auteur ; Neill BRODERICK, Auteur ; J. ALACIA STAINBROOK, Auteur ; James C. SLAUGHTER, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Catherine G. HERRINGTON, Auteur ; Amy G. NICHOLSON, Auteur ; Madeline SANTULLI, Auteur ; Kristin DORRIS, Auteur ; LaTamara Jackson GARRETT, Auteur ; Michelle HOPTON, Auteur ; Amy KINSMAN, Auteur ; Mary MORTON, Auteur ; Ashley VOGEL, Auteur ; Elisabeth M. DYKENS, Auteur ; A. PABLO JUAREZ, Auteur ; Zachary WARREN, Auteur . - 2022 . - p.5403-5413. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5403-5413 Mots-clés : Child  Humans  Autism Spectrum Disorder/diagnosis  Mindfulness  Parents/psychology  Early Intervention, Educational  Autistic Disorder/therapy  Autism spectrum disorder  P-esdm  Young children  conflicts of interest relevant to this article to disclose. Index. décimale : PER Périodiques Résumé : This randomized controlled trial (NCT03889821) examined Mindfulness Based Stress Reduction (MBSR) in conjunction with the Parent-implemented Early Start Denver Model (P-ESDM). A previous report described improved metrics of parental distress (Weitlauf et al. in Pediatrics 145(Supplement 1):S81-S92, 2020). This manuscript examines child outcomes. 63 children with ASD (< 36 months) and their parents received 12 P-ESDM sessions. Half of parents also received MBSR. Longitudinal examination of whole sample means revealed modest improvements in autism severity, cognitive, and adaptive skills. There was not a significant time × group interaction for children whose parents received MBSR. Future work should examine more proximal markers of child or dyadic change to enhance understanding of the impact of providing direct treatment for parents as part of early intervention initiatives. En ligne : http://dx.doi.org/10.1007/s10803-021-05399-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

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