Consensus recommendations for usability and acceptability of mobile health autism screening tools / Gabriella TANGKILISAN in Autism, 29-12 (December 2025)  

Public ISBD [article]  inAutism > 29-12 (December 2025) . - p.3100-3110 Titre : Consensus recommendations for usability and acceptability of mobile health autism screening tools Type de document : texte imprimé Auteurs : Gabriella TANGKILISAN, Auteur ; Luis Rivas VAZQUEZ, Auteur ; Plyce FUCHU, Auteur ; Benjamin SANDERS, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Eric FOMBONNE, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Katharine E. ZUCKERMAN, Auteur Article en page(s) : p.3100-3110 Langues : Anglais (eng) Mots-clés : autism screening  autism spectrum disorder  Delphi consensus  developmental screening  disparities  mobile health  practice guidelines Index. décimale : PER Périodiques Résumé : Mobile health (mHealth; online phone or tablet-based) screening tools for autism are being increasingly used by parents, health care, and educational providers. However, it is unclear whether mHealth autism screening will improve the inequalities in autism or further help individuals already advantaged in autism care. To try to improve equity in mHealth autism screening, we conducted a modified Delphi consensus panel process with 14 panelists who were medical providers, parents, tool developers, and educational providers. Panelists participated in three asynchronous online voting rounds followed by online discussions. Panelists were provided a preliminary list of 28 recommendations for autism-screening tools that were compiled from previous qualitative interviews in the larger project. In each round, panelists were asked to vote for up to 10 recommendations from the preliminary list and discuss the voting results. After the third round of asynchronous voting, a final round of discussion with all the panelists was held live through Zoom to discuss the final asynchronous voting results. All voting and discussion took place on an online app called Slack. Voting and discussion yielded 19 recommendations in five conceptual categories: transparency, equity, access, product design and user experience, and development process. Tools adhering to these recommendations may increase equitable service use after screening.Lay abstract Families may use information online to learn more about autism. Families, health care, and educational providers may use online tools like checklists or web apps to screen for autism (measure whether a young child has autism symptoms or behaviors). However, we do not know whether the online autism-screening tools can be easily used by families and providers. It is possible that families who are culturally diverse, have lower education, or have lower income have trouble using online autism-screening tools. We conducted an online consensus panel with medical/educational providers, parents, and tool developers, asking them to vote and have discussions on suggestions for online screening tools for autism. The voting and discussions resulted in 19 suggestions for changes to make the tools easier to use. The top recommendations included directly linking to sources of information about autism, reading level that is less than or equal to fifth grade, and focusing on the diverse behavior/needs/strengths associated with autism. En ligne : https://dx.doi.org/10.1177/13623613251360276 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572 [article] Consensus recommendations for usability and acceptability of mobile health autism screening tools [texte imprimé] / Gabriella TANGKILISAN, Auteur ; Luis Rivas VAZQUEZ, Auteur ; Plyce FUCHU, Auteur ; Benjamin SANDERS, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Eric FOMBONNE, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Katharine E. ZUCKERMAN, Auteur . - p.3100-3110. Langues : Anglais (eng) in Autism > 29-12 (December 2025) . - p.3100-3110 Mots-clés : autism screening  autism spectrum disorder  Delphi consensus  developmental screening  disparities  mobile health  practice guidelines Index. décimale : PER Périodiques Résumé : Mobile health (mHealth; online phone or tablet-based) screening tools for autism are being increasingly used by parents, health care, and educational providers. However, it is unclear whether mHealth autism screening will improve the inequalities in autism or further help individuals already advantaged in autism care. To try to improve equity in mHealth autism screening, we conducted a modified Delphi consensus panel process with 14 panelists who were medical providers, parents, tool developers, and educational providers. Panelists participated in three asynchronous online voting rounds followed by online discussions. Panelists were provided a preliminary list of 28 recommendations for autism-screening tools that were compiled from previous qualitative interviews in the larger project. In each round, panelists were asked to vote for up to 10 recommendations from the preliminary list and discuss the voting results. After the third round of asynchronous voting, a final round of discussion with all the panelists was held live through Zoom to discuss the final asynchronous voting results. All voting and discussion took place on an online app called Slack. Voting and discussion yielded 19 recommendations in five conceptual categories: transparency, equity, access, product design and user experience, and development process. Tools adhering to these recommendations may increase equitable service use after screening.Lay abstract Families may use information online to learn more about autism. Families, health care, and educational providers may use online tools like checklists or web apps to screen for autism (measure whether a young child has autism symptoms or behaviors). However, we do not know whether the online autism-screening tools can be easily used by families and providers. It is possible that families who are culturally diverse, have lower education, or have lower income have trouble using online autism-screening tools. We conducted an online consensus panel with medical/educational providers, parents, and tool developers, asking them to vote and have discussions on suggestions for online screening tools for autism. The voting and discussions resulted in 19 suggestions for changes to make the tools easier to use. The top recommendations included directly linking to sources of information about autism, reading level that is less than or equal to fifth grade, and focusing on the diverse behavior/needs/strengths associated with autism. En ligne : https://dx.doi.org/10.1177/13623613251360276 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572

Mobile and online consumer tools to screen for autism do not promote equity / Benjamin W. SANDERS in Autism, 27-3 (April 2023)  

Public ISBD [article]  inAutism > 27-3 (April 2023) . - p.714-722 Titre : Mobile and online consumer tools to screen for autism do not promote equity Type de document : texte imprimé Auteurs : Benjamin W. SANDERS, Auteur ; Steven BEDRICK, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Shannon A. BROWN, Auteur ; Jill K. DOLATA, Auteur ; Eric FOMBONNE, Auteur ; Julie A REEDER, Auteur ; Luis Andres RIVAS VAZQUEZ, Auteur ; Plyce FUCHU, Auteur ; Yesenia MORALES, Auteur ; Katharine E. ZUCKERMAN, Auteur Article en page(s) : p.714-722 Langues : Anglais (eng) Mots-clés : autism spectrum disorder,digital divide,mass screening,mobile applications,parents,preschool,child Index. décimale : PER Périodiques Résumé : Limited access to screening and evaluation for autism spectrum disorder in children is a major barrier to improving outcomes for marginalized families. To identify and evaluate available digital autism spectrum disorder screening resources, we simulated web and mobile app searches by a parent concerned about their child?s likelihood of autism spectrum disorder. Included digital autism spectrum disorder screening tools (a) were on Internet or mobile app; (b) were in English; (c) had a parent user inputting data; (d) assigned likelihood category to child <9 years; and (e) screened for autism spectrum disorder. Ten search terms, developed using Google Search and parent panel recommendations, were used to search web and app tools in the United States, the United Kingdom, India, Australia, and Canada using Virtual Private Networks. Results were examined for attributes likely to benefit parents in marginalized communities, such as ease of searching, language versions, and reading level. The four terms most likely to identify any tools were ''autism quiz,'' ''autism screening tool,'' ''does my child have autism,'' and ''autism toddler.'' Three out of five searches contained autism spectrum disorder screening tools, as did one of 10 links or apps. Searches identified a total of 1475 websites and 919 apps, which yielded 23 unique tools. Most tools required continuous Internet access or offered only English, and many had high reading levels. In conclusion, screening tools are available, but they are not easily found. Barriers include inaccessibility to parents with limited literacy or limited English proficiency, and frequent encounters with games, advertisements, and user fees.Lay AbstractMany parents wonder if their child might have autism. Many parents use their smartphones to answer health questions. We asked, ''How easy or hard is it for parents to use their smartphones to find 'tools' to test their child for signs of autism?'' After doing pretend parent searches, we found that only one in 10 search results were tools to test children for autism. These tools were not designed for parents who have low income or other challenges such as low literacy skills, low English proficiency, or not being tech-savvy. En ligne : https://doi.org/10.1177/13623613221114280 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] Mobile and online consumer tools to screen for autism do not promote equity [texte imprimé] / Benjamin W. SANDERS, Auteur ; Steven BEDRICK, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Shannon A. BROWN, Auteur ; Jill K. DOLATA, Auteur ; Eric FOMBONNE, Auteur ; Julie A REEDER, Auteur ; Luis Andres RIVAS VAZQUEZ, Auteur ; Plyce FUCHU, Auteur ; Yesenia MORALES, Auteur ; Katharine E. ZUCKERMAN, Auteur . - p.714-722. Langues : Anglais (eng) in Autism > 27-3 (April 2023) . - p.714-722 Mots-clés : autism spectrum disorder,digital divide,mass screening,mobile applications,parents,preschool,child Index. décimale : PER Périodiques Résumé : Limited access to screening and evaluation for autism spectrum disorder in children is a major barrier to improving outcomes for marginalized families. To identify and evaluate available digital autism spectrum disorder screening resources, we simulated web and mobile app searches by a parent concerned about their child?s likelihood of autism spectrum disorder. Included digital autism spectrum disorder screening tools (a) were on Internet or mobile app; (b) were in English; (c) had a parent user inputting data; (d) assigned likelihood category to child <9 years; and (e) screened for autism spectrum disorder. Ten search terms, developed using Google Search and parent panel recommendations, were used to search web and app tools in the United States, the United Kingdom, India, Australia, and Canada using Virtual Private Networks. Results were examined for attributes likely to benefit parents in marginalized communities, such as ease of searching, language versions, and reading level. The four terms most likely to identify any tools were ''autism quiz,'' ''autism screening tool,'' ''does my child have autism,'' and ''autism toddler.'' Three out of five searches contained autism spectrum disorder screening tools, as did one of 10 links or apps. Searches identified a total of 1475 websites and 919 apps, which yielded 23 unique tools. Most tools required continuous Internet access or offered only English, and many had high reading levels. In conclusion, screening tools are available, but they are not easily found. Barriers include inaccessibility to parents with limited literacy or limited English proficiency, and frequent encounters with games, advertisements, and user fees.Lay AbstractMany parents wonder if their child might have autism. Many parents use their smartphones to answer health questions. We asked, ''How easy or hard is it for parents to use their smartphones to find 'tools' to test their child for signs of autism?'' After doing pretend parent searches, we found that only one in 10 search results were tools to test children for autism. These tools were not designed for parents who have low income or other challenges such as low literacy skills, low English proficiency, or not being tech-savvy. En ligne : https://doi.org/10.1177/13623613221114280 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

Provider perspectives on equity in use of mobile health autism screening tools / Luis Andres RIVAS VAZQUEZ ; Yesenia MORALES SANTOS ; Plyce FUCHU ; Sarabeth BRODER-FINGERT ; Jill K. DOLATA ; Steven BEDRICK ; Jasmine FERNANDEZ ; Eric FOMBONNE ; Benjamin W. SANDERS in Autism, 28-8 (August 2024)  

Public ISBD [article]  inAutism > 28-8 (August 2024) . - p.1947-1958 Titre : Provider perspectives on equity in use of mobile health autism screening tools Type de document : texte imprimé Auteurs : Luis Andres RIVAS VAZQUEZ, Auteur ; Yesenia MORALES SANTOS, Auteur ; Plyce FUCHU, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Jasmine FERNANDEZ, Auteur ; Eric FOMBONNE, Auteur ; Benjamin W. SANDERS, Auteur Article en page(s) : p.1947-1958 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  digital divide  disparities  mass screening  mobile applications  providers Index. décimale : PER Périodiques Résumé : Mobile health (mHealth) screening tools for autism are gaining in prevalence, and have benefits such as video content and direct resources linkage. However, it is unclear whether such tools will ameliorate autism inequities or will help only those already advantaged in autism care. To investigate this issue, we conducted semi-structured qualitative interviews with 18 primary care and Early Intervention/Early Childhood Special Education providers in six US states. Providers were given hypothetical scenarios in which a family presents to care with results from one of 9 mHealth autism screening tools. Providers discussed their clinical approach and assessed the tool?s fit with their patient/client population. Each transcript was audio-recorded, transcribed, and coded; a phenomenological approach was used to develop key themes. 4 themes and 18 subthemes emerged. These included Clinical and business factors (e.g. scope of practice concerns and clinical efficiency), Validity and trustworthiness (e.g. familiarity, data privacy/security), Family interaction quality (e.g. supporting family advocacy, provision of information, affecting family anxiety, and emotional support), and Accessibility (e.g. English proficiency/language issues, cultural inclusivity, and literacy/educational level). Providers suggested modifications to enhance equity, such as portraying diverse families, reducing the reading level of text, and making tools shorter to better fit clinical context. Lay Abstract Families may find information about autism online, and health care and education providers may use online tools to screen for autism. However, we do not know if online autism screening tools are easily used by families and providers. We interviewed primary care and educational providers, asking them to review results from online tools that screen for autism. Providers had concerns about how usable and accessible these tools are for diverse families and suggested changes to make tools easier to use. En ligne : https://dx.doi.org/10.1177/13623613231215399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533 [article] Provider perspectives on equity in use of mobile health autism screening tools [texte imprimé] / Luis Andres RIVAS VAZQUEZ, Auteur ; Yesenia MORALES SANTOS, Auteur ; Plyce FUCHU, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Jasmine FERNANDEZ, Auteur ; Eric FOMBONNE, Auteur ; Benjamin W. SANDERS, Auteur . - p.1947-1958. Langues : Anglais (eng) in Autism > 28-8 (August 2024) . - p.1947-1958 Mots-clés : autism spectrum disorder  digital divide  disparities  mass screening  mobile applications  providers Index. décimale : PER Périodiques Résumé : Mobile health (mHealth) screening tools for autism are gaining in prevalence, and have benefits such as video content and direct resources linkage. However, it is unclear whether such tools will ameliorate autism inequities or will help only those already advantaged in autism care. To investigate this issue, we conducted semi-structured qualitative interviews with 18 primary care and Early Intervention/Early Childhood Special Education providers in six US states. Providers were given hypothetical scenarios in which a family presents to care with results from one of 9 mHealth autism screening tools. Providers discussed their clinical approach and assessed the tool?s fit with their patient/client population. Each transcript was audio-recorded, transcribed, and coded; a phenomenological approach was used to develop key themes. 4 themes and 18 subthemes emerged. These included Clinical and business factors (e.g. scope of practice concerns and clinical efficiency), Validity and trustworthiness (e.g. familiarity, data privacy/security), Family interaction quality (e.g. supporting family advocacy, provision of information, affecting family anxiety, and emotional support), and Accessibility (e.g. English proficiency/language issues, cultural inclusivity, and literacy/educational level). Providers suggested modifications to enhance equity, such as portraying diverse families, reducing the reading level of text, and making tools shorter to better fit clinical context. Lay Abstract Families may find information about autism online, and health care and education providers may use online tools to screen for autism. However, we do not know if online autism screening tools are easily used by families and providers. We interviewed primary care and educational providers, asking them to review results from online tools that screen for autism. Providers had concerns about how usable and accessible these tools are for diverse families and suggested changes to make tools easier to use. En ligne : https://dx.doi.org/10.1177/13623613231215399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533

The impact of state policy on early autism diagnosis: A qualitative investigation / Olivia J. LINDLY in Autism, 29-8 (August 2025)  

Public ISBD [article]  inAutism > 29-8 (August 2025) . - p.2163-2180 Titre : The impact of state policy on early autism diagnosis: A qualitative investigation Type de document : texte imprimé Auteurs : Olivia J. LINDLY, Auteur ; Danielle ABATE, Auteur ; Plyce FUCHU, Auteur ; Jocelyn KUHN, Auteur ; Purnima S MUDNAL BHARATH, Auteur ; Sarah M ASANTEWAA, Auteur ; Emily FEINBERG, Auteur ; Sarabeth BRODER-FINGERT, Auteur Article en page(s) : p.2163-2180 Langues : Anglais (eng) Mots-clés : autism  disparities  early diagnosis  insurance  policy  services  United States Index. décimale : PER Périodiques Résumé : Autism diagnosis before age three to expedite access to critical services is a public health priority in the United States. Still, the average age of autism diagnosis is 49 months with substantial variability across states. By examining policy-defined as laws, regulations, procedures, administrative actions, incentives, or voluntary practices of governments or other institutions-modifiable structural drivers of early (or late) autism diagnosis may be identified. We, therefore, sought to identify policies impacting early autism diagnosis in five states that are part of a larger initiative to improve autism diagnosis (Arizona, California, Connecticut, Massachusetts, and Pennsylvania) and those that exist nationally. We conducted semi-structured interviews from 2021 to 2023 with a purposive sample of 57 autism policy or research experts. The following four themes were identified through conventional content analysis: (1) developmental monitoring is critical; however, developmental screening policies vary within and across states; (2) myriad policy and contextual factors shape early diagnosis pathways within states; (3) early intervention by the state and community-based early childhood programs influence early autism diagnosis; and (4) persistent disparities in early autism diagnosis pathways are affected by policies. Study findings highlight the importance of advancing certain state and federal policies to increase early autism diagnosis.Lay abstract In the United States, when children on the spectrum are diagnosed before age three, it can help them get the services they need to thrive. There are many differences between states as far as how many children are diagnosed with autism and the average age when they are diagnosed. Some work suggests these differences may be due to state polices, which include the laws and processes governments and organizations follow. Little research has tried to understand the similarities and differences between state policies related to autism diagnosis. Because of this, our study looked at how state policies impact the timing of autism diagnosis in the United States. We interviewed 57 experts in five states and nationally from 2021 to 2023. Four key themes were identified including (1) developmental monitoring often leads to screening, but there is much variation in and across states; (2) family, community, and healthcare factors shape pathways to autism diagnosis in states; (3) early intervention and education programs play a role in autism diagnosis; and (4) systematic differences in access to diagnosis services persist for certain groups of children and families such as those with limited English-speaking abilities. This study?s findings point to certain state and federal policy changes or enhancements to reduce the age of autism diagnosis and ameliorate persistent disparities in autism diagnosis. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251336813 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564 [article] The impact of state policy on early autism diagnosis: A qualitative investigation [texte imprimé] / Olivia J. LINDLY, Auteur ; Danielle ABATE, Auteur ; Plyce FUCHU, Auteur ; Jocelyn KUHN, Auteur ; Purnima S MUDNAL BHARATH, Auteur ; Sarah M ASANTEWAA, Auteur ; Emily FEINBERG, Auteur ; Sarabeth BRODER-FINGERT, Auteur . - p.2163-2180. Langues : Anglais (eng) in Autism > 29-8 (August 2025) . - p.2163-2180 Mots-clés : autism  disparities  early diagnosis  insurance  policy  services  United States Index. décimale : PER Périodiques Résumé : Autism diagnosis before age three to expedite access to critical services is a public health priority in the United States. Still, the average age of autism diagnosis is 49 months with substantial variability across states. By examining policy-defined as laws, regulations, procedures, administrative actions, incentives, or voluntary practices of governments or other institutions-modifiable structural drivers of early (or late) autism diagnosis may be identified. We, therefore, sought to identify policies impacting early autism diagnosis in five states that are part of a larger initiative to improve autism diagnosis (Arizona, California, Connecticut, Massachusetts, and Pennsylvania) and those that exist nationally. We conducted semi-structured interviews from 2021 to 2023 with a purposive sample of 57 autism policy or research experts. The following four themes were identified through conventional content analysis: (1) developmental monitoring is critical; however, developmental screening policies vary within and across states; (2) myriad policy and contextual factors shape early diagnosis pathways within states; (3) early intervention by the state and community-based early childhood programs influence early autism diagnosis; and (4) persistent disparities in early autism diagnosis pathways are affected by policies. Study findings highlight the importance of advancing certain state and federal policies to increase early autism diagnosis.Lay abstract In the United States, when children on the spectrum are diagnosed before age three, it can help them get the services they need to thrive. There are many differences between states as far as how many children are diagnosed with autism and the average age when they are diagnosed. Some work suggests these differences may be due to state polices, which include the laws and processes governments and organizations follow. Little research has tried to understand the similarities and differences between state policies related to autism diagnosis. Because of this, our study looked at how state policies impact the timing of autism diagnosis in the United States. We interviewed 57 experts in five states and nationally from 2021 to 2023. Four key themes were identified including (1) developmental monitoring often leads to screening, but there is much variation in and across states; (2) family, community, and healthcare factors shape pathways to autism diagnosis in states; (3) early intervention and education programs play a role in autism diagnosis; and (4) systematic differences in access to diagnosis services persist for certain groups of children and families such as those with limited English-speaking abilities. This study?s findings point to certain state and federal policy changes or enhancements to reduce the age of autism diagnosis and ameliorate persistent disparities in autism diagnosis. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251336813 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564

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