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Faire une suggestionThe Digital Divide in Technologies for Autism: Feasibility Considerations for Low- and Middle-Income Countries / Aubrey J. KUMM in Journal of Autism and Developmental Disorders, 52-5 (May 2022)
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Titre : The Digital Divide in Technologies for Autism: Feasibility Considerations for Low- and Middle-Income Countries Type de document : texte imprimé Auteurs : Aubrey J. KUMM, Auteur ; Marisa VILJOEN, Auteur ; Petrus J. DE VRIES, Auteur Article en page(s) : p.2300-2313 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Covid-19 Developing Countries Digital Divide Feasibility Studies Humans Pandemics Technology Africa Autism spectrum disorder Digital disparities Digital technology India Low-resource contexts Index. décimale : PER Périodiques Résumé : Digital technologies have the potential to empower individuals with autism and their families. The COVID-19 pandemic emphasized and accelerated the drive towards technology for information, communication, training, clinical care and research, also in the autism community. However, 95% of individuals with autism live in low- and middle-income countries (LMIC) where access to electricity, internet and the ever-increasing range of digital devices may be highly limited. The World Bank coined the term 'the digital divide' to describe the disparities in access to digital technologies between high-income and LMIC contexts. Here we evaluated the feasibility of six emerging technologies for autism spectrum disorders, and reflected on key considerations for implementation in LMIC contexts to ensure that we do not inadvertently widen the pre-existing digital divide. En ligne : http://dx.doi.org/10.1007/s10803-021-05084-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476
in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2300-2313[article] The Digital Divide in Technologies for Autism: Feasibility Considerations for Low- and Middle-Income Countries [texte imprimé] / Aubrey J. KUMM, Auteur ; Marisa VILJOEN, Auteur ; Petrus J. DE VRIES, Auteur . - p.2300-2313.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2300-2313
Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Covid-19 Developing Countries Digital Divide Feasibility Studies Humans Pandemics Technology Africa Autism spectrum disorder Digital disparities Digital technology India Low-resource contexts Index. décimale : PER Périodiques Résumé : Digital technologies have the potential to empower individuals with autism and their families. The COVID-19 pandemic emphasized and accelerated the drive towards technology for information, communication, training, clinical care and research, also in the autism community. However, 95% of individuals with autism live in low- and middle-income countries (LMIC) where access to electricity, internet and the ever-increasing range of digital devices may be highly limited. The World Bank coined the term 'the digital divide' to describe the disparities in access to digital technologies between high-income and LMIC contexts. Here we evaluated the feasibility of six emerging technologies for autism spectrum disorders, and reflected on key considerations for implementation in LMIC contexts to ensure that we do not inadvertently widen the pre-existing digital divide. En ligne : http://dx.doi.org/10.1007/s10803-021-05084-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa / Lauren FRANZ in Autism, 26-1 (January 2022)
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Titre : Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa Type de document : texte imprimé Auteurs : Lauren FRANZ, Auteur ; Jill HOWARD, Auteur ; Marisa VILJOEN, Auteur ; Linmarie SIKICH, Auteur ; Tara CHANDRASEKHAR, Auteur ; Scott H KOLLINS, Auteur ; Lawrence LEE, Auteur ; Minkateko NDLOVU, Auteur ; Maura SABATOS-DEVITO, Auteur ; Noleen SERIS, Auteur ; Nokuthula SHABALALA, Auteur ; Marina SPANOS, Auteur ; Petrus J. DE VRIES, Auteur ; Geraldine DAWSON, Auteur Article en page(s) : p.270-275 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder Covid-19 Caregivers Child Humans Mentoring SARS-CoV-2 South Africa Telemedicine United States adaptation autism spectrum disorder caregiver coaching digital divide telehealth Research and Development, Akili Interactive, LabCorp, Inc, Roche Pharmaceutical Company, and Tris Pharma, is a consultant for Apple, Inc., Gerson Lehrman Group, Guidepoint, Inc, Axial Ventures, Teva Pharmaceutical, and is CEO of DASIO, LLC. She has received book royalties from Guilford Press, Oxford University Press, and Springer Nature Press. Howard reports personal fees from Roche. Index. décimale : PER Périodiques Résumé : COVID-19 caused many autism spectrum disorder caregiver-coaching studies to move to telehealth. Telehealth can increase the diversity of people who take part in research. This matters because most autism spectrum disorder studies have included people who have resources, are White, and live in North America and Europe. When study participants are similar, it is hard to understand which interventions can help different types of people who live in different parts of the world. While telehealth may allow more people to take part in research, it needs to "fit" the local context and consider the "digital divide" because many people around the world have no access to computers and the Internet. This short report describes changes to two research studies that include caregiver coaching based on the Early Start Denver Model in the United States and South Africa. We describe how the local context, including technology and Internet access, guided the telehealth approach. By doing so, we highlight ways to make telehealth available to more people around the world. The pandemic can help us understand how telehealth can "fit" diverse places and support high-quality research. It is important that study changes are tracked and we assess how well the changes work. COVID-19 telehealth changes to caregiver coaching can result in new ways to reach more people around the world. En ligne : http://dx.doi.org/10.1177/13623613211022585 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 26-1 (January 2022) . - p.270-275[article] Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa [texte imprimé] / Lauren FRANZ, Auteur ; Jill HOWARD, Auteur ; Marisa VILJOEN, Auteur ; Linmarie SIKICH, Auteur ; Tara CHANDRASEKHAR, Auteur ; Scott H KOLLINS, Auteur ; Lawrence LEE, Auteur ; Minkateko NDLOVU, Auteur ; Maura SABATOS-DEVITO, Auteur ; Noleen SERIS, Auteur ; Nokuthula SHABALALA, Auteur ; Marina SPANOS, Auteur ; Petrus J. DE VRIES, Auteur ; Geraldine DAWSON, Auteur . - p.270-275.
Langues : Anglais (eng)
in Autism > 26-1 (January 2022) . - p.270-275
Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder Covid-19 Caregivers Child Humans Mentoring SARS-CoV-2 South Africa Telemedicine United States adaptation autism spectrum disorder caregiver coaching digital divide telehealth Research and Development, Akili Interactive, LabCorp, Inc, Roche Pharmaceutical Company, and Tris Pharma, is a consultant for Apple, Inc., Gerson Lehrman Group, Guidepoint, Inc, Axial Ventures, Teva Pharmaceutical, and is CEO of DASIO, LLC. She has received book royalties from Guilford Press, Oxford University Press, and Springer Nature Press. Howard reports personal fees from Roche. Index. décimale : PER Périodiques Résumé : COVID-19 caused many autism spectrum disorder caregiver-coaching studies to move to telehealth. Telehealth can increase the diversity of people who take part in research. This matters because most autism spectrum disorder studies have included people who have resources, are White, and live in North America and Europe. When study participants are similar, it is hard to understand which interventions can help different types of people who live in different parts of the world. While telehealth may allow more people to take part in research, it needs to "fit" the local context and consider the "digital divide" because many people around the world have no access to computers and the Internet. This short report describes changes to two research studies that include caregiver coaching based on the Early Start Denver Model in the United States and South Africa. We describe how the local context, including technology and Internet access, guided the telehealth approach. By doing so, we highlight ways to make telehealth available to more people around the world. The pandemic can help us understand how telehealth can "fit" diverse places and support high-quality research. It is important that study changes are tracked and we assess how well the changes work. COVID-19 telehealth changes to caregiver coaching can result in new ways to reach more people around the world. En ligne : http://dx.doi.org/10.1177/13623613211022585 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Provider perspectives on equity in use of mobile health autism screening tools / Luis Andres RIVAS VAZQUEZ ; Yesenia MORALES SANTOS ; Plyce FUCHU ; Sarabeth BRODER-FINGERT ; Jill K. DOLATA ; Steven BEDRICK ; Jasmine FERNANDEZ ; Eric FOMBONNE ; Benjamin W. SANDERS in Autism, 28-8 (August 2024)
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[article]
Titre : Provider perspectives on equity in use of mobile health autism screening tools Type de document : texte imprimé Auteurs : Luis Andres RIVAS VAZQUEZ, Auteur ; Yesenia MORALES SANTOS, Auteur ; Plyce FUCHU, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Jasmine FERNANDEZ, Auteur ; Eric FOMBONNE, Auteur ; Benjamin W. SANDERS, Auteur Article en page(s) : p.1947-1958 Langues : Anglais (eng) Mots-clés : autism spectrum disorder digital divide disparities mass screening mobile applications providers Index. décimale : PER Périodiques Résumé : Mobile health (mHealth) screening tools for autism are gaining in prevalence, and have benefits such as video content and direct resources linkage. However, it is unclear whether such tools will ameliorate autism inequities or will help only those already advantaged in autism care. To investigate this issue, we conducted semi-structured qualitative interviews with 18 primary care and Early Intervention/Early Childhood Special Education providers in six US states. Providers were given hypothetical scenarios in which a family presents to care with results from one of 9 mHealth autism screening tools. Providers discussed their clinical approach and assessed the tool?s fit with their patient/client population. Each transcript was audio-recorded, transcribed, and coded; a phenomenological approach was used to develop key themes. 4 themes and 18 subthemes emerged. These included Clinical and business factors (e.g. scope of practice concerns and clinical efficiency), Validity and trustworthiness (e.g. familiarity, data privacy/security), Family interaction quality (e.g. supporting family advocacy, provision of information, affecting family anxiety, and emotional support), and Accessibility (e.g. English proficiency/language issues, cultural inclusivity, and literacy/educational level). Providers suggested modifications to enhance equity, such as portraying diverse families, reducing the reading level of text, and making tools shorter to better fit clinical context. Lay Abstract Families may find information about autism online, and health care and education providers may use online tools to screen for autism. However, we do not know if online autism screening tools are easily used by families and providers. We interviewed primary care and educational providers, asking them to review results from online tools that screen for autism. Providers had concerns about how usable and accessible these tools are for diverse families and suggested changes to make tools easier to use. En ligne : https://dx.doi.org/10.1177/13623613231215399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533
in Autism > 28-8 (August 2024) . - p.1947-1958[article] Provider perspectives on equity in use of mobile health autism screening tools [texte imprimé] / Luis Andres RIVAS VAZQUEZ, Auteur ; Yesenia MORALES SANTOS, Auteur ; Plyce FUCHU, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Jasmine FERNANDEZ, Auteur ; Eric FOMBONNE, Auteur ; Benjamin W. SANDERS, Auteur . - p.1947-1958.
Langues : Anglais (eng)
in Autism > 28-8 (August 2024) . - p.1947-1958
Mots-clés : autism spectrum disorder digital divide disparities mass screening mobile applications providers Index. décimale : PER Périodiques Résumé : Mobile health (mHealth) screening tools for autism are gaining in prevalence, and have benefits such as video content and direct resources linkage. However, it is unclear whether such tools will ameliorate autism inequities or will help only those already advantaged in autism care. To investigate this issue, we conducted semi-structured qualitative interviews with 18 primary care and Early Intervention/Early Childhood Special Education providers in six US states. Providers were given hypothetical scenarios in which a family presents to care with results from one of 9 mHealth autism screening tools. Providers discussed their clinical approach and assessed the tool?s fit with their patient/client population. Each transcript was audio-recorded, transcribed, and coded; a phenomenological approach was used to develop key themes. 4 themes and 18 subthemes emerged. These included Clinical and business factors (e.g. scope of practice concerns and clinical efficiency), Validity and trustworthiness (e.g. familiarity, data privacy/security), Family interaction quality (e.g. supporting family advocacy, provision of information, affecting family anxiety, and emotional support), and Accessibility (e.g. English proficiency/language issues, cultural inclusivity, and literacy/educational level). Providers suggested modifications to enhance equity, such as portraying diverse families, reducing the reading level of text, and making tools shorter to better fit clinical context. Lay Abstract Families may find information about autism online, and health care and education providers may use online tools to screen for autism. However, we do not know if online autism screening tools are easily used by families and providers. We interviewed primary care and educational providers, asking them to review results from online tools that screen for autism. Providers had concerns about how usable and accessible these tools are for diverse families and suggested changes to make tools easier to use. En ligne : https://dx.doi.org/10.1177/13623613231215399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=533

