Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism / Brittany N. HAND in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1133-1146 Titre : Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism Type de document : texte imprimé Auteurs : Brittany N. HAND, Auteur ; Alison E. LANE, Auteur ; Paul DE BOECK, Auteur ; D. Michele BASSO, Auteur ; Deborah S. NICHOLS-LARSEN, Auteur ; Amy R. DARRAGH, Auteur Article en page(s) : p.1133-1146 Langues : Anglais (eng) Mots-clés : Autism  Caregiver burden  Caregiver strain  Pediatrics  Sensory processing  Sensory subtypes Index. décimale : PER Périodiques Résumé : Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5-13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed. En ligne : http://dx.doi.org/10.1007/s10803-017-3348-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351 [article] Caregiver Burden Varies by Sensory Subtypes and Sensory Dimension Scores of Children with Autism [texte imprimé] / Brittany N. HAND, Auteur ; Alison E. LANE, Auteur ; Paul DE BOECK, Auteur ; D. Michele BASSO, Auteur ; Deborah S. NICHOLS-LARSEN, Auteur ; Amy R. DARRAGH, Auteur . - p.1133-1146. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1133-1146 Mots-clés : Autism  Caregiver burden  Caregiver strain  Pediatrics  Sensory processing  Sensory subtypes Index. décimale : PER Périodiques Résumé : Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5-13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed. En ligne : http://dx.doi.org/10.1007/s10803-017-3348-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351

Characterizing Sleep Problems in 16p11.2 Deletion and Duplication / Dana KAMARA in Journal of Autism and Developmental Disorders, 53-4 (April 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1462-1475 Titre : Characterizing Sleep Problems in 16p11.2 Deletion and Duplication Type de document : texte imprimé Auteurs : Dana KAMARA, Auteur ; Paul DE BOECK, Auteur ; Luc LECAVALIER, Auteur ; Emily NEUHAUS, Auteur ; Theodore P. BEAUCHAINE, Auteur Article en page(s) : p.1462-1475 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Studies of 16p11.2 copy number variants (CNVs) provide an avenue to identify mechanisms of impairment and develop targeted treatments for individuals with neurodevelopmental disorders. 16p11.2 deletion and duplication phenotypes are currently being ascertained; however, sleep disturbances are minimally described. In this study, we examine sleep disturbance in a well-characterized national sample of 16p11.2 CNVs, the Simons Foundation Autism Research Initiative (SFARI) database of youth and adults (n=692). Factor analyses and multilevel models of derived sleep questionnaires for youth (n=345) and adults (n=347) indicate that 16p11.2 carriers show elevated sleep disturbance relative to community controls. Non-carrier family members also show elevated sleep disturbance. However, sleep duration does not differ between carriers and controls. Further studies of sleep in 16p11.2 are needed. En ligne : https://doi.org/10.1007/s10803-021-05311-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Characterizing Sleep Problems in 16p11.2 Deletion and Duplication [texte imprimé] / Dana KAMARA, Auteur ; Paul DE BOECK, Auteur ; Luc LECAVALIER, Auteur ; Emily NEUHAUS, Auteur ; Theodore P. BEAUCHAINE, Auteur . - p.1462-1475. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1462-1475 Index. décimale : PER Périodiques Résumé : Studies of 16p11.2 copy number variants (CNVs) provide an avenue to identify mechanisms of impairment and develop targeted treatments for individuals with neurodevelopmental disorders. 16p11.2 deletion and duplication phenotypes are currently being ascertained; however, sleep disturbances are minimally described. In this study, we examine sleep disturbance in a well-characterized national sample of 16p11.2 CNVs, the Simons Foundation Autism Research Initiative (SFARI) database of youth and adults (n=692). Factor analyses and multilevel models of derived sleep questionnaires for youth (n=345) and adults (n=347) indicate that 16p11.2 carriers show elevated sleep disturbance relative to community controls. Non-carrier family members also show elevated sleep disturbance. However, sleep duration does not differ between carriers and controls. Further studies of sleep in 16p11.2 are needed. En ligne : https://doi.org/10.1007/s10803-021-05311-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

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