Caregivers’ Agreement and Validity of Indirect Functional Analysis: A Cross Cultural Evaluation Across Multiple Problem Behavior Topographies / Javier VIRUES-ORTEGA in Journal of Autism and Developmental Disorders, 41-1 (January 2011)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 41-1 (January 2011) . - p.82-91 Titre : Caregivers’ Agreement and Validity of Indirect Functional Analysis: A Cross Cultural Evaluation Across Multiple Problem Behavior Topographies Type de document : Texte imprimé et/ou numérique Auteurs : Javier VIRUES-ORTEGA, Auteur ; David SEGUI-DURAN, Auteur ; Alberto DESCALZO-QUERO, Auteur ; Jose Julio CARNERERO, Auteur ; Neil MARTIN, Auteur Année de publication : 2011 Article en page(s) : p.82-91 Langues : Anglais (eng) Mots-clés : Motivation assessment scale  Autism  Functional analysis  Indirect methods Index. décimale : PER Périodiques Résumé : The Motivation Assessment Scale is an aid for hypothesis-driven functional analysis. This study presents its Spanish cross-cultural validation while examining psychometric attributes not yet explored. The study sample comprised 80 primary caregivers of children with autism. Acceptability, scaling assumptions, internal consistency, factor structure, inter-assessor reliability and agreement, and known-group validity analyses were performed. Scaling assumptions, internal consistency (Cronbach alpha of 0.75) and factor structure were satisfactory other than for the Escape domain which demonstrated low internal consistency (0.65), inadequate scaling assumptions (multitrait analysis, 50% success rate) and did not constitute a separate factor. Caregivers’ agreement for the primary function reached 73.9% and known group-validity hypotheses across behavior topographies were partially met. The clinical appropriateness of the scale is discussed. En ligne : http://dx.doi.org/10.1007/s10803-010-1022-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114 [article] Caregivers’ Agreement and Validity of Indirect Functional Analysis: A Cross Cultural Evaluation Across Multiple Problem Behavior Topographies [Texte imprimé et/ou numérique] / Javier VIRUES-ORTEGA, Auteur ; David SEGUI-DURAN, Auteur ; Alberto DESCALZO-QUERO, Auteur ; Jose Julio CARNERERO, Auteur ; Neil MARTIN, Auteur . - 2011 . - p.82-91. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 41-1 (January 2011) . - p.82-91 Mots-clés : Motivation assessment scale  Autism  Functional analysis  Indirect methods Index. décimale : PER Périodiques Résumé : The Motivation Assessment Scale is an aid for hypothesis-driven functional analysis. This study presents its Spanish cross-cultural validation while examining psychometric attributes not yet explored. The study sample comprised 80 primary caregivers of children with autism. Acceptability, scaling assumptions, internal consistency, factor structure, inter-assessor reliability and agreement, and known-group validity analyses were performed. Scaling assumptions, internal consistency (Cronbach alpha of 0.75) and factor structure were satisfactory other than for the Escape domain which demonstrated low internal consistency (0.65), inadequate scaling assumptions (multitrait analysis, 50% success rate) and did not constitute a separate factor. Caregivers’ agreement for the primary function reached 73.9% and known group-validity hypotheses across behavior topographies were partially met. The clinical appropriateness of the scale is discussed. En ligne : http://dx.doi.org/10.1007/s10803-010-1022-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=114

Development of a standardized set of outcomes for autism spectrum disorder: The International Consortium for Health Outcomes Measurement (ICHOM) / Ivy CHONG ; Zofia DAS-GUPTA ; Claudia Bandeira DE LIMA ; Dennis DIXON ; Svyatoslav DOVBNYA ; Ellen FITTRO ; Peter GERHARDT ; Weihe HUANG ; Braden JOSEPHSON ; DAN LI ; Neil MARTIN ; Shaneel MUKERJI ; Kristine RODRIGUEZ ; Hanna RUE ; Kim STRUNK ; Jonathan TARBOX ; Yagnesh VADGAMA ; Amber VALENTINO ; Javier VIRUES-ORTEGA ; Sandra WILLIS in Research in Autism Spectrum Disorders, 117 (September 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 117 (September 2024) . - p.102451 Titre : Development of a standardized set of outcomes for autism spectrum disorder: The International Consortium for Health Outcomes Measurement (ICHOM) Type de document : Texte imprimé et/ou numérique Auteurs : Ivy CHONG, Auteur ; Zofia DAS-GUPTA, Auteur ; Claudia Bandeira DE LIMA, Auteur ; Dennis DIXON, Auteur ; Svyatoslav DOVBNYA, Auteur ; Ellen FITTRO, Auteur ; Peter GERHARDT, Auteur ; Weihe HUANG, Auteur ; Braden JOSEPHSON, Auteur ; DAN LI, Auteur ; Neil MARTIN, Auteur ; Shaneel MUKERJI, Auteur ; Kristine RODRIGUEZ, Auteur ; Hanna RUE, Auteur ; Kim STRUNK, Auteur ; Jonathan TARBOX, Auteur ; Yagnesh VADGAMA, Auteur ; Amber VALENTINO, Auteur ; Javier VIRUES-ORTEGA, Auteur ; Sandra WILLIS, Auteur Article en page(s) : p.102451 Langues : Anglais (eng) Mots-clés : ASD  Outcomes  Social communication  Repetitive behaviors Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is characterized by persistent deficits in reciprocal social interaction, communication, and restricted, repetitive, behaviour, that are atypical or excessive for the individual?s age and sociocultural context (Diagnostic and Statistical Manual 5th ed TR.; 2022). The rate of ASD continues to increase and remains a concern due to inequitable access to diagnosis and quality services. A lack of standardization in assessment and treatment presents further difficulty in benchmarking and improving care. Method The International Consortium for Health Outcomes Measurement (ICHOM) recruited a Working Group (WG) of 20 subject matter experts, including researchers, clinicians, policy makers, and lived-experience experts to identify a minimum set of measurable outcomes along with case mix variables (i.e., risk adjustment factors). A proposed set of Patient Centered Outcome Measures (henceforth known as the ASD Set) was identified and endorsed using a modified Delphi process to reach consensus. Results The WG took into consideration variation in global health, social care and educational systems were considered to ensure implementation of the ASD Set is feasible. The Set includes a core set of measurable outcomes (i.e., domains) that include core symptoms, daily functioning, accessibility, and support. Conclusions The ICHOM ASD Set is a scientifically-sound, internationally vetted tool that will enable assessment of care for individuals with ASD that can facilitate targeted, person-centered clinical and social inclusion strategies. Large scale implementation and use should generate standardized data describing the individual's health and wellbeing that can inform decision-making, quality improvement and best-practices insights. En ligne : https://doi.org/10.1016/j.rasd.2024.102451 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 [article] Development of a standardized set of outcomes for autism spectrum disorder: The International Consortium for Health Outcomes Measurement (ICHOM) [Texte imprimé et/ou numérique] / Ivy CHONG, Auteur ; Zofia DAS-GUPTA, Auteur ; Claudia Bandeira DE LIMA, Auteur ; Dennis DIXON, Auteur ; Svyatoslav DOVBNYA, Auteur ; Ellen FITTRO, Auteur ; Peter GERHARDT, Auteur ; Weihe HUANG, Auteur ; Braden JOSEPHSON, Auteur ; DAN LI, Auteur ; Neil MARTIN, Auteur ; Shaneel MUKERJI, Auteur ; Kristine RODRIGUEZ, Auteur ; Hanna RUE, Auteur ; Kim STRUNK, Auteur ; Jonathan TARBOX, Auteur ; Yagnesh VADGAMA, Auteur ; Amber VALENTINO, Auteur ; Javier VIRUES-ORTEGA, Auteur ; Sandra WILLIS, Auteur . - p.102451. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 117 (September 2024) . - p.102451 Mots-clés : ASD  Outcomes  Social communication  Repetitive behaviors Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is characterized by persistent deficits in reciprocal social interaction, communication, and restricted, repetitive, behaviour, that are atypical or excessive for the individual?s age and sociocultural context (Diagnostic and Statistical Manual 5th ed TR.; 2022). The rate of ASD continues to increase and remains a concern due to inequitable access to diagnosis and quality services. A lack of standardization in assessment and treatment presents further difficulty in benchmarking and improving care. Method The International Consortium for Health Outcomes Measurement (ICHOM) recruited a Working Group (WG) of 20 subject matter experts, including researchers, clinicians, policy makers, and lived-experience experts to identify a minimum set of measurable outcomes along with case mix variables (i.e., risk adjustment factors). A proposed set of Patient Centered Outcome Measures (henceforth known as the ASD Set) was identified and endorsed using a modified Delphi process to reach consensus. Results The WG took into consideration variation in global health, social care and educational systems were considered to ensure implementation of the ASD Set is feasible. The Set includes a core set of measurable outcomes (i.e., domains) that include core symptoms, daily functioning, accessibility, and support. Conclusions The ICHOM ASD Set is a scientifically-sound, internationally vetted tool that will enable assessment of care for individuals with ASD that can facilitate targeted, person-centered clinical and social inclusion strategies. Large scale implementation and use should generate standardized data describing the individual's health and wellbeing that can inform decision-making, quality improvement and best-practices insights. En ligne : https://doi.org/10.1016/j.rasd.2024.102451 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534

The psychological characteristics of infantile hypercalcaemia: a preliminary investigation / Rosemary ARNOLD in Developmental Medicine & Child Neurology, 27-1 (February 1985)

Public ISBD [article]  inDevelopmental Medicine & Child Neurology > 27-1 (February 1985) . - p.49-59 Titre : The psychological characteristics of infantile hypercalcaemia: a preliminary investigation Type de document : Texte imprimé et/ou numérique Auteurs : Rosemary ARNOLD, Auteur ; William YULE, Auteur ; Neil MARTIN, Auteur Année de publication : 1985 Article en page(s) : p.49-59 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : A sample of 23 children aged seven to 12 years with diagnoses of infantile hypercalcaemia was assessed on a battery of psychological tests and rating scales in an attempt to describe the psychological characteristics of this disorder. All children were found to have a mild or moderate degree of mental handicap. As a group, their expressive language skills were superior to their verbal comprehension. They displayed a high degree of behaviour and emotional disorders, most notably in terms of high levels of activity. Most children were reported as being highly sensitive to noise. This study clarifies some of the psychological correlates of infantile hypercalcaemia and some implications for management are suggested. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] The psychological characteristics of infantile hypercalcaemia: a preliminary investigation [Texte imprimé et/ou numérique] / Rosemary ARNOLD, Auteur ; William YULE, Auteur ; Neil MARTIN, Auteur . - 1985 . - p.49-59. Langues : Anglais (eng) in Developmental Medicine & Child Neurology > 27-1 (February 1985) . - p.49-59 Index. décimale : PER Périodiques Résumé : A sample of 23 children aged seven to 12 years with diagnoses of infantile hypercalcaemia was assessed on a battery of psychological tests and rating scales in an attempt to describe the psychological characteristics of this disorder. All children were found to have a mild or moderate degree of mental handicap. As a group, their expressive language skills were superior to their verbal comprehension. They displayed a high degree of behaviour and emotional disorders, most notably in terms of high levels of activity. Most children were reported as being highly sensitive to noise. This study clarifies some of the psychological correlates of infantile hypercalcaemia and some implications for management are suggested. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

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