Letter to the Editor: A possible threat to data integrity for online qualitative autism research / Elizabeth PELLICANO in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.786-792 Titre : Letter to the Editor: A possible threat to data integrity for online qualitative autism research Type de document : texte imprimé Auteurs : Elizabeth PELLICANO, Auteur ; Dawn ADAMS, Auteur ; Laura CRANE, Auteur ; Calliope HOLLINGUE, Auteur ; Connie ALLEN, Auteur ; Katherine ALMENDINGER, Auteur ; Monique BOTHA, Auteur ; Tori HAAR, Auteur ; Steven K. KAPP, Auteur ; Elizabeth WHEELEY, Auteur Article en page(s) : p.786-792 Langues : Anglais (eng) Mots-clés : fraud  imposter  research participation Index. décimale : PER Périodiques Résumé : Researchers are increasingly relying on online methods for data collection, including for qualitative research involving interviews and focus groups. In this letter, we alert autism researchers to a possible threat to data integrity in such studies: "scammer" participants, who may be posing as autistic people and/or parents of autistic children in research studies, presumably for financial gain. Here, we caution qualitative autism researchers to be vigilant of potential scammer participants in their online studies and invite a broader discussion about the implications of such fraudulent acts. Lay abstract Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research. En ligne : https://dx.doi.org/10.1177/13623613231174543 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] Letter to the Editor: A possible threat to data integrity for online qualitative autism research [texte imprimé] / Elizabeth PELLICANO, Auteur ; Dawn ADAMS, Auteur ; Laura CRANE, Auteur ; Calliope HOLLINGUE, Auteur ; Connie ALLEN, Auteur ; Katherine ALMENDINGER, Auteur ; Monique BOTHA, Auteur ; Tori HAAR, Auteur ; Steven K. KAPP, Auteur ; Elizabeth WHEELEY, Auteur . - p.786-792. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.786-792 Mots-clés : fraud  imposter  research participation Index. décimale : PER Périodiques Résumé : Researchers are increasingly relying on online methods for data collection, including for qualitative research involving interviews and focus groups. In this letter, we alert autism researchers to a possible threat to data integrity in such studies: "scammer" participants, who may be posing as autistic people and/or parents of autistic children in research studies, presumably for financial gain. Here, we caution qualitative autism researchers to be vigilant of potential scammer participants in their online studies and invite a broader discussion about the implications of such fraudulent acts. Lay abstract Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research. En ligne : https://dx.doi.org/10.1177/13623613231174543 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

Supporting a ‘good life’ for autistic children: Autistic adults’ and parents’ perspectives / Kate SIMPSON in Autism, 30-4 (April 2026)  

Public ISBD [article]  inAutism > 30-4 (April 2026) . - p.972-982 Titre : Supporting a ‘good life’ for autistic children: Autistic adults’ and parents’ perspectives Type de document : texte imprimé Auteurs : Kate SIMPSON, Auteur ; Connie ALLEN, Auteur ; Elizabeth WHEELEY, Auteur ; Elizabeth PELLICANO, Auteur ; Melanie HEYWORTH, Auteur ; Jacquiline DEN HOUTING, Auteur ; Rachael BOWEN, Auteur ; Dawn ADAMS, Auteur Article en page(s) : p.972-982 Langues : Anglais (eng) Mots-clés : autism  children  qualitative research  quality of life  wellbeing Index. décimale : PER Périodiques Résumé : There has been limited research into what helps to promote autistic children’s quality of life. This qualitative study, co-produced with autistic people, aimed to identify, from multiple perspectives, what helps autistic children to live a ‘good life’. We conducted semi-structured interviews with autistic adults (n = 28) and parents of autistic children (n = 29). Using reflexive thematic analysis, we identified four themes: Being accepted by others in a way that allows the child to be themselves; Finding ‘the things that light [the child]’; Having a sense of control over their own life and Physical/sensory environments matter. All themes were common to both autistic adults and parents of autistic children, with the exception of one sub-theme, which was predominantly driven by autistic adults’ responses. These findings highlight potential pathways to support autistic children’s quality of life now and into the future.Lay Abstract There hasn’t been much research about what helps autistic children to live a ‘good life’ or to have a good quality of life. This makes it difficult to know how to help autistic children to do so. In this study, we asked autistic adults and parents of autistic children what they thought helped autistic children to live a ‘good life’. They mentioned four important areas. These were (a) autistic children being accepted as their real or true self, (b) autistic children finding the things that they enjoy and that energise them, (c) autistic children having a sense of control in their life and (d) physical environments that suit autistic children’s sensory needs. These are things that can be changed in the autistic child’s environment to support the autistic child in living a good life. En ligne : https://dx.doi.org/10.1177/13623613261418945 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=584 [article] Supporting a ‘good life’ for autistic children: Autistic adults’ and parents’ perspectives [texte imprimé] / Kate SIMPSON, Auteur ; Connie ALLEN, Auteur ; Elizabeth WHEELEY, Auteur ; Elizabeth PELLICANO, Auteur ; Melanie HEYWORTH, Auteur ; Jacquiline DEN HOUTING, Auteur ; Rachael BOWEN, Auteur ; Dawn ADAMS, Auteur . - p.972-982. Langues : Anglais (eng) in Autism > 30-4 (April 2026) . - p.972-982 Mots-clés : autism  children  qualitative research  quality of life  wellbeing Index. décimale : PER Périodiques Résumé : There has been limited research into what helps to promote autistic children’s quality of life. This qualitative study, co-produced with autistic people, aimed to identify, from multiple perspectives, what helps autistic children to live a ‘good life’. We conducted semi-structured interviews with autistic adults (n = 28) and parents of autistic children (n = 29). Using reflexive thematic analysis, we identified four themes: Being accepted by others in a way that allows the child to be themselves; Finding ‘the things that light [the child]’; Having a sense of control over their own life and Physical/sensory environments matter. All themes were common to both autistic adults and parents of autistic children, with the exception of one sub-theme, which was predominantly driven by autistic adults’ responses. These findings highlight potential pathways to support autistic children’s quality of life now and into the future.Lay Abstract There hasn’t been much research about what helps autistic children to live a ‘good life’ or to have a good quality of life. This makes it difficult to know how to help autistic children to do so. In this study, we asked autistic adults and parents of autistic children what they thought helped autistic children to live a ‘good life’. They mentioned four important areas. These were (a) autistic children being accepted as their real or true self, (b) autistic children finding the things that they enjoy and that energise them, (c) autistic children having a sense of control in their life and (d) physical environments that suit autistic children’s sensory needs. These are things that can be changed in the autistic child’s environment to support the autistic child in living a good life. En ligne : https://dx.doi.org/10.1177/13623613261418945 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=584

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