Brief Report: Performance-Based Executive Functioning Abilities are Associated with Caregiver Report of Adaptive Functioning in Autism Spectrum Disorder / Manisha D. UDHNANI in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4541-4547 Titre : Brief Report: Performance-Based Executive Functioning Abilities are Associated with Caregiver Report of Adaptive Functioning in Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Manisha D. UDHNANI, Auteur ; Lauren KENWORTHY, Auteur ; Gregory L. WALLACE, Auteur ; Benjamin E. YERYS, Auteur Article en page(s) : p.4541-4547 Langues : Anglais (eng) Mots-clés : Adaptive functioning  Autism  Executive functioning  Working memory  Rating Inventory of Executive Function (BRIEF). Lauren Kenworthy is a co-author of  the BRIEF and receives royalty payments from its publisher, Psychological Assessment  Resources, Inc. Index. décimale : PER Périodiques Résumé : Executive functioning is thought to contribute to adaptive behavior skills development in individuals with autism spectrum disorder (ASD). However, supporting data are largely based on caregiver reports of executive functioning. The current study evaluated whether performance-based measures of executive functioning (working memory and inhibition) explained unique variance in parent-reported adaptive functioning among youth with ASD without an intellectual disability. Both spatial and verbal working memory were associated with adaptive functioning, particularly communication and daily living skills. Our findings demonstrate a robust relationship between working memory and adaptive functioning that translates across different measurement modalities. This preliminary study highlights that targeting executive functioning may be a critical component of an adaptive function training program. En ligne : http://dx.doi.org/10.1007/s10803-020-04505-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] Brief Report: Performance-Based Executive Functioning Abilities are Associated with Caregiver Report of Adaptive Functioning in Autism Spectrum Disorder [texte imprimé] / Manisha D. UDHNANI, Auteur ; Lauren KENWORTHY, Auteur ; Gregory L. WALLACE, Auteur ; Benjamin E. YERYS, Auteur . - p.4541-4547. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4541-4547 Mots-clés : Adaptive functioning  Autism  Executive functioning  Working memory  Rating Inventory of Executive Function (BRIEF). Lauren Kenworthy is a co-author of  the BRIEF and receives royalty payments from its publisher, Psychological Assessment  Resources, Inc. Index. décimale : PER Périodiques Résumé : Executive functioning is thought to contribute to adaptive behavior skills development in individuals with autism spectrum disorder (ASD). However, supporting data are largely based on caregiver reports of executive functioning. The current study evaluated whether performance-based measures of executive functioning (working memory and inhibition) explained unique variance in parent-reported adaptive functioning among youth with ASD without an intellectual disability. Both spatial and verbal working memory were associated with adaptive functioning, particularly communication and daily living skills. Our findings demonstrate a robust relationship between working memory and adaptive functioning that translates across different measurement modalities. This preliminary study highlights that targeting executive functioning may be a critical component of an adaptive function training program. En ligne : http://dx.doi.org/10.1007/s10803-020-04505-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

Development and Preliminary Validation of the Accommodations & Impact Scale for Developmental Disabilities / Manisha D. UDHNANI in Journal of Autism and Developmental Disorders, 54-5 (May 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.1870-1881 Titre : Development and Preliminary Validation of the Accommodations & Impact Scale for Developmental Disabilities Type de document : texte imprimé Auteurs : Manisha D. UDHNANI, Auteur ; Judith S. MILLER, Auteur ; Luc LECAVALIER, Auteur Article en page(s) : p.1870-1881 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The lives of caregivers can be deeply impacted by having a child with a developmental disability (DD). To offset those impacts, caregivers may engage in accommodations, or strategies to bolster everyday functioning. The nature and extent of these accommodations can provide insight into how the family is doing and what supports are needed from a family-centered perspective. This paper presents the development and preliminary validation of the Accommodations & Impact Scale for Developmental Disabilities (AISDD). The AISDD is a rating scale that measures day-to-day accommodations and impacts of raising a child with a DD. A sample of 407 caregivers of youth with DDs (Mage = 11.7 years; 63% males) completed the AISDD, along with measures of caregiver strain, daily challenges, child adaptive behavior, and behavior and emotional regulation. The AISDD is a unidimensional, 19-item scale with excellent internal consistency (ordinal alpha = .93) and test-retest (ICC = .95) reliability. Scores were normally distributed and sensitive to age (r = ? .19), diagnosis (ASD + ID > ASD > ID), adaptive functioning (r = ? .35), and challenging behaviors (r = .57). Finally, the AISDD showed excellent convergent validity with similar measures of accommodations and impacts. These findings support the use of the AISDD as a valid and reliable tool for measuring accommodations among caregivers of individuals with DDs. This measure shows promise in its ability to identify which families may need additional support for their children. En ligne : https://doi.org/10.1007/s10803-023-05929-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Development and Preliminary Validation of the Accommodations & Impact Scale for Developmental Disabilities [texte imprimé] / Manisha D. UDHNANI, Auteur ; Judith S. MILLER, Auteur ; Luc LECAVALIER, Auteur . - p.1870-1881. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-5 (May 2024) . - p.1870-1881 Index. décimale : PER Périodiques Résumé : The lives of caregivers can be deeply impacted by having a child with a developmental disability (DD). To offset those impacts, caregivers may engage in accommodations, or strategies to bolster everyday functioning. The nature and extent of these accommodations can provide insight into how the family is doing and what supports are needed from a family-centered perspective. This paper presents the development and preliminary validation of the Accommodations & Impact Scale for Developmental Disabilities (AISDD). The AISDD is a rating scale that measures day-to-day accommodations and impacts of raising a child with a DD. A sample of 407 caregivers of youth with DDs (Mage = 11.7 years; 63% males) completed the AISDD, along with measures of caregiver strain, daily challenges, child adaptive behavior, and behavior and emotional regulation. The AISDD is a unidimensional, 19-item scale with excellent internal consistency (ordinal alpha = .93) and test-retest (ICC = .95) reliability. Scores were normally distributed and sensitive to age (r = ? .19), diagnosis (ASD + ID > ASD > ID), adaptive functioning (r = ? .35), and challenging behaviors (r = .57). Finally, the AISDD showed excellent convergent validity with similar measures of accommodations and impacts. These findings support the use of the AISDD as a valid and reliable tool for measuring accommodations among caregivers of individuals with DDs. This measure shows promise in its ability to identify which families may need additional support for their children. En ligne : https://doi.org/10.1007/s10803-023-05929-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Heterogeneity in autism spectrum disorder explained by social-communicative and restricted repetitive behavior balance subgroups / Manisha UDHNANI ; Luc LECAVALIER in Research in Autism Spectrum Disorders, 114 (June 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 114 (June 2024) . - p.102387 Titre : Heterogeneity in autism spectrum disorder explained by social-communicative and restricted repetitive behavior balance subgroups Type de document : texte imprimé Auteurs : Manisha UDHNANI, Auteur ; Luc LECAVALIER, Auteur Année de publication : 2024 Article en page(s) : p.102387 Langues : Anglais (eng) Mots-clés : Autism  ASD  Social communication  Restricted repetitive behavior  Subgroup  Heterogeneity Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is characterized by phenotypic heterogeneity when it comes to the symptom profiles in the social communication (SC) and restricted repetitive behaviors (RRB) domain. To date, a two-factor (i.e., SC and RRB)/three-class model has been empirically shown to be the best fit in explaining the variability. The purpose of the study is to confirm the potential of previously introduced model, the SC-RRB balance subgroups, and investigate the phenotypic characteristics of these subgroups using a large well-characterized sample of autistic youth. Method The final sample extracted from the Simons Simplex Collection (SSC) consisted of 2744 autistic youth aged 4 - 18 years. We adopted the SC-RRB balance modeling used in Bertelsen et al. (2021) where subgroups were labeled based on the within-person difference between SC difficulties and level of RRB. A latent profile analysis (LPA) was conducted to validate the presence of the SC-RRB balance subgroups. Results Data revealed similar SC and RRB scores to previous research. Significant differences in the demographic variables and core autism symptoms across SC-RRB balance subgroups were identified. The LPA indicated presence of three profiles with similar patterns. Conclusions We confirmed the potential of SC-RRB balance modeling in discriminating relatively homogeneous ASD subgroups. In addition to replicating previous findings in an independent sample, our data showed novel findings regarding sex, IQ, and specific ASD symptoms. Stratifying ASD into homogenous groups in a top-down approach could direct future research into unraveling differential pathogenesis and response to treatment. En ligne : https://doi.org/10.1016/j.rasd.2024.102387 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 [article] Heterogeneity in autism spectrum disorder explained by social-communicative and restricted repetitive behavior balance subgroups [texte imprimé] / Manisha UDHNANI, Auteur ; Luc LECAVALIER, Auteur . - 2024 . - p.102387. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 114 (June 2024) . - p.102387 Mots-clés : Autism  ASD  Social communication  Restricted repetitive behavior  Subgroup  Heterogeneity Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD) is characterized by phenotypic heterogeneity when it comes to the symptom profiles in the social communication (SC) and restricted repetitive behaviors (RRB) domain. To date, a two-factor (i.e., SC and RRB)/three-class model has been empirically shown to be the best fit in explaining the variability. The purpose of the study is to confirm the potential of previously introduced model, the SC-RRB balance subgroups, and investigate the phenotypic characteristics of these subgroups using a large well-characterized sample of autistic youth. Method The final sample extracted from the Simons Simplex Collection (SSC) consisted of 2744 autistic youth aged 4 - 18 years. We adopted the SC-RRB balance modeling used in Bertelsen et al. (2021) where subgroups were labeled based on the within-person difference between SC difficulties and level of RRB. A latent profile analysis (LPA) was conducted to validate the presence of the SC-RRB balance subgroups. Results Data revealed similar SC and RRB scores to previous research. Significant differences in the demographic variables and core autism symptoms across SC-RRB balance subgroups were identified. The LPA indicated presence of three profiles with similar patterns. Conclusions We confirmed the potential of SC-RRB balance modeling in discriminating relatively homogeneous ASD subgroups. In addition to replicating previous findings in an independent sample, our data showed novel findings regarding sex, IQ, and specific ASD symptoms. Stratifying ASD into homogenous groups in a top-down approach could direct future research into unraveling differential pathogenesis and response to treatment. En ligne : https://doi.org/10.1016/j.rasd.2024.102387 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529

A Lifespan Approach to Patient-Reported Outcomes and Quality of Life for People on the Autism Spectrum / Laura GRAHAM HOLMES in Autism Research, 13-6 (June 2020)  

Public ISBD [article]  inAutism Research > 13-6 (June 2020) . - p.970-987 Titre : A Lifespan Approach to Patient-Reported Outcomes and Quality of Life for People on the Autism Spectrum Type de document : texte imprimé Auteurs : Laura GRAHAM HOLMES, Auteur ; Casey J. ZAMPELLA, Auteur ; Caitlin C. CLEMENTS, Auteur ; Joseph P. MCCLEERY, Auteur ; Brenna B. MADDOX, Auteur ; Julia PARISH-MORRIS, Auteur ; Manisha D. UDHNANI, Auteur ; Robert T. SCHULTZ, Auteur ; Judith S. MILLER, Auteur Article en page(s) : p.970-987 Langues : Anglais (eng) Mots-clés : adults  life course  life span/lifespan  patient-reported outcomes  quality of life  sex/gender  women with autism Index. décimale : PER Périodiques Résumé : Autistic self-advocates, family members, and community organizations have called for greater emphasis on enhancing quality of life (QoL) for people with autism. Doing this is critical to understand how QoL unfolds across the life course and to clarify whether gender affects QoL, health, and functioning for people with autism. The purpose of this study was to curate and test a lifespan QoL measurement tool using freely available and well-constructed National Institutes of Health Parent-Reported Outcomes Measurement Information System (PROMIS). To develop the PROMIS Autism Battery-Lifespan (PAB-L), we identified PROMIS scales relevant for autism, reviewed each item, consulted with a panel of autism experts, and elicited feedback from autistic people and family members. This battery provides a comprehensive portrait of QoL for children ages 5-13 (through parent proxy), teens 14-17 (parent proxy and self-report), and adults 18-65 (self-report) with autism compared to the general population. Participants and parent informants (N = 912) recruited through a children's hospital and nationwide U.S. autism research registry completed the PAB-L online. Results indicate that compared to general population norms, people with autism of all ages (or their proxies) reported less desirable outcomes and lower QoL across all domains. Women and girls experienced greater challenges in some areas compared to men and boys with autism. The PAB-L appears to be a feasible and acceptable method for assessing patient-reported outcomes and QoL for autistic people across the life course. Autism Res 2020, 13: 970-987. © 2020 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: We developed a survey to measure the quality of life of children, teens, and adults with autism using free National Institutes of Health PROMIS questionnaires. People with autism and family members rated the PROMIS Autism Battery-Lifespan as useful and important. Some reported a good quality of life, while many reported that their lives were not going as well as they wanted. Women and girls reported more challenges in some areas of life than men and boys. En ligne : http://dx.doi.org/10.1002/aur.2275 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=427 [article] A Lifespan Approach to Patient-Reported Outcomes and Quality of Life for People on the Autism Spectrum [texte imprimé] / Laura GRAHAM HOLMES, Auteur ; Casey J. ZAMPELLA, Auteur ; Caitlin C. CLEMENTS, Auteur ; Joseph P. MCCLEERY, Auteur ; Brenna B. MADDOX, Auteur ; Julia PARISH-MORRIS, Auteur ; Manisha D. UDHNANI, Auteur ; Robert T. SCHULTZ, Auteur ; Judith S. MILLER, Auteur . - p.970-987. Langues : Anglais (eng) in Autism Research > 13-6 (June 2020) . - p.970-987 Mots-clés : adults  life course  life span/lifespan  patient-reported outcomes  quality of life  sex/gender  women with autism Index. décimale : PER Périodiques Résumé : Autistic self-advocates, family members, and community organizations have called for greater emphasis on enhancing quality of life (QoL) for people with autism. Doing this is critical to understand how QoL unfolds across the life course and to clarify whether gender affects QoL, health, and functioning for people with autism. The purpose of this study was to curate and test a lifespan QoL measurement tool using freely available and well-constructed National Institutes of Health Parent-Reported Outcomes Measurement Information System (PROMIS). To develop the PROMIS Autism Battery-Lifespan (PAB-L), we identified PROMIS scales relevant for autism, reviewed each item, consulted with a panel of autism experts, and elicited feedback from autistic people and family members. This battery provides a comprehensive portrait of QoL for children ages 5-13 (through parent proxy), teens 14-17 (parent proxy and self-report), and adults 18-65 (self-report) with autism compared to the general population. Participants and parent informants (N = 912) recruited through a children's hospital and nationwide U.S. autism research registry completed the PAB-L online. Results indicate that compared to general population norms, people with autism of all ages (or their proxies) reported less desirable outcomes and lower QoL across all domains. Women and girls experienced greater challenges in some areas compared to men and boys with autism. The PAB-L appears to be a feasible and acceptable method for assessing patient-reported outcomes and QoL for autistic people across the life course. Autism Res 2020, 13: 970-987. © 2020 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: We developed a survey to measure the quality of life of children, teens, and adults with autism using free National Institutes of Health PROMIS questionnaires. People with autism and family members rated the PROMIS Autism Battery-Lifespan as useful and important. Some reported a good quality of life, while many reported that their lives were not going as well as they wanted. Women and girls reported more challenges in some areas of life than men and boys. En ligne : http://dx.doi.org/10.1002/aur.2275 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=427

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