An evaluation of a stepped-care telehealth program for improving the sleep of autistic children / Monique A.C. CLARKE in Research in Autism Spectrum Disorders, 112 (April 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 112 (April 2024) . - p.102356 Titre : An evaluation of a stepped-care telehealth program for improving the sleep of autistic children Type de document : texte imprimé Auteurs : Monique A.C. CLARKE, Auteur ; Laurie K MCLAY, Auteur ; Karyn G. FRANCE, Auteur ; Neville M. BLAMPIED, Auteur Article en page(s) : p.102356 Langues : Anglais (eng) Mots-clés : Telemedicine  Telehealth  Child  Autistic Disorder  Sleep Initiation and Maintenance Disorders  Intervention Index. décimale : PER Périodiques Résumé : Background Sleep problems are prevalent in Autistic children, adversely affecting their development, well-being and quality of life. Traditional face-to-face behavioral interventions are hindered by accessibility. Using a single-case design, this study evaluated the efficacy of a stepped-care telehealth-delivered behavioral sleep intervention (TDBSI). Method Seven Autistic children (aged 4-8) and their parents participated in a 12-week program consisting of baseline plus three sequential intervention phases: (1) self-directed online parent psychoeducation, (2) small group parent coaching via video conferencing, and (3) individualized parent coaching via video conferencing. Parent strategy selection and implementation fidelity were closely monitored and rated across intervention phases. Child sleep outcomes were assessed through daily parent-reported sleep diaries and the Children's Sleep Habits Questionnaire. Results Five of seven parents used online parent education to independently select antecedent strategies (e.g., sleep hygiene, stimulus control) and/or rewards that were appropriate for their child?s sleep and implemented them with high fidelity. This resulted in reductions in sleep onset latency, night wakings, early wakings, and bedsharing for their children. Parent implementation fidelity and child sleep outcomes were further improved for all participants with group or individualized coaching, and results were maintained at 12 weeks and six months post-intervention. Conclusions TDBSIs show promise in addressing sleep difficulties in Autistic children, warranting further investigation and replication. En ligne : https://doi.org/10.1016/j.rasd.2024.102356 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524 [article] An evaluation of a stepped-care telehealth program for improving the sleep of autistic children [texte imprimé] / Monique A.C. CLARKE, Auteur ; Laurie K MCLAY, Auteur ; Karyn G. FRANCE, Auteur ; Neville M. BLAMPIED, Auteur . - p.102356. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 112 (April 2024) . - p.102356 Mots-clés : Telemedicine  Telehealth  Child  Autistic Disorder  Sleep Initiation and Maintenance Disorders  Intervention Index. décimale : PER Périodiques Résumé : Background Sleep problems are prevalent in Autistic children, adversely affecting their development, well-being and quality of life. Traditional face-to-face behavioral interventions are hindered by accessibility. Using a single-case design, this study evaluated the efficacy of a stepped-care telehealth-delivered behavioral sleep intervention (TDBSI). Method Seven Autistic children (aged 4-8) and their parents participated in a 12-week program consisting of baseline plus three sequential intervention phases: (1) self-directed online parent psychoeducation, (2) small group parent coaching via video conferencing, and (3) individualized parent coaching via video conferencing. Parent strategy selection and implementation fidelity were closely monitored and rated across intervention phases. Child sleep outcomes were assessed through daily parent-reported sleep diaries and the Children's Sleep Habits Questionnaire. Results Five of seven parents used online parent education to independently select antecedent strategies (e.g., sleep hygiene, stimulus control) and/or rewards that were appropriate for their child?s sleep and implemented them with high fidelity. This resulted in reductions in sleep onset latency, night wakings, early wakings, and bedsharing for their children. Parent implementation fidelity and child sleep outcomes were further improved for all participants with group or individualized coaching, and results were maintained at 12 weeks and six months post-intervention. Conclusions TDBSIs show promise in addressing sleep difficulties in Autistic children, warranting further investigation and replication. En ligne : https://doi.org/10.1016/j.rasd.2024.102356 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

An evaluation of the collateral child and parent outcomes of telehealth-delivered behavioral sleep intervention for Autistic children / Monique CLARKE in Research in Autism Spectrum Disorders, 119 (January 2025)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 119 (January 2025) . - p.102514 Titre : An evaluation of the collateral child and parent outcomes of telehealth-delivered behavioral sleep intervention for Autistic children Type de document : texte imprimé Auteurs : Monique CLARKE, Auteur ; Laurie K MCLAY, Auteur ; Karyn G. FRANCE, Auteur ; Neville M. BLAMPIED, Auteur Article en page(s) : p.102514 Langues : Anglais (eng) Mots-clés : Sleep  Collateral outcomes  Secondary outcomes  Telehealth  Autism  Neurodivergence Index. décimale : PER Périodiques Résumé : Purpose This research follows two studies that examined the efficacy and acceptability of a stepped-care model of behavioral sleep intervention (BSI) delivered to parents of Autistic children via telehealth (Clarke et al., 2024a, 2024b). The current study investigated the collateral benefits of these interventions on Autistic children s internalizing and externalizing behaviors, health-related quality of life, and parent ratings of relationship quality, depression, anxiety, stress, and personal sleep quality. Methods and Results Data were available for 17 Autistic children (aged 3-17 years) and 22 parent participants (16 mothers, six fathers) who had received a telehealth-delivered behavioral sleep intervention (TDBSI). Parents completed a range of psychometric assessments at baseline and within six weeks of completing the program. Alongside reduced sleep problem severity (SPS), significant improvements, as indexed by non-negligible Cohen s d values whose 95 % confidence intervals did not cross zero, were observed in children s emotional and behavioral difficulties and health-related quality of life. Parents also reported that improvement in their child?s sleep positively influenced their own sleep quality and emotional well-being. There were no significant changes in parental relationship quality post-intervention, probably a ceiling effect. Conclusion TDBSIs have the potential to generate collateral benefits for Autistic children and their families. This finding is consistent with the limited existent research, suggesting that improved sleep may enhance child and parent well-being. Future research should focus on understanding the mechanisms underlying collateral change, including variations in effects among children and parents, and the durability across different telehealth modalities (i.e., self-directed versus therapist-guided) and follow-up intervals. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545 [article] An evaluation of the collateral child and parent outcomes of telehealth-delivered behavioral sleep intervention for Autistic children [texte imprimé] / Monique CLARKE, Auteur ; Laurie K MCLAY, Auteur ; Karyn G. FRANCE, Auteur ; Neville M. BLAMPIED, Auteur . - p.102514. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 119 (January 2025) . - p.102514 Mots-clés : Sleep  Collateral outcomes  Secondary outcomes  Telehealth  Autism  Neurodivergence Index. décimale : PER Périodiques Résumé : Purpose This research follows two studies that examined the efficacy and acceptability of a stepped-care model of behavioral sleep intervention (BSI) delivered to parents of Autistic children via telehealth (Clarke et al., 2024a, 2024b). The current study investigated the collateral benefits of these interventions on Autistic children s internalizing and externalizing behaviors, health-related quality of life, and parent ratings of relationship quality, depression, anxiety, stress, and personal sleep quality. Methods and Results Data were available for 17 Autistic children (aged 3-17 years) and 22 parent participants (16 mothers, six fathers) who had received a telehealth-delivered behavioral sleep intervention (TDBSI). Parents completed a range of psychometric assessments at baseline and within six weeks of completing the program. Alongside reduced sleep problem severity (SPS), significant improvements, as indexed by non-negligible Cohen s d values whose 95 % confidence intervals did not cross zero, were observed in children s emotional and behavioral difficulties and health-related quality of life. Parents also reported that improvement in their child?s sleep positively influenced their own sleep quality and emotional well-being. There were no significant changes in parental relationship quality post-intervention, probably a ceiling effect. Conclusion TDBSIs have the potential to generate collateral benefits for Autistic children and their families. This finding is consistent with the limited existent research, suggesting that improved sleep may enhance child and parent well-being. Future research should focus on understanding the mechanisms underlying collateral change, including variations in effects among children and parents, and the durability across different telehealth modalities (i.e., self-directed versus therapist-guided) and follow-up intervals. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102514 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545

Attributions, causal beliefs, and help-seeking behavior of parents of children with autism spectrum disorder and sleep problems / Laurie K MCLAY in Autism, 24-7 (October 2020)  

Public ISBD [article]  inAutism > 24-7 (October 2020) . - p.1829-1840 Titre : Attributions, causal beliefs, and help-seeking behavior of parents of children with autism spectrum disorder and sleep problems Type de document : texte imprimé Auteurs : Laurie K MCLAY, Auteur ; Sarah G. HANSEN, Auteur ; Amarie CARNETT, Auteur ; Karyn G. FRANCE, Auteur ; Neville M. BLAMPIED, Auteur Article en page(s) : p.1829-1840 Langues : Anglais (eng) Mots-clés : *autism spectrum disorder  *help-seeking  *parent attributions  *parental beliefs  *seep  *sleep treatment Index. décimale : PER Périodiques Résumé : Sleep problems are commonly reported among parents of children with autism spectrum disorder (ASD). Without effective treatment, such problems are unlikely to resolve. To date, we know very little about how and why parents of children with ASD seek help for sleep disturbance. Via an online survey, we gathered information about how parents make sense of their children's sleep problems, beliefs about their causes, sources of information, and help-seeking behavior. The analysis of responses from 244 parents revealed that parents commonly view sleep problems (a) as a consequence of their child's ASD, and unlikely to change over time (stable), and (b) as located within the child (intrinsic), stable over time, and difficult to treat. Despite this, parents also rated sleep problems as being important to treat. Eighty-two percent of parents surveyed reported seeking some kind of help for their child's sleep disturbance, and the average parent had tried six different treatment strategies, most commonly medical approaches (e.g. melatonin). The alignment between parents' treatment choices and those strategies that are supported by research was poor, but belief in the effectiveness of treatments was closely related to how often the treatment was used. These findings have important implications for parental education and clinical practice in the treatment of sleep problems in children with ASD. En ligne : http://dx.doi.org/10.1177/1362361320924216 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431 [article] Attributions, causal beliefs, and help-seeking behavior of parents of children with autism spectrum disorder and sleep problems [texte imprimé] / Laurie K MCLAY, Auteur ; Sarah G. HANSEN, Auteur ; Amarie CARNETT, Auteur ; Karyn G. FRANCE, Auteur ; Neville M. BLAMPIED, Auteur . - p.1829-1840. Langues : Anglais (eng) in Autism > 24-7 (October 2020) . - p.1829-1840 Mots-clés : *autism spectrum disorder  *help-seeking  *parent attributions  *parental beliefs  *seep  *sleep treatment Index. décimale : PER Périodiques Résumé : Sleep problems are commonly reported among parents of children with autism spectrum disorder (ASD). Without effective treatment, such problems are unlikely to resolve. To date, we know very little about how and why parents of children with ASD seek help for sleep disturbance. Via an online survey, we gathered information about how parents make sense of their children's sleep problems, beliefs about their causes, sources of information, and help-seeking behavior. The analysis of responses from 244 parents revealed that parents commonly view sleep problems (a) as a consequence of their child's ASD, and unlikely to change over time (stable), and (b) as located within the child (intrinsic), stable over time, and difficult to treat. Despite this, parents also rated sleep problems as being important to treat. Eighty-two percent of parents surveyed reported seeking some kind of help for their child's sleep disturbance, and the average parent had tried six different treatment strategies, most commonly medical approaches (e.g. melatonin). The alignment between parents' treatment choices and those strategies that are supported by research was poor, but belief in the effectiveness of treatments was closely related to how often the treatment was used. These findings have important implications for parental education and clinical practice in the treatment of sleep problems in children with ASD. En ligne : http://dx.doi.org/10.1177/1362361320924216 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=431

Child and Family Characteristics Associated with Sleep Disturbance in Children with Autism Spectrum Disorder / Hannah WADDINGTON in Journal of Autism and Developmental Disorders, 50-11 (November 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.4121-4132 Titre : Child and Family Characteristics Associated with Sleep Disturbance in Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Hannah WADDINGTON, Auteur ; Laurie K MCLAY, Auteur ; Lisa WOODS, Auteur ; Andrew J.O. WHITEHOUSE, Auteur Article en page(s) : p.4121-4132 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parent characteristics  Sleep  Socioeconomic status Index. décimale : PER Périodiques Résumé : Little is known about the role of family characteristics in sleep disturbance for children with autism spectrum disorder (ASD). This study involved an exploratory analysis of the association between 17 child, parent, and socioeconomic characteristics and sleep disturbance using data from 203, 2-18-year-old children with ASD whose families participated in the Western Australian Autism Biological Registry. Results suggest that greater ASD symptom severity; child seizures; maternal autism traits, anxiety, and depression; lower paternal education; and lower family income were related to increased sleep disturbance. All these characteristics, aside from maternal depression, were significant predictors within a regression model, which accounted for 33% of the total variance. Thus, child characteristics alone may not adequately explain sleep disturbance in children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04475-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Child and Family Characteristics Associated with Sleep Disturbance in Children with Autism Spectrum Disorder [texte imprimé] / Hannah WADDINGTON, Auteur ; Laurie K MCLAY, Auteur ; Lisa WOODS, Auteur ; Andrew J.O. WHITEHOUSE, Auteur . - p.4121-4132. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-11 (November 2020) . - p.4121-4132 Mots-clés : Autism spectrum disorder  Parent characteristics  Sleep  Socioeconomic status Index. décimale : PER Périodiques Résumé : Little is known about the role of family characteristics in sleep disturbance for children with autism spectrum disorder (ASD). This study involved an exploratory analysis of the association between 17 child, parent, and socioeconomic characteristics and sleep disturbance using data from 203, 2-18-year-old children with ASD whose families participated in the Western Australian Autism Biological Registry. Results suggest that greater ASD symptom severity; child seizures; maternal autism traits, anxiety, and depression; lower paternal education; and lower family income were related to increased sleep disturbance. All these characteristics, aside from maternal depression, were significant predictors within a regression model, which accounted for 33% of the total variance. Thus, child characteristics alone may not adequately explain sleep disturbance in children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04475-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Cognitive-behavioral treatment of sleep disturbance in children and adolescents with autism: Eight case studies using functional behavior assessment / Jenna R. VAN DEURS in Research in Autism Spectrum Disorders, 86 (August 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 86 (August 2021) . - 101823 Titre : Cognitive-behavioral treatment of sleep disturbance in children and adolescents with autism: Eight case studies using functional behavior assessment Type de document : texte imprimé Auteurs : Jenna R. VAN DEURS, Auteur ; Karyn G. FRANCE, Auteur ; Laurie K MCLAY, Auteur ; Neville M. BLAMPIED, Auteur Article en page(s) : 101823 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder (ASD)  Functional behavior assessment (FBA)  Cognitive behavioral sleep intervention  Child-implemented  Adolescent-implemented Index. décimale : PER Périodiques Résumé : Background Individuals with autism spectrum disorder (ASD) experience high rates of sleep problems. Parent-implemented behavioral sleep interventions for young children with ASD are increasingly supported by research. Few studies have evaluated such interventions for older children and adolescents, nor has research investigated the effectiveness of having the young person collaborate in the design and implementation of their intervention (hereafter termed ‘young person-implemented interventions’). Method Functional behavioral assessment (FBA) was used to identify putative cognitive-behavioral factors maintaining sleep disturbance in eight 9- to 15-year-old participants with ASD. A series of case studies is presented that investigated the effectiveness of individualized, FBA-informed, young person-implemented sleep interventions, with parent-implemented treatments provided as necessary. Results Treatment was effective in reducing sleep disturbance (e.g., extended night wakings, unwanted co-sleeping) for all participants, with results mostly maintained at follow-up. Young people and their parents generally viewed treatments favorably. Conclusions Results demonstrate the feasibility, effectiveness, and acceptability of treating sleep disturbance in ASD via young person-implemented, parent-assisted, treatment. En ligne : https://doi.org/10.1016/j.rasd.2021.101823 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Cognitive-behavioral treatment of sleep disturbance in children and adolescents with autism: Eight case studies using functional behavior assessment [texte imprimé] / Jenna R. VAN DEURS, Auteur ; Karyn G. FRANCE, Auteur ; Laurie K MCLAY, Auteur ; Neville M. BLAMPIED, Auteur . - 101823. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 86 (August 2021) . - 101823 Mots-clés : Autism spectrum disorder (ASD)  Functional behavior assessment (FBA)  Cognitive behavioral sleep intervention  Child-implemented  Adolescent-implemented Index. décimale : PER Périodiques Résumé : Background Individuals with autism spectrum disorder (ASD) experience high rates of sleep problems. Parent-implemented behavioral sleep interventions for young children with ASD are increasingly supported by research. Few studies have evaluated such interventions for older children and adolescents, nor has research investigated the effectiveness of having the young person collaborate in the design and implementation of their intervention (hereafter termed ‘young person-implemented interventions’). Method Functional behavioral assessment (FBA) was used to identify putative cognitive-behavioral factors maintaining sleep disturbance in eight 9- to 15-year-old participants with ASD. A series of case studies is presented that investigated the effectiveness of individualized, FBA-informed, young person-implemented sleep interventions, with parent-implemented treatments provided as necessary. Results Treatment was effective in reducing sleep disturbance (e.g., extended night wakings, unwanted co-sleeping) for all participants, with results mostly maintained at follow-up. Young people and their parents generally viewed treatments favorably. Conclusions Results demonstrate the feasibility, effectiveness, and acceptability of treating sleep disturbance in ASD via young person-implemented, parent-assisted, treatment. En ligne : https://doi.org/10.1016/j.rasd.2021.101823 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Function-Based Behavioral Interventions for Sleep Problems in Children and Adolescents with Autism: Summary of 41 Clinical Cases / Laurie K MCLAY in Journal of Autism and Developmental Disorders, 51-2 (February 2021)  

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Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study / Laurie K MCLAY in Autism, 29-5 (May 2025)  

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Melatonin dispensing and polypharmacy rates for New Zealand children with autism or attention deficit hyperactivity disorders: A nationwide pharmacoepidemiological study / Laurie K MCLAY in Research in Autism Spectrum Disorders, 93 (May 2022)  

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Mortality risk among Autistic children and young people: A nationwide birth cohort study / Nicholas J. BOWDEN ; Sheree GIBB ; Richard AUDAS ; Joanne DACOMBE ; Laurie K MCLAY ; Andrew SPORLE ; Hilary STACE ; Barry TAYLOR ; Hiran THABREW ; Reremoana THEODORE ; Jessica TUPOU ; Philip J. SCHLUTER in Autism, 28-9 (September 2024)  

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A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021 / Lisa Marie EMERSON in Autism, 27-8 (November 2023)  

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Systematic review of the collateral effects of behavioral sleep interventions in children and adolescents with autism spectrum disorder / Jolene E. HUNTER in Research in Autism Spectrum Disorders, 79 (November 2020)  

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Teaching two boys with autism spectrum disorders to request the continuation of toy play using an iPad®-based speech-generating device / Jeff SIGAFOOS in Research in Autism Spectrum Disorders, 7-8 (August 2013)  

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Telehealth-delivered behavioral sleep interventions for Autistic children: An evaluation of an enhanced stepped-care approach / Laurie K MCLAY ; Karyn G. FRANCE ; Neville M. BLAMPIED in Research in Autism Spectrum Disorders, 117 (September 2024)  

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The formation of equivalence classes in individuals with autism spectrum disorder: A review of the literature / Laurie K MCLAY in Research in Autism Spectrum Disorders, 7-2 (February 2013)  

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The Lighter Touch: Less-Restriction in Sequentially Implemented Behavioral Sleep Interventions for Children with Rare Genetic Neurodevelopmental Conditions / Emma C. WOODFORD ; Laurie K MCLAY ; Karyn G. FRANCE ; Neville M. BLAMPIED in Journal of Autism and Developmental Disorders, 55-2 (February 2025)  

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