Cicchetti?s organizational-developmental perspective of Down syndrome: Contributions to the emergence of developmental psychopathology and the study of persons with neurodevelopmental conditions / Jacob A. BURACK ; Natalie RUSSO ; David W. EVANS ; Anna-Francesca Boatswain-Jacques ; Gabriela Rey ; Grace IAROCCI ; Robert M. HODAPP in Development and Psychopathology, 36-5 (December 2024)  

Public ISBD [article]  inDevelopment and Psychopathology > 36-5 (December 2024) . - p.2592-2603 Titre : Cicchetti?s organizational-developmental perspective of Down syndrome: Contributions to the emergence of developmental psychopathology and the study of persons with neurodevelopmental conditions : Development and Psychopathology Type de document : Texte imprimé et/ou numérique Auteurs : Jacob A. BURACK, Auteur ; Natalie RUSSO, Auteur ; David W. EVANS, Auteur ; Anna-Francesca Boatswain-Jacques, Auteur ; Gabriela Rey, Auteur ; Grace IAROCCI, Auteur ; Robert M. HODAPP, Auteur Année de publication : 2024 Article en page(s) : p.2592-2603 Langues : Anglais (eng) Mots-clés : Down syndrome  developmental approach  intellectual disability  neurodevelopmental conditions Index. décimale : PER Périodiques Résumé : Dante Cicchetti?s earliest work, his studies of social-emotional development in infants and children with Down syndrome, set the stage for the emergence of the larger field of developmental psychopathology. By applying basic developmental principles, methodologies, and questions to the study of persons with Down syndrome, Dante took on the challenge of searching for patterns in atypical development. In doing so, he extended traditional developmental theory and introduced a more "liberal" approach that both continues to guide developmentally based research with persons with neurodevelopmental conditions (NDCs), including Down syndrome. We highlight five themes from Dante?s work: (1) appreciating the importance of developmental level; (2) prioritizing the organization of development; (3) examining whether developmental factors work similarly in those with known genetic conditions; (4) rethinking narratives about ways of being; and (5) examining the influence of multiple levels of the environment on the individual?s functioning. We highlight ways that these essential lessons anticipated present-day research with persons with a variety of NDCs, including Down syndrome, other genetic syndromes associated with intellectual disability, and autism. We conclude with visions to the future for research with these populations as well as for the field of developmental psychopathology more generally. En ligne : https://dx.doi.org/10.1017/S0954579424000178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545 [article] Cicchetti?s organizational-developmental perspective of Down syndrome: Contributions to the emergence of developmental psychopathology and the study of persons with neurodevelopmental conditions : Development and Psychopathology [Texte imprimé et/ou numérique] / Jacob A. BURACK, Auteur ; Natalie RUSSO, Auteur ; David W. EVANS, Auteur ; Anna-Francesca Boatswain-Jacques, Auteur ; Gabriela Rey, Auteur ; Grace IAROCCI, Auteur ; Robert M. HODAPP, Auteur . - 2024 . - p.2592-2603. Langues : Anglais (eng) in Development and Psychopathology > 36-5 (December 2024) . - p.2592-2603 Mots-clés : Down syndrome  developmental approach  intellectual disability  neurodevelopmental conditions Index. décimale : PER Périodiques Résumé : Dante Cicchetti?s earliest work, his studies of social-emotional development in infants and children with Down syndrome, set the stage for the emergence of the larger field of developmental psychopathology. By applying basic developmental principles, methodologies, and questions to the study of persons with Down syndrome, Dante took on the challenge of searching for patterns in atypical development. In doing so, he extended traditional developmental theory and introduced a more "liberal" approach that both continues to guide developmentally based research with persons with neurodevelopmental conditions (NDCs), including Down syndrome. We highlight five themes from Dante?s work: (1) appreciating the importance of developmental level; (2) prioritizing the organization of development; (3) examining whether developmental factors work similarly in those with known genetic conditions; (4) rethinking narratives about ways of being; and (5) examining the influence of multiple levels of the environment on the individual?s functioning. We highlight ways that these essential lessons anticipated present-day research with persons with a variety of NDCs, including Down syndrome, other genetic syndromes associated with intellectual disability, and autism. We conclude with visions to the future for research with these populations as well as for the field of developmental psychopathology more generally. En ligne : https://dx.doi.org/10.1017/S0954579424000178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545

Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome / Marisa H. FISHER in Research in Autism Spectrum Disorders, 7-8 (August 2013)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 7-8 (August 2013) . - p.931-937 Titre : Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Marisa H. FISHER, Auteur ; Andrew L. MOSKOWITZ, Auteur ; Robert M. HODAPP, Auteur Année de publication : 2013 Article en page(s) : p.931-937 Langues : Anglais (eng) Mots-clés : Victimization  Social vulnerability  Autism spectrum disorder  Williams syndrome  Down syndrome Index. décimale : PER Périodiques Résumé : Abstract Although individuals with disabilities are at increased risk of victimization, few studies examine persons with different disability conditions to determine whether distinctive cognitive–behavioral profiles are associated with different levels of social vulnerability. To determine the differences in social vulnerability and experiences of victimization, caregiver responses to a Social Vulnerability Questionnaire were examined for 103 caregivers of individuals with autism spectrum disorder (ASD), Williams syndrome (WS), and Down syndrome (DS). Although all three groups experienced similar rates and types of victimization, the specific correlates of social vulnerability differed by disability. Individuals with ASD displayed less risk awareness and had less social protection; those with WS were rated higher on risk factors related to perceived vulnerability and parental independence; and those with DS had less risk awareness and were perceived to be more vulnerable. Safety interventions should be tailored to address each group's specific correlates of social vulnerability. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=202 [article] Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome [Texte imprimé et/ou numérique] / Marisa H. FISHER, Auteur ; Andrew L. MOSKOWITZ, Auteur ; Robert M. HODAPP, Auteur . - 2013 . - p.931-937. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 7-8 (August 2013) . - p.931-937 Mots-clés : Victimization  Social vulnerability  Autism spectrum disorder  Williams syndrome  Down syndrome Index. décimale : PER Périodiques Résumé : Abstract Although individuals with disabilities are at increased risk of victimization, few studies examine persons with different disability conditions to determine whether distinctive cognitive–behavioral profiles are associated with different levels of social vulnerability. To determine the differences in social vulnerability and experiences of victimization, caregiver responses to a Social Vulnerability Questionnaire were examined for 103 caregivers of individuals with autism spectrum disorder (ASD), Williams syndrome (WS), and Down syndrome (DS). Although all three groups experienced similar rates and types of victimization, the specific correlates of social vulnerability differed by disability. Individuals with ASD displayed less risk awareness and had less social protection; those with WS were rated higher on risk factors related to perceived vulnerability and parental independence; and those with DS had less risk awareness and were perceived to be more vulnerable. Safety interventions should be tailored to address each group's specific correlates of social vulnerability. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=202

Intellectual disabilities and child psychiatry: looking to the future / Robert M. HODAPP in Journal of Child Psychology and Psychiatry, 50-1-2 (January/February 2009)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 50-1-2 (January/February 2009) . - p.99-107 Titre : Intellectual disabilities and child psychiatry: looking to the future Type de document : Texte imprimé et/ou numérique Auteurs : Robert M. HODAPP, Auteur ; Elisabeth M. DYKENS, Auteur Année de publication : 2009 Article en page(s) : p.99-107 Langues : Anglais (eng) Mots-clés : Behavioral-phenotype gene–brain-behavior-relations GE-correlation demographics gender aging Index. décimale : PER Périodiques Résumé : We begin this article by examining the role of intellectual disabilities within child psychiatry, highlighting the relatively steady role of disabilities and the recent movement to examine behavior in specific genetic syndromes. We next propose five questions for future work. Questions relate to (1) specifying the nature of gene–brain–behavior connections; (2) delineating environmental effects and gene–environment interactions; (3) understanding behaviors, physical characteristics, health issues, and other personal characteristics by which children with intellectual disabilities influence others; (4) clarifying the roles of gender and aging in behavioral functioning; and (5) working to improve pharmacological, educational, and other interventions and supports for children and their families. Although great advances have occurred over the past 50 years, intellectual disability research lags behind other areas of child psychiatry; much remains to be discovered that might help these children. En ligne : http://dx.doi.org/10.1111/j.1469-7610.2008.02038.x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=694 [article] Intellectual disabilities and child psychiatry: looking to the future [Texte imprimé et/ou numérique] / Robert M. HODAPP, Auteur ; Elisabeth M. DYKENS, Auteur . - 2009 . - p.99-107. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 50-1-2 (January/February 2009) . - p.99-107 Mots-clés : Behavioral-phenotype gene–brain-behavior-relations GE-correlation demographics gender aging Index. décimale : PER Périodiques Résumé : We begin this article by examining the role of intellectual disabilities within child psychiatry, highlighting the relatively steady role of disabilities and the recent movement to examine behavior in specific genetic syndromes. We next propose five questions for future work. Questions relate to (1) specifying the nature of gene–brain–behavior connections; (2) delineating environmental effects and gene–environment interactions; (3) understanding behaviors, physical characteristics, health issues, and other personal characteristics by which children with intellectual disabilities influence others; (4) clarifying the roles of gender and aging in behavioral functioning; and (5) working to improve pharmacological, educational, and other interventions and supports for children and their families. Although great advances have occurred over the past 50 years, intellectual disability research lags behind other areas of child psychiatry; much remains to be discovered that might help these children. En ligne : http://dx.doi.org/10.1111/j.1469-7610.2008.02038.x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=694

Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 47-3 (March 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-3 (March 2017) . - p.846-857 Titre : Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial Type de document : Texte imprimé et/ou numérique Auteurs : Julie LOUNDS TAYLOR, Auteur ; Robert M. HODAPP, Auteur ; Meghan M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; Carol RABIDEAU, Auteur Article en page(s) : p.846-857 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Parents Intervention  Transition to adulthood  Services  Advocacy  Empowerment  Randomized controlled trial Index. décimale : PER Périodiques Résumé : This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N?=?20) or wait-list control (N?=?21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered. En ligne : http://dx.doi.org/10.1007/s10803-016-2994-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 [article] Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial [Texte imprimé et/ou numérique] / Julie LOUNDS TAYLOR, Auteur ; Robert M. HODAPP, Auteur ; Meghan M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; Carol RABIDEAU, Auteur . - p.846-857. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-3 (March 2017) . - p.846-857 Mots-clés : Autism spectrum disorder  Parents Intervention  Transition to adulthood  Services  Advocacy  Empowerment  Randomized controlled trial Index. décimale : PER Périodiques Résumé : This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N?=?20) or wait-list control (N?=?21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered. En ligne : http://dx.doi.org/10.1007/s10803-016-2994-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304

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