Cicchetti?s organizational-developmental perspective of Down syndrome: Contributions to the emergence of developmental psychopathology and the study of persons with neurodevelopmental conditions / Jacob A. BURACK ; Natalie RUSSO ; David W. EVANS ; Anna-Francesca BOATSWAIN-JACQUES ; Gabriela REY ; Grace IAROCCI ; Robert M. HODAPP in Development and Psychopathology, 36-5 (December 2024)  

Public ISBD [article]  inDevelopment and Psychopathology > 36-5 (December 2024) . - p.2592-2603 Titre : Cicchetti?s organizational-developmental perspective of Down syndrome: Contributions to the emergence of developmental psychopathology and the study of persons with neurodevelopmental conditions : Development and Psychopathology Type de document : texte imprimé Auteurs : Jacob A. BURACK, Auteur ; Natalie RUSSO, Auteur ; David W. EVANS, Auteur ; Anna-Francesca BOATSWAIN-JACQUES, Auteur ; Gabriela REY, Auteur ; Grace IAROCCI, Auteur ; Robert M. HODAPP, Auteur Année de publication : 2024 Article en page(s) : p.2592-2603 Langues : Anglais (eng) Mots-clés : Down syndrome  developmental approach  intellectual disability  neurodevelopmental conditions Index. décimale : PER Périodiques Résumé : Dante Cicchetti?s earliest work, his studies of social-emotional development in infants and children with Down syndrome, set the stage for the emergence of the larger field of developmental psychopathology. By applying basic developmental principles, methodologies, and questions to the study of persons with Down syndrome, Dante took on the challenge of searching for patterns in atypical development. In doing so, he extended traditional developmental theory and introduced a more "liberal" approach that both continues to guide developmentally based research with persons with neurodevelopmental conditions (NDCs), including Down syndrome. We highlight five themes from Dante?s work: (1) appreciating the importance of developmental level; (2) prioritizing the organization of development; (3) examining whether developmental factors work similarly in those with known genetic conditions; (4) rethinking narratives about ways of being; and (5) examining the influence of multiple levels of the environment on the individual?s functioning. We highlight ways that these essential lessons anticipated present-day research with persons with a variety of NDCs, including Down syndrome, other genetic syndromes associated with intellectual disability, and autism. We conclude with visions to the future for research with these populations as well as for the field of developmental psychopathology more generally. En ligne : https://dx.doi.org/10.1017/S0954579424000178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545 [article] Cicchetti?s organizational-developmental perspective of Down syndrome: Contributions to the emergence of developmental psychopathology and the study of persons with neurodevelopmental conditions : Development and Psychopathology [texte imprimé] / Jacob A. BURACK, Auteur ; Natalie RUSSO, Auteur ; David W. EVANS, Auteur ; Anna-Francesca BOATSWAIN-JACQUES, Auteur ; Gabriela REY, Auteur ; Grace IAROCCI, Auteur ; Robert M. HODAPP, Auteur . - 2024 . - p.2592-2603. Langues : Anglais (eng) in Development and Psychopathology > 36-5 (December 2024) . - p.2592-2603 Mots-clés : Down syndrome  developmental approach  intellectual disability  neurodevelopmental conditions Index. décimale : PER Périodiques Résumé : Dante Cicchetti?s earliest work, his studies of social-emotional development in infants and children with Down syndrome, set the stage for the emergence of the larger field of developmental psychopathology. By applying basic developmental principles, methodologies, and questions to the study of persons with Down syndrome, Dante took on the challenge of searching for patterns in atypical development. In doing so, he extended traditional developmental theory and introduced a more "liberal" approach that both continues to guide developmentally based research with persons with neurodevelopmental conditions (NDCs), including Down syndrome. We highlight five themes from Dante?s work: (1) appreciating the importance of developmental level; (2) prioritizing the organization of development; (3) examining whether developmental factors work similarly in those with known genetic conditions; (4) rethinking narratives about ways of being; and (5) examining the influence of multiple levels of the environment on the individual?s functioning. We highlight ways that these essential lessons anticipated present-day research with persons with a variety of NDCs, including Down syndrome, other genetic syndromes associated with intellectual disability, and autism. We conclude with visions to the future for research with these populations as well as for the field of developmental psychopathology more generally. En ligne : https://dx.doi.org/10.1017/S0954579424000178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545

Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome / Marisa H. FISHER in Research in Autism Spectrum Disorders, 7-8 (August 2013)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 7-8 (August 2013) . - p.931-937 Titre : Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome Type de document : texte imprimé Auteurs : Marisa H. FISHER, Auteur ; Andrew L. MOSKOWITZ, Auteur ; Robert M. HODAPP, Auteur Année de publication : 2013 Article en page(s) : p.931-937 Langues : Anglais (eng) Mots-clés : Victimization  Social vulnerability  Autism spectrum disorder  Williams syndrome  Down syndrome Index. décimale : PER Périodiques Résumé : Abstract Although individuals with disabilities are at increased risk of victimization, few studies examine persons with different disability conditions to determine whether distinctive cognitive–behavioral profiles are associated with different levels of social vulnerability. To determine the differences in social vulnerability and experiences of victimization, caregiver responses to a Social Vulnerability Questionnaire were examined for 103 caregivers of individuals with autism spectrum disorder (ASD), Williams syndrome (WS), and Down syndrome (DS). Although all three groups experienced similar rates and types of victimization, the specific correlates of social vulnerability differed by disability. Individuals with ASD displayed less risk awareness and had less social protection; those with WS were rated higher on risk factors related to perceived vulnerability and parental independence; and those with DS had less risk awareness and were perceived to be more vulnerable. Safety interventions should be tailored to address each group's specific correlates of social vulnerability. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=202 [article] Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome [texte imprimé] / Marisa H. FISHER, Auteur ; Andrew L. MOSKOWITZ, Auteur ; Robert M. HODAPP, Auteur . - 2013 . - p.931-937. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 7-8 (August 2013) . - p.931-937 Mots-clés : Victimization  Social vulnerability  Autism spectrum disorder  Williams syndrome  Down syndrome Index. décimale : PER Périodiques Résumé : Abstract Although individuals with disabilities are at increased risk of victimization, few studies examine persons with different disability conditions to determine whether distinctive cognitive–behavioral profiles are associated with different levels of social vulnerability. To determine the differences in social vulnerability and experiences of victimization, caregiver responses to a Social Vulnerability Questionnaire were examined for 103 caregivers of individuals with autism spectrum disorder (ASD), Williams syndrome (WS), and Down syndrome (DS). Although all three groups experienced similar rates and types of victimization, the specific correlates of social vulnerability differed by disability. Individuals with ASD displayed less risk awareness and had less social protection; those with WS were rated higher on risk factors related to perceived vulnerability and parental independence; and those with DS had less risk awareness and were perceived to be more vulnerable. Safety interventions should be tailored to address each group's specific correlates of social vulnerability. En ligne : http://dx.doi.org/10.1016/j.rasd.2013.04.009 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=202

Ed Zigler's developmental approach to intellectual disabilities: Past, present, and future contributions / Robert M. HODAPP in Development and Psychopathology, 33-2 (May 2021)  

Public ISBD [article]  inDevelopment and Psychopathology > 33-2 (May 2021) . - p.453-465 Titre : Ed Zigler's developmental approach to intellectual disabilities: Past, present, and future contributions Type de document : texte imprimé Auteurs : Robert M. HODAPP, Auteur Année de publication : 2021 Article en page(s) : p.453-465 Langues : Anglais (eng) Mots-clés : Down syndrome  Williams syndrome  behavioral phenotype  cultural–familial ID  developmental approach to intellectual disabilities  personality–motivational factors  two-group approach Index. décimale : PER Périodiques Résumé : Comprising two parts, Ed Zigler's developmental approach has greatly influenced how one conceptualizes children with intellectual disabilities (ID). In part one, Zigler championed a "two-group approach" concerning the cause of children's ID. He distinguished persons with a clear, organic cause of their ID from those displaying no clear cause. Members of this "organic" group often displayed IQs below 50 and co-occurring physical-medical conditions. The second, "cultural-familial" group, mostly showed IQs of 50-70, did not possess co-occurring physical or health problems, and often came from families of lower IQs and lower socioeconomic status. While the presence of these two groups has been supported, recent advances have also further differentiated the organic group, mostly in relation to behavioral phenotypes of persons with several genetic etiologies. In part two, Zigler championed the child with ID as a "whole person." Originally focused on the child's reactions to social deprivation and failure, recent studies directly examine parent-child, within-family, and wider system interactions throughout the life span. For decades a force within the ID field, Zigler's developmental approach to children with ID continues to influence researchers, interventionists, and policymakers. En ligne : http://dx.doi.org/10.1017/s0954579420002084 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Ed Zigler's developmental approach to intellectual disabilities: Past, present, and future contributions [texte imprimé] / Robert M. HODAPP, Auteur . - 2021 . - p.453-465. Langues : Anglais (eng) in Development and Psychopathology > 33-2 (May 2021) . - p.453-465 Mots-clés : Down syndrome  Williams syndrome  behavioral phenotype  cultural–familial ID  developmental approach to intellectual disabilities  personality–motivational factors  two-group approach Index. décimale : PER Périodiques Résumé : Comprising two parts, Ed Zigler's developmental approach has greatly influenced how one conceptualizes children with intellectual disabilities (ID). In part one, Zigler championed a "two-group approach" concerning the cause of children's ID. He distinguished persons with a clear, organic cause of their ID from those displaying no clear cause. Members of this "organic" group often displayed IQs below 50 and co-occurring physical-medical conditions. The second, "cultural-familial" group, mostly showed IQs of 50-70, did not possess co-occurring physical or health problems, and often came from families of lower IQs and lower socioeconomic status. While the presence of these two groups has been supported, recent advances have also further differentiated the organic group, mostly in relation to behavioral phenotypes of persons with several genetic etiologies. In part two, Zigler championed the child with ID as a "whole person." Originally focused on the child's reactions to social deprivation and failure, recent studies directly examine parent-child, within-family, and wider system interactions throughout the life span. For decades a force within the ID field, Zigler's developmental approach to children with ID continues to influence researchers, interventionists, and policymakers. En ligne : http://dx.doi.org/10.1017/s0954579420002084 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Intellectual disabilities and child psychiatry: looking to the future / Robert M. HODAPP in Journal of Child Psychology and Psychiatry, 50-1-2 (January/February 2009)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 50-1-2 (January/February 2009) . - p.99-107 Titre : Intellectual disabilities and child psychiatry: looking to the future Type de document : texte imprimé Auteurs : Robert M. HODAPP, Auteur ; Elisabeth M. DYKENS, Auteur Année de publication : 2009 Article en page(s) : p.99-107 Langues : Anglais (eng) Mots-clés : Behavioral-phenotype gene–brain-behavior-relations GE-correlation demographics gender aging Index. décimale : PER Périodiques Résumé : We begin this article by examining the role of intellectual disabilities within child psychiatry, highlighting the relatively steady role of disabilities and the recent movement to examine behavior in specific genetic syndromes. We next propose five questions for future work. Questions relate to (1) specifying the nature of gene–brain–behavior connections; (2) delineating environmental effects and gene–environment interactions; (3) understanding behaviors, physical characteristics, health issues, and other personal characteristics by which children with intellectual disabilities influence others; (4) clarifying the roles of gender and aging in behavioral functioning; and (5) working to improve pharmacological, educational, and other interventions and supports for children and their families. Although great advances have occurred over the past 50 years, intellectual disability research lags behind other areas of child psychiatry; much remains to be discovered that might help these children. En ligne : http://dx.doi.org/10.1111/j.1469-7610.2008.02038.x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=694 [article] Intellectual disabilities and child psychiatry: looking to the future [texte imprimé] / Robert M. HODAPP, Auteur ; Elisabeth M. DYKENS, Auteur . - 2009 . - p.99-107. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 50-1-2 (January/February 2009) . - p.99-107 Mots-clés : Behavioral-phenotype gene–brain-behavior-relations GE-correlation demographics gender aging Index. décimale : PER Périodiques Résumé : We begin this article by examining the role of intellectual disabilities within child psychiatry, highlighting the relatively steady role of disabilities and the recent movement to examine behavior in specific genetic syndromes. We next propose five questions for future work. Questions relate to (1) specifying the nature of gene–brain–behavior connections; (2) delineating environmental effects and gene–environment interactions; (3) understanding behaviors, physical characteristics, health issues, and other personal characteristics by which children with intellectual disabilities influence others; (4) clarifying the roles of gender and aging in behavioral functioning; and (5) working to improve pharmacological, educational, and other interventions and supports for children and their families. Although great advances have occurred over the past 50 years, intellectual disability research lags behind other areas of child psychiatry; much remains to be discovered that might help these children. En ligne : http://dx.doi.org/10.1111/j.1469-7610.2008.02038.x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=694

Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families / Meghan M. BURKE in Autism, 23-2 (February 2019)  

Public ISBD [article]  inAutism > 23-2 (February 2019) . - p.514-523 Titre : Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families Type de document : texte imprimé Auteurs : Meghan M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; Carol RABIDEAU, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Robert M. HODAPP, Auteur Article en page(s) : p.514-523 Langues : Anglais (eng) Mots-clés : family  intervention research  services  transition Index. décimale : PER Périodiques Résumé : The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully addressed. We discuss issues that should be considered when conducting interventions with individuals with autism spectrum disorder to improve the transition to adulthood, drawing from our study of a parent training to facilitate access to adult services during the transition years. Issues covered include (1) timing (when is an intervention most effective?), (2) mode of delivery (what is the best way to present information ), (3) outcomes (how can intervention outcomes be accurately measured?), (4) target population (who is the intervention designed to help?), and (5) level of intervention (who should the intervention target?). Our answers, though preliminary, show the need to be flexible, to adopt a trial-and-error stance, and to listen to the needs-both explicit and implicit-of youth with autism spectrum disorder and their parents as they navigate the difficult transition from adolescence to adulthood. En ligne : http://dx.doi.org/10.1177/1362361317753016 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 [article] Pulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families [texte imprimé] / Meghan M. BURKE, Auteur ; Sydney N. WAITZ-KUDLA, Auteur ; Carol RABIDEAU, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Robert M. HODAPP, Auteur . - p.514-523. Langues : Anglais (eng) in Autism > 23-2 (February 2019) . - p.514-523 Mots-clés : family  intervention research  services  transition Index. décimale : PER Périodiques Résumé : The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully addressed. We discuss issues that should be considered when conducting interventions with individuals with autism spectrum disorder to improve the transition to adulthood, drawing from our study of a parent training to facilitate access to adult services during the transition years. Issues covered include (1) timing (when is an intervention most effective?), (2) mode of delivery (what is the best way to present information ), (3) outcomes (how can intervention outcomes be accurately measured?), (4) target population (who is the intervention designed to help?), and (5) level of intervention (who should the intervention target?). Our answers, though preliminary, show the need to be flexible, to adopt a trial-and-error stance, and to listen to the needs-both explicit and implicit-of youth with autism spectrum disorder and their parents as they navigate the difficult transition from adolescence to adulthood. En ligne : http://dx.doi.org/10.1177/1362361317753016 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383

Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 47-3 (March 2017)  

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