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The utilization of psychopharmacological treatments for individuals with autism spectrum disorder (ASD) in a middle-income European country / Anirban CHATTERJEE ; Yasir Ahmed SYED ; Vladimir TRAJKOVSKI in Research in Autism Spectrum Disorders, 111 (March 2024)
[article]
Titre : The utilization of psychopharmacological treatments for individuals with autism spectrum disorder (ASD) in a middle-income European country Type de document : Texte imprimé et/ou numérique Auteurs : Anirban CHATTERJEE, Auteur ; Yasir Ahmed SYED, Auteur ; Vladimir TRAJKOVSKI, Auteur Article en page(s) : p.102329 Mots-clés : Autism spectrum disorder Psychopharmacological treatment Psychotropic medication Low- and middle-income country Europe Index. décimale : PER Périodiques Résumé : Background Studies examining the utilization of psychopharmacological treatments (psychotropic medications) for autism spectrum disorder (ASD) have primarily been carried out in affluent nations. Nonetheless, there is an evident dearth of data originating from low- and middle-income countries. Our study sought to comprehensively evaluate the usage of psychopharmacological treatments and the effectiveness of those treatments as perceived by the parents of individuals with autism spectrum disorder (ASD) in Macedonia, a middle-income country in South-Eastern Europe. Methods We conducted a survey involving 103 parents of individuals with ASD and analyzed the questionnaire responses using descriptive statistics and non-parametric tests. Results Our research uncovered that 62% of individuals diagnosed with ASD were prescribed psychopharmacological treatments, yet only 48% actually utilized them. Among the medications prescribed, antipsychotics (55%) and antiepileptics (44%) were the most common, with risperidone and valproate being the preferred options. Psychopharmacological treatments were found to be more commonly used among individuals aged 15 years and above, with children under 8 years closely following suit at a rate of 56%. Furthermore, we discovered a noteworthy association between the severity of ASD symptoms and the utilization of these interventions. Intriguingly, the majority of parents (73%) regarded the effectiveness of psychopharmacological treatments as only partially effective. Conclusion Our study emphasizes the prevalent utilization of psychotropic medication, especially among young individuals, and underscores the necessity for enhanced dissemination of information to parents regarding prescribed medications. By integrating our research findings, medical professionals and policymakers can enhance the strategies and initiatives used to improve the quality of care and support for individuals on the autism spectrum. En ligne : https://doi.org/10.1016/j.rasd.2024.102329 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521
in Research in Autism Spectrum Disorders > 111 (March 2024) . - p.102329[article] The utilization of psychopharmacological treatments for individuals with autism spectrum disorder (ASD) in a middle-income European country [Texte imprimé et/ou numérique] / Anirban CHATTERJEE, Auteur ; Yasir Ahmed SYED, Auteur ; Vladimir TRAJKOVSKI, Auteur . - p.102329.
in Research in Autism Spectrum Disorders > 111 (March 2024) . - p.102329
Mots-clés : Autism spectrum disorder Psychopharmacological treatment Psychotropic medication Low- and middle-income country Europe Index. décimale : PER Périodiques Résumé : Background Studies examining the utilization of psychopharmacological treatments (psychotropic medications) for autism spectrum disorder (ASD) have primarily been carried out in affluent nations. Nonetheless, there is an evident dearth of data originating from low- and middle-income countries. Our study sought to comprehensively evaluate the usage of psychopharmacological treatments and the effectiveness of those treatments as perceived by the parents of individuals with autism spectrum disorder (ASD) in Macedonia, a middle-income country in South-Eastern Europe. Methods We conducted a survey involving 103 parents of individuals with ASD and analyzed the questionnaire responses using descriptive statistics and non-parametric tests. Results Our research uncovered that 62% of individuals diagnosed with ASD were prescribed psychopharmacological treatments, yet only 48% actually utilized them. Among the medications prescribed, antipsychotics (55%) and antiepileptics (44%) were the most common, with risperidone and valproate being the preferred options. Psychopharmacological treatments were found to be more commonly used among individuals aged 15 years and above, with children under 8 years closely following suit at a rate of 56%. Furthermore, we discovered a noteworthy association between the severity of ASD symptoms and the utilization of these interventions. Intriguingly, the majority of parents (73%) regarded the effectiveness of psychopharmacological treatments as only partially effective. Conclusion Our study emphasizes the prevalent utilization of psychotropic medication, especially among young individuals, and underscores the necessity for enhanced dissemination of information to parents regarding prescribed medications. By integrating our research findings, medical professionals and policymakers can enhance the strategies and initiatives used to improve the quality of care and support for individuals on the autism spectrum. En ligne : https://doi.org/10.1016/j.rasd.2024.102329 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=521 Autism community priorities in diverse low-resource settings: A country-wide scoping exercise in India / Sreerupa CHAKRABARTY ; Rajanya NANDI ; Rakshita SHEKHAR ; Sakhi SINGHI ; Shoba NAYAR ; Jai Ranjan RAM ; Shaneel MUKERJI ; Bhismadev CHAKRABARTI in Autism, 28-1 (January 2024)
[article]
Titre : Autism community priorities in diverse low-resource settings: A country-wide scoping exercise in India Type de document : Texte imprimé et/ou numérique Auteurs : Sreerupa CHAKRABARTY, Auteur ; Rajanya NANDI, Auteur ; Rakshita SHEKHAR, Auteur ; Sakhi SINGHI, Auteur ; Shoba NAYAR, Auteur ; Jai Ranjan RAM, Auteur ; Shaneel MUKERJI, Auteur ; Bhismadev CHAKRABARTI, Auteur Article en page(s) : p.187?198 Mots-clés : autism spectrum disorders global low- and middle-income country stakeholder consultation Index. décimale : PER Périodiques Résumé : While studies to map the priorities of the autistic community have been undertaken in some high-income countries, there has been little or no such systematic assessment in the global south. India alone is home to an estimated >5?million autistic individuals. To address this gap in the literature, this study conducted a survey of the Indian autism community on their priorities for three areas: skills training, intervention and research. Individuals with a clinical diagnosis of autism spectrum disorders and parents/guardians of autistic individuals were invited to take part in the study. Data from 280 respondents were collected online and followed up with interviews on a subset (n?=?40) chosen through stratified random selection. Results highlighted a unanimous prioritisation for self-help skills as the most important area in skills training, as it was considered the foundation for acquiring all other skills. Speech and language therapy was identified as the most important intervention for autistic individuals. Within research, identifying the most effective ways for the community to support autistic people was given the topmost priority. Researchers, clinicians and policymakers may use these insights to develop services and shape future research that is more in accord with the community?s needs. Lay abstract It is vital to directly engage with the autism community in order to develop better services and drive the research agenda. While some studies in high-income countries have mapped the priorities of the autism community, there is a severe dearth of such efforts in the global south. Five?million autistic individuals are estimated to live in India alone, and there has been little effort to map their priorities. Moreover, studies in high-income countries focused largely on research priorities, and not so much on skills training and interventions. Keeping these needs in mind, we conducted an online survey followed by an in-depth conversation with parents of autistic children and autistic adults drawn from across India. We found that the respondents reported self-help skills to be the most important for training, as they considered it fundamental for every other aspect of life. Speech and language therapy was considered to be the highest intervention priority for this group, highlighting the importance of social communication. Mental health counselling was also considered to be a high priority, but several parents identified it as being more relevant for themselves rather than for their children. Within research, the topmost priority was to understand ways in which the community can better support autistic people. We hope that these findings will help researchers, policymakers and service providers to be able to make well-informed decisions, develop relevant services and shape future research. En ligne : https://dx.doi.org/10.1177/13623613231154067 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519
in Autism > 28-1 (January 2024) . - p.187?198[article] Autism community priorities in diverse low-resource settings: A country-wide scoping exercise in India [Texte imprimé et/ou numérique] / Sreerupa CHAKRABARTY, Auteur ; Rajanya NANDI, Auteur ; Rakshita SHEKHAR, Auteur ; Sakhi SINGHI, Auteur ; Shoba NAYAR, Auteur ; Jai Ranjan RAM, Auteur ; Shaneel MUKERJI, Auteur ; Bhismadev CHAKRABARTI, Auteur . - p.187?198.
in Autism > 28-1 (January 2024) . - p.187?198
Mots-clés : autism spectrum disorders global low- and middle-income country stakeholder consultation Index. décimale : PER Périodiques Résumé : While studies to map the priorities of the autistic community have been undertaken in some high-income countries, there has been little or no such systematic assessment in the global south. India alone is home to an estimated >5?million autistic individuals. To address this gap in the literature, this study conducted a survey of the Indian autism community on their priorities for three areas: skills training, intervention and research. Individuals with a clinical diagnosis of autism spectrum disorders and parents/guardians of autistic individuals were invited to take part in the study. Data from 280 respondents were collected online and followed up with interviews on a subset (n?=?40) chosen through stratified random selection. Results highlighted a unanimous prioritisation for self-help skills as the most important area in skills training, as it was considered the foundation for acquiring all other skills. Speech and language therapy was identified as the most important intervention for autistic individuals. Within research, identifying the most effective ways for the community to support autistic people was given the topmost priority. Researchers, clinicians and policymakers may use these insights to develop services and shape future research that is more in accord with the community?s needs. Lay abstract It is vital to directly engage with the autism community in order to develop better services and drive the research agenda. While some studies in high-income countries have mapped the priorities of the autism community, there is a severe dearth of such efforts in the global south. Five?million autistic individuals are estimated to live in India alone, and there has been little effort to map their priorities. Moreover, studies in high-income countries focused largely on research priorities, and not so much on skills training and interventions. Keeping these needs in mind, we conducted an online survey followed by an in-depth conversation with parents of autistic children and autistic adults drawn from across India. We found that the respondents reported self-help skills to be the most important for training, as they considered it fundamental for every other aspect of life. Speech and language therapy was considered to be the highest intervention priority for this group, highlighting the importance of social communication. Mental health counselling was also considered to be a high priority, but several parents identified it as being more relevant for themselves rather than for their children. Within research, the topmost priority was to understand ways in which the community can better support autistic people. We hope that these findings will help researchers, policymakers and service providers to be able to make well-informed decisions, develop relevant services and shape future research. En ligne : https://dx.doi.org/10.1177/13623613231154067 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 The importance of context in early autism intervention: A qualitative South African study / J. GULER in Autism, 22-8 (November 2018)
[article]
Titre : The importance of context in early autism intervention: A qualitative South African study Type de document : Texte imprimé et/ou numérique Auteurs : J. GULER, Auteur ; P. J. DE VRIES, Auteur ; N. SERIS, Auteur ; N. SHABALALA, Auteur ; L. FRANZ, Auteur Article en page(s) : p.1005-1017 Langues : Anglais (eng) Mots-clés : South Africa autism spectrum disorder caregivers contextual factors early intervention focus group low- and middle-income country qualitative methods Index. décimale : PER Périodiques Résumé : The majority of individuals with autism spectrum disorder live in low- and middle-income countries and receive little or no services from health or social care systems. The development and validation of autism spectrum disorder interventions has almost exclusively occurred in high-income countries, leaving many unanswered questions regarding what contextual factors would need to be considered to ensure the effectiveness of interventions in low- and middle-income countries. This study qualitatively explored contextual factors relevant to the adaptation of a caregiver-mediated early autism spectrum disorder intervention in a low-resource South African setting. We conducted four focus groups and four in-depth interviews with 28 caregivers of young children with autism spectrum disorder and used thematic analysis to identify key themes. Eight contextual factors including culture, language, location of treatment, cost of treatment, type of service provider, support, parenting practices, and stigma emerged as important. Caregivers reported a preference for an affordable, in-home, individualized early autism spectrum disorder intervention, where they have an active voice in shaping treatment goals. Distrust of community-based health workers and challenges associated with autism spectrum disorder-related stigma were identified. Recommendations that integrate caregiver preferences with the development of a low-cost and scalable caregiver-mediated early autism spectrum disorder intervention are included. En ligne : http://dx.doi.org/10.1177/1362361317716604 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370
in Autism > 22-8 (November 2018) . - p.1005-1017[article] The importance of context in early autism intervention: A qualitative South African study [Texte imprimé et/ou numérique] / J. GULER, Auteur ; P. J. DE VRIES, Auteur ; N. SERIS, Auteur ; N. SHABALALA, Auteur ; L. FRANZ, Auteur . - p.1005-1017.
Langues : Anglais (eng)
in Autism > 22-8 (November 2018) . - p.1005-1017
Mots-clés : South Africa autism spectrum disorder caregivers contextual factors early intervention focus group low- and middle-income country qualitative methods Index. décimale : PER Périodiques Résumé : The majority of individuals with autism spectrum disorder live in low- and middle-income countries and receive little or no services from health or social care systems. The development and validation of autism spectrum disorder interventions has almost exclusively occurred in high-income countries, leaving many unanswered questions regarding what contextual factors would need to be considered to ensure the effectiveness of interventions in low- and middle-income countries. This study qualitatively explored contextual factors relevant to the adaptation of a caregiver-mediated early autism spectrum disorder intervention in a low-resource South African setting. We conducted four focus groups and four in-depth interviews with 28 caregivers of young children with autism spectrum disorder and used thematic analysis to identify key themes. Eight contextual factors including culture, language, location of treatment, cost of treatment, type of service provider, support, parenting practices, and stigma emerged as important. Caregivers reported a preference for an affordable, in-home, individualized early autism spectrum disorder intervention, where they have an active voice in shaping treatment goals. Distrust of community-based health workers and challenges associated with autism spectrum disorder-related stigma were identified. Recommendations that integrate caregiver preferences with the development of a low-cost and scalable caregiver-mediated early autism spectrum disorder intervention are included. En ligne : http://dx.doi.org/10.1177/1362361317716604 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370