6 recherche sur le mot-clé 'terminology'

English-Language Autism Terminology Preferences of Autistic People and their Parents in the United States: Clustering Illuminates Diverse Views / Patrick DWYER in Autism, 30-10 (October 2026)  

Public ISBD [article]  inAutism > 30-10 (October 2026) . - p.2610-2627 Titre : English-Language Autism Terminology Preferences of Autistic People and their Parents in the United States: Clustering Illuminates Diverse Views Type de document : texte imprimé Auteurs : Patrick DWYER, Auteur ; Zachary J. WILLIAMS, Auteur ; Jennifer E. MAGNUSON, Auteur ; Tiffany G. WOYNAROSKI, Auteur Article en page(s) : p.2610-2627 Langues : Anglais (eng) Mots-clés : identity-first language  person-first language  terminology  autism  pathologising language  functioning labels  profound autism  Asperger’s syndrome Index. décimale : PER Périodiques Résumé : Autism terminology preferences are the subject of considerable debate and various studies, the results of which sometimes conflict. This study examined diversity in terminology preferences in a U.S. sample of 3,181 non-autistic parents and 2,098 autistic people (including 451 autistic parents). The study also examined a particularly wide range of language issues: participants rated terms for autism, possible subgroups within autism, autistic people, autism likelihood, and autistic characteristics. Non-autistic parents’, autistic parents’, and autistic non-parents’ terminology ratings differed, but generally modestly. Using clustering to explore response patterns revealed greater variability. Almost half of the participants were grouped in the Open Cluster, characterised by liking or neutrality towards most terms. Others were grouped in the Identity-First Cluster, characterised by support for identity-first language, strong opposition to terms for possible autism subgroups, and rejection of many pathologising terms. Other participants were in the Person-First Cluster, characterised by support for person-first language, yet still some scepticism towards terms for possible autism subgroups. Autistic participants were overrepresented in the Identity-First Cluster, while non-autistic parents were overrepresented in the Person-First Cluster. These results suggest that there is presently no consensus regarding autism terminology preferences in the United States.Community Abstract Why was this study done? It is important to respect how members of any community want to be talked about. However, previous studies about terminology preferences in the autism community sometimes provide different results. These conflicting results suggest that prior studies are not always capturing the diversity of terminology preferences in the autism community.What did the researchers do? We recruited large groups of autistic and non-autistic people in the United States. We asked them to rate different terms for talking about autism, subgroups within autism, autistic people, characteristics of autism, and the likelihood that somebody will later be diagnosed with autism.We then clustered the data, which means we let participants’ responses sort themselves into clusters of similar responses. This allowed us to highlight the diversity of people’s views.What did the researchers find? We found some terms that almost everyone liked, such as “autism,” and other terms or phrases that almost everyone disliked, such as “person suffering from autism.” However, most terms were liked by some people and disliked by others.We describe an “Open Cluster” of participants who like or have neutral feelings towards most terms.We describe an “Identity-First Cluster” of participants who like identity-first language and dislike terms for subgroups within autism. Identity-First cluster members also disliked many terms that imply autism is a bad thing, like “risk” for autism.Finally, we describe a “Person-First Cluster” of participants who like person-first language. Person-First Cluster members disliked some terms for subgroups within autism, but not as strongly as Identity-First Cluster members did.What are the implications? This study shows that autism community members do not always agree about terminology. This means that it is important to be thoughtful and considerate in how we talk about autism. En ligne : https://dx.doi.org/10.1177/13623613261475023 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=593 [article] English-Language Autism Terminology Preferences of Autistic People and their Parents in the United States: Clustering Illuminates Diverse Views [texte imprimé] / Patrick DWYER, Auteur ; Zachary J. WILLIAMS, Auteur ; Jennifer E. MAGNUSON, Auteur ; Tiffany G. WOYNAROSKI, Auteur . - p.2610-2627. Langues : Anglais (eng) in Autism > 30-10 (October 2026) . - p.2610-2627 Mots-clés : identity-first language  person-first language  terminology  autism  pathologising language  functioning labels  profound autism  Asperger’s syndrome Index. décimale : PER Périodiques Résumé : Autism terminology preferences are the subject of considerable debate and various studies, the results of which sometimes conflict. This study examined diversity in terminology preferences in a U.S. sample of 3,181 non-autistic parents and 2,098 autistic people (including 451 autistic parents). The study also examined a particularly wide range of language issues: participants rated terms for autism, possible subgroups within autism, autistic people, autism likelihood, and autistic characteristics. Non-autistic parents’, autistic parents’, and autistic non-parents’ terminology ratings differed, but generally modestly. Using clustering to explore response patterns revealed greater variability. Almost half of the participants were grouped in the Open Cluster, characterised by liking or neutrality towards most terms. Others were grouped in the Identity-First Cluster, characterised by support for identity-first language, strong opposition to terms for possible autism subgroups, and rejection of many pathologising terms. Other participants were in the Person-First Cluster, characterised by support for person-first language, yet still some scepticism towards terms for possible autism subgroups. Autistic participants were overrepresented in the Identity-First Cluster, while non-autistic parents were overrepresented in the Person-First Cluster. These results suggest that there is presently no consensus regarding autism terminology preferences in the United States.Community Abstract Why was this study done? It is important to respect how members of any community want to be talked about. However, previous studies about terminology preferences in the autism community sometimes provide different results. These conflicting results suggest that prior studies are not always capturing the diversity of terminology preferences in the autism community.What did the researchers do? We recruited large groups of autistic and non-autistic people in the United States. We asked them to rate different terms for talking about autism, subgroups within autism, autistic people, characteristics of autism, and the likelihood that somebody will later be diagnosed with autism.We then clustered the data, which means we let participants’ responses sort themselves into clusters of similar responses. This allowed us to highlight the diversity of people’s views.What did the researchers find? We found some terms that almost everyone liked, such as “autism,” and other terms or phrases that almost everyone disliked, such as “person suffering from autism.” However, most terms were liked by some people and disliked by others.We describe an “Open Cluster” of participants who like or have neutral feelings towards most terms.We describe an “Identity-First Cluster” of participants who like identity-first language and dislike terms for subgroups within autism. Identity-First cluster members also disliked many terms that imply autism is a bad thing, like “risk” for autism.Finally, we describe a “Person-First Cluster” of participants who like person-first language. Person-First Cluster members disliked some terms for subgroups within autism, but not as strongly as Identity-First Cluster members did.What are the implications? This study shows that autism community members do not always agree about terminology. This means that it is important to be thoughtful and considerate in how we talk about autism. En ligne : https://dx.doi.org/10.1177/13623613261475023 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=593

Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use / Jiedi LEI in Autism, 25-5 (July 2021)  

Public ISBD [article]  inAutism > 25-5 (July 2021) . - p.1349-1367 Titre : Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use Type de document : texte imprimé Auteurs : Jiedi LEI, Auteur ; Lauren JONES, Auteur ; Mark BROSNAN, Auteur Article en page(s) : p.1349-1367 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Computer-Assisted Instruction  Education, Distance  Humans  Language  Technology  autism  disability  identity-first  neurodiversity  person-first  quality of life  terminology  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Within the neurodiversity movement, one recent divergence is in the semantic choice of language when describing autism, as members of the autism and autistic community preferred to use identity-first language (autistic person), whereas professionals were more likely to use person-first language (person with autism). This study explored 803 e-learners' responses from their comments across two massive open online courses on autism education held between 2017 and 2019. Learners agreed that autistic individuals should guide others on which terminology to use when describing autism, and although identity-first language acknowledges autism as part of an individual's identity, it can also conjure up negative stereotypes and be stigmatising. Although family, friends and professionals highlighted that the diagnostic label is a way to facilitate understanding across stakeholder groups and help autistic individuals gain access to support, autistic self-advocates found the process of disclosing autism as a form of disability to conflict with their sense of identity, and broader terms such as 'autism spectrum' failed to capture individual strengths and weaknesses. Semantic language choices may matter less as long as the person's difficulties are clearly acknowledged, with adaptations made to meet their specific needs. Adding to a growing body of literature on terminology use in autism research and practice, we highlight that language used when describing autism should follow the autistic individual's lead, with the primary focus on communicating an individual's strengths and difficulties, to foster a sense of positive autism identity and inclusivity, and enable access to appropriate support. En ligne : http://dx.doi.org/10.1177/1362361320987963 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use [texte imprimé] / Jiedi LEI, Auteur ; Lauren JONES, Auteur ; Mark BROSNAN, Auteur . - p.1349-1367. Langues : Anglais (eng) in Autism > 25-5 (July 2021) . - p.1349-1367 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Computer-Assisted Instruction  Education, Distance  Humans  Language  Technology  autism  disability  identity-first  neurodiversity  person-first  quality of life  terminology  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Within the neurodiversity movement, one recent divergence is in the semantic choice of language when describing autism, as members of the autism and autistic community preferred to use identity-first language (autistic person), whereas professionals were more likely to use person-first language (person with autism). This study explored 803 e-learners' responses from their comments across two massive open online courses on autism education held between 2017 and 2019. Learners agreed that autistic individuals should guide others on which terminology to use when describing autism, and although identity-first language acknowledges autism as part of an individual's identity, it can also conjure up negative stereotypes and be stigmatising. Although family, friends and professionals highlighted that the diagnostic label is a way to facilitate understanding across stakeholder groups and help autistic individuals gain access to support, autistic self-advocates found the process of disclosing autism as a form of disability to conflict with their sense of identity, and broader terms such as 'autism spectrum' failed to capture individual strengths and weaknesses. Semantic language choices may matter less as long as the person's difficulties are clearly acknowledged, with adaptations made to meet their specific needs. Adding to a growing body of literature on terminology use in autism research and practice, we highlight that language used when describing autism should follow the autistic individual's lead, with the primary focus on communicating an individual's strengths and difficulties, to foster a sense of positive autism identity and inclusivity, and enable access to appropriate support. En ligne : http://dx.doi.org/10.1177/1362361320987963 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use / Jiedi LEI in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1349-1367 Titre : Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use Type de document : texte imprimé Auteurs : Jiedi LEI, Auteur ; Lauren JONES, Auteur ; Mark BROSNAN, Auteur Article en page(s) : p.1349-1367 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Computer-Assisted Instruction  Education, Distance  Humans  Language  Technology  autism  disability  identity-first  neurodiversity  person-first  quality of life  terminology  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Within the neurodiversity movement, one recent divergence is in the semantic choice of language when describing autism, as members of the autism and autistic community preferred to use identity-first language (autistic person), whereas professionals were more likely to use person-first language (person with autism). This study explored 803 e-learners' responses from their comments across two massive open online courses on autism education held between 2017 and 2019. Learners agreed that autistic individuals should guide others on which terminology to use when describing autism, and although identity-first language acknowledges autism as part of an individual's identity, it can also conjure up negative stereotypes and be stigmatising. Although family, friends and professionals highlighted that the diagnostic label is a way to facilitate understanding across stakeholder groups and help autistic individuals gain access to support, autistic self-advocates found the process of disclosing autism as a form of disability to conflict with their sense of identity, and broader terms such as 'autism spectrum' failed to capture individual strengths and weaknesses. Semantic language choices may matter less as long as the person's difficulties are clearly acknowledged, with adaptations made to meet their specific needs. Adding to a growing body of literature on terminology use in autism research and practice, we highlight that language used when describing autism should follow the autistic individual's lead, with the primary focus on communicating an individual's strengths and difficulties, to foster a sense of positive autism identity and inclusivity, and enable access to appropriate support. En ligne : http://dx.doi.org/10.1177/1362361320987963 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use [texte imprimé] / Jiedi LEI, Auteur ; Lauren JONES, Auteur ; Mark BROSNAN, Auteur . - p.1349-1367. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1349-1367 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Computer-Assisted Instruction  Education, Distance  Humans  Language  Technology  autism  disability  identity-first  neurodiversity  person-first  quality of life  terminology  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Within the neurodiversity movement, one recent divergence is in the semantic choice of language when describing autism, as members of the autism and autistic community preferred to use identity-first language (autistic person), whereas professionals were more likely to use person-first language (person with autism). This study explored 803 e-learners' responses from their comments across two massive open online courses on autism education held between 2017 and 2019. Learners agreed that autistic individuals should guide others on which terminology to use when describing autism, and although identity-first language acknowledges autism as part of an individual's identity, it can also conjure up negative stereotypes and be stigmatising. Although family, friends and professionals highlighted that the diagnostic label is a way to facilitate understanding across stakeholder groups and help autistic individuals gain access to support, autistic self-advocates found the process of disclosing autism as a form of disability to conflict with their sense of identity, and broader terms such as 'autism spectrum' failed to capture individual strengths and weaknesses. Semantic language choices may matter less as long as the person's difficulties are clearly acknowledged, with adaptations made to meet their specific needs. Adding to a growing body of literature on terminology use in autism research and practice, we highlight that language used when describing autism should follow the autistic individual's lead, with the primary focus on communicating an individual's strengths and difficulties, to foster a sense of positive autism identity and inclusivity, and enable access to appropriate support. En ligne : http://dx.doi.org/10.1177/1362361320987963 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Phase 2 of CATALISE: a multinational and multidisciplinary Delphi consensus study of problems with language development: Terminology / Dorothy V.M. BISHOP in Journal of Child Psychology and Psychiatry, 58-10 (October 2017)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 58-10 (October 2017) . - p.1068-1080 Titre : Phase 2 of CATALISE: a multinational and multidisciplinary Delphi consensus study of problems with language development: Terminology Type de document : texte imprimé Auteurs : Dorothy V.M. BISHOP, Auteur ; Margaret J. SNOWLING, Auteur ; Paul A. THOMPSON, Auteur ; Trisha GREENHALGH, Auteur ; CATALISE-CONSORTIUM, Auteur Article en page(s) : p.1068-1080 Langues : Anglais (eng) Mots-clés : Developmental language disorder  specific language impairment  terminology  risk factors  definitions Index. décimale : PER Périodiques Résumé : Background Lack of agreement about criteria and terminology for children's language problems affects access to services as well as hindering research and practice. We report the second phase of a study using an online Delphi method to address these issues. In the first phase, we focused on criteria for language disorder. Here we consider terminology. Methods The Delphi method is an iterative process in which an initial set of statements is rated by a panel of experts, who then have the opportunity to view anonymised ratings from other panel members. On this basis they can either revise their views or make a case for their position. The statements are then revised based on panel feedback, and again rated by and commented on by the panel. In this study, feedback from a second round was used to prepare a final set of statements in narrative form. The panel included 57 individuals representing a range of professions and nationalities. Results We achieved at least 78% agreement for 19 of 21 statements within two rounds of ratings. These were collapsed into 12 statements for the final consensus reported here. The term ‘Language Disorder’ is recommended to refer to a profile of difficulties that causes functional impairment in everyday life and is associated with poor prognosis. The term, ‘Developmental Language Disorder’ (DLD) was endorsed for use when the language disorder was not associated with a known biomedical aetiology. It was also agreed that (a) presence of risk factors (neurobiological or environmental) does not preclude a diagnosis of DLD, (b) DLD can co-occur with other neurodevelopmental disorders (e.g. ADHD) and (c) DLD does not require a mismatch between verbal and nonverbal ability. Conclusions This Delphi exercise highlights reasons for disagreements about terminology for language disorders and proposes standard definitions and nomenclature. En ligne : http://dx.doi.org/10.1111/jcpp.12721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=321 [article] Phase 2 of CATALISE: a multinational and multidisciplinary Delphi consensus study of problems with language development: Terminology [texte imprimé] / Dorothy V.M. BISHOP, Auteur ; Margaret J. SNOWLING, Auteur ; Paul A. THOMPSON, Auteur ; Trisha GREENHALGH, Auteur ; CATALISE-CONSORTIUM, Auteur . - p.1068-1080. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 58-10 (October 2017) . - p.1068-1080 Mots-clés : Developmental language disorder  specific language impairment  terminology  risk factors  definitions Index. décimale : PER Périodiques Résumé : Background Lack of agreement about criteria and terminology for children's language problems affects access to services as well as hindering research and practice. We report the second phase of a study using an online Delphi method to address these issues. In the first phase, we focused on criteria for language disorder. Here we consider terminology. Methods The Delphi method is an iterative process in which an initial set of statements is rated by a panel of experts, who then have the opportunity to view anonymised ratings from other panel members. On this basis they can either revise their views or make a case for their position. The statements are then revised based on panel feedback, and again rated by and commented on by the panel. In this study, feedback from a second round was used to prepare a final set of statements in narrative form. The panel included 57 individuals representing a range of professions and nationalities. Results We achieved at least 78% agreement for 19 of 21 statements within two rounds of ratings. These were collapsed into 12 statements for the final consensus reported here. The term ‘Language Disorder’ is recommended to refer to a profile of difficulties that causes functional impairment in everyday life and is associated with poor prognosis. The term, ‘Developmental Language Disorder’ (DLD) was endorsed for use when the language disorder was not associated with a known biomedical aetiology. It was also agreed that (a) presence of risk factors (neurobiological or environmental) does not preclude a diagnosis of DLD, (b) DLD can co-occur with other neurodevelopmental disorders (e.g. ADHD) and (c) DLD does not require a mismatch between verbal and nonverbal ability. Conclusions This Delphi exercise highlights reasons for disagreements about terminology for language disorders and proposes standard definitions and nomenclature. En ligne : http://dx.doi.org/10.1111/jcpp.12721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=321

Language Use Preferences in a Culturally Diverse, Multiethnic, and Multilingual Autism Community in Singapore / Sharline SUHUMARAN in Autism, 30-7 (July 2026)  

Public ISBD [article]  inAutism > 30-7 (July 2026) . - p.1759-1774 Titre : Language Use Preferences in a Culturally Diverse, Multiethnic, and Multilingual Autism Community in Singapore Type de document : texte imprimé Auteurs : Sharline SUHUMARAN, Auteur ; Ramkumar AISHWORIYA, Auteur ; Chui Mae WONG, Auteur Article en page(s) : p.1759-1774 Langues : Anglais (eng) Mots-clés : autism  cultural diversity  identity-first language  person-first language  terminology Index. décimale : PER Périodiques Résumé : There is an emerging understanding of diverse language preferences in autism among stakeholders, including that for identity-first language (IFL) versus person-first language (PFL). We aimed to understand preferences regarding language use in racially and culturally diverse Singapore. A cross-sectional study was completed by autistic adults, caregivers of autistic individuals, and professionals working in the autism field. The questionnaire comprised commonly used terms in autism, which respondents rated from 1 (uncomfortable/I do not like this term) to 7 (very comfortable/this would be my preference). The sample comprised 320 individuals (82.8% females; Chinese 75.9%, Malay 9.4%, Indian 8.8%). Respondents comprised 38 (11.9%) autistic individuals, 86 (26.9%) caregivers/relatives, and 196 (61.3%) professionals. Differences in language preferences were observed between respondent types. Autistic individuals preferred terms like ‘autistic’ (M ± SD = 5.00 ± 2.25) unlike caregivers/relatives (3.66 ± 2.41) or professionals (3.30 ± 1.94, p < .001). PFL terms like ‘person with autism’ and ‘person with ASD’ were preferred by caregivers/relatives (4.47 ± 2.19; 4.33 ± 2.25) and especially professionals (5.32 ± 1.58; 4.89 ± 1.84) but disliked by autistic individuals (3.11 ± 2.09; 2.39 ± 1.99; p < .001). Different language preferences were observed between those with lived experience versus professionals. Sensitivity to the preferences of stakeholders fosters better inclusion and acceptance of neurodiversity.Lay Abstract Language shapes how autism is perceived and understood by society. Research on language preferences in the autism community has been mostly from Western sources. The primary consideration has been in identifying the preference between identity-first language (IFL), such as ‘autistic person’, and person-first language (PFL), such as ‘person with autism’. These studies suggest that professionals and caregivers prefer PFL while autistic individuals favor IFL. Little is known about these preferences in a culturally diverse setting like Singapore. This study aimed to explore the language preferences among the stakeholders in the autism community in Singapore. In this study, 320 participants were surveyed anonymously online; participants were asked to rate their comfort level with certain autism-related terms. The survey findings revealed significant differences in preferred language—autistic individuals expressed a strong preference for IFL and for terms that conveyed autism as a part of their identity and did not prefer clinical terms such as ‘symptoms of autism’ or PFL terms such as ‘person with ASD’. In contrast, caregivers and professionals tended to prefer PFL terms and medicalized language. It is likely that societal factors, including Singapore’s relatively conservative culture and societal views on autism, influenced these preferences. Awareness of the variations in language preferences among stakeholders in the autism community will help to foster inclusivity, acceptance, and sensitivity toward autistic individuals and their families. En ligne : https://dx.doi.org/10.1177/13623613261441734 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590 [article] Language Use Preferences in a Culturally Diverse, Multiethnic, and Multilingual Autism Community in Singapore [texte imprimé] / Sharline SUHUMARAN, Auteur ; Ramkumar AISHWORIYA, Auteur ; Chui Mae WONG, Auteur . - p.1759-1774. Langues : Anglais (eng) in Autism > 30-7 (July 2026) . - p.1759-1774 Mots-clés : autism  cultural diversity  identity-first language  person-first language  terminology Index. décimale : PER Périodiques Résumé : There is an emerging understanding of diverse language preferences in autism among stakeholders, including that for identity-first language (IFL) versus person-first language (PFL). We aimed to understand preferences regarding language use in racially and culturally diverse Singapore. A cross-sectional study was completed by autistic adults, caregivers of autistic individuals, and professionals working in the autism field. The questionnaire comprised commonly used terms in autism, which respondents rated from 1 (uncomfortable/I do not like this term) to 7 (very comfortable/this would be my preference). The sample comprised 320 individuals (82.8% females; Chinese 75.9%, Malay 9.4%, Indian 8.8%). Respondents comprised 38 (11.9%) autistic individuals, 86 (26.9%) caregivers/relatives, and 196 (61.3%) professionals. Differences in language preferences were observed between respondent types. Autistic individuals preferred terms like ‘autistic’ (M ± SD = 5.00 ± 2.25) unlike caregivers/relatives (3.66 ± 2.41) or professionals (3.30 ± 1.94, p < .001). PFL terms like ‘person with autism’ and ‘person with ASD’ were preferred by caregivers/relatives (4.47 ± 2.19; 4.33 ± 2.25) and especially professionals (5.32 ± 1.58; 4.89 ± 1.84) but disliked by autistic individuals (3.11 ± 2.09; 2.39 ± 1.99; p < .001). Different language preferences were observed between those with lived experience versus professionals. Sensitivity to the preferences of stakeholders fosters better inclusion and acceptance of neurodiversity.Lay Abstract Language shapes how autism is perceived and understood by society. Research on language preferences in the autism community has been mostly from Western sources. The primary consideration has been in identifying the preference between identity-first language (IFL), such as ‘autistic person’, and person-first language (PFL), such as ‘person with autism’. These studies suggest that professionals and caregivers prefer PFL while autistic individuals favor IFL. Little is known about these preferences in a culturally diverse setting like Singapore. This study aimed to explore the language preferences among the stakeholders in the autism community in Singapore. In this study, 320 participants were surveyed anonymously online; participants were asked to rate their comfort level with certain autism-related terms. The survey findings revealed significant differences in preferred language—autistic individuals expressed a strong preference for IFL and for terms that conveyed autism as a part of their identity and did not prefer clinical terms such as ‘symptoms of autism’ or PFL terms such as ‘person with ASD’. In contrast, caregivers and professionals tended to prefer PFL terms and medicalized language. It is likely that societal factors, including Singapore’s relatively conservative culture and societal views on autism, influenced these preferences. Awareness of the variations in language preferences among stakeholders in the autism community will help to foster inclusivity, acceptance, and sensitivity toward autistic individuals and their families. En ligne : https://dx.doi.org/10.1177/13623613261441734 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=590

Which terms should be used to describe autism? Perspectives from the UK autism community / Lorcan KENNY in Autism, 20-4 (May 2016)  

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