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Faire une suggestionThe neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory / Monique BOTHA in Autism, 28-6 (June 2024)
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Titre : The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory Type de document : texte imprimé Auteurs : Monique BOTHA, Auteur ; Robert CHAPMAN, Auteur ; Morénike GIWA ONAIWU, Auteur ; Steven K. KAPP, Auteur ; Abs STANNARD ASHLEY, Auteur ; Nick WALKER, Auteur Article en page(s) : p.1591-1594 Langues : Anglais (eng) Mots-clés : autism rights autistic activism critical neurodiversity studies neurodiversity neurodiversity history neurodiversity movement Index. décimale : PER Périodiques Résumé : We, an international group of autistic scholars of autism and neurodiversity, discuss recent findings on the origins of the concept and theorising of neurodiversity. For some time, the coinage and theorising of the concept of 'neurodiversity' has been attributed to Judy Singer. Singer wrote an Honours thesis on the subject in 1998, focused on autistic activists and allies in the autistic community email list Independent Living (InLv). This was revised into a briefer book chapter, published in 1999. Despite the widespread attribution to Singer, the terms 'neurological diversity' and 'neurodiversity' were first printed in 1997 and 1998, respectively, in the work of the journalist Harvey Blume, who himself attributed them not to Singer but rather to the online community of autistic people, such as the 'Institute for the Study of the Neurologically Typical'. Recently, Martijn Dekker reported a 1996 discussion in which one InLv poster, Tony Langdon, writes of the 'neurological diversity of people. i.e. the atypical among a society provide the different perspectives needed to generate new ideas and advances, whether they be technological, cultural, artistic or otherwise'. Going forward, we should recognise the multiple, collective origins of the neurodiversity concept rather than attributing it to any single author. Lay abstract This letter discusses the origins of the concept and theory of neurodiversity. It is important to correctly attribute concept and theories to the people who developed them. For some time, the concept of neurodiversity has primarily been attributed to one person, Judy Singer. We consider the available evidence and show that the concept and theory in fact has multiple origins. We draw particular attention to recent archival findings that show the concept of 'neurological diversity' was being used years earlier than previously thought. 'Neurodiversity' means the same thing as 'neurological diversity' and does not change the theory in any way. We conclude that both the concept of neurological diversity or neurodiversity, and the body of theory surrounding it, should be understood as having been collectively developed by neurodivergent people. En ligne : https://dx.doi.org/10.1177/13623613241237871 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529
in Autism > 28-6 (June 2024) . - p.1591-1594[article] The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory [texte imprimé] / Monique BOTHA, Auteur ; Robert CHAPMAN, Auteur ; Morénike GIWA ONAIWU, Auteur ; Steven K. KAPP, Auteur ; Abs STANNARD ASHLEY, Auteur ; Nick WALKER, Auteur . - p.1591-1594.
Langues : Anglais (eng)
in Autism > 28-6 (June 2024) . - p.1591-1594
Mots-clés : autism rights autistic activism critical neurodiversity studies neurodiversity neurodiversity history neurodiversity movement Index. décimale : PER Périodiques Résumé : We, an international group of autistic scholars of autism and neurodiversity, discuss recent findings on the origins of the concept and theorising of neurodiversity. For some time, the coinage and theorising of the concept of 'neurodiversity' has been attributed to Judy Singer. Singer wrote an Honours thesis on the subject in 1998, focused on autistic activists and allies in the autistic community email list Independent Living (InLv). This was revised into a briefer book chapter, published in 1999. Despite the widespread attribution to Singer, the terms 'neurological diversity' and 'neurodiversity' were first printed in 1997 and 1998, respectively, in the work of the journalist Harvey Blume, who himself attributed them not to Singer but rather to the online community of autistic people, such as the 'Institute for the Study of the Neurologically Typical'. Recently, Martijn Dekker reported a 1996 discussion in which one InLv poster, Tony Langdon, writes of the 'neurological diversity of people. i.e. the atypical among a society provide the different perspectives needed to generate new ideas and advances, whether they be technological, cultural, artistic or otherwise'. Going forward, we should recognise the multiple, collective origins of the neurodiversity concept rather than attributing it to any single author. Lay abstract This letter discusses the origins of the concept and theory of neurodiversity. It is important to correctly attribute concept and theories to the people who developed them. For some time, the concept of neurodiversity has primarily been attributed to one person, Judy Singer. We consider the available evidence and show that the concept and theory in fact has multiple origins. We draw particular attention to recent archival findings that show the concept of 'neurological diversity' was being used years earlier than previously thought. 'Neurodiversity' means the same thing as 'neurological diversity' and does not change the theory in any way. We conclude that both the concept of neurological diversity or neurodiversity, and the body of theory surrounding it, should be understood as having been collectively developed by neurodivergent people. En ligne : https://dx.doi.org/10.1177/13623613241237871 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 Neurodiversity 2.0 - Harnessing cross-disciplinary disability insights / Hari SRINIVASAN in Research in Autism, 127 (September 2025)
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Titre : Neurodiversity 2.0 - Harnessing cross-disciplinary disability insights Type de document : texte imprimé Auteurs : Hari SRINIVASAN, Auteur Article en page(s) : p.202652 Langues : Anglais (eng) Mots-clés : Autism Independence Interdependence Medical Model Neurodiversity Social model Index. décimale : PER Périodiques En ligne : https://doi.org/10.1016/j.reia.2025.202652 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567
in Research in Autism > 127 (September 2025) . - p.202652[article] Neurodiversity 2.0 - Harnessing cross-disciplinary disability insights [texte imprimé] / Hari SRINIVASAN, Auteur . - p.202652.
Langues : Anglais (eng)
in Research in Autism > 127 (September 2025) . - p.202652
Mots-clés : Autism Independence Interdependence Medical Model Neurodiversity Social model Index. décimale : PER Périodiques En ligne : https://doi.org/10.1016/j.reia.2025.202652 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=567 Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework / Rachel K. SCHUCK in Journal of Autism and Developmental Disorders, 52-10 (October 2022)
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[article]
Titre : Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework Type de document : texte imprimé Auteurs : Rachel K. SCHUCK, Auteur ; Daina M. TAGAVI, Auteur ; Kaitlynn M.P. BAIDEN, Auteur ; Patrick DWYER, Auteur ; Zachary J. WILLIAMS, Auteur ; Anthony OSUNA, Auteur ; Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Samantha K. POYSER, Auteur ; Joy F. JOHNSON, Auteur ; Ty W. VERNON, Auteur Article en page(s) : p.4625-4645 Langues : Anglais (eng) Mots-clés : Autism Naturalistic developmental behavioral intervention Neurodiversity Autism Center at the University of California, Santa Barbara, a center focused on providing Pivotal Response Treatment, an NDBI. TWV is the center director. TWV, KMPB, MJM, and JFJ are Board Certified Behavior Analysts. PD and ZJW both serve on the autistic researcher review board of the Autism Intervention Research Network on Physical Health (AIR-P), and ZJW is a member of the family advisory committee of the Autism Speaks Autism Learning Health Network Vanderbilt site. ZJW also serves as a consultant for Roche on a project related to behavioral intervention for autism. Index. décimale : PER Périodiques Résumé : Proponents of autism intervention and those of the neurodiversity movement often appear at odds, the former advocating for intensive treatments and the latter arguing that autism must be accepted as a form of diversity. The history of behavioral intervention has understandably outraged many in the Autistic community, though many still value supports focused on quality of life. This commentary argues that Naturalistic Developmental Behavioral Interventions (NDBIs) hold promise for bridging the gap between early intervention and the neurodiversity movement. However, we recognize NDBIs have much room to grow and suggest multiple strategies for improvement. We believe these updates are not only feasible for clinicians and researchers to implement but will ultimately lead to improved quality of life for Autistic individuals. En ligne : http://dx.doi.org/10.1007/s10803-021-05316-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486
in Journal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4625-4645[article] Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework [texte imprimé] / Rachel K. SCHUCK, Auteur ; Daina M. TAGAVI, Auteur ; Kaitlynn M.P. BAIDEN, Auteur ; Patrick DWYER, Auteur ; Zachary J. WILLIAMS, Auteur ; Anthony OSUNA, Auteur ; Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Samantha K. POYSER, Auteur ; Joy F. JOHNSON, Auteur ; Ty W. VERNON, Auteur . - p.4625-4645.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4625-4645
Mots-clés : Autism Naturalistic developmental behavioral intervention Neurodiversity Autism Center at the University of California, Santa Barbara, a center focused on providing Pivotal Response Treatment, an NDBI. TWV is the center director. TWV, KMPB, MJM, and JFJ are Board Certified Behavior Analysts. PD and ZJW both serve on the autistic researcher review board of the Autism Intervention Research Network on Physical Health (AIR-P), and ZJW is a member of the family advisory committee of the Autism Speaks Autism Learning Health Network Vanderbilt site. ZJW also serves as a consultant for Roche on a project related to behavioral intervention for autism. Index. décimale : PER Périodiques Résumé : Proponents of autism intervention and those of the neurodiversity movement often appear at odds, the former advocating for intensive treatments and the latter arguing that autism must be accepted as a form of diversity. The history of behavioral intervention has understandably outraged many in the Autistic community, though many still value supports focused on quality of life. This commentary argues that Naturalistic Developmental Behavioral Interventions (NDBIs) hold promise for bridging the gap between early intervention and the neurodiversity movement. However, we recognize NDBIs have much room to grow and suggest multiple strategies for improvement. We believe these updates are not only feasible for clinicians and researchers to implement but will ultimately lead to improved quality of life for Autistic individuals. En ligne : http://dx.doi.org/10.1007/s10803-021-05316-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 The Neurodiversity Attitudes Questionnaire: Development and Initial Validation / Rachel K. SCHUCK in Autism, 28-11 (November 2024)
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Titre : The Neurodiversity Attitudes Questionnaire: Development and Initial Validation Type de document : texte imprimé Auteurs : Rachel K. SCHUCK, Auteur ; Sunghee CHOI, Auteur ; Kaitlynn M.P. BAIDEN, Auteur ; Patrick DWYER, Auteur ; Mirko ULJAREVIĆ, Auteur Article en page(s) : p.2821 - 2833 Langues : Anglais (eng) Mots-clés : attitudes helping professionals instrument development neurodiversity Index. décimale : PER Périodiques Résumé : Neurodiversity refers to the idea that all brains-no matter their differences-are valuable and should be accepted. Attitudes toward the neurodiversity perspective can have real-life impacts on the lives of neurodivergent people, from effects on daily interactions to how professionals deliver services for neurodivergent individuals. In order to identify negative attitudes toward neurodiversity and potentially intervene to improve them, we first need to measure these attitudes. This article describes the development and initial validation of the Neurodiversity Attitudes Questionnaire (NDAQ), including item revision based on expert review, cognitive interviews, systematic evaluation of participants' response process, and analysis of the instrument?s internal factor structure using exploratory structural equation modeling. Pilot analysis with 351 individuals mostly living in the United States who were currently working in or intending to pursue helping professions indicates that the NDAQ has construct validity, is well understood by participants, and fits a five-factor structure. While the NDAQ represents the first instrument designed to specifically assess attitudes toward the neurodiversity perspective, further validation work is still needed. Lay Abstract Neurodiversity refers to the idea that brain differences (including disabilities) are valuable and should be accepted. Attitudes toward neurodiversity can have real-life impacts on the lives of neurodivergent people (those whose brains do not fit society?s "standard"). These impacts can include effects on daily interactions, as well as how professionals such as teachers and doctors deliver services to neurodivergent people. In order to identify negative attitudes toward neurodiversity and potentially improve them, we first need to measure these attitudes. This article describes the development of the Neurodiversity Attitudes Questionnaire (NDAQ). NDAQ development included revision of questionnaire items based on feedback from experts and neurodivergent people, systematically evaluating the way participants responded to questionnaire items, and analysis of how the NDAQ items are grouped into different factors. A preliminary analysis with 351 individuals mostly living in the United States who were currently working or planning to work in a helping profession (e.g. doctors, teachers, therapists, and so on) indicates that the NDAQ measures attitudes toward neurodiversity, is well understood by participants, and fits a five-factor structure. While the NDAQ represents the first instrument designed to specifically assess attitudes toward the broad idea of neurodiversity, further work is still needed. En ligne : https://dx.doi.org/10.1177/13623613241245756 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537
in Autism > 28-11 (November 2024) . - p.2821 - 2833[article] The Neurodiversity Attitudes Questionnaire: Development and Initial Validation [texte imprimé] / Rachel K. SCHUCK, Auteur ; Sunghee CHOI, Auteur ; Kaitlynn M.P. BAIDEN, Auteur ; Patrick DWYER, Auteur ; Mirko ULJAREVIĆ, Auteur . - p.2821 - 2833.
Langues : Anglais (eng)
in Autism > 28-11 (November 2024) . - p.2821 - 2833
Mots-clés : attitudes helping professionals instrument development neurodiversity Index. décimale : PER Périodiques Résumé : Neurodiversity refers to the idea that all brains-no matter their differences-are valuable and should be accepted. Attitudes toward the neurodiversity perspective can have real-life impacts on the lives of neurodivergent people, from effects on daily interactions to how professionals deliver services for neurodivergent individuals. In order to identify negative attitudes toward neurodiversity and potentially intervene to improve them, we first need to measure these attitudes. This article describes the development and initial validation of the Neurodiversity Attitudes Questionnaire (NDAQ), including item revision based on expert review, cognitive interviews, systematic evaluation of participants' response process, and analysis of the instrument?s internal factor structure using exploratory structural equation modeling. Pilot analysis with 351 individuals mostly living in the United States who were currently working in or intending to pursue helping professions indicates that the NDAQ has construct validity, is well understood by participants, and fits a five-factor structure. While the NDAQ represents the first instrument designed to specifically assess attitudes toward the neurodiversity perspective, further validation work is still needed. Lay Abstract Neurodiversity refers to the idea that brain differences (including disabilities) are valuable and should be accepted. Attitudes toward neurodiversity can have real-life impacts on the lives of neurodivergent people (those whose brains do not fit society?s "standard"). These impacts can include effects on daily interactions, as well as how professionals such as teachers and doctors deliver services to neurodivergent people. In order to identify negative attitudes toward neurodiversity and potentially improve them, we first need to measure these attitudes. This article describes the development of the Neurodiversity Attitudes Questionnaire (NDAQ). NDAQ development included revision of questionnaire items based on feedback from experts and neurodivergent people, systematically evaluating the way participants responded to questionnaire items, and analysis of how the NDAQ items are grouped into different factors. A preliminary analysis with 351 individuals mostly living in the United States who were currently working or planning to work in a helping profession (e.g. doctors, teachers, therapists, and so on) indicates that the NDAQ measures attitudes toward neurodiversity, is well understood by participants, and fits a five-factor structure. While the NDAQ represents the first instrument designed to specifically assess attitudes toward the broad idea of neurodiversity, further work is still needed. En ligne : https://dx.doi.org/10.1177/13623613241245756 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537 Advancing the understanding of mental health in autistic youth: Implications from developmental psychopathology and neurodiversity perspectives / Sharada G. KRISHNAN in Research in Autism, 128 (October 2025)
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Titre : Advancing the understanding of mental health in autistic youth: Implications from developmental psychopathology and neurodiversity perspectives Type de document : texte imprimé Auteurs : Sharada G. KRISHNAN, Auteur ; Gael I. ORSMOND, Auteur Article en page(s) : p.202717 Langues : Anglais (eng) Mots-clés : Autism Mental health Developmental psychopathology Neurodiversity Strengths-based approaches Resilience Children and youth Index. décimale : PER Périodiques Résumé : Autistic youth experience disproportionately high rates of mental health challenges, including anxiety and depression, which often persist into adulthood and impact quality of life. Despite growing attention, research on mental health in autistic youth has not been consistently grounded in explicit theoretical frameworks. We review two theoretical perspectives—developmental psychopathology and the neurodiversity paradigm—that can enrich an understanding of mental health in autistic youth and guide future research in this area. A developmental psychopathology perspective focuses on the dynamic interactions among risk, protective, and promotive factors that influence mental health, while the neurodiversity paradigm frames autism as a valued form of human diversity and centers lived experiences, strengths, and contextual barriers. We first trace the historical contributions of developmental psychopathology to autism research and examine tensions between this body of work and the neurodiversity paradigm. We then explore how a developmental psychopathology perspective, when focused specifically on mental health in autistic youth, and the neurodiversity paradigm can be integrated to advance mental health research across three areas: (1) the measurement of mental health outcomes, (2) the identification of risk, protective, and promotive factors, and (3) the impact of traumatic experiences on resilience and mental health. Leveraging the strengths of both a developmental psychopathology perspective and the neurodiversity paradigm can advance a more theoretically grounded, methodologically rigorous, and neurodiversity-informed research agenda aligned with the priorities of the autistic community. En ligne : https://doi.org/10.1016/j.reia.2025.202717 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570
in Research in Autism > 128 (October 2025) . - p.202717[article] Advancing the understanding of mental health in autistic youth: Implications from developmental psychopathology and neurodiversity perspectives [texte imprimé] / Sharada G. KRISHNAN, Auteur ; Gael I. ORSMOND, Auteur . - p.202717.
Langues : Anglais (eng)
in Research in Autism > 128 (October 2025) . - p.202717
Mots-clés : Autism Mental health Developmental psychopathology Neurodiversity Strengths-based approaches Resilience Children and youth Index. décimale : PER Périodiques Résumé : Autistic youth experience disproportionately high rates of mental health challenges, including anxiety and depression, which often persist into adulthood and impact quality of life. Despite growing attention, research on mental health in autistic youth has not been consistently grounded in explicit theoretical frameworks. We review two theoretical perspectives—developmental psychopathology and the neurodiversity paradigm—that can enrich an understanding of mental health in autistic youth and guide future research in this area. A developmental psychopathology perspective focuses on the dynamic interactions among risk, protective, and promotive factors that influence mental health, while the neurodiversity paradigm frames autism as a valued form of human diversity and centers lived experiences, strengths, and contextual barriers. We first trace the historical contributions of developmental psychopathology to autism research and examine tensions between this body of work and the neurodiversity paradigm. We then explore how a developmental psychopathology perspective, when focused specifically on mental health in autistic youth, and the neurodiversity paradigm can be integrated to advance mental health research across three areas: (1) the measurement of mental health outcomes, (2) the identification of risk, protective, and promotive factors, and (3) the impact of traumatic experiences on resilience and mental health. Leveraging the strengths of both a developmental psychopathology perspective and the neurodiversity paradigm can advance a more theoretically grounded, methodologically rigorous, and neurodiversity-informed research agenda aligned with the priorities of the autistic community. En ligne : https://doi.org/10.1016/j.reia.2025.202717 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570 Annual Research Review: Shifting from 'normal science' to neurodiversity in autism science / Elizabeth PELLICANO in Journal of Child Psychology and Psychiatry, 63-4 (April 2022)
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PermalinkCommunity views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions / Patrick DWYER in Autism, 29-9 (September 2025)
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PermalinkFrom principle to practice: Creating neurodiversity-affirming learning environments for students with echolalia / Matthew J. HARRISON in Research in Autism, 126 (August 2025)
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PermalinkInnovation through neurodiversity: Diversity is beneficial / Harriet AXBEY in Autism, 27-7 (October 2023)
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Permalink'Let me tell you, I see echolalia as being a part of my son?s identity': Exploring echolalia as an expression of neurodiversity from a parental perspective / Eli G. COHN in Autism, 28-5 (May 2024)
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