Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature / Amy STEDMAN in Journal of Autism and Developmental Disorders, 49-4 (April 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1378-1390 Titre : Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature Type de document : texte imprimé Auteurs : Amy STEDMAN, Auteur ; Briana J. TAYLOR, Auteur ; Michael ERARD, Auteur ; Christine PEURA, Auteur ; Matthew SIEGEL, Auteur Article en page(s) : p.1378-1390 Langues : Anglais (eng) Mots-clés : Autism  Cognitive  Communication  Severely affected Index. décimale : PER Périodiques Résumé : Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991-2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. En ligne : https://dx.doi.org/10.1007/s10803-018-3844-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388 [article] Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature [texte imprimé] / Amy STEDMAN, Auteur ; Briana J. TAYLOR, Auteur ; Michael ERARD, Auteur ; Christine PEURA, Auteur ; Matthew SIEGEL, Auteur . - p.1378-1390. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-4 (April 2019) . - p.1378-1390 Mots-clés : Autism  Cognitive  Communication  Severely affected Index. décimale : PER Périodiques Résumé : Despite significant advances in autism research, experts have noted that children severely affected by autism spectrum disorder (ASD) appear to have been understudied. Rigorous analysis of this observation has been limited, and the representation of severity has not been well-described. We assessed three domains of severity (communication ability, cognitive functioning, and adaptive functioning) in 367 treatment studies of children with ASD published 1991-2013. We found that the proportion of studies that included the severely affected population decreased significantly over time, as well as wide variability in measurement and reporting. Inadequate representation of the full autism spectrum in the literature could lead to an unbalanced picture of ASD and leave behind those with arguably the greatest need. En ligne : https://dx.doi.org/10.1007/s10803-018-3844-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=388

Behavioral Outcomes of Specialized Psychiatric Hospitalization in the Autism Inpatient Collection (AIC): A Multisite Comparison / Kahsi A. PEDERSEN in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3658-3667 Titre : Behavioral Outcomes of Specialized Psychiatric Hospitalization in the Autism Inpatient Collection (AIC): A Multisite Comparison Type de document : texte imprimé Auteurs : Kahsi A. PEDERSEN, Auteur ; Susan L. SANTANGELO, Auteur ; Robin GABRIELS, Auteur ; Giulia RIGHI, Auteur ; Michael ERARD, Auteur ; Matthew SIEGEL, Auteur Article en page(s) : p.3658-3667 Langues : Anglais (eng) Mots-clés : Autism inpatient collection (AIC)  Autism spectrum disorder (ASD)  Crisis  Externalizing problem behaviors  Psychiatric inpatients  Self-injurious behavior  Tantrum-like behavior Index. décimale : PER Périodiques Résumé : Psychiatric hospitalization of children with autism spectrum disorder (ASD) is relatively common and occurs at a higher rate than in non-ASD youth. This study compared changes in the severity of serious problem behaviors in 350 youth with ASD enrolled in the autism inpatient collection during and after hospitalization in six specialized child psychiatry units. There was a significant reduction in serious problem behaviors from admission (aberrant behavior checklist-irritability subscale M = 29.7, SD 9.6) to discharge (M = 15.0, SD 10.3) and 2-month follow-up (M = 19.3, SD 10.3). Between discharge and 2-month follow-up, tantrum-like behaviors but not self-injurious behaviors increased slightly. Improvement in the severity of problem behaviors was not uniform across sites, even after controlling for measured site differences. En ligne : http://dx.doi.org/10.1007/s10803-017-3366-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Behavioral Outcomes of Specialized Psychiatric Hospitalization in the Autism Inpatient Collection (AIC): A Multisite Comparison [texte imprimé] / Kahsi A. PEDERSEN, Auteur ; Susan L. SANTANGELO, Auteur ; Robin GABRIELS, Auteur ; Giulia RIGHI, Auteur ; Michael ERARD, Auteur ; Matthew SIEGEL, Auteur . - p.3658-3667. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3658-3667 Mots-clés : Autism inpatient collection (AIC)  Autism spectrum disorder (ASD)  Crisis  Externalizing problem behaviors  Psychiatric inpatients  Self-injurious behavior  Tantrum-like behavior Index. décimale : PER Périodiques Résumé : Psychiatric hospitalization of children with autism spectrum disorder (ASD) is relatively common and occurs at a higher rate than in non-ASD youth. This study compared changes in the severity of serious problem behaviors in 350 youth with ASD enrolled in the autism inpatient collection during and after hospitalization in six specialized child psychiatry units. There was a significant reduction in serious problem behaviors from admission (aberrant behavior checklist-irritability subscale M = 29.7, SD 9.6) to discharge (M = 15.0, SD 10.3) and 2-month follow-up (M = 19.3, SD 10.3). Between discharge and 2-month follow-up, tantrum-like behaviors but not self-injurious behaviors increased slightly. Improvement in the severity of problem behaviors was not uniform across sites, even after controlling for measured site differences. En ligne : http://dx.doi.org/10.1007/s10803-017-3366-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Characterization of Medication Use in a Multicenter Sample of Pediatric Inpatients with Autism Spectrum Disorder / Logan K. WINK in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3711-3719 Titre : Characterization of Medication Use in a Multicenter Sample of Pediatric Inpatients with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Logan K. WINK, Auteur ; Ernest V. PEDAPATI, Auteur ; Ryan ADAMS, Auteur ; Craig ERICKSON, Auteur ; Kahsi A. PEDERSEN, Auteur ; Eric M. MORROW, Auteur ; Desmond KAPLAN, Auteur ; Matthew SIEGEL, Auteur Article en page(s) : p.3711-3719 Langues : Anglais (eng) Mots-clés : Antipsychotics  Autism  Autism Spectrum Disorder  Medication  Psychiatric hospitalization Index. décimale : PER Périodiques Résumé : Nearly 11% of youth with Autism Spectrum Disorder (ASD) undergo psychiatric hospitalization, and 65% are treated with psychotropic medication. Here we characterize psychotropic medication usage in subjects enrolled in the Autism Inpatient Collection. Participant psychotropic medication usage rates topped 90% at admission and discharge, though there was a decline at 2-month follow-up. Antipsychotics, ADHD medications, and sleep aids were the most commonly reported classes of medications. The impact of age, gender, and non-verbal IQ on medication usage rates was minimal, though age and IQ may play a role in prescribing practices. Future work is indicated to explore medication usage trends, the impact of clinical factors on medication use rates, and the safety of psychotropic medications in youth with ASD. En ligne : http://dx.doi.org/10.1007/s10803-017-3153-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Characterization of Medication Use in a Multicenter Sample of Pediatric Inpatients with Autism Spectrum Disorder [texte imprimé] / Logan K. WINK, Auteur ; Ernest V. PEDAPATI, Auteur ; Ryan ADAMS, Auteur ; Craig ERICKSON, Auteur ; Kahsi A. PEDERSEN, Auteur ; Eric M. MORROW, Auteur ; Desmond KAPLAN, Auteur ; Matthew SIEGEL, Auteur . - p.3711-3719. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3711-3719 Mots-clés : Antipsychotics  Autism  Autism Spectrum Disorder  Medication  Psychiatric hospitalization Index. décimale : PER Périodiques Résumé : Nearly 11% of youth with Autism Spectrum Disorder (ASD) undergo psychiatric hospitalization, and 65% are treated with psychotropic medication. Here we characterize psychotropic medication usage in subjects enrolled in the Autism Inpatient Collection. Participant psychotropic medication usage rates topped 90% at admission and discharge, though there was a decline at 2-month follow-up. Antipsychotics, ADHD medications, and sleep aids were the most commonly reported classes of medications. The impact of age, gender, and non-verbal IQ on medication usage rates was minimal, though age and IQ may play a role in prescribing practices. Future work is indicated to explore medication usage trends, the impact of clinical factors on medication use rates, and the safety of psychotropic medications in youth with ASD. En ligne : http://dx.doi.org/10.1007/s10803-017-3153-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

A Comparative Study of Suicidality and Its Association with Emotion Regulation Impairment in Large ASD and US Census-Matched Samples / Caitlin M. CONNER in Journal of Autism and Developmental Disorders, 50-10 (October 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3545-3560 Titre : A Comparative Study of Suicidality and Its Association with Emotion Regulation Impairment in Large ASD and US Census-Matched Samples Type de document : texte imprimé Auteurs : Caitlin M. CONNER, Auteur ; Josh GOLT, Auteur ; Giulia RIGHI, Auteur ; Rebecca SHAFFER, Auteur ; Matthew SIEGEL, Auteur ; Carla A. MAZEFSKY, Auteur Article en page(s) : p.3545-3560 Langues : Anglais (eng) Mots-clés : Asd  Autism  Dysphoria  Emotion regulation  Reactivity  Suicidality Index. décimale : PER Périodiques Résumé : Evidence suggests increased rates of suicidality in autism spectrum disorder (ASD), but the research has rarely used comparison samples and the role of emotion dysregulation has not been considered. We compared the prevalence of parent-reported suicidality ideation and considered the role of emotion dysregulation in 330 psychiatric inpatient youth with ASD, 1169 community youth with ASD surveyed online, and 1000 youth representative of the US census. The prevalence of suicidal ideation was three and five times higher in the community and inpatient ASD samples, respectively, compared to the general US sample. In the ASD groups, greater emotion dysregulation was associated with suicidal ideation. Implications include consideration of emotion regulation as a potential mechanism and treatment target for suicidality in ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04370-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] A Comparative Study of Suicidality and Its Association with Emotion Regulation Impairment in Large ASD and US Census-Matched Samples [texte imprimé] / Caitlin M. CONNER, Auteur ; Josh GOLT, Auteur ; Giulia RIGHI, Auteur ; Rebecca SHAFFER, Auteur ; Matthew SIEGEL, Auteur ; Carla A. MAZEFSKY, Auteur . - p.3545-3560. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3545-3560 Mots-clés : Asd  Autism  Dysphoria  Emotion regulation  Reactivity  Suicidality Index. décimale : PER Périodiques Résumé : Evidence suggests increased rates of suicidality in autism spectrum disorder (ASD), but the research has rarely used comparison samples and the role of emotion dysregulation has not been considered. We compared the prevalence of parent-reported suicidality ideation and considered the role of emotion dysregulation in 330 psychiatric inpatient youth with ASD, 1169 community youth with ASD surveyed online, and 1000 youth representative of the US census. The prevalence of suicidal ideation was three and five times higher in the community and inpatient ASD samples, respectively, compared to the general US sample. In the ASD groups, greater emotion dysregulation was associated with suicidal ideation. Implications include consideration of emotion regulation as a potential mechanism and treatment target for suicidality in ASD. En ligne : http://dx.doi.org/10.1007/s10803-020-04370-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder / Carla A. MAZEFSKY in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3736-3746 Titre : Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Carla A. MAZEFSKY, Auteur ; Taylor N. DAY, Auteur ; Matthew SIEGEL, Auteur ; Susan W. WHITE, Auteur ; Lan YU, Auteur ; Paul A. PILKONIS, Auteur Article en page(s) : p.3736-3746 Langues : Anglais (eng) Mots-clés : Autism Inpatient Collection  Autism spectrum disorder (ASD)  Emotion regulation  Patient-Reported Outcomes Measurement Information System (PROMIS(R))  Psychiatric inpatients  Questionnaire development Index. décimale : PER Périodiques Résumé : The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability. En ligne : http://dx.doi.org/10.1007/s10803-016-2907-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Development of the Emotion Dysregulation Inventory: A PROMIS(R)ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder [texte imprimé] / Carla A. MAZEFSKY, Auteur ; Taylor N. DAY, Auteur ; Matthew SIEGEL, Auteur ; Susan W. WHITE, Auteur ; Lan YU, Auteur ; Paul A. PILKONIS, Auteur . - p.3736-3746. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3736-3746 Mots-clés : Autism Inpatient Collection  Autism spectrum disorder (ASD)  Emotion regulation  Patient-Reported Outcomes Measurement Information System (PROMIS(R))  Psychiatric inpatients  Questionnaire development Index. décimale : PER Périodiques Résumé : The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability. En ligne : http://dx.doi.org/10.1007/s10803-016-2907-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Does an Autism Spectrum Disorder Care Pathway Improve Care for Children and Adolescents with ASD in Inpatient Psychiatric Units? / Sarah KURIAKOSE in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

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Emotion Dysregulation is Substantially Elevated in Autism Compared to the General Population: Impact on Psychiatric Services / Caitlin M. CONNER in Autism Research, 14-1 (January 2021)  

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From Alert Child to Sleepy Adolescent: Age Trends in Chronotype, Social Jetlag, and Sleep Problems in Youth with Autism / Briana J. TAYLOR in Journal of Autism and Developmental Disorders, 54-12 (December 2024)  

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Inpatient Psychiatric Treatment of Serious Behavioral Problems in Children with Autism Spectrum Disorder (ASD): Specialized Versus General Inpatient Units / Briana J. TAYLOR in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

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Insomnia subtypes and clinical impairment in hospitalized children with autism spectrum disorder / Briana J. TAYLOR in Autism, 25-3 (April 2021)  

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Mapping the time course of overt emotion dysregulation, self-injurious behavior, and aggression in psychiatrically hospitalized autistic youth: A naturalistic study / Jessie B. NORTHRUP in Autism Research, 15-10 (October 2022)  

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Observed emotional reactivity in response to frustration tasks in psychiatrically hospitalized youth with autism spectrum disorder / Jessie B. NORTHRUP in Autism, 24-4 (May 2020)  

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Predicting aggression to others in youth with autism using a wearable biosensor / Matthew GOODWIN in Autism Research, 12-8 (August 2019)  

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Predictors of Inpatient Psychiatric Hospitalization for Children and Adolescents with Autism Spectrum Disorder / Giulia RIGHI in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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Problem Behaviors in Autism Spectrum Disorder: Association with Verbal Ability and Adapting/Coping Skills / Diane L. WILLIAMS in Journal of Autism and Developmental Disorders, 48-11 (November 2018)  

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