Ability and Disability in Autism Spectrum Disorder: A Systematic Literature Review Employing the International Classification of Functioning, Disability and Health-Children and Youth Version / Elles DE SCHIPPER in Autism Research, 8-6 (December 2015)  

Public ISBD [article]  inAutism Research > 8-6 (December 2015) . - p.782-794 Titre : Ability and Disability in Autism Spectrum Disorder: A Systematic Literature Review Employing the International Classification of Functioning, Disability and Health-Children and Youth Version Type de document : Texte imprimé et/ou numérique Auteurs : Elles DE SCHIPPER, Auteur ; Aiko LUNDEQUIST, Auteur ; David COGHILL, Auteur ; Petrus J. DE VRIES, Auteur ; Mats GRANLUND, Auteur ; Martin HOLTMANN, Auteur ; Ulf JONSSON, Auteur ; Sunil KARANDE, Auteur ; John Elder ROBISON, Auteur ; Cory SHULMAN, Auteur ; Nidhi SINGHAL, Auteur ; Bruce TONGE, Auteur ; Virginia C.N. WONG, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.782-794 Langues : Anglais (eng) Mots-clés : neurodevelopmental disorder  assessment  child psychiatry  diagnostics  International Classification of Diseases  Diagnostic and Statistical Manual of Mental Disorders  autism Index. décimale : PER Périodiques Résumé : Objective: This study is the first in a series of four empirical investigations to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Autism Spectrum Disorder (ASD). The objective was to use a systematic review approach to identify, number, and link functional ability and disability concepts used in the scientific ASD literature to the nomenclature of the ICF-CY (Children and Youth version of the ICF, covering the life span). Methods: Systematic searches on outcome studies of ASD were carried out in Medline/PubMed, PsycINFO, ERIC and Cinahl, and relevant functional ability and disability concepts extracted from the included studies. These concepts were then linked to the ICF-CY by two independent researchers using a standardized linking procedure. New concepts were extracted from the studies until saturation of identified ICF-CY categories was reached. Results: Seventy-one studies were included in the final analysis and 2475 meaningful concepts contained in these studies were linked to 146 ICF-CY categories. Of these, 99 categories were considered most relevant to ASD (i.e., identified in at least 5% of the studies), of which 63 were related to Activities and Participation, 28 were related to Body functions, and 8 were related to Environmental factors. The five most frequently identified categories were basic interpersonal interactions (51%), emotional functions (49%), complex interpersonal interactions (48%), attention functions (44%), and mental functions of language (44%). Conclusion: The broad variety of ICF-CY categories identified in this study reflects the heterogeneity of functional differences found in ASD—both with respect to disability and exceptionality—and underlines the potential value of the ICF-CY as a framework to capture an individual's functioning in all dimensions of life. The current results in combination with three additional preparatory studies (expert survey, focus groups, and clinical study) will provide the scientific basis for defining the ICF Core Sets for ASD for multipurpose use in basic and applied research and every day clinical practice of ASD. Autism Res 2015, 8: 782–794. © 2015 The Authors Autism Research published by Wiley Periodicals, Inc. on behalf of International Society for Autism Research En ligne : http://dx.doi.org/10.1002/aur.1485 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278 [article] Ability and Disability in Autism Spectrum Disorder: A Systematic Literature Review Employing the International Classification of Functioning, Disability and Health-Children and Youth Version [Texte imprimé et/ou numérique] / Elles DE SCHIPPER, Auteur ; Aiko LUNDEQUIST, Auteur ; David COGHILL, Auteur ; Petrus J. DE VRIES, Auteur ; Mats GRANLUND, Auteur ; Martin HOLTMANN, Auteur ; Ulf JONSSON, Auteur ; Sunil KARANDE, Auteur ; John Elder ROBISON, Auteur ; Cory SHULMAN, Auteur ; Nidhi SINGHAL, Auteur ; Bruce TONGE, Auteur ; Virginia C.N. WONG, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Sven BÖLTE, Auteur . - p.782-794. Langues : Anglais (eng) in Autism Research > 8-6 (December 2015) . - p.782-794 Mots-clés : neurodevelopmental disorder  assessment  child psychiatry  diagnostics  International Classification of Diseases  Diagnostic and Statistical Manual of Mental Disorders  autism Index. décimale : PER Périodiques Résumé : Objective: This study is the first in a series of four empirical investigations to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Autism Spectrum Disorder (ASD). The objective was to use a systematic review approach to identify, number, and link functional ability and disability concepts used in the scientific ASD literature to the nomenclature of the ICF-CY (Children and Youth version of the ICF, covering the life span). Methods: Systematic searches on outcome studies of ASD were carried out in Medline/PubMed, PsycINFO, ERIC and Cinahl, and relevant functional ability and disability concepts extracted from the included studies. These concepts were then linked to the ICF-CY by two independent researchers using a standardized linking procedure. New concepts were extracted from the studies until saturation of identified ICF-CY categories was reached. Results: Seventy-one studies were included in the final analysis and 2475 meaningful concepts contained in these studies were linked to 146 ICF-CY categories. Of these, 99 categories were considered most relevant to ASD (i.e., identified in at least 5% of the studies), of which 63 were related to Activities and Participation, 28 were related to Body functions, and 8 were related to Environmental factors. The five most frequently identified categories were basic interpersonal interactions (51%), emotional functions (49%), complex interpersonal interactions (48%), attention functions (44%), and mental functions of language (44%). Conclusion: The broad variety of ICF-CY categories identified in this study reflects the heterogeneity of functional differences found in ASD—both with respect to disability and exceptionality—and underlines the potential value of the ICF-CY as a framework to capture an individual's functioning in all dimensions of life. The current results in combination with three additional preparatory studies (expert survey, focus groups, and clinical study) will provide the scientific basis for defining the ICF Core Sets for ASD for multipurpose use in basic and applied research and every day clinical practice of ASD. Autism Res 2015, 8: 782–794. © 2015 The Authors Autism Research published by Wiley Periodicals, Inc. on behalf of International Society for Autism Research En ligne : http://dx.doi.org/10.1002/aur.1485 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278

Classification of Functioning and Impairment: The Development of ICF Core Sets for Autism Spectrum Disorder / Sven BÖLTE in Autism Research, 7-1 (February 2014)  

Public ISBD [article]  inAutism Research > 7-1 (February 2014) . - p.167-172 Titre : Classification of Functioning and Impairment: The Development of ICF Core Sets for Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sven BÖLTE, Auteur ; Elles DE SCHIPPER, Auteur ; John Elder ROBISON, Auteur ; Virginia C.N. WONG, Auteur ; Melissa SELB, Auteur ; Nidhi SINGHAL, Auteur ; Petrus J. DE VRIES, Auteur ; Lonnie ZWAIGENBAUM, Auteur Article en page(s) : p.167-172 Langues : Anglais (eng) Mots-clés : neurodevelopmental disorders  autistic disorder  assessment  children and youth  psychiatry  mental health  health care  ICF  ICF Core Set Index. décimale : PER Périodiques Résumé : Given the variability seen in Autism Spectrum Disorder (ASD), accurate quantification of functioning is vital to studying outcome and quality of life in affected individuals. The International Classification of Functioning, Disability and Health (ICF) provides a comprehensive, universally accepted framework for the description of health-related functioning. ICF Core Sets are shortlists of ICF categories that are selected to capture those aspects of functioning that are most relevant when describing a person with a specific condition. In this paper, the authors preview the process for developing ICF Core Sets for ASD, a collaboration with the World Health Organization and the ICF Research Branch. The ICF Children and Youth version (ICF-CY) was derived from the ICF and designed to capture the specific situation of the developing child. As ASD affects individuals throughout the life span, and the ICF-CY includes all ICF categories, the ICF-CY will be used in this project (“ICF(-CY)” from now on). The ICF(-CY) categories to be included in the ICF Core Sets for ASD will be determined at an ICF Core Set Consensus Conference, where evidence from four preparatory studies (a systematic review, an expert survey, a patient and caregiver qualitative study, and a clinical cross-sectional study) will be integrated. Comprehensive and Brief ICF Core Sets for ASD will be developed with the goal of providing useful standards for research and clinical practice and generating a common language for functioning and impairment in ASD in different areas of life and across the life span. En ligne : http://dx.doi.org/10.1002/aur.1335 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=227 [article] Classification of Functioning and Impairment: The Development of ICF Core Sets for Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Sven BÖLTE, Auteur ; Elles DE SCHIPPER, Auteur ; John Elder ROBISON, Auteur ; Virginia C.N. WONG, Auteur ; Melissa SELB, Auteur ; Nidhi SINGHAL, Auteur ; Petrus J. DE VRIES, Auteur ; Lonnie ZWAIGENBAUM, Auteur . - p.167-172. Langues : Anglais (eng) in Autism Research > 7-1 (February 2014) . - p.167-172 Mots-clés : neurodevelopmental disorders  autistic disorder  assessment  children and youth  psychiatry  mental health  health care  ICF  ICF Core Set Index. décimale : PER Périodiques Résumé : Given the variability seen in Autism Spectrum Disorder (ASD), accurate quantification of functioning is vital to studying outcome and quality of life in affected individuals. The International Classification of Functioning, Disability and Health (ICF) provides a comprehensive, universally accepted framework for the description of health-related functioning. ICF Core Sets are shortlists of ICF categories that are selected to capture those aspects of functioning that are most relevant when describing a person with a specific condition. In this paper, the authors preview the process for developing ICF Core Sets for ASD, a collaboration with the World Health Organization and the ICF Research Branch. The ICF Children and Youth version (ICF-CY) was derived from the ICF and designed to capture the specific situation of the developing child. As ASD affects individuals throughout the life span, and the ICF-CY includes all ICF categories, the ICF-CY will be used in this project (“ICF(-CY)” from now on). The ICF(-CY) categories to be included in the ICF Core Sets for ASD will be determined at an ICF Core Set Consensus Conference, where evidence from four preparatory studies (a systematic review, an expert survey, a patient and caregiver qualitative study, and a clinical cross-sectional study) will be integrated. Comprehensive and Brief ICF Core Sets for ASD will be developed with the goal of providing useful standards for research and clinical practice and generating a common language for functioning and impairment in ASD in different areas of life and across the life span. En ligne : http://dx.doi.org/10.1002/aur.1335 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=227

Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries / Tamara C. DALEY in Journal of Autism and Developmental Disorders, 43-9 (September 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-9 (September 2013) . - p.2002-2014 Titre : Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries Type de document : Texte imprimé et/ou numérique Auteurs : Tamara C. DALEY, Auteur ; Nidhi SINGHAL, Auteur ; Vibha KRISHNAMURTHY, Auteur Article en page(s) : p.2002-2014 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Ethics  Cross-cultural  ELSI  LMIC  LAMI  Global  India Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is being identified in an ever-increasing number of countries, including many that are low or middle income (LMIC). Research conducted in these countries requires awareness of unique ethical issues. Drawing on the experience of two organizations that have been involved in conducting and collaborating in ASD research in India, we describe specific considerations in conducting epidemiological, genetic and treatment studies as well as general principles from the field of multinational clinical research as they apply to the conduct of ASD research. We argue that greater attention to ethical concerns will result in quality studies conducted in LMICs that are also of greatest relevance for families and children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1750-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212 [article] Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries [Texte imprimé et/ou numérique] / Tamara C. DALEY, Auteur ; Nidhi SINGHAL, Auteur ; Vibha KRISHNAMURTHY, Auteur . - p.2002-2014. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-9 (September 2013) . - p.2002-2014 Mots-clés : Autism spectrum disorder  Ethics  Cross-cultural  ELSI  LMIC  LAMI  Global  India Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) is being identified in an ever-increasing number of countries, including many that are low or middle income (LMIC). Research conducted in these countries requires awareness of unique ethical issues. Drawing on the experience of two organizations that have been involved in conducting and collaborating in ASD research in India, we describe specific considerations in conducting epidemiological, genetic and treatment studies as well as general principles from the field of multinational clinical research as they apply to the conduct of ASD research. We argue that greater attention to ethical concerns will result in quality studies conducted in LMICs that are also of greatest relevance for families and children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1750-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212

Translation and Usability of Autism Screening and Diagnostic Tools for Autism Spectrum Conditions in India / Alokananda RUDRA in Autism Research, 7-5 (October 2014)  

Public ISBD [article]  inAutism Research > 7-5 (October 2014) . - p.598-607 Titre : Translation and Usability of Autism Screening and Diagnostic Tools for Autism Spectrum Conditions in India Type de document : Texte imprimé et/ou numérique Auteurs : Alokananda RUDRA, Auteur ; Saoni BANERJEE, Auteur ; Nidhi SINGHAL, Auteur ; Merry BARUA, Auteur ; Shaneel MUKERJI, Auteur ; Bhismadev CHAKRABARTI, Auteur Article en page(s) : p.598-607 Langues : Anglais (eng) Mots-clés : screening  global mental health  translation  cultural Index. décimale : PER Périodiques Résumé : There is a critical need for screening and diagnostic tools (SDT) for autism spectrum conditions (ASC) in regional languages in South Asia. To address this, we translated four widely used SDT (Social Communication Disorder Checklist, Autism Spectrum Quotient, Social Communication Questionnaire, and Autism Diagnostic Observation Schedule) into Bengali and Hindi, two main regional languages (??360 million speakers), and tested their usability in children with and without ASC. We found a significant difference in scores between children with ASC (n?=?45 in Bengali, n?=?40 in Hindi) and typically developing children (n?=?43 in Bengali, n?=?42 in Hindi) on all SDTs. These results demonstrate that these SDTs are usable in South Asia, and constitute an important resource for epidemiology research and clinical diagnosis in the region. Autism Res 2014, 7: 598–607. © 2014 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 [article] Translation and Usability of Autism Screening and Diagnostic Tools for Autism Spectrum Conditions in India [Texte imprimé et/ou numérique] / Alokananda RUDRA, Auteur ; Saoni BANERJEE, Auteur ; Nidhi SINGHAL, Auteur ; Merry BARUA, Auteur ; Shaneel MUKERJI, Auteur ; Bhismadev CHAKRABARTI, Auteur . - p.598-607. Langues : Anglais (eng) in Autism Research > 7-5 (October 2014) . - p.598-607 Mots-clés : screening  global mental health  translation  cultural Index. décimale : PER Périodiques Résumé : There is a critical need for screening and diagnostic tools (SDT) for autism spectrum conditions (ASC) in regional languages in South Asia. To address this, we translated four widely used SDT (Social Communication Disorder Checklist, Autism Spectrum Quotient, Social Communication Questionnaire, and Autism Diagnostic Observation Schedule) into Bengali and Hindi, two main regional languages (??360 million speakers), and tested their usability in children with and without ASC. We found a significant difference in scores between children with ASC (n?=?45 in Bengali, n?=?40 in Hindi) and typically developing children (n?=?43 in Bengali, n?=?42 in Hindi) on all SDTs. These results demonstrate that these SDTs are usable in South Asia, and constitute an important resource for epidemiology research and clinical diagnosis in the region. Autism Res 2014, 7: 598–607. © 2014 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241

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