Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD / Caroline JOYCE in Journal of Autism and Developmental Disorders, 47-12 (December 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3789-3802 Titre : Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD Type de document : texte imprimé Auteurs : Caroline JOYCE, Auteur ; Emma HONEY, Auteur ; Susan R. LEEKAM, Auteur ; Sarah L. BARRETT, Auteur ; Jacqui RODGERS, Auteur Année de publication : 2017 Article en page(s) : p.3789-3802 Langues : Anglais (eng) Mots-clés : Asd  Anxiety  Intolerance of uncertainty  Restricted and repetitive behaviours  Self-report Index. décimale : PER Périodiques Résumé : In order to investigate the experience of anxiety and restricted and repetitive behaviours (RRB) in young people with ASD, 19 families with young people with ASD aged between 13 and 20 years completed questionnaire measures of RRB, anxiety, and intolerance of uncertainty. Ten young people also completed a novel semi-structured interview exploring an individualised example of an RRB. Findings demonstrated that young people with ASD can self-report and show insight in to their RRB, and replicated previous findings based on parent report showing a significant positive relationship between RRB and anxiety. This is the first evidence of young person self-report using both quantitative and qualitative data and indicates a range of reasons why young people may engage in RRB. En ligne : http://dx.doi.org/10.1007/s10803-017-3027-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 [article] Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD [texte imprimé] / Caroline JOYCE, Auteur ; Emma HONEY, Auteur ; Susan R. LEEKAM, Auteur ; Sarah L. BARRETT, Auteur ; Jacqui RODGERS, Auteur . - 2017 . - p.3789-3802. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3789-3802 Mots-clés : Asd  Anxiety  Intolerance of uncertainty  Restricted and repetitive behaviours  Self-report Index. décimale : PER Périodiques Résumé : In order to investigate the experience of anxiety and restricted and repetitive behaviours (RRB) in young people with ASD, 19 families with young people with ASD aged between 13 and 20 years completed questionnaire measures of RRB, anxiety, and intolerance of uncertainty. Ten young people also completed a novel semi-structured interview exploring an individualised example of an RRB. Findings demonstrated that young people with ASD can self-report and show insight in to their RRB, and replicated previous findings based on parent report showing a significant positive relationship between RRB and anxiety. This is the first evidence of young person self-report using both quantitative and qualitative data and indicates a range of reasons why young people may engage in RRB. En ligne : http://dx.doi.org/10.1007/s10803-017-3027-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325

Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults / R. HERREMA in Journal of Autism and Developmental Disorders, 47-11 (November 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3659-3668 Titre : Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults Type de document : texte imprimé Auteurs : R. HERREMA, Auteur ; Deborah GARLAND, Auteur ; Malcolm OSBORNE, Auteur ; Mark FREESTON, Auteur ; Emma HONEY, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.3659-3668 Langues : Anglais (eng) Mots-clés : Adults  Autism  Family members  Future  Support  Worry Index. décimale : PER Périodiques Résumé : Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future. En ligne : http://dx.doi.org/10.1007/s10803-017-3254-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325 [article] Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults [texte imprimé] / R. HERREMA, Auteur ; Deborah GARLAND, Auteur ; Malcolm OSBORNE, Auteur ; Mark FREESTON, Auteur ; Emma HONEY, Auteur ; Jacqui RODGERS, Auteur . - p.3659-3668. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-11 (November 2017) . - p.3659-3668 Mots-clés : Adults  Autism  Family members  Future  Support  Worry Index. décimale : PER Périodiques Résumé : Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future. En ligne : http://dx.doi.org/10.1007/s10803-017-3254-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=325

Development of the anxiety scale for children with autism spectrum disorder (ASC-ASD) / Jacqui RODGERS in Autism Research, 9-11 (November 2016)  

Public ISBD [article]  inAutism Research > 9-11 (November 2016) . - p.1205-1215 Titre : Development of the anxiety scale for children with autism spectrum disorder (ASC-ASD) Type de document : texte imprimé Auteurs : Jacqui RODGERS, Auteur ; Sarah WIGHAM, Auteur ; Helen MCCONACHIE, Auteur ; Mark FREESTON, Auteur ; Emma HONEY, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.1205-1215 Langues : Anglais (eng) Mots-clés : anxiety  measurement  child report  parent report  clinical psychology Index. décimale : PER Périodiques Résumé : Many children with autism spectrum disorder (ASD) experience high levels of anxiety. A widely used measure for typically developing children is the Revised Child Anxiety and Depression Scale (RCADS). However, such anxiety measures may require adaptation to accommodate characteristics of those with ASD. An adapted version of the RCADS was created based on empirical evidence of anxiety phenomenology in ASD, which included additional items related to sensory anxiety, intolerance of uncertainty, and phobias. Content validity was refined during focus groups with parents. Polychoric factor analysis was undertaken on data from 170 children with ASD, aged 8-16, and their parents. This process resulted in the creation of a new 24 item scale (self and parent report) each with four subscales: Performance Anxiety, Uncertainty, Anxious Arousal, and Separation Anxiety, with evidence of good reliability and validity. The freely available Anxiety Scale for Children - ASD, Parent and Child versions (ASC-ASD) has promising psychometric properties including good internal consistency, validity, and 1 month test–retest reliability. En ligne : http://dx.doi.org/10.1002/aur.1603 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297 [article] Development of the anxiety scale for children with autism spectrum disorder (ASC-ASD) [texte imprimé] / Jacqui RODGERS, Auteur ; Sarah WIGHAM, Auteur ; Helen MCCONACHIE, Auteur ; Mark FREESTON, Auteur ; Emma HONEY, Auteur ; Jeremy R. PARR, Auteur . - p.1205-1215. Langues : Anglais (eng) in Autism Research > 9-11 (November 2016) . - p.1205-1215 Mots-clés : anxiety  measurement  child report  parent report  clinical psychology Index. décimale : PER Périodiques Résumé : Many children with autism spectrum disorder (ASD) experience high levels of anxiety. A widely used measure for typically developing children is the Revised Child Anxiety and Depression Scale (RCADS). However, such anxiety measures may require adaptation to accommodate characteristics of those with ASD. An adapted version of the RCADS was created based on empirical evidence of anxiety phenomenology in ASD, which included additional items related to sensory anxiety, intolerance of uncertainty, and phobias. Content validity was refined during focus groups with parents. Polychoric factor analysis was undertaken on data from 170 children with ASD, aged 8-16, and their parents. This process resulted in the creation of a new 24 item scale (self and parent report) each with four subscales: Performance Anxiety, Uncertainty, Anxious Arousal, and Separation Anxiety, with evidence of good reliability and validity. The freely available Anxiety Scale for Children - ASD, Parent and Child versions (ASC-ASD) has promising psychometric properties including good internal consistency, validity, and 1 month test–retest reliability. En ligne : http://dx.doi.org/10.1002/aur.1603 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297

Group therapy for anxiety in children with autism spectrum disorder / Helen MCCONACHIE in Autism, 18-6 (August 2014)  

Public ISBD [article]  inAutism > 18-6 (August 2014) . - p.723-732 Titre : Group therapy for anxiety in children with autism spectrum disorder Type de document : texte imprimé Auteurs : Helen MCCONACHIE, Auteur ; Eleanor MCLAUGHLIN, Auteur ; Victoria GRAHAME, Auteur ; Helen TAYLOR, Auteur ; Emma HONEY, Auteur ; Laura TAVERNOR, Auteur ; Jacqui RODGERS, Auteur ; Mark FREESTON, Auteur ; Cahley HEMM, Auteur ; Nick STEEN, Auteur ; Ann LE COUTEUR, Auteur Article en page(s) : p.723-732 Langues : Anglais (eng) Mots-clés : anxiety  autism spectrum disorder  cognitive behaviour therapy  pilot randomised trial Index. décimale : PER Périodiques Résumé : Aim: To investigate the acceptability and feasibility of adapted group therapy for anxiety in children with autism spectrum disorder in a pilot randomised controlled trial.Method: A total of 32 children aged 9–13 years were randomised to immediate or delayed therapy using the ‘Exploring Feelings’ manual (Attwood, 2004). Child and parent groups were run in parallel, for seven weekly sessions, under the supervision of experienced psychologists. The primary blinded outcome measures addressed change in overall functioning and in severity of the primary anxiety diagnosis after 3 months.Results: Children met diagnostic criteria for 1–6 anxiety disorders (median 3). At end point, both parents and children in the immediate therapy group were more likely to report a reduction in anxiety symptoms. Fidelity of delivery of the group therapy was high, and attendance was 91%.Conclusions: This pilot trial established that children and families were willing to be recruited and randomised, the outcome measures were acceptable, the format and content of the groups were feasible within UK child and adolescent mental health services, the intervention was appreciated by families and attrition was very small. En ligne : http://dx.doi.org/10.1177/1362361313488839 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=237 [article] Group therapy for anxiety in children with autism spectrum disorder [texte imprimé] / Helen MCCONACHIE, Auteur ; Eleanor MCLAUGHLIN, Auteur ; Victoria GRAHAME, Auteur ; Helen TAYLOR, Auteur ; Emma HONEY, Auteur ; Laura TAVERNOR, Auteur ; Jacqui RODGERS, Auteur ; Mark FREESTON, Auteur ; Cahley HEMM, Auteur ; Nick STEEN, Auteur ; Ann LE COUTEUR, Auteur . - p.723-732. Langues : Anglais (eng) in Autism > 18-6 (August 2014) . - p.723-732 Mots-clés : anxiety  autism spectrum disorder  cognitive behaviour therapy  pilot randomised trial Index. décimale : PER Périodiques Résumé : Aim: To investigate the acceptability and feasibility of adapted group therapy for anxiety in children with autism spectrum disorder in a pilot randomised controlled trial.Method: A total of 32 children aged 9–13 years were randomised to immediate or delayed therapy using the ‘Exploring Feelings’ manual (Attwood, 2004). Child and parent groups were run in parallel, for seven weekly sessions, under the supervision of experienced psychologists. The primary blinded outcome measures addressed change in overall functioning and in severity of the primary anxiety diagnosis after 3 months.Results: Children met diagnostic criteria for 1–6 anxiety disorders (median 3). At end point, both parents and children in the immediate therapy group were more likely to report a reduction in anxiety symptoms. Fidelity of delivery of the group therapy was high, and attendance was 91%.Conclusions: This pilot trial established that children and families were willing to be recruited and randomised, the outcome measures were acceptable, the format and content of the groups were feasible within UK child and adolescent mental health services, the intervention was appreciated by families and attrition was very small. En ligne : http://dx.doi.org/10.1177/1362361313488839 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=237

Measurement of restricted and repetitive behaviour in children with autism spectrum disorder: Selecting a questionnaire or interview / Emma HONEY in Research in Autism Spectrum Disorders, 6-2 (April-June 2012)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 6-2 (April-June 2012) . - p.757-776 Titre : Measurement of restricted and repetitive behaviour in children with autism spectrum disorder: Selecting a questionnaire or interview Type de document : texte imprimé Auteurs : Emma HONEY, Auteur ; Jacqui RODGERS, Auteur ; Helen MCCONACHIE, Auteur Année de publication : 2012 Article en page(s) : p.757-776 Langues : Anglais (eng) Mots-clés : Repetitive behaviour  Children  Questionnaire  Interview  Validity  Reliability Index. décimale : PER Périodiques Résumé : Assessment of children's restricted and repetitive behaviours offers potential opportunities to improve early diagnosis of autism spectrum disorder (ASD) and timely access to interventions and support. To facilitate this requires understanding of the phenomenology of repetitive behaviours in ASD, including differentiating behaviours seen in ASD from other populations such as young typically developing and developmentally delayed children. A key factor in achieving understanding is valid and reliable measurement. This review considers the issues in conceptualisation of repetitive behaviours which should guide the choice of measurement tool, including definition of subtypes of repetitive behaviours, associations with age and ability, and categorisation of frequency and severity. The resulting conclusions about the requirements for measurement are applied within a systematic review of quantitative interview and questionnaire measures of repetitive behaviour used with children with ASD. The conclusions of the review lead to recommendations for existing and future research on restricted and repetitive behaviours in ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.10.011 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=150 [article] Measurement of restricted and repetitive behaviour in children with autism spectrum disorder: Selecting a questionnaire or interview [texte imprimé] / Emma HONEY, Auteur ; Jacqui RODGERS, Auteur ; Helen MCCONACHIE, Auteur . - 2012 . - p.757-776. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 6-2 (April-June 2012) . - p.757-776 Mots-clés : Repetitive behaviour  Children  Questionnaire  Interview  Validity  Reliability Index. décimale : PER Périodiques Résumé : Assessment of children's restricted and repetitive behaviours offers potential opportunities to improve early diagnosis of autism spectrum disorder (ASD) and timely access to interventions and support. To facilitate this requires understanding of the phenomenology of repetitive behaviours in ASD, including differentiating behaviours seen in ASD from other populations such as young typically developing and developmentally delayed children. A key factor in achieving understanding is valid and reliable measurement. This review considers the issues in conceptualisation of repetitive behaviours which should guide the choice of measurement tool, including definition of subtypes of repetitive behaviours, associations with age and ability, and categorisation of frequency and severity. The resulting conclusions about the requirements for measurement are applied within a systematic review of quantitative interview and questionnaire measures of repetitive behaviour used with children with ASD. The conclusions of the review lead to recommendations for existing and future research on restricted and repetitive behaviours in ASD. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.10.011 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=150

Mental Wellbeing of Family Members of Autistic Adults / R. HERREMA in Journal of Autism and Developmental Disorders, 47-11 (November 2017)  

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One-year Change in Repetitive Behaviours in Young Children with Communication Disorders Including Autism / Emma HONEY in Journal of Autism and Developmental Disorders, 38-8 (September 2008)  

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A Randomised Controlled Feasibility Trial of Immersive Virtual Reality Treatment with Cognitive Behaviour Therapy for Specific Phobias in Young People with Autism Spectrum Disorder / Morag MASKEY in Journal of Autism and Developmental Disorders, 49-5 (May 2019)  

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Repetitive Behaviour and Play in Typically Developing Children and Children with Autism Spectrum Disorders / Emma HONEY in Journal of Autism and Developmental Disorders, 37-6 (July 2007)  

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Sensory atypicalities in dyads of children with autism spectrum disorder (ASD) and their parents / Magdalena GLOD in Autism Research, 10-3 (March 2017)  

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Towards a Treatment for Intolerance of Uncertainty for Autistic Adults: A Single Case Experimental Design Study / Jacqui RODGERS in Journal of Autism and Developmental Disorders, 48-8 (August 2018)  

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Towards a Treatment for Intolerance of Uncertainty in Young People with Autism Spectrum Disorder: Development of the Coping with Uncertainty in Everyday Situations (CUES(c)) Programme / Jacqui RODGERS in Journal of Autism and Developmental Disorders, 47-12 (December 2017)  

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Understanding Repetitive Behaviours: A clinical and cost-effectiveness, multi-site randomised controlled trial of a group for parents and carers of young autistic children / Victoria GRAHAME in Autism, 29-8 (August 2025)  

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Validation of the repetitive behaviour questionnaire for use with children with autism spectrum disorder / Emma HONEY in Research in Autism Spectrum Disorders, 6-1 (January-March 2012)  

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