Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families / Jane GOODWIN in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.827-838 Titre : Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families Type de document : Texte imprimé et/ou numérique Auteurs : Jane GOODWIN, Auteur ; Priyanka Rob, Auteur ; Mark FREESTON, Auteur ; Deborah Garland, Auteur ; Victoria GRAHAME, Auteur ; Ashleigh Kernohan, Auteur ; Marie Labus, Auteur ; Malcolm Osborne, Auteur ; Jeremy R. PARR, Auteur ; Catharine Wright, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.827-838 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Child  Humans  Parents  Quality of Life  Uncertainty  anxiety  intolerance of uncertainty  potential conflicts of interest with respect to the research, authorship and/or  publication of this article: Professor J.R., Dr C.W. and Professor M.F. developed  the Coping with Uncertainty in Everyday Situations (CUES(©)) Programme. Data  presented in this article were collected as part of a CUES(©) feasibility and  acceptability study. Professor M.F. declares receiving royalties for books and  honoraria for training in related areas addressing anxiety in neurotypical  populations. Index. décimale : PER Périodiques Résumé : Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child's reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children's ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613211033757 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families [Texte imprimé et/ou numérique] / Jane GOODWIN, Auteur ; Priyanka Rob, Auteur ; Mark FREESTON, Auteur ; Deborah Garland, Auteur ; Victoria GRAHAME, Auteur ; Ashleigh Kernohan, Auteur ; Marie Labus, Auteur ; Malcolm Osborne, Auteur ; Jeremy R. PARR, Auteur ; Catharine Wright, Auteur ; Jacqui RODGERS, Auteur . - p.827-838. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.827-838 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Child  Humans  Parents  Quality of Life  Uncertainty  anxiety  intolerance of uncertainty  potential conflicts of interest with respect to the research, authorship and/or  publication of this article: Professor J.R., Dr C.W. and Professor M.F. developed  the Coping with Uncertainty in Everyday Situations (CUES(©)) Programme. Data  presented in this article were collected as part of a CUES(©) feasibility and  acceptability study. Professor M.F. declares receiving royalties for books and  honoraria for training in related areas addressing anxiety in neurotypical  populations. Index. décimale : PER Périodiques Résumé : Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child's reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children's ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613211033757 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Development of the anxiety scale for children with autism spectrum disorder (ASC-ASD) / Jacqui RODGERS in Autism Research, 9-11 (November 2016)  

Public ISBD [article]  inAutism Research > 9-11 (November 2016) . - p.1205-1215 Titre : Development of the anxiety scale for children with autism spectrum disorder (ASC-ASD) Type de document : Texte imprimé et/ou numérique Auteurs : Jacqui RODGERS, Auteur ; Sarah WIGHAM, Auteur ; Helen McCONACHIE, Auteur ; Mark FREESTON, Auteur ; Emma HONEY, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.1205-1215 Langues : Anglais (eng) Mots-clés : anxiety  measurement  child report  parent report  clinical psychology Index. décimale : PER Périodiques Résumé : Many children with autism spectrum disorder (ASD) experience high levels of anxiety. A widely used measure for typically developing children is the Revised Child Anxiety and Depression Scale (RCADS). However, such anxiety measures may require adaptation to accommodate characteristics of those with ASD. An adapted version of the RCADS was created based on empirical evidence of anxiety phenomenology in ASD, which included additional items related to sensory anxiety, intolerance of uncertainty, and phobias. Content validity was refined during focus groups with parents. Polychoric factor analysis was undertaken on data from 170 children with ASD, aged 8-16, and their parents. This process resulted in the creation of a new 24 item scale (self and parent report) each with four subscales: Performance Anxiety, Uncertainty, Anxious Arousal, and Separation Anxiety, with evidence of good reliability and validity. The freely available Anxiety Scale for Children - ASD, Parent and Child versions (ASC-ASD) has promising psychometric properties including good internal consistency, validity, and 1 month test–retest reliability. En ligne : http://dx.doi.org/10.1002/aur.1603 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297 [article] Development of the anxiety scale for children with autism spectrum disorder (ASC-ASD) [Texte imprimé et/ou numérique] / Jacqui RODGERS, Auteur ; Sarah WIGHAM, Auteur ; Helen McCONACHIE, Auteur ; Mark FREESTON, Auteur ; Emma HONEY, Auteur ; Jeremy R. PARR, Auteur . - p.1205-1215. Langues : Anglais (eng) in Autism Research > 9-11 (November 2016) . - p.1205-1215 Mots-clés : anxiety  measurement  child report  parent report  clinical psychology Index. décimale : PER Périodiques Résumé : Many children with autism spectrum disorder (ASD) experience high levels of anxiety. A widely used measure for typically developing children is the Revised Child Anxiety and Depression Scale (RCADS). However, such anxiety measures may require adaptation to accommodate characteristics of those with ASD. An adapted version of the RCADS was created based on empirical evidence of anxiety phenomenology in ASD, which included additional items related to sensory anxiety, intolerance of uncertainty, and phobias. Content validity was refined during focus groups with parents. Polychoric factor analysis was undertaken on data from 170 children with ASD, aged 8-16, and their parents. This process resulted in the creation of a new 24 item scale (self and parent report) each with four subscales: Performance Anxiety, Uncertainty, Anxious Arousal, and Separation Anxiety, with evidence of good reliability and validity. The freely available Anxiety Scale for Children - ASD, Parent and Child versions (ASC-ASD) has promising psychometric properties including good internal consistency, validity, and 1 month test–retest reliability. En ligne : http://dx.doi.org/10.1002/aur.1603 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297

Group therapy for anxiety in children with autism spectrum disorder / Helen McCONACHIE in Autism, 18-6 (August 2014)  

Public ISBD [article]  inAutism > 18-6 (August 2014) . - p.723-732 Titre : Group therapy for anxiety in children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Helen McCONACHIE, Auteur ; Eleanor MCLAUGHLIN, Auteur ; Victoria GRAHAME, Auteur ; Helen TAYLOR, Auteur ; Emma HONEY, Auteur ; Laura TAVERNOR, Auteur ; Jacqui RODGERS, Auteur ; Mark FREESTON, Auteur ; Cahley HEMM, Auteur ; Nick STEEN, Auteur ; Ann LE COUTEUR, Auteur Article en page(s) : p.723-732 Langues : Anglais (eng) Mots-clés : anxiety  autism spectrum disorder  cognitive behaviour therapy  pilot randomised trial Index. décimale : PER Périodiques Résumé : Aim: To investigate the acceptability and feasibility of adapted group therapy for anxiety in children with autism spectrum disorder in a pilot randomised controlled trial.Method: A total of 32 children aged 9–13 years were randomised to immediate or delayed therapy using the ‘Exploring Feelings’ manual (Attwood, 2004). Child and parent groups were run in parallel, for seven weekly sessions, under the supervision of experienced psychologists. The primary blinded outcome measures addressed change in overall functioning and in severity of the primary anxiety diagnosis after 3 months.Results: Children met diagnostic criteria for 1–6 anxiety disorders (median 3). At end point, both parents and children in the immediate therapy group were more likely to report a reduction in anxiety symptoms. Fidelity of delivery of the group therapy was high, and attendance was 91%.Conclusions: This pilot trial established that children and families were willing to be recruited and randomised, the outcome measures were acceptable, the format and content of the groups were feasible within UK child and adolescent mental health services, the intervention was appreciated by families and attrition was very small. En ligne : http://dx.doi.org/10.1177/1362361313488839 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=237 [article] Group therapy for anxiety in children with autism spectrum disorder [Texte imprimé et/ou numérique] / Helen McCONACHIE, Auteur ; Eleanor MCLAUGHLIN, Auteur ; Victoria GRAHAME, Auteur ; Helen TAYLOR, Auteur ; Emma HONEY, Auteur ; Laura TAVERNOR, Auteur ; Jacqui RODGERS, Auteur ; Mark FREESTON, Auteur ; Cahley HEMM, Auteur ; Nick STEEN, Auteur ; Ann LE COUTEUR, Auteur . - p.723-732. Langues : Anglais (eng) in Autism > 18-6 (August 2014) . - p.723-732 Mots-clés : anxiety  autism spectrum disorder  cognitive behaviour therapy  pilot randomised trial Index. décimale : PER Périodiques Résumé : Aim: To investigate the acceptability and feasibility of adapted group therapy for anxiety in children with autism spectrum disorder in a pilot randomised controlled trial.Method: A total of 32 children aged 9–13 years were randomised to immediate or delayed therapy using the ‘Exploring Feelings’ manual (Attwood, 2004). Child and parent groups were run in parallel, for seven weekly sessions, under the supervision of experienced psychologists. The primary blinded outcome measures addressed change in overall functioning and in severity of the primary anxiety diagnosis after 3 months.Results: Children met diagnostic criteria for 1–6 anxiety disorders (median 3). At end point, both parents and children in the immediate therapy group were more likely to report a reduction in anxiety symptoms. Fidelity of delivery of the group therapy was high, and attendance was 91%.Conclusions: This pilot trial established that children and families were willing to be recruited and randomised, the outcome measures were acceptable, the format and content of the groups were feasible within UK child and adolescent mental health services, the intervention was appreciated by families and attrition was very small. En ligne : http://dx.doi.org/10.1177/1362361313488839 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=237

Intolerance of Uncertainty as a Framework for Understanding Anxiety in Children and Adolescents with Autism Spectrum Disorders / Christina BOULTER in Journal of Autism and Developmental Disorders, 44-6 (June 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1391-1402 Titre : Intolerance of Uncertainty as a Framework for Understanding Anxiety in Children and Adolescents with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : Christina BOULTER, Auteur ; Mark FREESTON, Auteur ; Mikle SOUTH, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.1391-1402 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorders  Anxiety  Intolerance of Uncertainty  Children  Adolescents Index. décimale : PER Périodiques Résumé : Anxiety is a problem for many children diagnosed with Autism Spectrum Disorders (ASDs). There is a paucity of models of the cognitive processes underlying this. Intolerance of Uncertainty (IU) has utility in explaining anxiety in neurotypical populations but has only recently received attention in ASD. We modelled the relationship between anxiety and IU in ASD and a typically developing comparison group, using parent and child self-report measures. Results confirmed significant relationships between IU and anxiety in children with ASD which appears to function similarly in children with and without ASD. Results were consistent with a causal model suggesting that IU mediates the relationship between ASD and anxiety. The findings confirm IU as a relevant construct in ASD. En ligne : http://dx.doi.org/10.1007/s10803-013-2001-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 [article] Intolerance of Uncertainty as a Framework for Understanding Anxiety in Children and Adolescents with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / Christina BOULTER, Auteur ; Mark FREESTON, Auteur ; Mikle SOUTH, Auteur ; Jacqui RODGERS, Auteur . - p.1391-1402. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-6 (June 2014) . - p.1391-1402 Mots-clés : Autism Spectrum Disorders  Anxiety  Intolerance of Uncertainty  Children  Adolescents Index. décimale : PER Périodiques Résumé : Anxiety is a problem for many children diagnosed with Autism Spectrum Disorders (ASDs). There is a paucity of models of the cognitive processes underlying this. Intolerance of Uncertainty (IU) has utility in explaining anxiety in neurotypical populations but has only recently received attention in ASD. We modelled the relationship between anxiety and IU in ASD and a typically developing comparison group, using parent and child self-report measures. Results confirmed significant relationships between IU and anxiety in children with ASD which appears to function similarly in children with and without ASD. Results were consistent with a causal model suggesting that IU mediates the relationship between ASD and anxiety. The findings confirm IU as a relevant construct in ASD. En ligne : http://dx.doi.org/10.1007/s10803-013-2001-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233

A potentiated startle study of uncertainty and contextual anxiety in adolescents diagnosed with autism spectrum disorder / Paul D. CHAMBERLAIN in Molecular Autism, (September 2013)  

Public ISBD [article]  inMolecular Autism > (September 2013) Titre : A potentiated startle study of uncertainty and contextual anxiety in adolescents diagnosed with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Paul D. CHAMBERLAIN, Auteur ; Jacqui RODGERS, Auteur ; Michael J. CROWLEY, Auteur ; Sarah WHITE, Auteur ; Mark FREESTON, Auteur ; Mikle SOUTH, Auteur Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Beyond the core symptoms of autism spectrum disorder (ASD), associated symptoms of anxiety can cause substantial impairment for individuals affected by ASD and those who care for them. We utilized a potentiated startle paradigm with a puff of air to the neck as the unconditioned stimulus in order to investigate differences between response to cued fear and contextual anxiety among cognitively able adolescents diagnosed with ASD and an age- and IQ-matched typically developing group. In a threat-modulated startle paradigm, response patterns to neutral, predictable, and unpredictable conditions were comparable across typically developing and ASD youth in terms of startle response magnitude and latency. However, the ASD group showed significantly greater absolute startle responsivity at baseline and throughout the experiment, suggesting possibly enhanced general sensitivity to threatening contexts. The ASD group, but not the control group, demonstrated moderate to strong negative correlations between psychophysiological response to unpredictable threats (uncertainty) and questionnaire measures of generalized anxiety, intolerance of uncertainty, and repetitive behavior. Our data suggest enhanced general reactivity among the ASD group, possibly reflecting greater sensitivity to the threatening context of the startle paradigm. Associations with the response to uncertainty may help explain shared neurobehavioral mechanisms in ASD and anxiety. This task can provide useful targets for future neuroimaging and genetics studies as well as specific avenues for intervention. We emphasize the importance of further basic and clinical research into links among these important constructs. En ligne : http://dx.doi.org/10.1186/2040-2392-4-31 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=227 [article] A potentiated startle study of uncertainty and contextual anxiety in adolescents diagnosed with autism spectrum disorder [Texte imprimé et/ou numérique] / Paul D. CHAMBERLAIN, Auteur ; Jacqui RODGERS, Auteur ; Michael J. CROWLEY, Auteur ; Sarah WHITE, Auteur ; Mark FREESTON, Auteur ; Mikle SOUTH, Auteur. Langues : Anglais (eng) in Molecular Autism > (September 2013) Index. décimale : PER Périodiques Résumé : Beyond the core symptoms of autism spectrum disorder (ASD), associated symptoms of anxiety can cause substantial impairment for individuals affected by ASD and those who care for them. We utilized a potentiated startle paradigm with a puff of air to the neck as the unconditioned stimulus in order to investigate differences between response to cued fear and contextual anxiety among cognitively able adolescents diagnosed with ASD and an age- and IQ-matched typically developing group. In a threat-modulated startle paradigm, response patterns to neutral, predictable, and unpredictable conditions were comparable across typically developing and ASD youth in terms of startle response magnitude and latency. However, the ASD group showed significantly greater absolute startle responsivity at baseline and throughout the experiment, suggesting possibly enhanced general sensitivity to threatening contexts. The ASD group, but not the control group, demonstrated moderate to strong negative correlations between psychophysiological response to unpredictable threats (uncertainty) and questionnaire measures of generalized anxiety, intolerance of uncertainty, and repetitive behavior. Our data suggest enhanced general reactivity among the ASD group, possibly reflecting greater sensitivity to the threatening context of the startle paradigm. Associations with the response to uncertainty may help explain shared neurobehavioral mechanisms in ASD and anxiety. This task can provide useful targets for future neuroimaging and genetics studies as well as specific avenues for intervention. We emphasize the importance of further basic and clinical research into links among these important constructs. En ligne : http://dx.doi.org/10.1186/2040-2392-4-31 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=227

Relations among restricted and repetitive behaviors, anxiety and sensory features in children with autism spectrum disorders / Jane S. M. LIDSTONE in Research in Autism Spectrum Disorders, 8-2 (February 2014)  

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The Interplay Between Sensory Processing Abnormalities, Intolerance of Uncertainty, Anxiety and Restricted and Repetitive Behaviours in Autism Spectrum Disorder / Sarah WIGHAM in Journal of Autism and Developmental Disorders, 45-4 (April 2015)  

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Le trouble obsessionnel-compulsif / Robert LADOUCEUR

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