Associations between autism traits and family functioning over time in autistic and non-autistic children / Leontine W TEN HOOPEN in Autism, 27-7 (October 2023)  

Public ISBD [article]  inAutism > 27-7 (October 2023) . - p.2035-2047 Titre : Associations between autism traits and family functioning over time in autistic and non-autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Leontine W TEN HOOPEN, Auteur ; Pieter FA DE NIJS, Auteur ; Geerte SLAPPENDEL, Auteur ; Jan VAN DER ENDE, Auteur ; Dennis BASTIAANSEN, Auteur ; Kirstin GREAVES-LORD, Auteur ; Leona HAKKAART-VAN ROIJEN, Auteur ; Manon HJ HILLEGERS, Auteur Article en page(s) : p.2035-2047 Langues : Anglais (eng) Mots-clés : autism  caregivers  children  family functioning  longitudinal  parenting  traits Index. décimale : PER Périodiques Résumé : To explore associations between autism traits and family functioning over time, we studied longitudinal data of a mixed group of 168 clinically referred autistic and non-autistic children. Cross-lagged models showed a significant association between fewer autism traits at the diagnostic assessment and better family functioning 1?year later for the whole group, independently of children?s internalizing or externalizing behavior. When splitting the group into autistic children (58%) and non-autistic children (42%) based on an autism diagnosis, this association was only significant in the subgroup of non-autistic children with autism traits. We hypothesized that the needs of families experiencing difficulty understanding and adjusting to their children with autism traits, but no clinical autism diagnosis, might be unmet without the training or support facilities offered to families with autistic children. Although further research is needed to explore this association, clinicians may also consider supporting families of non-autistic children with autism traits to prevent family functioning problems. Because high autism trait levels in non-autistic children may be of a different origin than autism, for example, other neurodevelopmental or mental health problems, family training or support should be tailored to the child?s underlying difficulties.Lay AbstractLittle is known about family functioning over time when raising a child with autism traits, with or without a clinical autism diagnosis. Therefore, we asked caregivers-mostly parents-of a group of 168 children about the family functioning and the child?s emotional and behavioral characteristics, as well as autistic traits, twice with about 1?year in between. For numerous reasons, the children were referred to youth mental health care centers, including child and adolescent psychiatric services. Care as usual was offered after the diagnostic assessment if a clinical diagnosis was the assessment outcome. Caregivers reported less problematic family functioning in children with fewer autism traits over time. The child?s additional emotional or behavioral characteristics did not seem to influence this relation. Furthermore, we split the whole group into autistic children with a clinical autism diagnosis (58%) and non-autistic children with autism traits but without a clinical diagnosis (42%) to see whether we would find the same results in both groups. Surprisingly, the relation between family functioning and the level of a child?s autism traits only held for the subgroup of non-autistic children with autism traits. Thus, raising children with autism traits without a clinical diagnosis may affect family functioning over time. We think that families might have difficulty understanding and adjusting to the autism traits of their children but are lacking the support that is exclusively offered to families of children with a clinical autism diagnosis. We must be cautious because we do not know whether there is a causal relation. Although further research is needed to explore and learn to understand this result, clinicians might consider offering support to families of children with subthreshold autism to prevent problems in family functioning. Because high autism trait levels in non-autistic children may be of a different origin than autism, for example, other neurodevelopmental or mental health problems, family training or support should be tailored to the child?s underlying difficulties. En ligne : http://dx.doi.org/10.1177/13623613231151784 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 [article] Associations between autism traits and family functioning over time in autistic and non-autistic children [Texte imprimé et/ou numérique] / Leontine W TEN HOOPEN, Auteur ; Pieter FA DE NIJS, Auteur ; Geerte SLAPPENDEL, Auteur ; Jan VAN DER ENDE, Auteur ; Dennis BASTIAANSEN, Auteur ; Kirstin GREAVES-LORD, Auteur ; Leona HAKKAART-VAN ROIJEN, Auteur ; Manon HJ HILLEGERS, Auteur . - p.2035-2047. Langues : Anglais (eng) in Autism > 27-7 (October 2023) . - p.2035-2047 Mots-clés : autism  caregivers  children  family functioning  longitudinal  parenting  traits Index. décimale : PER Périodiques Résumé : To explore associations between autism traits and family functioning over time, we studied longitudinal data of a mixed group of 168 clinically referred autistic and non-autistic children. Cross-lagged models showed a significant association between fewer autism traits at the diagnostic assessment and better family functioning 1?year later for the whole group, independently of children?s internalizing or externalizing behavior. When splitting the group into autistic children (58%) and non-autistic children (42%) based on an autism diagnosis, this association was only significant in the subgroup of non-autistic children with autism traits. We hypothesized that the needs of families experiencing difficulty understanding and adjusting to their children with autism traits, but no clinical autism diagnosis, might be unmet without the training or support facilities offered to families with autistic children. Although further research is needed to explore this association, clinicians may also consider supporting families of non-autistic children with autism traits to prevent family functioning problems. Because high autism trait levels in non-autistic children may be of a different origin than autism, for example, other neurodevelopmental or mental health problems, family training or support should be tailored to the child?s underlying difficulties.Lay AbstractLittle is known about family functioning over time when raising a child with autism traits, with or without a clinical autism diagnosis. Therefore, we asked caregivers-mostly parents-of a group of 168 children about the family functioning and the child?s emotional and behavioral characteristics, as well as autistic traits, twice with about 1?year in between. For numerous reasons, the children were referred to youth mental health care centers, including child and adolescent psychiatric services. Care as usual was offered after the diagnostic assessment if a clinical diagnosis was the assessment outcome. Caregivers reported less problematic family functioning in children with fewer autism traits over time. The child?s additional emotional or behavioral characteristics did not seem to influence this relation. Furthermore, we split the whole group into autistic children with a clinical autism diagnosis (58%) and non-autistic children with autism traits but without a clinical diagnosis (42%) to see whether we would find the same results in both groups. Surprisingly, the relation between family functioning and the level of a child?s autism traits only held for the subgroup of non-autistic children with autism traits. Thus, raising children with autism traits without a clinical diagnosis may affect family functioning over time. We think that families might have difficulty understanding and adjusting to the autism traits of their children but are lacking the support that is exclusively offered to families of children with a clinical autism diagnosis. We must be cautious because we do not know whether there is a causal relation. Although further research is needed to explore and learn to understand this result, clinicians might consider offering support to families of children with subthreshold autism to prevent problems in family functioning. Because high autism trait levels in non-autistic children may be of a different origin than autism, for example, other neurodevelopmental or mental health problems, family training or support should be tailored to the child?s underlying difficulties. En ligne : http://dx.doi.org/10.1177/13623613231151784 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510

Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children / Jorieke DUVEKOT in Journal of Autism and Developmental Disorders, 47-1 (January 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-1 (January 2017) . - p.33-48 Titre : Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children Type de document : Texte imprimé et/ou numérique Auteurs : Jorieke DUVEKOT, Auteur ; Leontine W. TEN HOOPEN, Auteur ; Geerte SLAPPENDEL, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Ad VAN DER SIJDE, Auteur ; Kirstin GREAVES-LORD, Auteur Article en page(s) : p.33-48 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Multicenter  Design  Clinical cohort  Attrition  Longitudinal Index. décimale : PER Périodiques Résumé : This paper provides an overview of the design and cohort characteristics of the Social Spectrum Study: a clinical cohort study that used a two-phase sampling design to identify children at risk for ASD. After screening 1281 children aged 2.5–10 years who had been consecutively referred to one of six mental health services in the Netherlands, children who screened positive for ASD (n?=?428) and a random selection of screen negatives (n?=?240) were invited to participate in diagnostic assessments and questionnaires regarding the child, family and society. A 1-year follow-up was also conducted. Results from this study may contribute to knowledge of the identification and characterization of children with ASD, family processes, and the impact of ASD on the family and society. En ligne : http://dx.doi.org/10.1007/s10803-016-2919-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=298 [article] Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children [Texte imprimé et/ou numérique] / Jorieke DUVEKOT, Auteur ; Leontine W. TEN HOOPEN, Auteur ; Geerte SLAPPENDEL, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Ad VAN DER SIJDE, Auteur ; Kirstin GREAVES-LORD, Auteur . - p.33-48. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-1 (January 2017) . - p.33-48 Mots-clés : Autism spectrum disorder  Multicenter  Design  Clinical cohort  Attrition  Longitudinal Index. décimale : PER Périodiques Résumé : This paper provides an overview of the design and cohort characteristics of the Social Spectrum Study: a clinical cohort study that used a two-phase sampling design to identify children at risk for ASD. After screening 1281 children aged 2.5–10 years who had been consecutively referred to one of six mental health services in the Netherlands, children who screened positive for ASD (n?=?428) and a random selection of screen negatives (n?=?240) were invited to participate in diagnostic assessments and questionnaires regarding the child, family and society. A 1-year follow-up was also conducted. Results from this study may contribute to knowledge of the identification and characterization of children with ASD, family processes, and the impact of ASD on the family and society. En ligne : http://dx.doi.org/10.1007/s10803-016-2919-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=298

Factors influencing the probability of a diagnosis of autism spectrum disorder in girls versus boys / Jorieke DUVEKOT in Autism, 21-6 (August 2017)  

Public ISBD [article]  inAutism > 21-6 (August 2017) . - p.646-658 Titre : Factors influencing the probability of a diagnosis of autism spectrum disorder in girls versus boys Type de document : Texte imprimé et/ou numérique Auteurs : Jorieke DUVEKOT, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Geerte SLAPPENDEL, Auteur ; Emma VAN DAALEN, Auteur ; Athanasios MARAS, Auteur ; Kirstin GREAVES-LORD, Auteur Article en page(s) : p.646-658 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : In order to shed more light on why referred girls are less likely to be diagnosed with autism spectrum disorder than boys, this study examined whether behavioral characteristics influence the probability of an autism spectrum disorder diagnosis differently in girls versus boys derived from a multicenter sample of consecutively referred children aged 2.5?10?years. Based on information from the short version of the Developmental, Dimensional and Diagnostic Interview and the Autism Diagnostic Observation Schedule, 130 children (106 boys and 24 girls) received a diagnosis of autism spectrum disorder according to Diagnostic and Statistical Manual of Mental Disorders (4th ed., text rev.) criteria and 101 children (61 boys and 40 girls) did not. Higher overall levels of parent-reported repetitive and restricted behavior symptoms were less predictive of an autism spectrum disorder diagnosis in girls than in boys (odds ratio interaction=0.41, 95% confidence interval=0.18?0.92, p=0.03). In contrast, higher overall levels of parent-reported emotional and behavioral problems increased the probability of an autism spectrum disorder diagnosis more in girls than in boys (odds ratio interaction=2.44, 95% confidence interval=1.13?5.29, p=0.02). No differences were found between girls and boys in the prediction of an autism spectrum disorder diagnosis by overall autistic impairment, sensory symptoms, and cognitive functioning. These findings provide insight into possible explanations for the assumed underidentification of autism spectrum disorder in girls in the clinic. En ligne : http://dx.doi.org/10.1177/1362361316672178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=311 [article] Factors influencing the probability of a diagnosis of autism spectrum disorder in girls versus boys [Texte imprimé et/ou numérique] / Jorieke DUVEKOT, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Geerte SLAPPENDEL, Auteur ; Emma VAN DAALEN, Auteur ; Athanasios MARAS, Auteur ; Kirstin GREAVES-LORD, Auteur . - p.646-658. Langues : Anglais (eng) in Autism > 21-6 (August 2017) . - p.646-658 Index. décimale : PER Périodiques Résumé : In order to shed more light on why referred girls are less likely to be diagnosed with autism spectrum disorder than boys, this study examined whether behavioral characteristics influence the probability of an autism spectrum disorder diagnosis differently in girls versus boys derived from a multicenter sample of consecutively referred children aged 2.5?10?years. Based on information from the short version of the Developmental, Dimensional and Diagnostic Interview and the Autism Diagnostic Observation Schedule, 130 children (106 boys and 24 girls) received a diagnosis of autism spectrum disorder according to Diagnostic and Statistical Manual of Mental Disorders (4th ed., text rev.) criteria and 101 children (61 boys and 40 girls) did not. Higher overall levels of parent-reported repetitive and restricted behavior symptoms were less predictive of an autism spectrum disorder diagnosis in girls than in boys (odds ratio interaction=0.41, 95% confidence interval=0.18?0.92, p=0.03). In contrast, higher overall levels of parent-reported emotional and behavioral problems increased the probability of an autism spectrum disorder diagnosis more in girls than in boys (odds ratio interaction=2.44, 95% confidence interval=1.13?5.29, p=0.02). No differences were found between girls and boys in the prediction of an autism spectrum disorder diagnosis by overall autistic impairment, sensory symptoms, and cognitive functioning. These findings provide insight into possible explanations for the assumed underidentification of autism spectrum disorder in girls in the clinic. En ligne : http://dx.doi.org/10.1177/1362361316672178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=311

Utility of the 3Di Short Version for the Diagnostic Assessment of Autism Spectrum Disorder and Compatibility with DSM-5 / Geerte SLAPPENDEL in Journal of Autism and Developmental Disorders, 46-5 (May 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1834-1846 Titre : Utility of the 3Di Short Version for the Diagnostic Assessment of Autism Spectrum Disorder and Compatibility with DSM-5 Type de document : Texte imprimé et/ou numérique Auteurs : Geerte SLAPPENDEL, Auteur ; William MANDY, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Ad VAN DER SIJDE, Auteur ; Jorieke DUVEKOT, Auteur ; David SKUSE, Auteur ; Kirstin GREAVES-LORD, Auteur Article en page(s) : p.1834-1846 Langues : Anglais (eng) Mots-clés : 3Di  Autism spectrum disorder  DSM-5  Validity  Factor analysis  Assessment Index. décimale : PER Périodiques Résumé : The Developmental Diagnostic Dimensional Interview-short version (3Di-sv) provides a brief standardized parental interview for diagnosing autism spectrum disorder (ASD). This study explored its validity, and compatibility with DSM-5 ASD. 3Di-sv classifications showed good sensitivity but low specificity when compared to ADOS-2-confirmed clinical diagnosis. Confirmatory factor analyses found a better fit against a DSM-5 model than a DSM-IV-TR model of ASD. Exploration of the content validity of the 3Di-sv for the DSM-5 revealed some construct underrepresentation, therefore we obtained data from a panel of 3Di-trained clinicians from ASD-specialized centers to recommend items to fill these gaps. Taken together, the 3Di-sv provides a solid basis to create a similar instrument suitable for DSM-5. Concrete recommendations are provided to improve DSM-5 compatibility. En ligne : http://dx.doi.org/10.1007/s10803-016-2713-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288 [article] Utility of the 3Di Short Version for the Diagnostic Assessment of Autism Spectrum Disorder and Compatibility with DSM-5 [Texte imprimé et/ou numérique] / Geerte SLAPPENDEL, Auteur ; William MANDY, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Ad VAN DER SIJDE, Auteur ; Jorieke DUVEKOT, Auteur ; David SKUSE, Auteur ; Kirstin GREAVES-LORD, Auteur . - p.1834-1846. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1834-1846 Mots-clés : 3Di  Autism spectrum disorder  DSM-5  Validity  Factor analysis  Assessment Index. décimale : PER Périodiques Résumé : The Developmental Diagnostic Dimensional Interview-short version (3Di-sv) provides a brief standardized parental interview for diagnosing autism spectrum disorder (ASD). This study explored its validity, and compatibility with DSM-5 ASD. 3Di-sv classifications showed good sensitivity but low specificity when compared to ADOS-2-confirmed clinical diagnosis. Confirmatory factor analyses found a better fit against a DSM-5 model than a DSM-IV-TR model of ASD. Exploration of the content validity of the 3Di-sv for the DSM-5 revealed some construct underrepresentation, therefore we obtained data from a panel of 3Di-trained clinicians from ASD-specialized centers to recommend items to fill these gaps. Taken together, the 3Di-sv provides a solid basis to create a similar instrument suitable for DSM-5. Concrete recommendations are provided to improve DSM-5 compatibility. En ligne : http://dx.doi.org/10.1007/s10803-016-2713-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288

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