Brief Report: Autism Knowledge and Stigma in University and Community Samples / Sheri T. STRONACH in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1298-1302 Titre : Brief Report: Autism Knowledge and Stigma in University and Community Samples Type de document : Texte imprimé et/ou numérique Auteurs : Sheri T. STRONACH, Auteur ; S. WIEGAND, Auteur ; E. MENTZ, Auteur Article en page(s) : p.1298-1302 Langues : Anglais (eng) Mots-clés : Autism knowledge  Awareness  Community  Stigma Index. décimale : PER Périodiques Résumé : Increased public understanding of autism may lead to better access to services and participation in the community for individuals with autism. The goal of this study was to explore autism understanding and stigma among university students, and general community members recruited at a state fair. Participants between 18 and 79 years of age (n = 478) completed the Autism Stigma and Knowledge Questionnaire (ASK-Q; Harrison et al., Journal of Autism and Developmental Disorders 47(10):3281-3295, 2017). All ASK-Q means fell within the adequate knowledge range, indicating relatively high levels of autism knowledge and low levels of stigma. ASK-Q scores were correlated with gender, education, and self-ratings of understanding but not age. The results of this study suggest the need for continued inquiry into metrics that indicate autism understanding and stigma. En ligne : http://dx.doi.org/10.1007/s10803-018-3825-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386 [article] Brief Report: Autism Knowledge and Stigma in University and Community Samples [Texte imprimé et/ou numérique] / Sheri T. STRONACH, Auteur ; S. WIEGAND, Auteur ; E. MENTZ, Auteur . - p.1298-1302. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1298-1302 Mots-clés : Autism knowledge  Awareness  Community  Stigma Index. décimale : PER Périodiques Résumé : Increased public understanding of autism may lead to better access to services and participation in the community for individuals with autism. The goal of this study was to explore autism understanding and stigma among university students, and general community members recruited at a state fair. Participants between 18 and 79 years of age (n = 478) completed the Autism Stigma and Knowledge Questionnaire (ASK-Q; Harrison et al., Journal of Autism and Developmental Disorders 47(10):3281-3295, 2017). All ASK-Q means fell within the adequate knowledge range, indicating relatively high levels of autism knowledge and low levels of stigma. ASK-Q scores were correlated with gender, education, and self-ratings of understanding but not age. The results of this study suggest the need for continued inquiry into metrics that indicate autism understanding and stigma. En ligne : http://dx.doi.org/10.1007/s10803-018-3825-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386

“Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa / Roy Richard GRINKER in Autism Research, 5-3 (June 2012)  

Public ISBD [article]  inAutism Research > 5-3 (June 2012) . - p.201-210 Titre : “Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa Type de document : Texte imprimé et/ou numérique Auteurs : Roy Richard GRINKER, Auteur ; Nola J. CHAMBERS, Auteur ; Nono NJONGWE, Auteur ; Adrienne E. LAGMAN, Auteur ; Whitney GUTHRIE, Auteur ; Sheri T. STRONACH, Auteur ; Bonnie O. RICHARD, Auteur ; Shuaib KAUCHALI, Auteur ; Beverley KILLIAN, Auteur ; Meera CHHAGAN, Auteur ; Fikri YUCEL, Auteur ; Mwenda KUDUMU, Auteur ; Christie BARKER-CUMMINGS, Auteur ; Judith K. GRETHER, Auteur ; Amy M. WETHERBY, Auteur Année de publication : 2012 Article en page(s) : p.201-210 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  community engagement  cross-cultural studies  epidemiology  Korea  South Africa Index. décimale : PER Périodiques Résumé : Little research has been conducted on behavioral characteristics of children with autism spectrum disorder (ASD) from diverse cultures within the US, or from countries outside of the US or Europe, with little reliable information yet reported from developing countries. We describe the process used to engage diverse communities in ASD research in two community-based research projects—an epidemiologic investigation of 7- to 12-year olds in South Korea and the Early Autism Project, an ASD detection program for 18- to 36-month-old Zulu-speaking children in South Africa. Despite the differences in wealth between these communities, ASD is underdiagnosed in both settings, and generally not reported in clinical or educational records. Moreover, in both countries, there is low availability of services. In both cases, local knowledge helped researchers to address both ethnographic as well as practical problems. Researchers identified the ways in which these communities generate and negotiate the cultural meanings of developmental disorders. Researchers incorporated that knowledge, as they engaged communities in a research protocol, adapted and translated screening and diagnostic tools, and developed methods for screening, evaluating, and diagnosing children with ASD. En ligne : http://dx.doi.org/10.1002/aur.1229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163 [article] “Communities” in Community Engagement: Lessons Learned From Autism Research in South Korea and South Africa [Texte imprimé et/ou numérique] / Roy Richard GRINKER, Auteur ; Nola J. CHAMBERS, Auteur ; Nono NJONGWE, Auteur ; Adrienne E. LAGMAN, Auteur ; Whitney GUTHRIE, Auteur ; Sheri T. STRONACH, Auteur ; Bonnie O. RICHARD, Auteur ; Shuaib KAUCHALI, Auteur ; Beverley KILLIAN, Auteur ; Meera CHHAGAN, Auteur ; Fikri YUCEL, Auteur ; Mwenda KUDUMU, Auteur ; Christie BARKER-CUMMINGS, Auteur ; Judith K. GRETHER, Auteur ; Amy M. WETHERBY, Auteur . - 2012 . - p.201-210. Langues : Anglais (eng) in Autism Research > 5-3 (June 2012) . - p.201-210 Mots-clés : autism spectrum disorder  community engagement  cross-cultural studies  epidemiology  Korea  South Africa Index. décimale : PER Périodiques Résumé : Little research has been conducted on behavioral characteristics of children with autism spectrum disorder (ASD) from diverse cultures within the US, or from countries outside of the US or Europe, with little reliable information yet reported from developing countries. We describe the process used to engage diverse communities in ASD research in two community-based research projects—an epidemiologic investigation of 7- to 12-year olds in South Korea and the Early Autism Project, an ASD detection program for 18- to 36-month-old Zulu-speaking children in South Africa. Despite the differences in wealth between these communities, ASD is underdiagnosed in both settings, and generally not reported in clinical or educational records. Moreover, in both countries, there is low availability of services. In both cases, local knowledge helped researchers to address both ethnographic as well as practical problems. Researchers identified the ways in which these communities generate and negotiate the cultural meanings of developmental disorders. Researchers incorporated that knowledge, as they engaged communities in a research protocol, adapted and translated screening and diagnostic tools, and developed methods for screening, evaluating, and diagnosing children with ASD. En ligne : http://dx.doi.org/10.1002/aur.1229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163

Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa / Nola J. CHAMBERS in Autism, 21-5 (July 2017)  

Public ISBD [article]  inAutism > 21-5 (July 2017) . - p.518-526 Titre : Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa Type de document : Texte imprimé et/ou numérique Auteurs : Nola J. CHAMBERS, Auteur ; Amy M. WETHERBY, Auteur ; Sheri T. STRONACH, Auteur ; Nonyameko NJONGWE, Auteur ; Shuaib KAUCHALI, Auteur ; Richard R. GRINKER, Auteur Article en page(s) : p.518-526 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Culturally appropriate tools are needed for detecting symptoms of autism spectrum disorder in young South African children. The objectives of this study were to (1) adapt and translate into isiZulu existing measures for detecting early signs of autism spectrum disorder, (2) use the measures to characterize and compare behavioural profiles of young isiZulu-speaking children with and without autism spectrum disorder and (3) compare symptom profiles across sampling procedures. Measures were translated and adapted into isiZulu and used to evaluate 26 isiZulu-speaking children, 15 children with no reported developmental concerns and 11 referred for suspected autism spectrum disorder. A video-recorded observation of children and caregivers in their home environment was also made. Based on best-estimate diagnoses, 10 children were classified as autism spectrum disorder and 16 as non-autism spectrum disorder. The children with autism spectrum disorder presented with significantly more autism spectrum disorder red flags than the non-autism spectrum disorder group according to parent report and systematic ratings of red flags. Significant correlations between parent report and observational measures of red flags were observed. More red flags were observed during structured evaluations than home observations in the autism spectrum disorder group. Findings provide a foundation for tool translation and adaptation in South Africa and identifying social communication markers to detect autism spectrum disorder in young isiZulu-speaking children. En ligne : http://dx.doi.org/10.1177/1362361316651196 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310 [article] Early detection of autism spectrum disorder in young isiZulu-speaking children in South Africa [Texte imprimé et/ou numérique] / Nola J. CHAMBERS, Auteur ; Amy M. WETHERBY, Auteur ; Sheri T. STRONACH, Auteur ; Nonyameko NJONGWE, Auteur ; Shuaib KAUCHALI, Auteur ; Richard R. GRINKER, Auteur . - p.518-526. Langues : Anglais (eng) in Autism > 21-5 (July 2017) . - p.518-526 Index. décimale : PER Périodiques Résumé : Culturally appropriate tools are needed for detecting symptoms of autism spectrum disorder in young South African children. The objectives of this study were to (1) adapt and translate into isiZulu existing measures for detecting early signs of autism spectrum disorder, (2) use the measures to characterize and compare behavioural profiles of young isiZulu-speaking children with and without autism spectrum disorder and (3) compare symptom profiles across sampling procedures. Measures were translated and adapted into isiZulu and used to evaluate 26 isiZulu-speaking children, 15 children with no reported developmental concerns and 11 referred for suspected autism spectrum disorder. A video-recorded observation of children and caregivers in their home environment was also made. Based on best-estimate diagnoses, 10 children were classified as autism spectrum disorder and 16 as non-autism spectrum disorder. The children with autism spectrum disorder presented with significantly more autism spectrum disorder red flags than the non-autism spectrum disorder group according to parent report and systematic ratings of red flags. Significant correlations between parent report and observational measures of red flags were observed. More red flags were observed during structured evaluations than home observations in the autism spectrum disorder group. Findings provide a foundation for tool translation and adaptation in South Africa and identifying social communication markers to detect autism spectrum disorder in young isiZulu-speaking children. En ligne : http://dx.doi.org/10.1177/1362361316651196 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=310

Examining restricted and repetitive behaviors in young children with autism spectrum disorder during two observational contexts / Sheri T. STRONACH in Autism, 18-2 (February 2014)  

Public ISBD [article]  inAutism > 18-2 (February 2014) . - p.127-136 Titre : Examining restricted and repetitive behaviors in young children with autism spectrum disorder during two observational contexts Type de document : Texte imprimé et/ou numérique Auteurs : Sheri T. STRONACH, Auteur ; Amy M. WETHERBY, Auteur Article en page(s) : p.127-136 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  naturalistic observation  repetitive behaviors  restricted interests Index. décimale : PER Périodiques Résumé : This prospective study of the FIRST WORDS® Project examined restricted and repetitive behaviors in a sample of 55 toddlers at a mean age of 20 months who were later diagnosed with autism spectrum disorder. Restricted and repetitive behaviors were coded using the Repetitive Movement and Restricted Interest Scales in two video-recorded observation methods–structured sampling procedures in a clinic and naturalistic everyday activities at home. Measures of restricted and repetitive behaviors were higher in the clinic setting than in the home observation, especially for behaviors involving object use. Repetitive movements with objects in the clinic predicted nonverbal developmental scores and Autism Diagnostic Observation Schedule social affect scores at later follow-up. In contrast, repetitive movements with objects at home significantly predicted later Autism Diagnostic Observation Schedule restricted and repetitive behaviors scores. These results support the utility of the Repetitive Movement and Restricted Interest Scales to detect restricted and repetitive behaviors in toddlers and suggest that observations of restricted and repetitive behaviors in clinic and home settings may provide unique and important diagnostic information for improving early detection of autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361312463616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224 [article] Examining restricted and repetitive behaviors in young children with autism spectrum disorder during two observational contexts [Texte imprimé et/ou numérique] / Sheri T. STRONACH, Auteur ; Amy M. WETHERBY, Auteur . - p.127-136. Langues : Anglais (eng) in Autism > 18-2 (February 2014) . - p.127-136 Mots-clés : autism spectrum disorder  naturalistic observation  repetitive behaviors  restricted interests Index. décimale : PER Périodiques Résumé : This prospective study of the FIRST WORDS® Project examined restricted and repetitive behaviors in a sample of 55 toddlers at a mean age of 20 months who were later diagnosed with autism spectrum disorder. Restricted and repetitive behaviors were coded using the Repetitive Movement and Restricted Interest Scales in two video-recorded observation methods–structured sampling procedures in a clinic and naturalistic everyday activities at home. Measures of restricted and repetitive behaviors were higher in the clinic setting than in the home observation, especially for behaviors involving object use. Repetitive movements with objects in the clinic predicted nonverbal developmental scores and Autism Diagnostic Observation Schedule social affect scores at later follow-up. In contrast, repetitive movements with objects at home significantly predicted later Autism Diagnostic Observation Schedule restricted and repetitive behaviors scores. These results support the utility of the Repetitive Movement and Restricted Interest Scales to detect restricted and repetitive behaviors in toddlers and suggest that observations of restricted and repetitive behaviors in clinic and home settings may provide unique and important diagnostic information for improving early detection of autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361312463616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=224

Insistence on sameness and broader autism phenotype in simplex families with autism spectrum disorder / A. N. ESLER in Autism Research, 11-9 (September 2018)  

Public ISBD [article]  inAutism Research > 11-9 (September 2018) . - p.1253-1263 Titre : Insistence on sameness and broader autism phenotype in simplex families with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : A. N. ESLER, Auteur ; Sheri T. STRONACH, Auteur ; S. JACOB, Auteur Article en page(s) : p.1253-1263 Langues : Anglais (eng) Mots-clés : broader autism phenotype  insistence on sameness  subphenotypes Index. décimale : PER Périodiques Résumé : Insistence on sameness (IS) in individuals with autism spectrum disorder (ASD) and their families may have utility in identifying meaningful subgroups for studying the pathophysiological and genetic pathways affected in ASD. The primary objectives of the current study were to (1) characterize features of IS in parents of children with ASD and (2) examine their relationships with child IS symptoms. Participants were 2760 families who participated in the Simons Simplex Collection. Levels of parent IS were measured using the Broader Autism Phenotype Questionnaire (BAPQ). A factor analysis generated a BAPQ-IS scale, consisting of a subset of 11 items from the original BAPQ-Rigid scale. Correlations were run to examine the relationship between parent BAP and child IS variables. Correlations were found between parent IS and measures of child IS. Although relationships between parent and child IS features were statistically significant in this large sample, effect sizes were small. Results may be reflective of sample design that only included simplex families, where ASD severity may be predominantly driven by spontaneous mutations and less by common inherited risk from parents. In addition, child and parent measures used may have differentially captured features and severity of IS. Further research is needed on how IS can be accurately measured throughout development and across individuals with ASD and their unaffected family members to facilitate future studies on IS as a possible endophenotype for ASD. Autism Res 2018, 11: 1253-1263. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Previous research has suggested that insistence on sameness (IS) may be a heritable trait in autism spectrum disorder (ASD). The study examined whether children with high levels of IS had parents with IS tendencies. A small relationship was found between parent and child measures of IS. Future research is needed on measurement of insistence on sameness across individuals with and without ASD to further examine this relationship and improve understanding of the genetics of ASD. En ligne : http://dx.doi.org/10.1002/aur.1975 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 [article] Insistence on sameness and broader autism phenotype in simplex families with autism spectrum disorder [Texte imprimé et/ou numérique] / A. N. ESLER, Auteur ; Sheri T. STRONACH, Auteur ; S. JACOB, Auteur . - p.1253-1263. Langues : Anglais (eng) in Autism Research > 11-9 (September 2018) . - p.1253-1263 Mots-clés : broader autism phenotype  insistence on sameness  subphenotypes Index. décimale : PER Périodiques Résumé : Insistence on sameness (IS) in individuals with autism spectrum disorder (ASD) and their families may have utility in identifying meaningful subgroups for studying the pathophysiological and genetic pathways affected in ASD. The primary objectives of the current study were to (1) characterize features of IS in parents of children with ASD and (2) examine their relationships with child IS symptoms. Participants were 2760 families who participated in the Simons Simplex Collection. Levels of parent IS were measured using the Broader Autism Phenotype Questionnaire (BAPQ). A factor analysis generated a BAPQ-IS scale, consisting of a subset of 11 items from the original BAPQ-Rigid scale. Correlations were run to examine the relationship between parent BAP and child IS variables. Correlations were found between parent IS and measures of child IS. Although relationships between parent and child IS features were statistically significant in this large sample, effect sizes were small. Results may be reflective of sample design that only included simplex families, where ASD severity may be predominantly driven by spontaneous mutations and less by common inherited risk from parents. In addition, child and parent measures used may have differentially captured features and severity of IS. Further research is needed on how IS can be accurately measured throughout development and across individuals with ASD and their unaffected family members to facilitate future studies on IS as a possible endophenotype for ASD. Autism Res 2018, 11: 1253-1263. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Previous research has suggested that insistence on sameness (IS) may be a heritable trait in autism spectrum disorder (ASD). The study examined whether children with high levels of IS had parents with IS tendencies. A small relationship was found between parent and child measures of IS. Future research is needed on measurement of insistence on sameness across individuals with and without ASD to further examine this relationship and improve understanding of the genetics of ASD. En ligne : http://dx.doi.org/10.1002/aur.1975 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369

Lexical and Grammatical Skills in Toddlers on the Autism Spectrum Compared to Late Talking Toddlers / Susan Ellis WEISMER in Journal of Autism and Developmental Disorders, 41-8 (August 2011)  

Permalink

Psychometric analysis of the Systematic Observation of Red Flags for autism spectrum disorder in toddlers / Deanna DOW in Autism, 21-2 (February 2017)  

Permalink

Psychometric analysis of the Systematic Observation of Red Flags for autism spectrum disorder in toddlers / Deanna DOW in Autism, 21-3 (April 2017)  

Permalink

Public knowledge and stigma of autism spectrum disorder: Comparing China with the United States / Luodi YU in Autism, 24-6 (August 2020)  

Permalink

Verbal and nonverbal outcomes of toddlers with and without autism spectrum disorder, language delay, and global developmental delay / Abigail D. DELEHANTY in Autism & Developmental Language Impairments, 3 (January-December 2018)  

Permalink

---

1 (1 - 10 / 10)