Brief Report: Service Use and Associated Expenditures Among Adolescents with Autism Spectrum Disorder Transitioning to Adulthood / L. L. SHEA in Journal of Autism and Developmental Disorders, 48-9 (September 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.3223-3227 Titre : Brief Report: Service Use and Associated Expenditures Among Adolescents with Autism Spectrum Disorder Transitioning to Adulthood Type de document : Texte imprimé et/ou numérique Auteurs : L. L. SHEA, Auteur ; M. XIE, Auteur ; P. TURCOTTE, Auteur ; S. MARCUS, Auteur ; R. FIELD, Auteur ; C. NEWSCHAFFER, Auteur ; D. MANDELL, Auteur Article en page(s) : p.3223-3227 Langues : Anglais (eng) Mots-clés : Autism  Intellectual disability  Medicaid  Service use  Transition Index. décimale : PER Périodiques Résumé : This study compared Medicaid service utilization and expenditures among adolescents with autism spectrum disorder (ASD) to adolescents with intellectual disability (ID) as they aged into adulthood. Medicaid Analytic eXtract (MAX) data was used to identify a national cohort. Winsorization was utilized to control for expenditure outliers. A greater proportion of adolescents with ASD utilized most services. Decreases in the use of key services, including psychiatric outpatient services, were observed for both groups. Changes in medical services, such as increases in inpatient and long term care services, among the ASD cohort suggest medical needs of adolescents with ASD change as they age. Information remains lacking on changing ASD symptom presentation during the transition to adolescence. En ligne : http://dx.doi.org/10.1007/s10803-018-3563-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368 [article] Brief Report: Service Use and Associated Expenditures Among Adolescents with Autism Spectrum Disorder Transitioning to Adulthood [Texte imprimé et/ou numérique] / L. L. SHEA, Auteur ; M. XIE, Auteur ; P. TURCOTTE, Auteur ; S. MARCUS, Auteur ; R. FIELD, Auteur ; C. NEWSCHAFFER, Auteur ; D. MANDELL, Auteur . - p.3223-3227. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.3223-3227 Mots-clés : Autism  Intellectual disability  Medicaid  Service use  Transition Index. décimale : PER Périodiques Résumé : This study compared Medicaid service utilization and expenditures among adolescents with autism spectrum disorder (ASD) to adolescents with intellectual disability (ID) as they aged into adulthood. Medicaid Analytic eXtract (MAX) data was used to identify a national cohort. Winsorization was utilized to control for expenditure outliers. A greater proportion of adolescents with ASD utilized most services. Decreases in the use of key services, including psychiatric outpatient services, were observed for both groups. Changes in medical services, such as increases in inpatient and long term care services, among the ASD cohort suggest medical needs of adolescents with ASD change as they age. Information remains lacking on changing ASD symptom presentation during the transition to adolescence. En ligne : http://dx.doi.org/10.1007/s10803-018-3563-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368

Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research / L. L. SHEA in Autism Research, 14-10 (October 2021)  

Public ISBD [article]  inAutism Research > 14-10 (October 2021) . - p.2053-2060 Titre : Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research Type de document : Texte imprimé et/ou numérique Auteurs : L. L. SHEA, Auteur ; Dylan S. COOPER, Auteur ; A. B. WILSON, Auteur Article en page(s) : p.2053-2060 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Criminal Law  Criminals  Humans  Prevalence  criminal law  policy  research Index. décimale : PER Périodiques Résumé : Researchers have identified that autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. The prevalence of autism spectrum disorder (ASD) is increasing and generating a comprehensive approach to addressing criminal justice system involvement among autistic individuals is a timely and urgent need. Revisions to an established framework generated for use among individuals with mental health diagnoses, the sequential Intercept Model (SIM), were produced by an international consortium of interdisciplinary stakeholders presenting a new opportunity to identify gaps in ASD research and generate preventive solutions across the criminal justice system. The revised SIM maps each criminal justice system component, or Intercept, and includes paths for the experiences of autistic individuals as victims or witnesses to crimes as well as offenders to catalyze new and interdisciplinary research, policy, and practice efforts. As the field of ASD research continues to grow, the revised SIM is a promising pathway to avoiding siloed research approaches, including diverse autistic voices, and contributing to international dialogue about criminal justice reform at a critical juncture. LAY SUMMARY: Autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. A revised version of the SIM generated by an international consortium provides a cohesive framework to ensure research focused on this topic extends across the criminal justice system. Preventing and improving interactions between autistic individuals and the criminal justice system is an urgent research, policy, and practice need. En ligne : http://dx.doi.org/10.1002/aur.2594 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] Preventing and improving interactions between autistic individuals and the criminal justice system: A roadmap for research [Texte imprimé et/ou numérique] / L. L. SHEA, Auteur ; Dylan S. COOPER, Auteur ; A. B. WILSON, Auteur . - p.2053-2060. Langues : Anglais (eng) in Autism Research > 14-10 (October 2021) . - p.2053-2060 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Criminal Law  Criminals  Humans  Prevalence  criminal law  policy  research Index. décimale : PER Périodiques Résumé : Researchers have identified that autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. The prevalence of autism spectrum disorder (ASD) is increasing and generating a comprehensive approach to addressing criminal justice system involvement among autistic individuals is a timely and urgent need. Revisions to an established framework generated for use among individuals with mental health diagnoses, the sequential Intercept Model (SIM), were produced by an international consortium of interdisciplinary stakeholders presenting a new opportunity to identify gaps in ASD research and generate preventive solutions across the criminal justice system. The revised SIM maps each criminal justice system component, or Intercept, and includes paths for the experiences of autistic individuals as victims or witnesses to crimes as well as offenders to catalyze new and interdisciplinary research, policy, and practice efforts. As the field of ASD research continues to grow, the revised SIM is a promising pathway to avoiding siloed research approaches, including diverse autistic voices, and contributing to international dialogue about criminal justice reform at a critical juncture. LAY SUMMARY: Autistic individuals are encountering the criminal justice system as victims, offenders, and witnesses at high rates. A revised version of the SIM generated by an international consortium provides a cohesive framework to ensure research focused on this topic extends across the criminal justice system. Preventing and improving interactions between autistic individuals and the criminal justice system is an urgent research, policy, and practice need. En ligne : http://dx.doi.org/10.1002/aur.2594 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

Program experiences of adults with autism, their families, and providers: Findings from a focus group study / Kaitlin H. KOFFER MILLER in Autism, 22-3 (April 2018)  

Public ISBD [article]  inAutism > 22-3 (April 2018) . - p.345-356 Titre : Program experiences of adults with autism, their families, and providers: Findings from a focus group study Type de document : Texte imprimé et/ou numérique Auteurs : Kaitlin H. KOFFER MILLER, Auteur ; M. MATHEW, Auteur ; Stacy L. NONNEMACHER, Auteur ; L. L. SHEA, Auteur Article en page(s) : p.345-356 Langues : Anglais (eng) Mots-clés : Medicaid  adult services  adults  autism spectrum disorder  focus groups  qualitative Index. décimale : PER Périodiques Résumé : A growing number of individuals with autism spectrum disorder are aging into adulthood. In the United States, Medicaid is the primary payer for services for adults with autism spectrum disorder, yet there are few funded programs that provide dedicated supports to this population. This study examined the experiences of adults with autism spectrum disorder in two Medicaid-funded programs in Pennsylvania through focus groups. Researchers conducted 20 focus groups with a total of 36 adults with autism spectrum disorder, 32 family members, 32 direct care staff, and 20 program administrators. Using thematic analysis, we identified three themes: training needs, community engagement and socialization, and employment. There was a need for additional training to meet the varying needs of program participants including co-occurring diagnoses, sexuality, and long-term planning. Adults with autism spectrum disorder prioritized more individualized community activities based on their interests. Finally, barriers to and strategies for successful employment were discussed. It will be crucial for policy makers to utilize the findings to inform program improvement and development based on the experiences of individuals impacted by these services and systems directly. Additionally, researchers should use the findings from this study to design interventions for adults with autism spectrum disorder as it includes their voices. En ligne : http://dx.doi.org/10.1177/1362361316679000 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=358 [article] Program experiences of adults with autism, their families, and providers: Findings from a focus group study [Texte imprimé et/ou numérique] / Kaitlin H. KOFFER MILLER, Auteur ; M. MATHEW, Auteur ; Stacy L. NONNEMACHER, Auteur ; L. L. SHEA, Auteur . - p.345-356. Langues : Anglais (eng) in Autism > 22-3 (April 2018) . - p.345-356 Mots-clés : Medicaid  adult services  adults  autism spectrum disorder  focus groups  qualitative Index. décimale : PER Périodiques Résumé : A growing number of individuals with autism spectrum disorder are aging into adulthood. In the United States, Medicaid is the primary payer for services for adults with autism spectrum disorder, yet there are few funded programs that provide dedicated supports to this population. This study examined the experiences of adults with autism spectrum disorder in two Medicaid-funded programs in Pennsylvania through focus groups. Researchers conducted 20 focus groups with a total of 36 adults with autism spectrum disorder, 32 family members, 32 direct care staff, and 20 program administrators. Using thematic analysis, we identified three themes: training needs, community engagement and socialization, and employment. There was a need for additional training to meet the varying needs of program participants including co-occurring diagnoses, sexuality, and long-term planning. Adults with autism spectrum disorder prioritized more individualized community activities based on their interests. Finally, barriers to and strategies for successful employment were discussed. It will be crucial for policy makers to utilize the findings to inform program improvement and development based on the experiences of individuals impacted by these services and systems directly. Additionally, researchers should use the findings from this study to design interventions for adults with autism spectrum disorder as it includes their voices. En ligne : http://dx.doi.org/10.1177/1362361316679000 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=358

School Discipline, Hospitalization, and Police Contact Overlap Among Individuals with Autism Spectrum Disorder / P. TURCOTTE in Journal of Autism and Developmental Disorders, 48-3 (March 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-3 (March 2018) . - p.883-891 Titre : School Discipline, Hospitalization, and Police Contact Overlap Among Individuals with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : P. TURCOTTE, Auteur ; L. L. SHEA, Auteur ; D. MANDELL, Auteur Année de publication : 2018 Article en page(s) : p.883-891 Langues : Anglais (eng) Mots-clés : Hospital  Police  School Index. décimale : PER Périodiques Résumé : The objective was to examine the frequency, correlates, and overlap of school disciplinary actions, psychiatric hospitalizations, and police contact among children and adolescents with autism. Survey results from 2525 caregivers of individuals with autism in elementary through high school were examined. Logistic regression was used to examine predictors of each outcome. Youth with autism most frequently experienced school disciplinary action (15.0%), followed by police contact (7.9%) and hospitalization (7.8%). Experiencing any one of the three events increased risk of experiencing either of the other events. Strong associations between traumatic experiences such as police contact and hospitalizations (OR 9.2), need to be explored to determine risk factors for potential intervention. Further research is needed to determine the temporal ordering of these outcomes. En ligne : https://doi.org/10.1007/s10803-017-3359-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339 [article] School Discipline, Hospitalization, and Police Contact Overlap Among Individuals with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / P. TURCOTTE, Auteur ; L. L. SHEA, Auteur ; D. MANDELL, Auteur . - 2018 . - p.883-891. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-3 (March 2018) . - p.883-891 Mots-clés : Hospital  Police  School Index. décimale : PER Périodiques Résumé : The objective was to examine the frequency, correlates, and overlap of school disciplinary actions, psychiatric hospitalizations, and police contact among children and adolescents with autism. Survey results from 2525 caregivers of individuals with autism in elementary through high school were examined. Logistic regression was used to examine predictors of each outcome. Youth with autism most frequently experienced school disciplinary action (15.0%), followed by police contact (7.9%) and hospitalization (7.8%). Experiencing any one of the three events increased risk of experiencing either of the other events. Strong associations between traumatic experiences such as police contact and hospitalizations (OR 9.2), need to be explored to determine risk factors for potential intervention. Further research is needed to determine the temporal ordering of these outcomes. En ligne : https://doi.org/10.1007/s10803-017-3359-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339

The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder / G. VIVANTI in Autism Research, 14-10 (October 2021)  

Public ISBD [article]  inAutism Research > 14-10 (October 2021) . - p.2189-2199 Titre : The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : G. VIVANTI, Auteur ; S. TAO, Auteur ; K. LYALL, Auteur ; Diana L. ROBINS, Auteur ; L. L. SHEA, Auteur Article en page(s) : p.2189-2199 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/complications/epidemiology  Case-Control Studies  Dementia/epidemiology  Humans  Incidence  Intellectual Disability/epidemiology  Middle Aged  Prevalence  United States/epidemiology Index. décimale : PER Périodiques Résumé : The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder (ASD) is currently unknown. In this case-control study, the prevalence and incidence of early-onset dementia in individuals with ASD was examined during 2008-2012 using Medicaid Analytic eXtract files. Participants were 30-64?year-old adults who were Medicaid beneficiaries and had either a diagnosis of ASD only (n = 12,648), a diagnosis of ASD with co-occurring intellectual disability (ID) (n = 26,168), a diagnosis of ID without ASD (n = 406,570), or no ASD nor ID diagnoses (n = 798,828). The 5-year prevalence of dementia was 4.04% among adults with ASD only, and 5.22% for those with ASD and co-occurring ID. This prevalence was higher compared to the prevalence of dementia in individuals with no ASD and no ID (0.97%), but lower compared to individuals with ID only (7.10%). Risk factors associated with the increased prevalence in the general population were similarly associated with the increased risk of dementia in individuals with ASD. Even after adjusting for these risk factors, compared to the general population, dementia was found to occur more frequently in individuals with ASD only (adjusted hazard ratio, 1.96; 95% CI, 1.69-2.28), as well as individuals with ASD and co-occurring ID (adjusted hazard ratio, 2.89; 95% CI, 2.62-3.17). In conclusion, adults with ASD under the age of 65 were approximately 2.6 times more likely to be diagnosed with dementia compared to the general population in our study. LAY SUMMARY: It is unclear whether adults diagnosed with autism spectrum disorder (ASD) are at higher risk of being diagnosed with early-onset dementia compared to those who are not on the autism spectrum. In this study we examined for the first time the nationwide prevalence and incidence of Alzheimer's Disease and other types of dementia in ASD in a sample of adults with ASD aged 30-64?years who were enrolled in Medicaid, the largest insurer of behavioral health services in the US. Medicaid claims data, which include information on the diagnoses that beneficiaries receive, suggested that the adults with ASD were approximately 2.6 times more likely to be diagnosed with early-onset Alzheimer's disease and related dementias compared to the general population. En ligne : http://dx.doi.org/10.1002/aur.2590 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder [Texte imprimé et/ou numérique] / G. VIVANTI, Auteur ; S. TAO, Auteur ; K. LYALL, Auteur ; Diana L. ROBINS, Auteur ; L. L. SHEA, Auteur . - p.2189-2199. Langues : Anglais (eng) in Autism Research > 14-10 (October 2021) . - p.2189-2199 Mots-clés : Adult  Autism Spectrum Disorder/complications/epidemiology  Case-Control Studies  Dementia/epidemiology  Humans  Incidence  Intellectual Disability/epidemiology  Middle Aged  Prevalence  United States/epidemiology Index. décimale : PER Périodiques Résumé : The prevalence and incidence of early-onset dementia among adults with autism spectrum disorder (ASD) is currently unknown. In this case-control study, the prevalence and incidence of early-onset dementia in individuals with ASD was examined during 2008-2012 using Medicaid Analytic eXtract files. Participants were 30-64?year-old adults who were Medicaid beneficiaries and had either a diagnosis of ASD only (n = 12,648), a diagnosis of ASD with co-occurring intellectual disability (ID) (n = 26,168), a diagnosis of ID without ASD (n = 406,570), or no ASD nor ID diagnoses (n = 798,828). The 5-year prevalence of dementia was 4.04% among adults with ASD only, and 5.22% for those with ASD and co-occurring ID. This prevalence was higher compared to the prevalence of dementia in individuals with no ASD and no ID (0.97%), but lower compared to individuals with ID only (7.10%). Risk factors associated with the increased prevalence in the general population were similarly associated with the increased risk of dementia in individuals with ASD. Even after adjusting for these risk factors, compared to the general population, dementia was found to occur more frequently in individuals with ASD only (adjusted hazard ratio, 1.96; 95% CI, 1.69-2.28), as well as individuals with ASD and co-occurring ID (adjusted hazard ratio, 2.89; 95% CI, 2.62-3.17). In conclusion, adults with ASD under the age of 65 were approximately 2.6 times more likely to be diagnosed with dementia compared to the general population in our study. LAY SUMMARY: It is unclear whether adults diagnosed with autism spectrum disorder (ASD) are at higher risk of being diagnosed with early-onset dementia compared to those who are not on the autism spectrum. In this study we examined for the first time the nationwide prevalence and incidence of Alzheimer's Disease and other types of dementia in ASD in a sample of adults with ASD aged 30-64?years who were enrolled in Medicaid, the largest insurer of behavioral health services in the US. Medicaid claims data, which include information on the diagnoses that beneficiaries receive, suggested that the adults with ASD were approximately 2.6 times more likely to be diagnosed with early-onset Alzheimer's disease and related dementias compared to the general population. En ligne : http://dx.doi.org/10.1002/aur.2590 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

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