Addressing the Educational Needs of Children with Williams Syndrome: A Rather Neglected Area of Research? / Olympia PALIKARA in Journal of Autism and Developmental Disorders, 48-9 (September 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.3256-3259 Titre : Addressing the Educational Needs of Children with Williams Syndrome: A Rather Neglected Area of Research? Type de document : Texte imprimé et/ou numérique Auteurs : Olympia PALIKARA, Auteur ; Maria ASHWORTH, Auteur ; J. VAN HERWEGEN, Auteur Article en page(s) : p.3256-3259 Langues : Anglais (eng) Mots-clés : Academic achievements  Educational provision  Interventions  Transition  Williams syndrome Index. décimale : PER Périodiques Résumé : Williams syndrome (WS) is a rare neurodevelopmental disorder associated with physical health problems, limitations in cognitive abilities and increased risk of mental health difficulties. This profile of complex needs may make it challenging to support children with WS in schools. Surprisingly, in the current international move for inclusion, limited research exists on the educational provision and academic achievements of children with WS, including the non-existing literature on their voices and the perspectives of key stakeholders. This letter calls for additional research on the risk and protective factors associated with the educational outcomes of these children, the perspectives of the children themselves and the development of the evidence-base about the effectiveness of education intervention programs. En ligne : http://dx.doi.org/10.1007/s10803-018-3578-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368 [article] Addressing the Educational Needs of Children with Williams Syndrome: A Rather Neglected Area of Research? [Texte imprimé et/ou numérique] / Olympia PALIKARA, Auteur ; Maria ASHWORTH, Auteur ; J. VAN HERWEGEN, Auteur . - p.3256-3259. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.3256-3259 Mots-clés : Academic achievements  Educational provision  Interventions  Transition  Williams syndrome Index. décimale : PER Périodiques Résumé : Williams syndrome (WS) is a rare neurodevelopmental disorder associated with physical health problems, limitations in cognitive abilities and increased risk of mental health difficulties. This profile of complex needs may make it challenging to support children with WS in schools. Surprisingly, in the current international move for inclusion, limited research exists on the educational provision and academic achievements of children with WS, including the non-existing literature on their voices and the perspectives of key stakeholders. This letter calls for additional research on the risk and protective factors associated with the educational outcomes of these children, the perspectives of the children themselves and the development of the evidence-base about the effectiveness of education intervention programs. En ligne : http://dx.doi.org/10.1007/s10803-018-3578-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=368

Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders / Catherine COALES in Autism & Developmental Language Impairments, 4 (January-December 2019)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 4 (January-December 2019) Titre : Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders Type de document : Texte imprimé et/ou numérique Auteurs : Catherine COALES, Auteur ; Natalie HEANEY, Auteur ; Jessie RICKETTS, Auteur ; Julie E. DOCKRELL, Auteur ; Geoff LINDSAY, Auteur ; Olympia PALIKARA, Auteur ; Tony CHARMAN, Auteur Index. décimale : PER Périodiques Résumé : Background and aimsThere is a paucity of literature investigating health-related quality of life in neurodevelopmental populations including children with developmental language disorders and children with autism spectrum disorder. Health-related quality of life in these two groups remains poorly understood. Furthermore, studies have typically relied on reports from caregivers and teachers rather than using self-report measures. The aim of the current study is to compare the levels and profiles of self-reported health-related quality of life of children with developmental language disorders and children with autism spectrum disorder.MethodsParticipants comprised 114 7-to-13-year-old children with developmental language disorders (n=63) and children with autism spectrum disorder (n=51) attending mainstream school. Self-reported health-related quality of life was measured using the KIDSCREEN-52. We also collected standardised measures of receptive language, autism spectrum disorder symptoms, nonverbal IQ and emotional and behavioural problems.ResultsChildren with developmental language disorders reported health-related quality of life commensurate with normative ranges, except for 2 of the 10 dimensions; the Moods and Emotions domain and the Social acceptance/bullying domain, which were below norms. Children with autism spectrum disorder reported significantly lower health-related quality of life compared to norms and the developmental language disorders group. However, when the effects of non-verbal ability and language ? on which the groups were not matched ? were covaried most group differences fell to non-significance or disappeared. Child characteristics showed few associations with dimensions of health-related quality of life across groups.ConclusionsChildren with autism spectrum disorder may be particularly vulnerable to poorer health-related quality of life and the relevant professionals need to be aware of this. Children with developmental language disorders exhibit a profile of health-related quality of life more in-line with average ranges. However, certain domains warrant monitoring and may benefit from intervention. Many of the between-group differences in self-reported health-related quality of life disappeared when non-verbal and language ability were covaried, though neither of the covariates was systematically related to scores. Other within-child factors such as emotional understanding and competence should be explored in future studies.ImplicationsFurther research into child and contextual factors may elucidate risk or protective factors for health-related quality of life in children with neurodevelopmental disorders. En ligne : https://doi.org/10.1177/2396941519851225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=402 [article] Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders [Texte imprimé et/ou numérique] / Catherine COALES, Auteur ; Natalie HEANEY, Auteur ; Jessie RICKETTS, Auteur ; Julie E. DOCKRELL, Auteur ; Geoff LINDSAY, Auteur ; Olympia PALIKARA, Auteur ; Tony CHARMAN, Auteur. in Autism & Developmental Language Impairments > 4 (January-December 2019) Index. décimale : PER Périodiques Résumé : Background and aimsThere is a paucity of literature investigating health-related quality of life in neurodevelopmental populations including children with developmental language disorders and children with autism spectrum disorder. Health-related quality of life in these two groups remains poorly understood. Furthermore, studies have typically relied on reports from caregivers and teachers rather than using self-report measures. The aim of the current study is to compare the levels and profiles of self-reported health-related quality of life of children with developmental language disorders and children with autism spectrum disorder.MethodsParticipants comprised 114 7-to-13-year-old children with developmental language disorders (n=63) and children with autism spectrum disorder (n=51) attending mainstream school. Self-reported health-related quality of life was measured using the KIDSCREEN-52. We also collected standardised measures of receptive language, autism spectrum disorder symptoms, nonverbal IQ and emotional and behavioural problems.ResultsChildren with developmental language disorders reported health-related quality of life commensurate with normative ranges, except for 2 of the 10 dimensions; the Moods and Emotions domain and the Social acceptance/bullying domain, which were below norms. Children with autism spectrum disorder reported significantly lower health-related quality of life compared to norms and the developmental language disorders group. However, when the effects of non-verbal ability and language ? on which the groups were not matched ? were covaried most group differences fell to non-significance or disappeared. Child characteristics showed few associations with dimensions of health-related quality of life across groups.ConclusionsChildren with autism spectrum disorder may be particularly vulnerable to poorer health-related quality of life and the relevant professionals need to be aware of this. Children with developmental language disorders exhibit a profile of health-related quality of life more in-line with average ranges. However, certain domains warrant monitoring and may benefit from intervention. Many of the between-group differences in self-reported health-related quality of life disappeared when non-verbal and language ability were covaried, though neither of the covariates was systematically related to scores. Other within-child factors such as emotional understanding and competence should be explored in future studies.ImplicationsFurther research into child and contextual factors may elucidate risk or protective factors for health-related quality of life in children with neurodevelopmental disorders. En ligne : https://doi.org/10.1177/2396941519851225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=402

Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders / Catherine COALES in Autism & Developmental Language Impairments, 4 (January-December 2019)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 4 (January-December 2019) Titre : Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders Type de document : Texte imprimé et/ou numérique Auteurs : Catherine COALES, Auteur ; Natalie HEANEY, Auteur ; Jessie RICKETTS, Auteur ; Julie E. DOCKRELL, Auteur ; Geoff LINDSAY, Auteur ; Olympia PALIKARA, Auteur ; Tony CHARMAN, Auteur Langues : Anglais (eng) Mots-clés : Language impairment  autism spectrum disorders  emotional and behavioural problems  health-related quality of life  well-being Index. décimale : PER Périodiques Résumé : Background and aimsThere is a paucity of literature investigating health-related quality of life in neurodevelopmental populations including children with developmental language disorders and children with autism spectrum disorder. Health-related quality of life in these two groups remains poorly understood. Furthermore, studies have typically relied on reports from caregivers and teachers rather than using self-report measures. The aim of the current study is to compare the levels and profiles of self-reported health-related quality of life of children with developmental language disorders and children with autism spectrum disorder.MethodsParticipants comprised 114 7-to-13-year-old children with developmental language disorders (n=63) and children with autism spectrum disorder (n=51) attending mainstream school. Self-reported health-related quality of life was measured using the KIDSCREEN-52. We also collected standardised measures of receptive language, autism spectrum disorder symptoms, nonverbal IQ and emotional and behavioural problems.ResultsChildren with developmental language disorders reported health-related quality of life commensurate with normative ranges, except for 2 of the 10 dimensions; the Moods and Emotions domain and the Social acceptance/bullying domain, which were below norms. Children with autism spectrum disorder reported significantly lower health-related quality of life compared to norms and the developmental language disorders group. However, when the effects of non-verbal ability and language ? on which the groups were not matched ? were covaried most group differences fell to non-significance or disappeared. Child characteristics showed few associations with dimensions of health-related quality of life across groups.ConclusionsChildren with autism spectrum disorder may be particularly vulnerable to poorer health-related quality of life and the relevant professionals need to be aware of this. Children with developmental language disorders exhibit a profile of health-related quality of life more in-line with average ranges. However, certain domains warrant monitoring and may benefit from intervention. Many of the between-group differences in self-reported health-related quality of life disappeared when non-verbal and language ability were covaried, though neither of the covariates was systematically related to scores. Other within-child factors such as emotional understanding and competence should be explored in future studies.ImplicationsFurther research into child and contextual factors may elucidate risk or protective factors for health-related quality of life in children with neurodevelopmental disorders. En ligne : https://doi.org/10.1177/2396941519851225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=409 [article] Health-related quality of life in children with autism spectrum disorders and children with developmental language disorders [Texte imprimé et/ou numérique] / Catherine COALES, Auteur ; Natalie HEANEY, Auteur ; Jessie RICKETTS, Auteur ; Julie E. DOCKRELL, Auteur ; Geoff LINDSAY, Auteur ; Olympia PALIKARA, Auteur ; Tony CHARMAN, Auteur. Langues : Anglais (eng) in Autism & Developmental Language Impairments > 4 (January-December 2019) Mots-clés : Language impairment  autism spectrum disorders  emotional and behavioural problems  health-related quality of life  well-being Index. décimale : PER Périodiques Résumé : Background and aimsThere is a paucity of literature investigating health-related quality of life in neurodevelopmental populations including children with developmental language disorders and children with autism spectrum disorder. Health-related quality of life in these two groups remains poorly understood. Furthermore, studies have typically relied on reports from caregivers and teachers rather than using self-report measures. The aim of the current study is to compare the levels and profiles of self-reported health-related quality of life of children with developmental language disorders and children with autism spectrum disorder.MethodsParticipants comprised 114 7-to-13-year-old children with developmental language disorders (n=63) and children with autism spectrum disorder (n=51) attending mainstream school. Self-reported health-related quality of life was measured using the KIDSCREEN-52. We also collected standardised measures of receptive language, autism spectrum disorder symptoms, nonverbal IQ and emotional and behavioural problems.ResultsChildren with developmental language disorders reported health-related quality of life commensurate with normative ranges, except for 2 of the 10 dimensions; the Moods and Emotions domain and the Social acceptance/bullying domain, which were below norms. Children with autism spectrum disorder reported significantly lower health-related quality of life compared to norms and the developmental language disorders group. However, when the effects of non-verbal ability and language ? on which the groups were not matched ? were covaried most group differences fell to non-significance or disappeared. Child characteristics showed few associations with dimensions of health-related quality of life across groups.ConclusionsChildren with autism spectrum disorder may be particularly vulnerable to poorer health-related quality of life and the relevant professionals need to be aware of this. Children with developmental language disorders exhibit a profile of health-related quality of life more in-line with average ranges. However, certain domains warrant monitoring and may benefit from intervention. Many of the between-group differences in self-reported health-related quality of life disappeared when non-verbal and language ability were covaried, though neither of the covariates was systematically related to scores. Other within-child factors such as emotional understanding and competence should be explored in future studies.ImplicationsFurther research into child and contextual factors may elucidate risk or protective factors for health-related quality of life in children with neurodevelopmental disorders. En ligne : https://doi.org/10.1177/2396941519851225 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=409

The Impact of COVID-19 on Anxiety and Worries for Families of Individuals with Special Education Needs and Disabilities in the UK / V. SIDEROPOULOS in Journal of Autism and Developmental Disorders, 52-6 (June 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2656-2669 Titre : The Impact of COVID-19 on Anxiety and Worries for Families of Individuals with Special Education Needs and Disabilities in the UK Type de document : Texte imprimé et/ou numérique Auteurs : V. SIDEROPOULOS, Auteur ; D. DUKES, Auteur ; M. HANLEY, Auteur ; Olympia PALIKARA, Auteur ; S. RHODES, Auteur ; D. M. RIBY, Auteur ; Andrea C. SAMSON, Auteur ; J. VAN HERWEGEN, Auteur Article en page(s) : p.2656-2669 Langues : Anglais (eng) Mots-clés : Anxiety  Covid-19  Predictors  Special Educational Needs and Disabilities (SEND)  Wellbeing  Worries Index. décimale : PER Périodiques Résumé : COVID-19 has affected people across the world. The current study examined anxiety and worries during the first UK national lockdown in March 2020. Parents (n=402) reported on their own anxiety and worries as well as that of their son/daughter with Special Education Needs and Disabilities (SEND) and typically developing (TD) child (n=186) at three time points. Although both groups showed increased anxiety across the three time points, levels of anxiety in the SEND group, but not the TD siblings, were predicted by awareness about COVID-19. In addition, worries differed between the groups showing that COVID-19 impacts the wellbeing of those with SEND differently to that of their TD siblings. En ligne : http://dx.doi.org/10.1007/s10803-021-05168-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474 [article] The Impact of COVID-19 on Anxiety and Worries for Families of Individuals with Special Education Needs and Disabilities in the UK [Texte imprimé et/ou numérique] / V. SIDEROPOULOS, Auteur ; D. DUKES, Auteur ; M. HANLEY, Auteur ; Olympia PALIKARA, Auteur ; S. RHODES, Auteur ; D. M. RIBY, Auteur ; Andrea C. SAMSON, Auteur ; J. VAN HERWEGEN, Auteur . - p.2656-2669. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-6 (June 2022) . - p.2656-2669 Mots-clés : Anxiety  Covid-19  Predictors  Special Educational Needs and Disabilities (SEND)  Wellbeing  Worries Index. décimale : PER Périodiques Résumé : COVID-19 has affected people across the world. The current study examined anxiety and worries during the first UK national lockdown in March 2020. Parents (n=402) reported on their own anxiety and worries as well as that of their son/daughter with Special Education Needs and Disabilities (SEND) and typically developing (TD) child (n=186) at three time points. Although both groups showed increased anxiety across the three time points, levels of anxiety in the SEND group, but not the TD siblings, were predicted by awareness about COVID-19. In addition, worries differed between the groups showing that COVID-19 impacts the wellbeing of those with SEND differently to that of their TD siblings. En ligne : http://dx.doi.org/10.1007/s10803-021-05168-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=474

The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome / Hannah HARVEY in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4553-4556 Titre : The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome Type de document : Texte imprimé et/ou numérique Auteurs : Hannah HARVEY, Auteur ; Maria ASHWORTH, Auteur ; Olympia PALIKARA, Auteur ; Jo VAN HERWEGEN, Auteur Article en page(s) : p.4553-4556 Langues : Anglais (eng) Mots-clés : Down syndrome  Neurodevelopmental disorders  Special educational needs  Vision  Williams syndrome Index. décimale : PER Périodiques Résumé : Vision problems can lead to negative developmental outcomes. Children with Williams syndrome and Down syndrome are at higher risk of vision problems, and these are less likely to be detected due to diagnostic overshadowing and difficulty accessing eye-care. Education, Health and Care (EHC) plans are statutory documents, introduced by the Children and Families Act 2014 in England, with the intention of integrating provision across these domains. Vision issues should be reported in these plans, and recommendations made about appropriate adjustments for them. We analysed the EHC plans from 53 children with Down or Williams syndrome. Our results showed significant underreporting, especially for children with Williams syndrome, and little explanation of what adjustments should be made. We also report pockets of good practice. En ligne : http://dx.doi.org/10.1007/s10803-020-04520-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] The Underreporting of Vision Problems in Statutory Documents of Children with Williams Syndrome and Down Syndrome [Texte imprimé et/ou numérique] / Hannah HARVEY, Auteur ; Maria ASHWORTH, Auteur ; Olympia PALIKARA, Auteur ; Jo VAN HERWEGEN, Auteur . - p.4553-4556. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4553-4556 Mots-clés : Down syndrome  Neurodevelopmental disorders  Special educational needs  Vision  Williams syndrome Index. décimale : PER Périodiques Résumé : Vision problems can lead to negative developmental outcomes. Children with Williams syndrome and Down syndrome are at higher risk of vision problems, and these are less likely to be detected due to diagnostic overshadowing and difficulty accessing eye-care. Education, Health and Care (EHC) plans are statutory documents, introduced by the Children and Families Act 2014 in England, with the intention of integrating provision across these domains. Vision issues should be reported in these plans, and recommendations made about appropriate adjustments for them. We analysed the EHC plans from 53 children with Down or Williams syndrome. Our results showed significant underreporting, especially for children with Williams syndrome, and little explanation of what adjustments should be made. We also report pockets of good practice. En ligne : http://dx.doi.org/10.1007/s10803-020-04520-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

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