The earlier, the better? Diagnostic experiences of parents in a community-based early intervention system for preschool children with autism / Mitsuaki IWASA in Autism & Developmental Language Impairments, 4 (January-December 2019)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 4 (January-December 2019) Titre : The earlier, the better? Diagnostic experiences of parents in a community-based early intervention system for preschool children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Mitsuaki IWASA, Auteur ; Yasuo SHIMIZU, Auteur ; Ikuko HARA, Auteur ; Miho IMAI, Auteur ; Hideo HONDA, Auteur Index. décimale : PER Périodiques Résumé : Background and aimsIn many countries, early detection and diagnosis of autism spectrum disorder is largely dependent on parents? initial concern with early symptoms of autism spectrum disorder. Previous research on parental perceptions of the autism spectrum disorder diagnostic process indicates that parental satisfaction may be due to either the timing of the diagnostic notification or the provision of post-diagnostic support. The objective of this research is to study the diagnostic notification process and its impact on parents who are informed of their young child?s diagnosis before they notice a problem and whose child undergoes early intervention therapy.MethodsEighty parents of preschool children diagnosed and undergoing early intervention for autism were surveyed to examine their experience of the diagnostic disclosure process.ResultsOf 68 respondents, 39 (58.2%) approved of the timing of diagnostic notification, while 10 of 13 dissatisfied respondents indicated that the diagnosis was communicated too late. However, there was no correlation between a higher degree of parental satisfaction with the diagnostic notification process and earlier timing of notification.ConclusionsAlthough it is preferable to communicate a diagnosis of childhood autism as soon as possible, findings suggest that a highly individualized approach, allowing a degree of latitude in the timing of notification, may be permissible, depending on the individual case and parental readiness to receive the diagnosis.ImplicationsFindings have clinical implications related to the concept of optimality of diagnostic disclosure as related to the diagnostic notification process, though later notification tends to lead to more dissatisfaction. En ligne : https://doi.org/10.1177/2396941519845201 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=402 [article] The earlier, the better? Diagnostic experiences of parents in a community-based early intervention system for preschool children with autism [Texte imprimé et/ou numérique] / Mitsuaki IWASA, Auteur ; Yasuo SHIMIZU, Auteur ; Ikuko HARA, Auteur ; Miho IMAI, Auteur ; Hideo HONDA, Auteur. in Autism & Developmental Language Impairments > 4 (January-December 2019) Index. décimale : PER Périodiques Résumé : Background and aimsIn many countries, early detection and diagnosis of autism spectrum disorder is largely dependent on parents? initial concern with early symptoms of autism spectrum disorder. Previous research on parental perceptions of the autism spectrum disorder diagnostic process indicates that parental satisfaction may be due to either the timing of the diagnostic notification or the provision of post-diagnostic support. The objective of this research is to study the diagnostic notification process and its impact on parents who are informed of their young child?s diagnosis before they notice a problem and whose child undergoes early intervention therapy.MethodsEighty parents of preschool children diagnosed and undergoing early intervention for autism were surveyed to examine their experience of the diagnostic disclosure process.ResultsOf 68 respondents, 39 (58.2%) approved of the timing of diagnostic notification, while 10 of 13 dissatisfied respondents indicated that the diagnosis was communicated too late. However, there was no correlation between a higher degree of parental satisfaction with the diagnostic notification process and earlier timing of notification.ConclusionsAlthough it is preferable to communicate a diagnosis of childhood autism as soon as possible, findings suggest that a highly individualized approach, allowing a degree of latitude in the timing of notification, may be permissible, depending on the individual case and parental readiness to receive the diagnosis.ImplicationsFindings have clinical implications related to the concept of optimality of diagnostic disclosure as related to the diagnostic notification process, though later notification tends to lead to more dissatisfaction. En ligne : https://doi.org/10.1177/2396941519845201 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=402

The earlier, the better? Diagnostic experiences of parents in a community-based early intervention system for preschool children with autism / Mitsuaki IWASA in Autism & Developmental Language Impairments, 4 (January-December 2019)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 4 (January-December 2019) Titre : The earlier, the better? Diagnostic experiences of parents in a community-based early intervention system for preschool children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Mitsuaki IWASA, Auteur ; Yasuo SHIMIZU, Auteur ; Ikuko HARA, Auteur ; Miho IMAI, Auteur ; Hideo HONDA, Auteur Langues : Anglais (eng) Mots-clés : Autism  early diagnosis  parents  optimality in disclosure of the diagnosis Index. décimale : PER Périodiques Résumé : Background and aimsIn many countries, early detection and diagnosis of autism spectrum disorder is largely dependent on parents? initial concern with early symptoms of autism spectrum disorder. Previous research on parental perceptions of the autism spectrum disorder diagnostic process indicates that parental satisfaction may be due to either the timing of the diagnostic notification or the provision of post-diagnostic support. The objective of this research is to study the diagnostic notification process and its impact on parents who are informed of their young child?s diagnosis before they notice a problem and whose child undergoes early intervention therapy.MethodsEighty parents of preschool children diagnosed and undergoing early intervention for autism were surveyed to examine their experience of the diagnostic disclosure process.ResultsOf 68 respondents, 39 (58.2%) approved of the timing of diagnostic notification, while 10 of 13 dissatisfied respondents indicated that the diagnosis was communicated too late. However, there was no correlation between a higher degree of parental satisfaction with the diagnostic notification process and earlier timing of notification.ConclusionsAlthough it is preferable to communicate a diagnosis of childhood autism as soon as possible, findings suggest that a highly individualized approach, allowing a degree of latitude in the timing of notification, may be permissible, depending on the individual case and parental readiness to receive the diagnosis.ImplicationsFindings have clinical implications related to the concept of optimality of diagnostic disclosure as related to the diagnostic notification process, though later notification tends to lead to more dissatisfaction. En ligne : https://doi.org/10.1177/2396941519845201 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408 [article] The earlier, the better? Diagnostic experiences of parents in a community-based early intervention system for preschool children with autism [Texte imprimé et/ou numérique] / Mitsuaki IWASA, Auteur ; Yasuo SHIMIZU, Auteur ; Ikuko HARA, Auteur ; Miho IMAI, Auteur ; Hideo HONDA, Auteur. Langues : Anglais (eng) in Autism & Developmental Language Impairments > 4 (January-December 2019) Mots-clés : Autism  early diagnosis  parents  optimality in disclosure of the diagnosis Index. décimale : PER Périodiques Résumé : Background and aimsIn many countries, early detection and diagnosis of autism spectrum disorder is largely dependent on parents? initial concern with early symptoms of autism spectrum disorder. Previous research on parental perceptions of the autism spectrum disorder diagnostic process indicates that parental satisfaction may be due to either the timing of the diagnostic notification or the provision of post-diagnostic support. The objective of this research is to study the diagnostic notification process and its impact on parents who are informed of their young child?s diagnosis before they notice a problem and whose child undergoes early intervention therapy.MethodsEighty parents of preschool children diagnosed and undergoing early intervention for autism were surveyed to examine their experience of the diagnostic disclosure process.ResultsOf 68 respondents, 39 (58.2%) approved of the timing of diagnostic notification, while 10 of 13 dissatisfied respondents indicated that the diagnosis was communicated too late. However, there was no correlation between a higher degree of parental satisfaction with the diagnostic notification process and earlier timing of notification.ConclusionsAlthough it is preferable to communicate a diagnosis of childhood autism as soon as possible, findings suggest that a highly individualized approach, allowing a degree of latitude in the timing of notification, may be permissible, depending on the individual case and parental readiness to receive the diagnosis.ImplicationsFindings have clinical implications related to the concept of optimality of diagnostic disclosure as related to the diagnostic notification process, though later notification tends to lead to more dissatisfaction. En ligne : https://doi.org/10.1177/2396941519845201 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408

Twenty-year longitudinal birth cohort study of individuals diagnosed with autism spectrum disorder before seven years of age / Mitsuaki IWASA in Journal of Child Psychology and Psychiatry, 63-12 (December 2022)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 63-12 (December 2022) . - p.1563-1573 Titre : Twenty-year longitudinal birth cohort study of individuals diagnosed with autism spectrum disorder before seven years of age Type de document : Texte imprimé et/ou numérique Auteurs : Mitsuaki IWASA, Auteur ; Yasuo SHIMIZU, Auteur ; Daimei SASAYAMA, Auteur ; Miho IMAI, Auteur ; Hiroko OHZONO, Auteur ; Miori UEDA, Auteur ; Ikuko HARA, Auteur ; Hideo HONDA, Auteur Article en page(s) : p.1563-1573 Langues : Anglais (eng) Mots-clés : Adult  Humans  Young Adult  Autism Spectrum Disorder/epidemiology/psychology  Cohort Studies  Follow-Up Studies  Activities of Daily Living  Birth Cohort  Autism spectrum disorder  adult outcome  follow-up Index. décimale : PER Périodiques Résumé : BACKGROUND: Previous longitudinal studies have demonstrated that psychosocial outcomes for autistic adults are very limited. However, most studies are clinic-based and liable to selection bias and major methodological problems. METHODS: We conducted a long-term follow-up study with 278 autistic individuals from our previous birth cohort study comprising 31,426 individuals. All participants were born in northern Yokohama between 1988 and 1996, diagnosed with autism spectrum disorder (ASD) by age seven, and followed up over 20 years. A total of 170 consented to participate in the study. Outcome measures included overall social functioning based on work, independent living, and friendships. Moreover, the time-use data concerning social participation and activities of daily living were compared with the general population. RESULTS: Psychosocial outcomes in adulthood (average age 25) were very good in 13.7%, good in 25.0%, fair in 31.0%, poor in 25.6%, and very poor in 4.8% of the participants. The majority participated in major life areas of and work and education (96.4%), sports (82.1%), and recreational activities and/or hobbies (98.8%). The proportion of participants who engaged in housework and self-care was comparable to that of the general population. Participants with IQ < 50 at age five had significantly worse outcomes than those with higher IQ; however, for those with IQ ⥠50, outcomes were not significantly associated with IQ levels. CONCLUSIONS: Although complete independence was difficult to accomplish, many autistic adults engaged in organized community activities and housework and self-care. Time-use survey could offer a variety of data in investigating psychosocial outcomes of ASD cross-culturally. En ligne : http://dx.doi.org/10.1111/jcpp.13614 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 [article] Twenty-year longitudinal birth cohort study of individuals diagnosed with autism spectrum disorder before seven years of age [Texte imprimé et/ou numérique] / Mitsuaki IWASA, Auteur ; Yasuo SHIMIZU, Auteur ; Daimei SASAYAMA, Auteur ; Miho IMAI, Auteur ; Hiroko OHZONO, Auteur ; Miori UEDA, Auteur ; Ikuko HARA, Auteur ; Hideo HONDA, Auteur . - p.1563-1573. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 63-12 (December 2022) . - p.1563-1573 Mots-clés : Adult  Humans  Young Adult  Autism Spectrum Disorder/epidemiology/psychology  Cohort Studies  Follow-Up Studies  Activities of Daily Living  Birth Cohort  Autism spectrum disorder  adult outcome  follow-up Index. décimale : PER Périodiques Résumé : BACKGROUND: Previous longitudinal studies have demonstrated that psychosocial outcomes for autistic adults are very limited. However, most studies are clinic-based and liable to selection bias and major methodological problems. METHODS: We conducted a long-term follow-up study with 278 autistic individuals from our previous birth cohort study comprising 31,426 individuals. All participants were born in northern Yokohama between 1988 and 1996, diagnosed with autism spectrum disorder (ASD) by age seven, and followed up over 20 years. A total of 170 consented to participate in the study. Outcome measures included overall social functioning based on work, independent living, and friendships. Moreover, the time-use data concerning social participation and activities of daily living were compared with the general population. RESULTS: Psychosocial outcomes in adulthood (average age 25) were very good in 13.7%, good in 25.0%, fair in 31.0%, poor in 25.6%, and very poor in 4.8% of the participants. The majority participated in major life areas of and work and education (96.4%), sports (82.1%), and recreational activities and/or hobbies (98.8%). The proportion of participants who engaged in housework and self-care was comparable to that of the general population. Participants with IQ < 50 at age five had significantly worse outcomes than those with higher IQ; however, for those with IQ ⥠50, outcomes were not significantly associated with IQ levels. CONCLUSIONS: Although complete independence was difficult to accomplish, many autistic adults engaged in organized community activities and housework and self-care. Time-use survey could offer a variety of data in investigating psychosocial outcomes of ASD cross-culturally. En ligne : http://dx.doi.org/10.1111/jcpp.13614 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490

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