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Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders / Deborah K. ANDERSON in Journal of Child Psychology and Psychiatry, 55-5 (May 2014)
[article]
Titre : Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Deborah K. ANDERSON, Auteur ; Jessie W. LIANG, Auteur ; Catherine LORD, Auteur Article en page(s) : p.485-494 Mots-clés : Autism ASD Very Positive Outcome adult outcome longitudinal Index. décimale : PER Périodiques Résumé : Background The range of outcomes for young adults with Autism Spectrum Disorders (ASD) and the early childhood factors associated with this diversity have implications for clinicians and scientists. Methods This prospective study provided a unique opportunity to predict outcome 17 years later for a relatively large sample of children diagnosed with ASD at 2 years old. Diagnostic and psychometric instruments were administered between 2 and 19 with data from 2, 3, and 19 included in this study. Clinicians administered tests without knowledge of previous assessments whenever possible. Caregivers provided additional information through questionnaires. Results Significant intellectual disabilities at 19 were predicted by age 2 about 85% of the time from VIQ and NVIQ scores together, though prediction of young adult outcome for youths with average or higher intelligence was more complex. By 19, 9% of participants had largely overcome core difficulties associated with ASD and no longer retained a diagnosis. These youths with Very Positive Outcomes were more likely to have participated in treatment and had a greater reduction in repetitive behaviors between age 2 and 3 compared to other Cognitively Able youths (VIQ ?70) with ASD. Very Positive Outcome youths did not differ phenotypically from Cognitively Able ASD individuals at 2 but both groups differed from Cognitively Less Able individuals (VIQ 70). Conclusion Those most at risk for intellectual disabilities and ASD can be reliably identified at an early age to receive comprehensive treatment. Findings also suggest that some cognitively able children with ASD who participate in early intervention have very positive outcomes, although replication with randomized, larger samples is needed. In order to improve understanding of very positive outcomes in ASD, future research will need to identify how variations in child characteristics and environmental factors contribute to the nature and timing of growth across individuals and areas of development. En ligne : http://dx.doi.org/10.1111/jcpp.12178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232
in Journal of Child Psychology and Psychiatry > 55-5 (May 2014) . - p.485-494[article] Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders [Texte imprimé et/ou numérique] / Deborah K. ANDERSON, Auteur ; Jessie W. LIANG, Auteur ; Catherine LORD, Auteur . - p.485-494.
in Journal of Child Psychology and Psychiatry > 55-5 (May 2014) . - p.485-494
Mots-clés : Autism ASD Very Positive Outcome adult outcome longitudinal Index. décimale : PER Périodiques Résumé : Background The range of outcomes for young adults with Autism Spectrum Disorders (ASD) and the early childhood factors associated with this diversity have implications for clinicians and scientists. Methods This prospective study provided a unique opportunity to predict outcome 17 years later for a relatively large sample of children diagnosed with ASD at 2 years old. Diagnostic and psychometric instruments were administered between 2 and 19 with data from 2, 3, and 19 included in this study. Clinicians administered tests without knowledge of previous assessments whenever possible. Caregivers provided additional information through questionnaires. Results Significant intellectual disabilities at 19 were predicted by age 2 about 85% of the time from VIQ and NVIQ scores together, though prediction of young adult outcome for youths with average or higher intelligence was more complex. By 19, 9% of participants had largely overcome core difficulties associated with ASD and no longer retained a diagnosis. These youths with Very Positive Outcomes were more likely to have participated in treatment and had a greater reduction in repetitive behaviors between age 2 and 3 compared to other Cognitively Able youths (VIQ ?70) with ASD. Very Positive Outcome youths did not differ phenotypically from Cognitively Able ASD individuals at 2 but both groups differed from Cognitively Less Able individuals (VIQ 70). Conclusion Those most at risk for intellectual disabilities and ASD can be reliably identified at an early age to receive comprehensive treatment. Findings also suggest that some cognitively able children with ASD who participate in early intervention have very positive outcomes, although replication with randomized, larger samples is needed. In order to improve understanding of very positive outcomes in ASD, future research will need to identify how variations in child characteristics and environmental factors contribute to the nature and timing of growth across individuals and areas of development. En ligne : http://dx.doi.org/10.1111/jcpp.12178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232 The adult outcome of children referred for autism: typology and prediction from childhood / Andrew PICKLES in Journal of Child Psychology and Psychiatry, 61-7 (July 2020)
[article]
Titre : The adult outcome of children referred for autism: typology and prediction from childhood Type de document : Texte imprimé et/ou numérique Auteurs : Andrew PICKLES, Auteur ; James B. MCCAULEY, Auteur ; Lauren A. PEPA, Auteur ; Marisela HUERTA, Auteur ; Catherine LORD, Auteur Article en page(s) : p.760-767 Langues : Anglais (eng) Mots-clés : Childhood Edx adult outcome autism spectrum disorders prediction Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism Spectrum Disorder is highly heterogeneous, no more so than in the complex world of adult life. Being able to summarize that complexity and have some notion of the confidence with which we could predict outcome from childhood would be helpful for clinical practice and planning. METHODS: Latent class profile analysis is applied to data from 123 participants from the Early Diagnosis Study (Lord et al., Archives of General Psychiatry, 2006, 63, 694) to summarize in a typology the multifacetted early adult outcome of children referred for autism around age 2. The form of the classes and their predictability from childhood is described. RESULTS: Defined over 15 measures, the adult outcomes were reduced to four latent classes, accounting for much of the variation in cognitive and functional measures but little in the affective measures. The classes could be well and progressively more accurately predicted from childhood IQ and symptom severity measurement taken at age 2 years to age 9 years. Removing verbal and nonverbal IQ and autism symptom severity measurement from the profile of adult measures did not change the number of the latent classes; however, there was some change in the class composition and they were more difficult to predict. CONCLUSIONS: While an empirical summary of adult outcome is possible, careful consideration needs to be given to the aspects that should be given priority. An outcome typology that gives weight to cognitive outcomes is well predicted from corresponding measures taken in childhood, even after account for prediction bias from fitting a complex model to a small sample. However, subjective well-being and affective aspects of adult outcome were weakly related to functional outcomes and poorly predicted from childhood. En ligne : http://dx.doi.org/10.1111/jcpp.13180 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=429
in Journal of Child Psychology and Psychiatry > 61-7 (July 2020) . - p.760-767[article] The adult outcome of children referred for autism: typology and prediction from childhood [Texte imprimé et/ou numérique] / Andrew PICKLES, Auteur ; James B. MCCAULEY, Auteur ; Lauren A. PEPA, Auteur ; Marisela HUERTA, Auteur ; Catherine LORD, Auteur . - p.760-767.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 61-7 (July 2020) . - p.760-767
Mots-clés : Childhood Edx adult outcome autism spectrum disorders prediction Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism Spectrum Disorder is highly heterogeneous, no more so than in the complex world of adult life. Being able to summarize that complexity and have some notion of the confidence with which we could predict outcome from childhood would be helpful for clinical practice and planning. METHODS: Latent class profile analysis is applied to data from 123 participants from the Early Diagnosis Study (Lord et al., Archives of General Psychiatry, 2006, 63, 694) to summarize in a typology the multifacetted early adult outcome of children referred for autism around age 2. The form of the classes and their predictability from childhood is described. RESULTS: Defined over 15 measures, the adult outcomes were reduced to four latent classes, accounting for much of the variation in cognitive and functional measures but little in the affective measures. The classes could be well and progressively more accurately predicted from childhood IQ and symptom severity measurement taken at age 2 years to age 9 years. Removing verbal and nonverbal IQ and autism symptom severity measurement from the profile of adult measures did not change the number of the latent classes; however, there was some change in the class composition and they were more difficult to predict. CONCLUSIONS: While an empirical summary of adult outcome is possible, careful consideration needs to be given to the aspects that should be given priority. An outcome typology that gives weight to cognitive outcomes is well predicted from corresponding measures taken in childhood, even after account for prediction bias from fitting a complex model to a small sample. However, subjective well-being and affective aspects of adult outcome were weakly related to functional outcomes and poorly predicted from childhood. En ligne : http://dx.doi.org/10.1111/jcpp.13180 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=429 Child and Adult Factors Related to Quality of Life in Adults with Autism / Philippa MOSS in Journal of Autism and Developmental Disorders, 47-6 (June 2017)
[article]
Titre : Child and Adult Factors Related to Quality of Life in Adults with Autism Type de document : Texte imprimé et/ou numérique Auteurs : Philippa MOSS, Auteur ; William MANDY, Auteur ; Patricia HOWLIN, Auteur Article en page(s) : p.1830-1837 Langues : Anglais (eng) Mots-clés : Autism Quality of Life Adult Adult outcome Index. décimale : PER Périodiques Résumé : The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were low. Informant ratings indicated few correlations between current QoL and any child or adult factors. On self-report ratings, QoL was significantly negatively correlated with severity of repetitive behaviours in childhood; higher QoL was positively associated with better adult social outcomes. However, only a minority of adults (n?=?22) could provide self-report data and findings highlight the need to develop valid measures for assessing the well-being of adults with autism. En ligne : http://dx.doi.org/10.1007/s10803-017-3105-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308
in Journal of Autism and Developmental Disorders > 47-6 (June 2017) . - p.1830-1837[article] Child and Adult Factors Related to Quality of Life in Adults with Autism [Texte imprimé et/ou numérique] / Philippa MOSS, Auteur ; William MANDY, Auteur ; Patricia HOWLIN, Auteur . - p.1830-1837.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-6 (June 2017) . - p.1830-1837
Mots-clés : Autism Quality of Life Adult Adult outcome Index. décimale : PER Périodiques Résumé : The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were low. Informant ratings indicated few correlations between current QoL and any child or adult factors. On self-report ratings, QoL was significantly negatively correlated with severity of repetitive behaviours in childhood; higher QoL was positively associated with better adult social outcomes. However, only a minority of adults (n?=?22) could provide self-report data and findings highlight the need to develop valid measures for assessing the well-being of adults with autism. En ligne : http://dx.doi.org/10.1007/s10803-017-3105-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=308 Detained adolescent females’ multiple mental health and adjustment problem outcomes in young adulthood / E. VAN DER MOLEN in Journal of Child Psychology and Psychiatry, 54-9 (September 2013)
[article]
Titre : Detained adolescent females’ multiple mental health and adjustment problem outcomes in young adulthood Type de document : Texte imprimé et/ou numérique Auteurs : E. VAN DER MOLEN, Auteur ; Robert R. J. M. VERMEIREN, Auteur ; A. A. KRABBENDAM, Auteur ; A. T. F. BEEKMAN, Auteur ; Theo A. DORELEIJERS, Auteur ; L. M. C. JANSEN, Auteur Article en page(s) : p.950-957 Langues : Anglais (eng) Mots-clés : Follow-up detention females adult outcome Index. décimale : PER Périodiques Résumé : Background: Although prior studies have shown that detained females are marked by significant adverse circumstances, little is known about their adult outcomes. Method: Prospective follow-up study of 184 (80.4% of original sample of 229) detained adolescent females who were reassessed 4.5 (SD = 0.6) years later in young adulthood (mean age = 20.0, SD = 1.4) on mental health and adjustment outcomes. Associations between these outcomes and detained females’ behavior problems and offense history were examined. Results: In the total sample, 59.0% had one or more mental health problems at follow-up, whereas 96.2% were facing at least one adjustment problem. Subjects with a personality disorder (PD) reported more adjustment problems compared to subjects without PD. Mental health and adjustment problems in young adulthood were predicted by detained adolescent females’ behavior problems and offense history. Conclusion: Detained adolescent females suffered from multiple mental health and adjustment problems in young adulthood. Females who developed PD were most impaired. Results of this study underline the compelling need for continued and gender-specific interventions. The identification of predictors during detention for poor adult outcomes can serve as targets for intervention. En ligne : http://dx.doi.org/10.1111/jcpp.12044 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212
in Journal of Child Psychology and Psychiatry > 54-9 (September 2013) . - p.950-957[article] Detained adolescent females’ multiple mental health and adjustment problem outcomes in young adulthood [Texte imprimé et/ou numérique] / E. VAN DER MOLEN, Auteur ; Robert R. J. M. VERMEIREN, Auteur ; A. A. KRABBENDAM, Auteur ; A. T. F. BEEKMAN, Auteur ; Theo A. DORELEIJERS, Auteur ; L. M. C. JANSEN, Auteur . - p.950-957.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 54-9 (September 2013) . - p.950-957
Mots-clés : Follow-up detention females adult outcome Index. décimale : PER Périodiques Résumé : Background: Although prior studies have shown that detained females are marked by significant adverse circumstances, little is known about their adult outcomes. Method: Prospective follow-up study of 184 (80.4% of original sample of 229) detained adolescent females who were reassessed 4.5 (SD = 0.6) years later in young adulthood (mean age = 20.0, SD = 1.4) on mental health and adjustment outcomes. Associations between these outcomes and detained females’ behavior problems and offense history were examined. Results: In the total sample, 59.0% had one or more mental health problems at follow-up, whereas 96.2% were facing at least one adjustment problem. Subjects with a personality disorder (PD) reported more adjustment problems compared to subjects without PD. Mental health and adjustment problems in young adulthood were predicted by detained adolescent females’ behavior problems and offense history. Conclusion: Detained adolescent females suffered from multiple mental health and adjustment problems in young adulthood. Females who developed PD were most impaired. Results of this study underline the compelling need for continued and gender-specific interventions. The identification of predictors during detention for poor adult outcomes can serve as targets for intervention. En ligne : http://dx.doi.org/10.1111/jcpp.12044 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212 Is Long-Term Prognosis for Pervasive Developmental Disorder Not Otherwise Specified Different from Prognosis for Autistic Disorder? Findings from a 30-Year Follow-Up Study / Marianne MORDRE in Journal of Autism and Developmental Disorders, 42-6 (June 2012)
[article]
Titre : Is Long-Term Prognosis for Pervasive Developmental Disorder Not Otherwise Specified Different from Prognosis for Autistic Disorder? Findings from a 30-Year Follow-Up Study Type de document : Texte imprimé et/ou numérique Auteurs : Marianne MORDRE, Auteur ; Berit GROHOLT, Auteur ; Ann Kristin KNUDSEN, Auteur ; Eili SPONHEIM, Auteur ; Arnstein MYKLETUN, Auteur ; Anne Margrethe MYHRE, Auteur Année de publication : 2012 Article en page(s) : p.920-928 Langues : Anglais (eng) Mots-clés : Autistic disorder PDD NOS CGAS Adult outcome Index. décimale : PER Périodiques Résumé : We followed 74 children with autistic disorder (AD) and 39 children with pervasive developmental disorder not otherwise specified (PDD NOS) for 17–38 years in a record linkage study. Rates of disability pension award, marital status, criminality and mortality were compared between groups. Disability pension award was the only outcome measure that differed significantly between the AD and PDD NOS groups (89% vs. 72%, p < 0.05). The lower rate of disability pension award in the PDD NOS group was predicted by better psychosocial functioning. The lack of substantial differences in prognosis between the groups supports a dimensional description of autism spectrum disorder, in line with proposed DSM-V revision. En ligne : http://dx.doi.org/10.1007/s10803-011-1319-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=156
in Journal of Autism and Developmental Disorders > 42-6 (June 2012) . - p.920-928[article] Is Long-Term Prognosis for Pervasive Developmental Disorder Not Otherwise Specified Different from Prognosis for Autistic Disorder? Findings from a 30-Year Follow-Up Study [Texte imprimé et/ou numérique] / Marianne MORDRE, Auteur ; Berit GROHOLT, Auteur ; Ann Kristin KNUDSEN, Auteur ; Eili SPONHEIM, Auteur ; Arnstein MYKLETUN, Auteur ; Anne Margrethe MYHRE, Auteur . - 2012 . - p.920-928.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 42-6 (June 2012) . - p.920-928
Mots-clés : Autistic disorder PDD NOS CGAS Adult outcome Index. décimale : PER Périodiques Résumé : We followed 74 children with autistic disorder (AD) and 39 children with pervasive developmental disorder not otherwise specified (PDD NOS) for 17–38 years in a record linkage study. Rates of disability pension award, marital status, criminality and mortality were compared between groups. Disability pension award was the only outcome measure that differed significantly between the AD and PDD NOS groups (89% vs. 72%, p < 0.05). The lower rate of disability pension award in the PDD NOS group was predicted by better psychosocial functioning. The lack of substantial differences in prognosis between the groups supports a dimensional description of autism spectrum disorder, in line with proposed DSM-V revision. En ligne : http://dx.doi.org/10.1007/s10803-011-1319-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=156 The Relationship Between Stress and Social Functioning in Adults With Autism Spectrum Disorder and Without Intellectual Disability / Lauren BISHOP-FITZPATRICK in Autism Research, 8-2 (April 2015)
PermalinkTwenty-year longitudinal birth cohort study of individuals diagnosed with autism spectrum disorder before seven years of age / Mitsuaki IWASA in Journal of Child Psychology and Psychiatry, 63-12 (December 2022)
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