An investigation of adherence to best practice guidelines for autism diagnosis in New Zealand / L. J. TAYLOR in Autism, 25-7 (October 2021)  

Public ISBD [article]  inAutism > 25-7 (October 2021) . - p.2087-2100 Titre : An investigation of adherence to best practice guidelines for autism diagnosis in New Zealand Type de document : Texte imprimé et/ou numérique Auteurs : L. J. TAYLOR, Auteur ; Matthew J. F. EGGLESTON, Auteur ; H. THABREW, Auteur ; L. VAN DER MEER, Auteur ; H. WADDINGTON, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; K. EVANS, Auteur Article en page(s) : p.2087-2100 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Child  Humans  New Zealand  clinical guidelines  diagnosis  implementation Index. décimale : PER Périodiques Résumé : Many clinicians in New Zealand do not follow guidelines for best practice in autism diagnosis. In this study, we investigated the processes that health professionals in New Zealand follow when diagnosing autistic children and adults. We asked 117 health professionals from a range of services and regions in New Zealand, how they identify and diagnose autism. We found that there are differences in the way that clinicians in New Zealand diagnose autism. We identified areas in which autism diagnosis in New Zealand could be improved, for example, by establishing more services to diagnose autism in adolescents and adults, and providing more consistent support after a person is diagnosed with autism. These findings will help to improve autism diagnosis in New Zealand. En ligne : http://dx.doi.org/10.1177/13623613211015757 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] An investigation of adherence to best practice guidelines for autism diagnosis in New Zealand [Texte imprimé et/ou numérique] / L. J. TAYLOR, Auteur ; Matthew J. F. EGGLESTON, Auteur ; H. THABREW, Auteur ; L. VAN DER MEER, Auteur ; H. WADDINGTON, Auteur ; Andrew J. O. WHITEHOUSE, Auteur ; K. EVANS, Auteur . - p.2087-2100. Langues : Anglais (eng) in Autism > 25-7 (October 2021) . - p.2087-2100 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Child  Humans  New Zealand  clinical guidelines  diagnosis  implementation Index. décimale : PER Périodiques Résumé : Many clinicians in New Zealand do not follow guidelines for best practice in autism diagnosis. In this study, we investigated the processes that health professionals in New Zealand follow when diagnosing autistic children and adults. We asked 117 health professionals from a range of services and regions in New Zealand, how they identify and diagnose autism. We found that there are differences in the way that clinicians in New Zealand diagnose autism. We identified areas in which autism diagnosis in New Zealand could be improved, for example, by establishing more services to diagnose autism in adolescents and adults, and providing more consistent support after a person is diagnosed with autism. These findings will help to improve autism diagnosis in New Zealand. En ligne : http://dx.doi.org/10.1177/13623613211015757 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood / K. EVANS in Journal of Autism and Developmental Disorders, 52-2 (February 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.771-781 Titre : A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood Type de document : Texte imprimé et/ou numérique Auteurs : K. EVANS, Auteur ; L. VAN DER MEER, Auteur ; Matthew J. F. EGGLESTON, Auteur ; L. J. TAYLOR, Auteur ; H. THABREW, Auteur ; H. WADDINGTON, Auteur ; Andrew J. O. WHITEHOUSE, Auteur Article en page(s) : p.771-781 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Humans  New Zealand/epidemiology  Personal Satisfaction  Surveys and Questionnaires  Diagnosis  Experience  Identification  Support Index. décimale : PER Périodiques Résumé : The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults' satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction during three stages of the diagnostic process. The results show that autistic adults were reasonably satisfied with the early query and diagnostic assessment stages, but were dissatisfied with the post-diagnostic support stage, with significant unmet needs. Dissatisfaction during the post-diagnostic support stage was also related to satisfaction during previous stages and poor coordination of supports. Suggestions are made on how to improve the autism diagnostic pathway for autistic adults in New Zealand. En ligne : http://dx.doi.org/10.1007/s10803-021-04983-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] A Survey of Autistic Adults from New Zealand on the Autism Diagnostic Process During Adolescence and Adulthood [Texte imprimé et/ou numérique] / K. EVANS, Auteur ; L. VAN DER MEER, Auteur ; Matthew J. F. EGGLESTON, Auteur ; L. J. TAYLOR, Auteur ; H. THABREW, Auteur ; H. WADDINGTON, Auteur ; Andrew J. O. WHITEHOUSE, Auteur . - p.771-781. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.771-781 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Humans  New Zealand/epidemiology  Personal Satisfaction  Surveys and Questionnaires  Diagnosis  Experience  Identification  Support Index. décimale : PER Périodiques Résumé : The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults' satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction during three stages of the diagnostic process. The results show that autistic adults were reasonably satisfied with the early query and diagnostic assessment stages, but were dissatisfied with the post-diagnostic support stage, with significant unmet needs. Dissatisfaction during the post-diagnostic support stage was also related to satisfaction during previous stages and poor coordination of supports. Suggestions are made on how to improve the autism diagnostic pathway for autistic adults in New Zealand. En ligne : http://dx.doi.org/10.1007/s10803-021-04983-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

The misnomer of 'high functioning autism': Intelligence is an imprecise predictor of functional abilities at diagnosis / Gail A. ALVARES in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.221-232 Titre : The misnomer of 'high functioning autism': Intelligence is an imprecise predictor of functional abilities at diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Gail A. ALVARES, Auteur ; Keely BEBBINGTON, Auteur ; D. CLEARY, Auteur ; K. EVANS, Auteur ; E. J. GLASSON, Auteur ; M. T. MAYBERY, Auteur ; S. PILLAR, Auteur ; M. ULJAREVIC, Auteur ; Kandice J. VARCIN, Auteur ; J. WRAY, Auteur ; Andrew J. O. WHITEHOUSE, Auteur Article en page(s) : p.221-232 Langues : Anglais (eng) Mots-clés : adaptive behaviour  autism spectrum disorders  cognitive impairment  intellectual disability Index. décimale : PER Périodiques Résumé : 'High functioning autism' is a term often used for individuals with autism spectrum disorder without an intellectual disability. Over time, this term has become synonymous with expectations of greater functional skills and better long-term outcomes, despite contradictory clinical observations. This study investigated the relationship between adaptive behaviour, cognitive estimates (intelligence quotient) and age at diagnosis in autism spectrum disorder. Participants (n = 2225, 1-18 years of age) were notified at diagnosis to a prospective register and grouped by presence (n = 1041) or absence (n = 1184) of intellectual disability. Functional abilities were reported using the Vineland Adaptive Behaviour Scales. Regression models suggested that intelligence quotient was a weak predictor of Vineland Adaptive Behaviour Scales after controlling for sex. Whereas the intellectual disability group's adaptive behaviour estimates were close to reported intelligence quotients, Vineland Adaptive Behaviour Scales scores fell significantly below intelligence quotients for children without intellectual disability. The gap between intelligence quotient and Vineland Adaptive Behaviour Scales scores remained large with increasing age at diagnosis for all children. These data indicate that estimates from intelligence quotient alone are an imprecise proxy for functional abilities when diagnosing autism spectrum disorder, particularly for those without intellectual disability. We argue that 'high functioning autism' is an inaccurate clinical descriptor when based solely on intelligence quotient demarcations and this term should be abandoned in research and clinical practice. En ligne : http://dx.doi.org/10.1177/1362361319852831 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] The misnomer of 'high functioning autism': Intelligence is an imprecise predictor of functional abilities at diagnosis [Texte imprimé et/ou numérique] / Gail A. ALVARES, Auteur ; Keely BEBBINGTON, Auteur ; D. CLEARY, Auteur ; K. EVANS, Auteur ; E. J. GLASSON, Auteur ; M. T. MAYBERY, Auteur ; S. PILLAR, Auteur ; M. ULJAREVIC, Auteur ; Kandice J. VARCIN, Auteur ; J. WRAY, Auteur ; Andrew J. O. WHITEHOUSE, Auteur . - p.221-232. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.221-232 Mots-clés : adaptive behaviour  autism spectrum disorders  cognitive impairment  intellectual disability Index. décimale : PER Périodiques Résumé : 'High functioning autism' is a term often used for individuals with autism spectrum disorder without an intellectual disability. Over time, this term has become synonymous with expectations of greater functional skills and better long-term outcomes, despite contradictory clinical observations. This study investigated the relationship between adaptive behaviour, cognitive estimates (intelligence quotient) and age at diagnosis in autism spectrum disorder. Participants (n = 2225, 1-18 years of age) were notified at diagnosis to a prospective register and grouped by presence (n = 1041) or absence (n = 1184) of intellectual disability. Functional abilities were reported using the Vineland Adaptive Behaviour Scales. Regression models suggested that intelligence quotient was a weak predictor of Vineland Adaptive Behaviour Scales after controlling for sex. Whereas the intellectual disability group's adaptive behaviour estimates were close to reported intelligence quotients, Vineland Adaptive Behaviour Scales scores fell significantly below intelligence quotients for children without intellectual disability. The gap between intelligence quotient and Vineland Adaptive Behaviour Scales scores remained large with increasing age at diagnosis for all children. These data indicate that estimates from intelligence quotient alone are an imprecise proxy for functional abilities when diagnosing autism spectrum disorder, particularly for those without intellectual disability. We argue that 'high functioning autism' is an inaccurate clinical descriptor when based solely on intelligence quotient demarcations and this term should be abandoned in research and clinical practice. En ligne : http://dx.doi.org/10.1177/1362361319852831 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

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