ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder / Micah O. MAZUREK in Autism, 24-3 (April 2020)  

Public ISBD [article]  inAutism > 24-3 (April 2020) . - p.633-644 Titre : ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder Type de document : texte imprimé Auteurs : Micah O. MAZUREK, Auteur ; Gary STOBBE, Auteur ; Rachel LOFTIN, Auteur ; Beth A. MALOW, Auteur ; Mavara M. AGRAWAL, Auteur ; Mark TAPIA, Auteur ; Amy HESS, Auteur ; Justin G. FARMER, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Karen A. KUHLTHAU, Auteur ; Kristin SOHL, Auteur Article en page(s) : p.633-644 Langues : Anglais (eng) Mots-clés : adolescents  adults  autism spectrum disorders  health services  medical comorbidity  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice. En ligne : http://dx.doi.org/10.1177/1362361319879616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 [article] ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder [texte imprimé] / Micah O. MAZUREK, Auteur ; Gary STOBBE, Auteur ; Rachel LOFTIN, Auteur ; Beth A. MALOW, Auteur ; Mavara M. AGRAWAL, Auteur ; Mark TAPIA, Auteur ; Amy HESS, Auteur ; Justin G. FARMER, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Karen A. KUHLTHAU, Auteur ; Kristin SOHL, Auteur . - p.633-644. Langues : Anglais (eng) in Autism > 24-3 (April 2020) . - p.633-644 Mots-clés : adolescents  adults  autism spectrum disorders  health services  medical comorbidity  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice. En ligne : http://dx.doi.org/10.1177/1362361319879616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422

Physical activity rates in children and adolescents with autism spectrum disorder compared to the general population / Jean- G. GEHRICKE in Research in Autism Spectrum Disorders, 70 (February 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 70 (February 2020) . - p.101490 Titre : Physical activity rates in children and adolescents with autism spectrum disorder compared to the general population Type de document : texte imprimé Auteurs : Jean- G. GEHRICKE, Auteur ; James CHAN, Auteur ; Justin G. FARMER, Auteur ; Rachel M. FENNING, Auteur ; Robin STEINBERG-EPSTEIN, Auteur ; Madhusmita MISRA, Auteur ; Robert A. PARKER, Auteur ; Ann M. NEUMEYER, Auteur Article en page(s) : p.101490 Langues : Anglais (eng) Mots-clés : Autism  Physical exercise  Pediatrics Index. décimale : PER Périodiques Résumé : Physical activity may improve symptoms and skill deficits associated with autism spectrum disorder (ASD). The objective of this study was to compare the reported frequency of physical activity and covariates in a large sample of children with ASD with children of similar age from the general population. The sample with ASD was derived from the Autism Treatment Network Registry Call Back Assessment (n = 611), and the general population data were derived from the National Survey of Children’s Health (NSCH) (n = 71,811). In addition, demographic, child, and family (parent) factors were examined in relation to frequency of recent physical activity in children with ASD. Among males in the 6−11 year-old age group, those with ASD participated in physical activity less often (p < 0.001) than those in the NSCH general population. Specifically, 33 % of boys 6−11 years old in the NSCH group vs. only 17 % in the RCBA group 6−11 years old engaged in some physical activity every day, while 4 % of boys in the NSCH group vs. 18 % in the RCBA group engaged in no physical activity whatsoever. A similar effect was seen across other age groups and in females but was not statistically significant. The demographic, child, and family characteristics associated with physical activity in children and adolescents with ASD included ethnicity in females, DSM-IV ASD diagnosis, IQ, and PAM-13 total score in females. Parents and caregivers are encouraged to find suitable physical activity programs for children with ASD. This may be especially important for 6−11 year-old boys with ASD who engage in significantly less physical activity than their peers in the general population. En ligne : https://doi.org/10.1016/j.rasd.2019.101490 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Physical activity rates in children and adolescents with autism spectrum disorder compared to the general population [texte imprimé] / Jean- G. GEHRICKE, Auteur ; James CHAN, Auteur ; Justin G. FARMER, Auteur ; Rachel M. FENNING, Auteur ; Robin STEINBERG-EPSTEIN, Auteur ; Madhusmita MISRA, Auteur ; Robert A. PARKER, Auteur ; Ann M. NEUMEYER, Auteur . - p.101490. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 70 (February 2020) . - p.101490 Mots-clés : Autism  Physical exercise  Pediatrics Index. décimale : PER Périodiques Résumé : Physical activity may improve symptoms and skill deficits associated with autism spectrum disorder (ASD). The objective of this study was to compare the reported frequency of physical activity and covariates in a large sample of children with ASD with children of similar age from the general population. The sample with ASD was derived from the Autism Treatment Network Registry Call Back Assessment (n = 611), and the general population data were derived from the National Survey of Children’s Health (NSCH) (n = 71,811). In addition, demographic, child, and family (parent) factors were examined in relation to frequency of recent physical activity in children with ASD. Among males in the 6−11 year-old age group, those with ASD participated in physical activity less often (p < 0.001) than those in the NSCH general population. Specifically, 33 % of boys 6−11 years old in the NSCH group vs. only 17 % in the RCBA group 6−11 years old engaged in some physical activity every day, while 4 % of boys in the NSCH group vs. 18 % in the RCBA group engaged in no physical activity whatsoever. A similar effect was seen across other age groups and in females but was not statistically significant. The demographic, child, and family characteristics associated with physical activity in children and adolescents with ASD included ethnicity in females, DSM-IV ASD diagnosis, IQ, and PAM-13 total score in females. Parents and caregivers are encouraged to find suitable physical activity programs for children with ASD. This may be especially important for 6−11 year-old boys with ASD who engage in significantly less physical activity than their peers in the general population. En ligne : https://doi.org/10.1016/j.rasd.2019.101490 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

A Practice Pathway for the Treatment of Night Wakings in Children with Autism Spectrum Disorder / Justin G. FARMER ; Heidi V. CONNOLLY ; Virginia D. ALLHUSEN ; Amanda E. BENNETT ; Daniel L. COURY ; Janet LAM ; Ann M. NEUMEYER ; Kristin SOHL ; Manisha WITMANS ; Beth A. MALOW ; Committee AUTISM TREATMENT NETWORK/AUTISM INTERVENTION RESEARCH NETWORK ON PHYSICAL HEALTH SLEEP in Journal of Autism and Developmental Disorders, 54-8 (August 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-8 (August 2024) . - p.2926-2945 Titre : A Practice Pathway for the Treatment of Night Wakings in Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Justin G. FARMER, Auteur ; Heidi V. CONNOLLY, Auteur ; Virginia D. ALLHUSEN, Auteur ; Amanda E. BENNETT, Auteur ; Daniel L. COURY, Auteur ; Janet LAM, Auteur ; Ann M. NEUMEYER, Auteur ; Kristin SOHL, Auteur ; Manisha WITMANS, Auteur ; Beth A. MALOW, Auteur ; Committee AUTISM TREATMENT NETWORK/AUTISM INTERVENTION RESEARCH NETWORK ON PHYSICAL HEALTH SLEEP, Auteur Article en page(s) : p.2926-2945 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) report high rates of sleep problems. In 2012, the Autism Treatment Network/ Autism Intervention Research Network on Physical Health (ATN/AIR-P) Sleep Committee developed a pathway to address these concerns. Since its publication, ATN/AIR-P clinicians and parents have identified night wakings as a refractory problem unaddressed by the pathway. We reviewed the existing literature and identified 76 scholarly articles that provided data on night waking in children with ASD. Based on the available literature, we propose an updated practice pathway to identify and treat night wakings in children with ASD. En ligne : https://doi.org/10.1007/s10803-023-06026-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534 [article] A Practice Pathway for the Treatment of Night Wakings in Children with Autism Spectrum Disorder [texte imprimé] / Justin G. FARMER, Auteur ; Heidi V. CONNOLLY, Auteur ; Virginia D. ALLHUSEN, Auteur ; Amanda E. BENNETT, Auteur ; Daniel L. COURY, Auteur ; Janet LAM, Auteur ; Ann M. NEUMEYER, Auteur ; Kristin SOHL, Auteur ; Manisha WITMANS, Auteur ; Beth A. MALOW, Auteur ; Committee AUTISM TREATMENT NETWORK/AUTISM INTERVENTION RESEARCH NETWORK ON PHYSICAL HEALTH SLEEP, Auteur . - p.2926-2945. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-8 (August 2024) . - p.2926-2945 Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) report high rates of sleep problems. In 2012, the Autism Treatment Network/ Autism Intervention Research Network on Physical Health (ATN/AIR-P) Sleep Committee developed a pathway to address these concerns. Since its publication, ATN/AIR-P clinicians and parents have identified night wakings as a refractory problem unaddressed by the pathway. We reviewed the existing literature and identified 76 scholarly articles that provided data on night waking in children with ASD. Based on the available literature, we propose an updated practice pathway to identify and treat night wakings in children with ASD. En ligne : https://doi.org/10.1007/s10803-023-06026-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=534

Vision care among school-aged children with autism spectrum disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study / Olivia J. LINDLY in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.840-853 Titre : Vision care among school-aged children with autism spectrum disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study Type de document : texte imprimé Auteurs : Olivia J. LINDLY, Auteur ; James CHAN, Auteur ; Rachel M. FENNING, Auteur ; Justin G. FARMER, Auteur ; Ann M. NEUMEYER, Auteur ; Paul WANG, Auteur ; Mark SWANSON, Auteur ; Robert A. PARKER, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.840-853 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  children  healthcare disparities  preventive care  vision tests Index. décimale : PER Périodiques Résumé : Children with autism are at high risk for vision problems, which may compound core social and behavioral symptoms if untreated. Despite recommendations for school-aged children with autism to receive routine vision testing by an eye care practitioner (ophthalmologist or optometrist), little is known about their vision care. This study, therefore, examined vision care among 351 children with autism ages 6-17 years in the United States or Canada who were enrolled in the Autism Treatment Network Registry. Parents were surveyed using the following vision care measures: (1) child's vision was tested with pictures, shapes, or letters in the past 2 years; (2) child's vision was tested by an eye care practitioner in the past 2 years; (3) child was prescribed corrective eyeglasses; and (4) child wore eyeglasses as recommended. Sociodemographic characteristics such as parent education level, child functioning characteristics such as child communication abilities, and family functioning characteristics such as caregiver strain were also assessed in relationship to vision care. Although 78% of children with autism had their vision tested, only 57% had an eye care practitioner test their vision in the past 2 years. Among the 30% of children with autism prescribed corrective eyeglasses, 78% wore their eyeglasses as recommended. Differences in vision care were additionally found among children with autism by parent education, household income, communication abilities, intellectual functioning, and caregiver strain. Overall, study results suggest many school-aged children with autism do not receive recommended vision care and highlight potentially modifiable disparities in vision care. En ligne : http://dx.doi.org/10.1177/1362361320942091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Vision care among school-aged children with autism spectrum disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study [texte imprimé] / Olivia J. LINDLY, Auteur ; James CHAN, Auteur ; Rachel M. FENNING, Auteur ; Justin G. FARMER, Auteur ; Ann M. NEUMEYER, Auteur ; Paul WANG, Auteur ; Mark SWANSON, Auteur ; Robert A. PARKER, Auteur ; Karen A. KUHLTHAU, Auteur . - p.840-853. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.840-853 Mots-clés : autism spectrum disorder  children  healthcare disparities  preventive care  vision tests Index. décimale : PER Périodiques Résumé : Children with autism are at high risk for vision problems, which may compound core social and behavioral symptoms if untreated. Despite recommendations for school-aged children with autism to receive routine vision testing by an eye care practitioner (ophthalmologist or optometrist), little is known about their vision care. This study, therefore, examined vision care among 351 children with autism ages 6-17 years in the United States or Canada who were enrolled in the Autism Treatment Network Registry. Parents were surveyed using the following vision care measures: (1) child's vision was tested with pictures, shapes, or letters in the past 2 years; (2) child's vision was tested by an eye care practitioner in the past 2 years; (3) child was prescribed corrective eyeglasses; and (4) child wore eyeglasses as recommended. Sociodemographic characteristics such as parent education level, child functioning characteristics such as child communication abilities, and family functioning characteristics such as caregiver strain were also assessed in relationship to vision care. Although 78% of children with autism had their vision tested, only 57% had an eye care practitioner test their vision in the past 2 years. Among the 30% of children with autism prescribed corrective eyeglasses, 78% wore their eyeglasses as recommended. Differences in vision care were additionally found among children with autism by parent education, household income, communication abilities, intellectual functioning, and caregiver strain. Overall, study results suggest many school-aged children with autism do not receive recommended vision care and highlight potentially modifiable disparities in vision care. En ligne : http://dx.doi.org/10.1177/1362361320942091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

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