Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum / Marisse T. SONIDO in Journal of Autism and Developmental Disorders, 52-7 (July 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2997-3014 Titre : Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Marisse T. SONIDO, Auteur ; Ye In HWANG, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian N. TROLLOR, Auteur ; Samuel R. C. ARNOLD, Auteur Article en page(s) : p.2997-3014 Langues : Anglais (eng) Mots-clés : Adult  Australia  Autism Spectrum Disorder  Autistic Disorder  Caregivers/psychology  Humans  Longitudinal Studies  Quality of Life/psychology  Adults  Autism spectrum disorders  Carers  Family functioning and support  Mental well-being  Psychiatric comorbidity  Quality of life Index. décimale : PER Périodiques Résumé : Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05178-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 [article] Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum [Texte imprimé et/ou numérique] / Marisse T. SONIDO, Auteur ; Ye In HWANG, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian N. TROLLOR, Auteur ; Samuel R. C. ARNOLD, Auteur . - p.2997-3014. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2997-3014 Mots-clés : Adult  Australia  Autism Spectrum Disorder  Autistic Disorder  Caregivers/psychology  Humans  Longitudinal Studies  Quality of Life/psychology  Adults  Autism spectrum disorders  Carers  Family functioning and support  Mental well-being  Psychiatric comorbidity  Quality of life Index. décimale : PER Périodiques Résumé : Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05178-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477

Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours / Ye In Jane HWANG in Autism, 24-2 (February 2020)  

Public ISBD [article]  inAutism > 24-2 (February 2020) . - p.411-422 Titre : Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours Type de document : Texte imprimé et/ou numérique Auteurs : Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian TROLLOR, Auteur Article en page(s) : p.411-422 Langues : Anglais (eng) Mots-clés : adults  anxiety  intolerance of uncertainty  repetitive behaviours  sensory sensitivities Index. décimale : PER Périodiques Résumé : Anxiety is present in high rates in both children and adults on the autism spectrum. An increasing number of studies have highlighted the potentially important role that intolerance of uncertainty may have in anxiety for those on the spectrum, as well as their interrelationships with sensory sensitivities and repetitive behaviours. In response to a lack of studies involving adults, this study examined self-report survey data regarding intolerance of uncertainty, sensory sensitivities, repetitive behaviours and anxiety in a sample of 176 adults on the autism spectrum (mean age = 42). Intolerance of uncertainty and anxiety were both found to be elevated relative to non-autistic adults (N = 116) and significant, positive correlations were found between intolerance of uncertainty, anxiety, repetitive behaviours and sensory sensitivities in those on the spectrum. Intolerance of uncertainty was found to be a significant mediator between sensory sensitivities and anxiety, as well as between anxiety and insistence on sameness behaviours. These results were not sensitive to age. Intolerance of uncertainty is an important factor to be considered in the conceptualisation and management of elevated rates of anxiety for adults on the autism spectrum. En ligne : http://dx.doi.org/10.1177/1362361319868907 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415 [article] Understanding anxiety in adults on the autism spectrum: An investigation of its relationship with intolerance of uncertainty, sensory sensitivities and repetitive behaviours [Texte imprimé et/ou numérique] / Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian TROLLOR, Auteur . - p.411-422. Langues : Anglais (eng) in Autism > 24-2 (February 2020) . - p.411-422 Mots-clés : adults  anxiety  intolerance of uncertainty  repetitive behaviours  sensory sensitivities Index. décimale : PER Périodiques Résumé : Anxiety is present in high rates in both children and adults on the autism spectrum. An increasing number of studies have highlighted the potentially important role that intolerance of uncertainty may have in anxiety for those on the spectrum, as well as their interrelationships with sensory sensitivities and repetitive behaviours. In response to a lack of studies involving adults, this study examined self-report survey data regarding intolerance of uncertainty, sensory sensitivities, repetitive behaviours and anxiety in a sample of 176 adults on the autism spectrum (mean age = 42). Intolerance of uncertainty and anxiety were both found to be elevated relative to non-autistic adults (N = 116) and significant, positive correlations were found between intolerance of uncertainty, anxiety, repetitive behaviours and sensory sensitivities in those on the spectrum. Intolerance of uncertainty was found to be a significant mediator between sensory sensitivities and anxiety, as well as between anxiety and insistence on sameness behaviours. These results were not sensitive to age. Intolerance of uncertainty is an important factor to be considered in the conceptualisation and management of elevated rates of anxiety for adults on the autism spectrum. En ligne : http://dx.doi.org/10.1177/1362361319868907 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415

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