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Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers / Connor M. KERNS in Autism, 26-8 (November 2022)
[article]
Titre : Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Connor M. KERNS, Auteur ; Stephen LANKENAU, Auteur ; Paul T. SHATTUCK, Auteur ; Diana L. ROBINS, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Steven J. BERKOWITZ, Auteur Article en page(s) : p.1987-1998 Langues : Anglais (eng) Mots-clés : Adult Child Humans Autistic Disorder/psychology Caregivers/psychology Adverse Childhood Experiences Autism Spectrum Disorder/psychology Qualitative Research autism childhood qualitative traumatic events Index. décimale : PER Périodiques Résumé : The stressors autistic individuals encounter and experience as traumatic may vary from those not on the spectrum and typically measured. We conducted in-depth interviews with autistic adults and caregivers of children and adults on the spectrum to identify potential sources of trauma for autistic individuals and evaluate the ability of a standard trauma measure to capture those experiences. Fourteen autistic adults and 15 caregivers with varied backgrounds, clinical profiles, and histories of adversity were interviewed. Participants also completed standard measures of autism, traumatic exposures, and stress. Interviews were analyzed to record both traditional sources of trauma, for comparison with the standard measure, and distinct sources, described as traumatic only in the narratives of participants. Participants described varied experiences as traumatic. Whereas some reflected traditional traumas (e.g. maltreatment) and forms of social marginalization, others reflected conflicts between autistic characteristics and the environment (e.g. sensory trauma). All adults and most caregivers described sources of trauma in interviews not reported on the standard measure. Results have implications for assessing traumatic events in autism and for understanding their contribution to the mental health of this group. En ligne : http://dx.doi.org/10.1177/13623613211070637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism > 26-8 (November 2022) . - p.1987-1998[article] Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers [Texte imprimé et/ou numérique] / Connor M. KERNS, Auteur ; Stephen LANKENAU, Auteur ; Paul T. SHATTUCK, Auteur ; Diana L. ROBINS, Auteur ; Craig J. NEWSCHAFFER, Auteur ; Steven J. BERKOWITZ, Auteur . - p.1987-1998.
Langues : Anglais (eng)
in Autism > 26-8 (November 2022) . - p.1987-1998
Mots-clés : Adult Child Humans Autistic Disorder/psychology Caregivers/psychology Adverse Childhood Experiences Autism Spectrum Disorder/psychology Qualitative Research autism childhood qualitative traumatic events Index. décimale : PER Périodiques Résumé : The stressors autistic individuals encounter and experience as traumatic may vary from those not on the spectrum and typically measured. We conducted in-depth interviews with autistic adults and caregivers of children and adults on the spectrum to identify potential sources of trauma for autistic individuals and evaluate the ability of a standard trauma measure to capture those experiences. Fourteen autistic adults and 15 caregivers with varied backgrounds, clinical profiles, and histories of adversity were interviewed. Participants also completed standard measures of autism, traumatic exposures, and stress. Interviews were analyzed to record both traditional sources of trauma, for comparison with the standard measure, and distinct sources, described as traumatic only in the narratives of participants. Participants described varied experiences as traumatic. Whereas some reflected traditional traumas (e.g. maltreatment) and forms of social marginalization, others reflected conflicts between autistic characteristics and the environment (e.g. sensory trauma). All adults and most caregivers described sources of trauma in interviews not reported on the standard measure. Results have implications for assessing traumatic events in autism and for understanding their contribution to the mental health of this group. En ligne : http://dx.doi.org/10.1177/13623613211070637 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic / Tammy S. H. LIM in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic Type de document : Texte imprimé et/ou numérique Auteurs : Tammy S. H. LIM, Auteur ; Mae Yue TAN, Auteur ; Ramkumar AISHWORIYA, Auteur ; Ying Qi KANG, Auteur ; Magdalena Yvonne KOH, Auteur ; Liang SHEN, Auteur ; Shang Chee CHONG, Auteur Article en page(s) : p.3015-3025 Langues : Anglais (eng) Mots-clés : Anxiety/epidemiology/psychology Autism Spectrum Disorder Covid-19 Caregivers/psychology Child Communicable Disease Control Depression/epidemiology/psychology Developmental Disabilities/epidemiology Humans Pandemics Resilience, Psychological Stress, Psychological/epidemiology/psychology Anxiety Caregivers Depression Developmental disability Resilience Index. décimale : PER Périodiques Résumé : We evaluated factors affecting psychological ill-effects and resilience of caregivers of children with developmental disabilities during the coronavirus pandemic. Depression, Anxiety, and Stress Scales (DASS-21) and Connor-Davidson Resilience Scale 25-item were administered. Logistic regression was used to identify factors associated with psychological ill-effects and resilience. DASS-21 depression, anxiety and stress scores were high; these were associated with difficulties with infection control measures, autism diagnosis, and need for early intervention services. For caregivers of children with ASD, our DASS-21 scores were significantly higher than non-pandemic scores locally and in other Asian sites. Resilience scores correlated inversely with DASS-21 scores. Targeted support to selected at-risk caregivers and improving resilience can help their coping. En ligne : http://dx.doi.org/10.1007/s10803-021-05180-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3015-3025[article] Factors Contributing to Psychological Ill-Effects and Resilience of Caregivers of Children with Developmental Disabilities During a Nation-wide Lockdown During the COVID-19 Pandemic [Texte imprimé et/ou numérique] / Tammy S. H. LIM, Auteur ; Mae Yue TAN, Auteur ; Ramkumar AISHWORIYA, Auteur ; Ying Qi KANG, Auteur ; Magdalena Yvonne KOH, Auteur ; Liang SHEN, Auteur ; Shang Chee CHONG, Auteur . - p.3015-3025.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3015-3025
Mots-clés : Anxiety/epidemiology/psychology Autism Spectrum Disorder Covid-19 Caregivers/psychology Child Communicable Disease Control Depression/epidemiology/psychology Developmental Disabilities/epidemiology Humans Pandemics Resilience, Psychological Stress, Psychological/epidemiology/psychology Anxiety Caregivers Depression Developmental disability Resilience Index. décimale : PER Périodiques Résumé : We evaluated factors affecting psychological ill-effects and resilience of caregivers of children with developmental disabilities during the coronavirus pandemic. Depression, Anxiety, and Stress Scales (DASS-21) and Connor-Davidson Resilience Scale 25-item were administered. Logistic regression was used to identify factors associated with psychological ill-effects and resilience. DASS-21 depression, anxiety and stress scores were high; these were associated with difficulties with infection control measures, autism diagnosis, and need for early intervention services. For caregivers of children with ASD, our DASS-21 scores were significantly higher than non-pandemic scores locally and in other Asian sites. Resilience scores correlated inversely with DASS-21 scores. Targeted support to selected at-risk caregivers and improving resilience can help their coping. En ligne : http://dx.doi.org/10.1007/s10803-021-05180-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study / Kelsey A. FRIESEN in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study Type de document : Texte imprimé et/ou numérique Auteurs : Kelsey A. FRIESEN, Auteur ; Jonathan A. WEISS, Auteur ; Stephanie J. HOWE, Auteur ; Connor M. KERNS, Auteur ; Carly A. MCMORRIS, Auteur Article en page(s) : p.3027-3037 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Autistic Disorder Covid-19 Caregivers/psychology Humans Mental Health Pandemics Autism Caregiver Resilience Index. décimale : PER Périodiques Résumé : Many caregivers of autistic people experience mental health issues, and the impact of disruptions due to COVID-19 may present additional challenges for these individuals. This study characterized caregiver stress, anxiety, and resilient coping during COVID-19 and investigated the impact of COVID-19 disruptions, demographic variables, and resilient coping on mental health. The majority of caregivers reported some degree of disruption associated with COVID-19, and more than half reported moderate levels of stress and high anxiety. Resilient coping did not emerge as a moderator between COVID-19 disruptions and caregiver mental health, but instead had a direct effect on outcomes. Future research is needed to understand additional factors impacting the mental health of caregivers of autistic people during the COVID-19 pandemic. En ligne : http://dx.doi.org/10.1007/s10803-021-05177-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3027-3037[article] Mental Health and Resilient Coping in Caregivers of Autistic Individuals during the COVID-19 Pandemic: Findings from the Families Facing COVID Study [Texte imprimé et/ou numérique] / Kelsey A. FRIESEN, Auteur ; Jonathan A. WEISS, Auteur ; Stephanie J. HOWE, Auteur ; Connor M. KERNS, Auteur ; Carly A. MCMORRIS, Auteur . - p.3027-3037.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.3027-3037
Mots-clés : Adaptation, Psychological Autism Spectrum Disorder Autistic Disorder Covid-19 Caregivers/psychology Humans Mental Health Pandemics Autism Caregiver Resilience Index. décimale : PER Périodiques Résumé : Many caregivers of autistic people experience mental health issues, and the impact of disruptions due to COVID-19 may present additional challenges for these individuals. This study characterized caregiver stress, anxiety, and resilient coping during COVID-19 and investigated the impact of COVID-19 disruptions, demographic variables, and resilient coping on mental health. The majority of caregivers reported some degree of disruption associated with COVID-19, and more than half reported moderate levels of stress and high anxiety. Resilient coping did not emerge as a moderator between COVID-19 disruptions and caregiver mental health, but instead had a direct effect on outcomes. Future research is needed to understand additional factors impacting the mental health of caregivers of autistic people during the COVID-19 pandemic. En ligne : http://dx.doi.org/10.1007/s10803-021-05177-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 Predictors of Satisfaction with Autism Treatment Services During COVID-19 / Emily F. FERGUSON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : Predictors of Satisfaction with Autism Treatment Services During COVID-19 Type de document : Texte imprimé et/ou numérique Auteurs : Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Harrison FEERST, Auteur ; Ty W. VERNON, Auteur Article en page(s) : p.3686-3697 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy covid-19 Caregivers/psychology Child Humans Pandemics Personal Satisfaction Autism spectrum disorder Covid-19 Caregivers Emotion regulation Service satisfaction Telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has created unprecedented challenges and disruptions for autistic individuals receiving specialized treatment services. This caregiver-report survey study (n=339) explored predictors of satisfaction with autism services during COVID-19 to improve perceived support for these families. Specifically, we investigated whether service delivery medium (telehealth vs. in person), child's emotional functioning, and caregiver stress would predict satisfaction with the most highly utilized services. Satisfaction ratings for ABA/behavioral, speech/language, and occupational therapy were lower when delivered via telehealth as compared to in person. Caregivers who reported higher emotional dysregulation in their children were less satisfied with behavioral therapy services. These results provide a critical caregiver-informed perspective on factors influencing satisfaction with specialized autism services during COVID-19. En ligne : http://dx.doi.org/10.1007/s10803-021-05232-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3686-3697[article] Predictors of Satisfaction with Autism Treatment Services During COVID-19 [Texte imprimé et/ou numérique] / Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Harrison FEERST, Auteur ; Ty W. VERNON, Auteur . - p.3686-3697.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3686-3697
Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy covid-19 Caregivers/psychology Child Humans Pandemics Personal Satisfaction Autism spectrum disorder Covid-19 Caregivers Emotion regulation Service satisfaction Telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has created unprecedented challenges and disruptions for autistic individuals receiving specialized treatment services. This caregiver-report survey study (n=339) explored predictors of satisfaction with autism services during COVID-19 to improve perceived support for these families. Specifically, we investigated whether service delivery medium (telehealth vs. in person), child's emotional functioning, and caregiver stress would predict satisfaction with the most highly utilized services. Satisfaction ratings for ABA/behavioral, speech/language, and occupational therapy were lower when delivered via telehealth as compared to in person. Caregivers who reported higher emotional dysregulation in their children were less satisfied with behavioral therapy services. These results provide a critical caregiver-informed perspective on factors influencing satisfaction with specialized autism services during COVID-19. En ligne : http://dx.doi.org/10.1007/s10803-021-05232-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 Collateral Effects of Behavioral Treatment for Problem Behavior on Caregiver Stress / P. F. KURTZ in Journal of Autism and Developmental Disorders, 51-8 (August 2021)
[article]
Titre : Collateral Effects of Behavioral Treatment for Problem Behavior on Caregiver Stress Type de document : Texte imprimé et/ou numérique Auteurs : P. F. KURTZ, Auteur ; C. W. STROHMEIER, Auteur ; J. L. BECRAFT, Auteur ; M. D. CHIN, Auteur Article en page(s) : p.2852-2865 Langues : Anglais (eng) Mots-clés : Adolescent Adult Behavior Therapy/methods/trends Caregivers/psychology Child Child, Preschool Female Humans Infant Male Parenting/psychology Parents/psychology Patient Admission/trends Problem Behavior/psychology Stress, Psychological/psychology/therapy Treatment Outcome Young Adult Functional analysis Parenting stress Problem behavior Treatment Index. décimale : PER Périodiques Résumé : When individuals with autism and intellectual and developmental disabilities exhibit severe problem behavior, assessment and treatment are often warranted. Parents of such individuals are at high risk for developing parenting stress. In this study, 194 parents completed the Parenting Stress Index-Short Form at their child's time of admission to and discharge from inpatient or outpatient treatment for severe problem behavior. Parent stress was examined in relation to rate and function of child problem behavior as determined via functional analysis. Repeated measures analyses of variance were conducted, and differential effects were observed when child participants exhibited an attention, automatic, or mands function for problem behavior. These findings highlight the importance of considering function of problem behavior in relation to parenting stress. En ligne : http://dx.doi.org/10.1007/s10803-020-04694-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2852-2865[article] Collateral Effects of Behavioral Treatment for Problem Behavior on Caregiver Stress [Texte imprimé et/ou numérique] / P. F. KURTZ, Auteur ; C. W. STROHMEIER, Auteur ; J. L. BECRAFT, Auteur ; M. D. CHIN, Auteur . - p.2852-2865.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2852-2865
Mots-clés : Adolescent Adult Behavior Therapy/methods/trends Caregivers/psychology Child Child, Preschool Female Humans Infant Male Parenting/psychology Parents/psychology Patient Admission/trends Problem Behavior/psychology Stress, Psychological/psychology/therapy Treatment Outcome Young Adult Functional analysis Parenting stress Problem behavior Treatment Index. décimale : PER Périodiques Résumé : When individuals with autism and intellectual and developmental disabilities exhibit severe problem behavior, assessment and treatment are often warranted. Parents of such individuals are at high risk for developing parenting stress. In this study, 194 parents completed the Parenting Stress Index-Short Form at their child's time of admission to and discharge from inpatient or outpatient treatment for severe problem behavior. Parent stress was examined in relation to rate and function of child problem behavior as determined via functional analysis. Repeated measures analyses of variance were conducted, and differential effects were observed when child participants exhibited an attention, automatic, or mands function for problem behavior. These findings highlight the importance of considering function of problem behavior in relation to parenting stress. En ligne : http://dx.doi.org/10.1007/s10803-020-04694-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Development and Psychometric Properties of a New Questionnaire to Assess Mental Health and Concerning Behaviors in Children and Young People with Autism Spectrum Disorder (ASD): The Assessment of Concerning Behavior (ACB) Scale / J. TARVER in Journal of Autism and Developmental Disorders, 51-8 (August 2021)
PermalinkPredictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum / Marisse T. SONIDO in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
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