Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? / L. MYERS in Journal of Autism and Developmental Disorders, 51-9 (September 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3073-3084 Titre : Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? Type de document : Texte imprimé et/ou numérique Auteurs : L. MYERS, Auteur ; S. M. KARP, Auteur ; M. S. DIETRICH, Auteur ; W. S. LOOMAN, Auteur ; M. LUTENBACHER, Auteur Article en page(s) : p.3073-3084 Langues : Anglais (eng) Mots-clés : Anxiety Disorders  Autism Spectrum Disorder/diagnosis  Child  Family  Humans  Parents  Patient-Centered Care  Autism spectrum disorders  Communication  Diagnosis  Family-centered care Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04765-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders? [Texte imprimé et/ou numérique] / L. MYERS, Auteur ; S. M. KARP, Auteur ; M. S. DIETRICH, Auteur ; W. S. LOOMAN, Auteur ; M. LUTENBACHER, Auteur . - p.3073-3084. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-9 (September 2021) . - p.3073-3084 Mots-clés : Anxiety Disorders  Autism Spectrum Disorder/diagnosis  Child  Family  Humans  Parents  Patient-Centered Care  Autism spectrum disorders  Communication  Diagnosis  Family-centered care Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04765-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

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