Autistic-Delivered Peer Support: A Feasibility Study / Mi-Yeet WONG ; Wei SONG ; Katy KAPLAN ; Disha UPPAL ; Mark S. SALZER in Journal of Autism and Developmental Disorders, 54-2 (February 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.409-422 Titre : Autistic-Delivered Peer Support: A Feasibility Study Type de document : Texte imprimé et/ou numérique Auteurs : Mi-Yeet WONG, Auteur ; Wei SONG, Auteur ; Katy KAPLAN, Auteur ; Disha UPPAL, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.409-422 Index. décimale : PER Périodiques Résumé : Peer support has been an undeveloped pathway for filling the service gap and to generate employment opportunities for autistic individuals. Peer supports have been deployed widely in mental health and among veterans and understanding the utility of this service modality among autistic individuals illuminates opportunities for research, policy, and practice. This study examined characteristics of participants in an autistic-delivered peer support program and reports on use of and satisfaction with the program. Half of autistic participants had a co-occurring mental health diagnosis. Participants reported multiple areas of unmet needs and participant satisfaction with the program was high (90%). The findings of this study point toward autistic-delivered peer support as a promising avenue for future development. En ligne : https://doi.org/10.1007/s10803-022-05816-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520 [article] Autistic-Delivered Peer Support: A Feasibility Study [Texte imprimé et/ou numérique] / Mi-Yeet WONG, Auteur ; Wei SONG, Auteur ; Katy KAPLAN, Auteur ; Disha UPPAL, Auteur ; Mark S. SALZER, Auteur . - p.409-422. in Journal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.409-422 Index. décimale : PER Périodiques Résumé : Peer support has been an undeveloped pathway for filling the service gap and to generate employment opportunities for autistic individuals. Peer supports have been deployed widely in mental health and among veterans and understanding the utility of this service modality among autistic individuals illuminates opportunities for research, policy, and practice. This study examined characteristics of participants in an autistic-delivered peer support program and reports on use of and satisfaction with the program. Half of autistic participants had a co-occurring mental health diagnosis. Participants reported multiple areas of unmet needs and participant satisfaction with the program was high (90%). The findings of this study point toward autistic-delivered peer support as a promising avenue for future development. En ligne : https://doi.org/10.1007/s10803-022-05816-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520

Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population / Wei SONG in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1610-1621 Titre : Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population Type de document : Texte imprimé et/ou numérique Auteurs : Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1610-1621 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Community Participation  Humans  Personal Satisfaction  Autism spectrum disorder  Community activities  Group comparison  Participation Index. décimale : PER Périodiques Résumé : Little research has examined the full-range of participation among adults on the autism spectrum. The current study addresses this knowledge gap by comparing the frequency, importance, breadth, and sufficiency of participation between autistic adults and adults in the general population. Autistic adults participated less, had fewer areas that were important to them, participated in fewer areas that were important to them, and were less satisfied with their participation even after controlling for demographic characteristics. Moreover, this study raises questions about what influences their perceptions about the breadth of activities that are important to them and the degree to which they desire to participate in those areas. Suggestions for future interventions and research are offered. En ligne : http://dx.doi.org/10.1007/s10803-021-05059-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population [Texte imprimé et/ou numérique] / Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur . - p.1610-1621. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1610-1621 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Community Participation  Humans  Personal Satisfaction  Autism spectrum disorder  Community activities  Group comparison  Participation Index. décimale : PER Périodiques Résumé : Little research has examined the full-range of participation among adults on the autism spectrum. The current study addresses this knowledge gap by comparing the frequency, importance, breadth, and sufficiency of participation between autistic adults and adults in the general population. Autistic adults participated less, had fewer areas that were important to them, participated in fewer areas that were important to them, and were less satisfied with their participation even after controlling for demographic characteristics. Moreover, this study raises questions about what influences their perceptions about the breadth of activities that are important to them and the degree to which they desire to participate in those areas. Suggestions for future interventions and research are offered. En ligne : http://dx.doi.org/10.1007/s10803-021-05059-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Community participation patterns among autistic adults and associated characteristics: A latent class analysis / Wei SONG in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101884 Titre : Community participation patterns among autistic adults and associated characteristics: A latent class analysis Type de document : Texte imprimé et/ou numérique Auteurs : Wei SONG, Auteur ; Mark S. SALZER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 101884 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Adults  Community participation  Latent class analysis Index. décimale : PER Périodiques Résumé : Background Community participation can buffer stress and anxiety and improve quality of life for autistic adults. While the participation of autistic adults is known to be lower than the general population, it is not known if subgroups exist based on the degree of interest in participation or amounts of participation among those who are interested. Method This study uses Latent Class Analysis to identify subgroups based on the number of important areas and engagement in important activities, and the demographic, clinical, social, and environmental features of these subgroups. Cross-sectional data from 816 autistic adults aged 18–72 from a large, statewide survey were used. Results Latent Class Analysis resulted in a good-fitting four class solution: Low Importance of Participation (33%); High Importance-Low Participation (16%); High Importance-Moderate Participation (22%); High Importance-High Participation (29%). Autistic adults in the Low Importance group were more likely to have fewer years of education, live with family members, and less likely to have an intellectual disability. Among the classes where participation was important, compared to adults in the Moderate Participation class, those in the Low Participation class were more likely to live in an isolated environment, such as rural areas or supported living facilities, and those in the High Participation class had more satisfying relationships and fewer unmet service needs. Conclusions Study findings have implications for more efficient and effective service planning and delivery that enhances participation interests and amount of community participation to align with interests. En ligne : https://doi.org/10.1016/j.rasd.2021.101884 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Community participation patterns among autistic adults and associated characteristics: A latent class analysis [Texte imprimé et/ou numérique] / Wei SONG, Auteur ; Mark S. SALZER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay L. SHEA, Auteur . - 101884. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101884 Mots-clés : Autism spectrum disorder  Adults  Community participation  Latent class analysis Index. décimale : PER Périodiques Résumé : Background Community participation can buffer stress and anxiety and improve quality of life for autistic adults. While the participation of autistic adults is known to be lower than the general population, it is not known if subgroups exist based on the degree of interest in participation or amounts of participation among those who are interested. Method This study uses Latent Class Analysis to identify subgroups based on the number of important areas and engagement in important activities, and the demographic, clinical, social, and environmental features of these subgroups. Cross-sectional data from 816 autistic adults aged 18–72 from a large, statewide survey were used. Results Latent Class Analysis resulted in a good-fitting four class solution: Low Importance of Participation (33%); High Importance-Low Participation (16%); High Importance-Moderate Participation (22%); High Importance-High Participation (29%). Autistic adults in the Low Importance group were more likely to have fewer years of education, live with family members, and less likely to have an intellectual disability. Among the classes where participation was important, compared to adults in the Moderate Participation class, those in the Low Participation class were more likely to live in an isolated environment, such as rural areas or supported living facilities, and those in the High Participation class had more satisfying relationships and fewer unmet service needs. Conclusions Study findings have implications for more efficient and effective service planning and delivery that enhances participation interests and amount of community participation to align with interests. En ligne : https://doi.org/10.1016/j.rasd.2021.101884 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population / Wei SONG in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1622 Titre : Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population Type de document : Texte imprimé et/ou numérique Auteurs : Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1622 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05108-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population [Texte imprimé et/ou numérique] / Wei SONG, Auteur ; Lindsay SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur . - p.1622. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1622 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05108-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Self-reported community participation experiences and preferences of autistic adults / Lindsay L. SHEA in Autism, 25-5 (July 2021)  

Public ISBD [article]  inAutism > 25-5 (July 2021) . - p.1295-1306 Titre : Self-reported community participation experiences and preferences of autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Lindsay L. SHEA, Auteur ; Katherine VERSTREATE, Auteur ; Stacy L. NONNEMACHER, Auteur ; Wei SONG, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1295-1306 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder/epidemiology  Community Participation  Humans  Intellectual Disability/epidemiology  Self Report  autism spectrum disorders  quality of life  social services Index. décimale : PER Périodiques Résumé : Although participation in communities is a key component of health and well-being, little research has explored community participation among autistic adults. A better understanding of preferences and access to various community activities among autistic adults provides intervention and policy directions in a critical area. This study reports responses from one of the largest groups of autistic adults surveyed to date. Participants reported their valued activities, number of days they participated in each activity during the previous month, and the extent to which they perceived their participation to be sufficient. Grocery shopping was the most common community activity, and most important. A wide range of activities were participated in during the previous month and more than half of the autistic adults reported that most activities were important. Autistic adults with a co-occurring intellectual disability participated in fewer activities and said that fewer activities were important. Sufficiency, or the degree to which an individual felt they participated enough in important activities, was greater for autistic adults with higher incomes and lower for autistic adults who lived independently or had co-occurring psychiatric diagnoses. Breadth of participation, or the number of important types of participation in the past month, was lower for autistic adults residing in supported living facilities and for autistic adults with co-occurring psychiatric diagnoses. Breadth was greater for autistic adults with self-reported service needs. Our study findings offer important information to guide implementation of new federal requirements aimed at promoting greater community participation among individuals covered by Medicaid. En ligne : http://dx.doi.org/10.1177/1362361320987682 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Self-reported community participation experiences and preferences of autistic adults [Texte imprimé et/ou numérique] / Lindsay L. SHEA, Auteur ; Katherine VERSTREATE, Auteur ; Stacy L. NONNEMACHER, Auteur ; Wei SONG, Auteur ; Mark S. SALZER, Auteur . - p.1295-1306. Langues : Anglais (eng) in Autism > 25-5 (July 2021) . - p.1295-1306 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder/epidemiology  Community Participation  Humans  Intellectual Disability/epidemiology  Self Report  autism spectrum disorders  quality of life  social services Index. décimale : PER Périodiques Résumé : Although participation in communities is a key component of health and well-being, little research has explored community participation among autistic adults. A better understanding of preferences and access to various community activities among autistic adults provides intervention and policy directions in a critical area. This study reports responses from one of the largest groups of autistic adults surveyed to date. Participants reported their valued activities, number of days they participated in each activity during the previous month, and the extent to which they perceived their participation to be sufficient. Grocery shopping was the most common community activity, and most important. A wide range of activities were participated in during the previous month and more than half of the autistic adults reported that most activities were important. Autistic adults with a co-occurring intellectual disability participated in fewer activities and said that fewer activities were important. Sufficiency, or the degree to which an individual felt they participated enough in important activities, was greater for autistic adults with higher incomes and lower for autistic adults who lived independently or had co-occurring psychiatric diagnoses. Breadth of participation, or the number of important types of participation in the past month, was lower for autistic adults residing in supported living facilities and for autistic adults with co-occurring psychiatric diagnoses. Breadth was greater for autistic adults with self-reported service needs. Our study findings offer important information to guide implementation of new federal requirements aimed at promoting greater community participation among individuals covered by Medicaid. En ligne : http://dx.doi.org/10.1177/1362361320987682 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Self-reported community participation experiences and preferences of autistic adults / Lindsay L. SHEA in Autism, 26-5 (July 2022)  

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Self-reported service needs and barriers reported by autistic adults: Differences by gender identity / Kaitlin H. KOFFER MILLER in Research in Autism Spectrum Disorders, 92 (April 2022)  

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