Autistic-Delivered Peer Support: A Feasibility Study / Mi-Yeet WONG ; Wei SONG ; Katy KAPLAN ; Disha UPPAL ; Mark S. SALZER in Journal of Autism and Developmental Disorders, 54-2 (February 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.409-422 Titre : Autistic-Delivered Peer Support: A Feasibility Study Type de document : texte imprimé Auteurs : Mi-Yeet WONG, Auteur ; Wei SONG, Auteur ; Katy KAPLAN, Auteur ; Disha UPPAL, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.409-422 Index. décimale : PER Périodiques Résumé : Peer support has been an undeveloped pathway for filling the service gap and to generate employment opportunities for autistic individuals. Peer supports have been deployed widely in mental health and among veterans and understanding the utility of this service modality among autistic individuals illuminates opportunities for research, policy, and practice. This study examined characteristics of participants in an autistic-delivered peer support program and reports on use of and satisfaction with the program. Half of autistic participants had a co-occurring mental health diagnosis. Participants reported multiple areas of unmet needs and participant satisfaction with the program was high (90%). The findings of this study point toward autistic-delivered peer support as a promising avenue for future development. En ligne : https://doi.org/10.1007/s10803-022-05816-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520 [article] Autistic-Delivered Peer Support: A Feasibility Study [texte imprimé] / Mi-Yeet WONG, Auteur ; Wei SONG, Auteur ; Katy KAPLAN, Auteur ; Disha UPPAL, Auteur ; Mark S. SALZER, Auteur . - p.409-422. in Journal of Autism and Developmental Disorders > 54-2 (February 2024) . - p.409-422 Index. décimale : PER Périodiques Résumé : Peer support has been an undeveloped pathway for filling the service gap and to generate employment opportunities for autistic individuals. Peer supports have been deployed widely in mental health and among veterans and understanding the utility of this service modality among autistic individuals illuminates opportunities for research, policy, and practice. This study examined characteristics of participants in an autistic-delivered peer support program and reports on use of and satisfaction with the program. Half of autistic participants had a co-occurring mental health diagnosis. Participants reported multiple areas of unmet needs and participant satisfaction with the program was high (90%). The findings of this study point toward autistic-delivered peer support as a promising avenue for future development. En ligne : https://doi.org/10.1007/s10803-022-05816-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=520

Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population / Wei SONG in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1610-1621 Titre : Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population Type de document : texte imprimé Auteurs : Wei SONG, Auteur ; Lindsay L. SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1610-1621 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Community Participation  Humans  Personal Satisfaction  Autism spectrum disorder  Community activities  Group comparison  Participation Index. décimale : PER Périodiques Résumé : Little research has examined the full-range of participation among adults on the autism spectrum. The current study addresses this knowledge gap by comparing the frequency, importance, breadth, and sufficiency of participation between autistic adults and adults in the general population. Autistic adults participated less, had fewer areas that were important to them, participated in fewer areas that were important to them, and were less satisfied with their participation even after controlling for demographic characteristics. Moreover, this study raises questions about what influences their perceptions about the breadth of activities that are important to them and the degree to which they desire to participate in those areas. Suggestions for future interventions and research are offered. En ligne : http://dx.doi.org/10.1007/s10803-021-05059-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population [texte imprimé] / Wei SONG, Auteur ; Lindsay L. SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur . - p.1610-1621. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1610-1621 Mots-clés : Adult  Autism Spectrum Disorder/epidemiology  Autistic Disorder/epidemiology  Community Participation  Humans  Personal Satisfaction  Autism spectrum disorder  Community activities  Group comparison  Participation Index. décimale : PER Périodiques Résumé : Little research has examined the full-range of participation among adults on the autism spectrum. The current study addresses this knowledge gap by comparing the frequency, importance, breadth, and sufficiency of participation between autistic adults and adults in the general population. Autistic adults participated less, had fewer areas that were important to them, participated in fewer areas that were important to them, and were less satisfied with their participation even after controlling for demographic characteristics. Moreover, this study raises questions about what influences their perceptions about the breadth of activities that are important to them and the degree to which they desire to participate in those areas. Suggestions for future interventions and research are offered. En ligne : http://dx.doi.org/10.1007/s10803-021-05059-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Community participation patterns among autistic adults and associated characteristics: A latent class analysis / Wei SONG in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101884 Titre : Community participation patterns among autistic adults and associated characteristics: A latent class analysis Type de document : texte imprimé Auteurs : Wei SONG, Auteur ; Mark S. SALZER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 101884 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Adults  Community participation  Latent class analysis Index. décimale : PER Périodiques Résumé : Background Community participation can buffer stress and anxiety and improve quality of life for autistic adults. While the participation of autistic adults is known to be lower than the general population, it is not known if subgroups exist based on the degree of interest in participation or amounts of participation among those who are interested. Method This study uses Latent Class Analysis to identify subgroups based on the number of important areas and engagement in important activities, and the demographic, clinical, social, and environmental features of these subgroups. Cross-sectional data from 816 autistic adults aged 18–72 from a large, statewide survey were used. Results Latent Class Analysis resulted in a good-fitting four class solution: Low Importance of Participation (33%); High Importance-Low Participation (16%); High Importance-Moderate Participation (22%); High Importance-High Participation (29%). Autistic adults in the Low Importance group were more likely to have fewer years of education, live with family members, and less likely to have an intellectual disability. Among the classes where participation was important, compared to adults in the Moderate Participation class, those in the Low Participation class were more likely to live in an isolated environment, such as rural areas or supported living facilities, and those in the High Participation class had more satisfying relationships and fewer unmet service needs. Conclusions Study findings have implications for more efficient and effective service planning and delivery that enhances participation interests and amount of community participation to align with interests. En ligne : https://doi.org/10.1016/j.rasd.2021.101884 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Community participation patterns among autistic adults and associated characteristics: A latent class analysis [texte imprimé] / Wei SONG, Auteur ; Mark S. SALZER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay L. SHEA, Auteur . - 101884. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101884 Mots-clés : Autism spectrum disorder  Adults  Community participation  Latent class analysis Index. décimale : PER Périodiques Résumé : Background Community participation can buffer stress and anxiety and improve quality of life for autistic adults. While the participation of autistic adults is known to be lower than the general population, it is not known if subgroups exist based on the degree of interest in participation or amounts of participation among those who are interested. Method This study uses Latent Class Analysis to identify subgroups based on the number of important areas and engagement in important activities, and the demographic, clinical, social, and environmental features of these subgroups. Cross-sectional data from 816 autistic adults aged 18–72 from a large, statewide survey were used. Results Latent Class Analysis resulted in a good-fitting four class solution: Low Importance of Participation (33%); High Importance-Low Participation (16%); High Importance-Moderate Participation (22%); High Importance-High Participation (29%). Autistic adults in the Low Importance group were more likely to have fewer years of education, live with family members, and less likely to have an intellectual disability. Among the classes where participation was important, compared to adults in the Moderate Participation class, those in the Low Participation class were more likely to live in an isolated environment, such as rural areas or supported living facilities, and those in the High Participation class had more satisfying relationships and fewer unmet service needs. Conclusions Study findings have implications for more efficient and effective service planning and delivery that enhances participation interests and amount of community participation to align with interests. En ligne : https://doi.org/10.1016/j.rasd.2021.101884 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population / Wei SONG in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1622 Titre : Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population Type de document : texte imprimé Auteurs : Wei SONG, Auteur ; Lindsay L. SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1622 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05108-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Correction to: Community Participation Comparison Between Adults on the Autism Spectrum and Adults in the General Population [texte imprimé] / Wei SONG, Auteur ; Lindsay L. SHEA, Auteur ; Stacy L. NONNEMACHER, Auteur ; Eugene BRUSILOVSKIY, Auteur ; Greg TOWNLEY, Auteur ; Mark S. SALZER, Auteur . - p.1622. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1622 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05108-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Longitudinal Association Between Social Support and Quality of Life Among Middle-Aged and Older Autistic Adults / Wei SONG in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1548-1561 Titre : Longitudinal Association Between Social Support and Quality of Life Among Middle-Aged and Older Autistic Adults Type de document : texte imprimé Auteurs : Wei SONG, Auteur ; Goldie A. MCQUAID, Auteur ; Rebecca A. CHARLTON, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.1548-1561 Langues : Anglais (eng) Mots-clés : autism  social support  quality of life  adult  midlife  old age  longitudinal Index. décimale : PER Périodiques Résumé : Social support is positively associated with quality of life (QoL) in autistic people, yet almost all evidence is cross-sectional and focused on younger adults. We examined 2-year longitudinal survey data from 209 autistic adults aged ⩾40 years living in the United States, all recruited via the Research Match service of Simons Powering Autism Research for Knowledge. Participants self-reported their general QoL, autism-specific QoL, and social support (subjective support, instrumental support, and social interaction). Cross-lagged panel models tested bidirectional associations. Mean scores increased from Time 1 to Time 2 for the general QoL and autism-specific QoL, while social support was mostly stable. Higher baseline general QoL predicted greater subjective support later, whereas baseline subjective support did not predict later general QoL. A reciprocal relationship emerged between autism-specific QoL and subjective support. Unexpectedly, baseline instrumental support predicted lower subsequent general QoL. Among autistic adults in mid-to-later life, QoL appears to drive subsequent social support more strongly than support drives QoL, with the clearest reciprocity observed for autism-specific QoL and subjective support. Future multiwave studies with more diverse samples are needed to chart long-term trajectories and determine how tailored support can optimize aging outcomes in individuals with autism.Lay Abstract We know little about how autistic people’s perceived social support and quality of life (QoL) influence each other as they age. We surveyed 209 40+-year-old autistic adults living in the United States at two timepoints 2 years apart. They answered questions about their general QoL, QoL specific to their autistic experiences, and three types of social support (subjective support, instrumental support, and social interaction). The first survey was in late 2019/early 2020, and the second was 2 years later – late 2021/early 2022. We found that, on average, middle-aged and older autistic adults reported better QoL after 2 years, while the amount of practical help and the number of social interactions did not change. People who started out with better QoL reported more subjective support later. Reporting better autism-specific QoL at the beginning led to more emotional and practical support later and vice versa – feeling well-supported emotionally initially led to better autism-specific QoL later. Surprisingly, getting more initial practical support was linked to lower overall QoL 2 years later. Our results suggest that helping autistic adults feel comfortable with their identity, manage sensory needs, and navigate services may not only improve their QoL but also strengthen the emotional and practical support they receive from others. Practical help is still important, but it should match the person’s goals and preferences, so that it boosts, rather than harms, life satisfaction. Programs that check in regularly about changing needs, especially around significant life events like retirement or health changes, could make a real difference as autistic adults grow older. En ligne : https://dx.doi.org/10.1177/13623613261446878 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Longitudinal Association Between Social Support and Quality of Life Among Middle-Aged and Older Autistic Adults [texte imprimé] / Wei SONG, Auteur ; Goldie A. MCQUAID, Auteur ; Rebecca A. CHARLTON, Auteur ; Gregory L. WALLACE, Auteur . - p.1548-1561. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1548-1561 Mots-clés : autism  social support  quality of life  adult  midlife  old age  longitudinal Index. décimale : PER Périodiques Résumé : Social support is positively associated with quality of life (QoL) in autistic people, yet almost all evidence is cross-sectional and focused on younger adults. We examined 2-year longitudinal survey data from 209 autistic adults aged ⩾40 years living in the United States, all recruited via the Research Match service of Simons Powering Autism Research for Knowledge. Participants self-reported their general QoL, autism-specific QoL, and social support (subjective support, instrumental support, and social interaction). Cross-lagged panel models tested bidirectional associations. Mean scores increased from Time 1 to Time 2 for the general QoL and autism-specific QoL, while social support was mostly stable. Higher baseline general QoL predicted greater subjective support later, whereas baseline subjective support did not predict later general QoL. A reciprocal relationship emerged between autism-specific QoL and subjective support. Unexpectedly, baseline instrumental support predicted lower subsequent general QoL. Among autistic adults in mid-to-later life, QoL appears to drive subsequent social support more strongly than support drives QoL, with the clearest reciprocity observed for autism-specific QoL and subjective support. Future multiwave studies with more diverse samples are needed to chart long-term trajectories and determine how tailored support can optimize aging outcomes in individuals with autism.Lay Abstract We know little about how autistic people’s perceived social support and quality of life (QoL) influence each other as they age. We surveyed 209 40+-year-old autistic adults living in the United States at two timepoints 2 years apart. They answered questions about their general QoL, QoL specific to their autistic experiences, and three types of social support (subjective support, instrumental support, and social interaction). The first survey was in late 2019/early 2020, and the second was 2 years later – late 2021/early 2022. We found that, on average, middle-aged and older autistic adults reported better QoL after 2 years, while the amount of practical help and the number of social interactions did not change. People who started out with better QoL reported more subjective support later. Reporting better autism-specific QoL at the beginning led to more emotional and practical support later and vice versa – feeling well-supported emotionally initially led to better autism-specific QoL later. Surprisingly, getting more initial practical support was linked to lower overall QoL 2 years later. Our results suggest that helping autistic adults feel comfortable with their identity, manage sensory needs, and navigate services may not only improve their QoL but also strengthen the emotional and practical support they receive from others. Practical help is still important, but it should match the person’s goals and preferences, so that it boosts, rather than harms, life satisfaction. Programs that check in regularly about changing needs, especially around significant life events like retirement or health changes, could make a real difference as autistic adults grow older. En ligne : https://dx.doi.org/10.1177/13623613261446878 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Self-reported community participation experiences and preferences of autistic adults / Lindsay L. SHEA in Autism, 25-5 (July 2021)  

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Self-reported community participation experiences and preferences of autistic adults / Lindsay L. SHEA in Autism, 26-5 (July 2022)  

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Self-reported service needs and barriers reported by autistic adults: Differences by gender identity / Kaitlin H. KOFFER MILLER in Research in Autism Spectrum Disorders, 92 (April 2022)  

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