A culturally grounded autism parent training program with Black parents / Kim KAISER in Autism, 26-3 (April 2022)  

Public ISBD [article]  inAutism > 26-3 (April 2022) . - p.716-726 Titre : A culturally grounded autism parent training program with Black parents Type de document : Texte imprimé et/ou numérique Auteurs : Kim KAISER, Auteur ; Michele E. VILLALOBOS, Auteur ; Jill LOCKE, Auteur ; Iheoma U. IRUKA, Auteur ; Camille PROCTOR, Auteur ; Brian BOYD, Auteur Article en page(s) : p.716-726 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  Child  Family  Humans  Parents  Black families  autism spectrum disorders  disparities  family functioning and support  health services  implementation science  interventions?psychosocial/behavioral  parent advocacy  parent training  qualitative research Index. décimale : PER Périodiques Résumé : Parent training programs have been well-studied in Autism Spectrum Disorders and shown to increase a parent's feeling of empowerment, advocacy skills, and treatment enrollment for their child. The majority of parent training interventions have been developed without considering the unique needs of under-represented communities, such as the Black community. Black children with autism are not only misdiagnosed or not diagnosed at all, but are not accessing services equally compared to their White peers. There is an urgent need for culturally adapted interventions in order to decrease the disparity gap. The Color of Autism Foundation developed and ran a parent training program for Black parents of children with autism. The program was grounded in two key features: (1) creating a circle of support for parents to connect and heal from ongoing and historical racial trauma and (2) using parents of Black children with autism as the main facilitators. We believe this increased parent's ability to engage in the educational aspects of the training. Overall, parents reported high levels of satisfaction with the training were highly engaged (attended an average of five of six sessions) and reported high levels of empowerment. Parents also reported continued mistrust in the medical and research community and a need for more Black providers. Further work should examine the relationship of the parent and provider in autism treatment and study the impact of circles of healing for Black families. En ligne : https://dx.doi.org/10.1177/13623613211073373 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] A culturally grounded autism parent training program with Black parents [Texte imprimé et/ou numérique] / Kim KAISER, Auteur ; Michele E. VILLALOBOS, Auteur ; Jill LOCKE, Auteur ; Iheoma U. IRUKA, Auteur ; Camille PROCTOR, Auteur ; Brian BOYD, Auteur . - p.716-726. Langues : Anglais (eng) in Autism > 26-3 (April 2022) . - p.716-726 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  Child  Family  Humans  Parents  Black families  autism spectrum disorders  disparities  family functioning and support  health services  implementation science  interventions?psychosocial/behavioral  parent advocacy  parent training  qualitative research Index. décimale : PER Périodiques Résumé : Parent training programs have been well-studied in Autism Spectrum Disorders and shown to increase a parent's feeling of empowerment, advocacy skills, and treatment enrollment for their child. The majority of parent training interventions have been developed without considering the unique needs of under-represented communities, such as the Black community. Black children with autism are not only misdiagnosed or not diagnosed at all, but are not accessing services equally compared to their White peers. There is an urgent need for culturally adapted interventions in order to decrease the disparity gap. The Color of Autism Foundation developed and ran a parent training program for Black parents of children with autism. The program was grounded in two key features: (1) creating a circle of support for parents to connect and heal from ongoing and historical racial trauma and (2) using parents of Black children with autism as the main facilitators. We believe this increased parent's ability to engage in the educational aspects of the training. Overall, parents reported high levels of satisfaction with the training were highly engaged (attended an average of five of six sessions) and reported high levels of empowerment. Parents also reported continued mistrust in the medical and research community and a need for more Black providers. Further work should examine the relationship of the parent and provider in autism treatment and study the impact of circles of healing for Black families. En ligne : https://dx.doi.org/10.1177/13623613211073373 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Perspective: The role of diversity advisory boards in autism research / Ed-Dee G WILLIAMS in Autism, 27-3 (April 2023)  

Public ISBD [article]  inAutism > 27-3 (April 2023) . - p.864-869 Titre : Perspective: The role of diversity advisory boards in autism research Type de document : Texte imprimé et/ou numérique Auteurs : Ed-Dee G WILLIAMS, Auteur ; Matthew J SMITH, Auteur ; Brian BOYD, Auteur Article en page(s) : p.864-869 Langues : Anglais (eng) Mots-clés : autism spectrum disorders,community engagement,diversity,diversity boards Index. décimale : PER Périodiques Résumé : In this perspective, we argue that the regular use of diversity advisory boards in autism research will improve the inclusivity and participation of marginalized groups in autism research and intervention development. We define a diversity advisory board as a representative group of community members, scholars, policymakers, and area experts that specifically discuss and examine research and interventions for accurate representation and consideration of underrepresented and marginalized identities such as racial, gender, sexual minorities, and dis/abilities who are often excluded from the research process. We present three arguments for forming and integrating diversity advisory boards in autism research and intervention development. First, diversity advisory boards would encourage scholars and interventionists to be intentional in considering how their intervention will work for culturally, racially, gendered, and dis/ability diverse groups. Second, diversity advisory boards will lead to increased diverse samples of autistic participants if members of the board are incentivized to support recruitment efforts from their local communities and networks. Finally, the regular use of diversity advisory boards will improve the research-to-practice gap by including a wider range of community members in the early development and implementation of autism interventions. Recommended actions researchers could take to select, maintain, and meaningfully engage a diversity advisory board are included in this perspective.Lay abstractThis article argues that using groups of individuals that specifically focus on addressing issues with diversity in autism research and autism intervention development are key in ensuring that a greater amount of racial, ethnic, and gender diverse autistic individuals are included in the research and that the research is addressing the needs of these individuals and groups. We call these groups a diversity advisory board. A diversity advisory board will help improve diversity in autism research and intervention development by making sure that autism researchers (1) are intentional about addressing issues of diversity in their research and (2) are able to recruit a greater number of autistic individuals with diverse identities, and (3) by giving greater consideration to the context of diverse autistic individuals which will help autism-focused interventions work better in community settings. We give a short description of these arguments and ideas for how to form and use a diversity advisory board. En ligne : https://doi.org/10.1177/13623613221133633 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] Perspective: The role of diversity advisory boards in autism research [Texte imprimé et/ou numérique] / Ed-Dee G WILLIAMS, Auteur ; Matthew J SMITH, Auteur ; Brian BOYD, Auteur . - p.864-869. Langues : Anglais (eng) in Autism > 27-3 (April 2023) . - p.864-869 Mots-clés : autism spectrum disorders,community engagement,diversity,diversity boards Index. décimale : PER Périodiques Résumé : In this perspective, we argue that the regular use of diversity advisory boards in autism research will improve the inclusivity and participation of marginalized groups in autism research and intervention development. We define a diversity advisory board as a representative group of community members, scholars, policymakers, and area experts that specifically discuss and examine research and interventions for accurate representation and consideration of underrepresented and marginalized identities such as racial, gender, sexual minorities, and dis/abilities who are often excluded from the research process. We present three arguments for forming and integrating diversity advisory boards in autism research and intervention development. First, diversity advisory boards would encourage scholars and interventionists to be intentional in considering how their intervention will work for culturally, racially, gendered, and dis/ability diverse groups. Second, diversity advisory boards will lead to increased diverse samples of autistic participants if members of the board are incentivized to support recruitment efforts from their local communities and networks. Finally, the regular use of diversity advisory boards will improve the research-to-practice gap by including a wider range of community members in the early development and implementation of autism interventions. Recommended actions researchers could take to select, maintain, and meaningfully engage a diversity advisory board are included in this perspective.Lay abstractThis article argues that using groups of individuals that specifically focus on addressing issues with diversity in autism research and autism intervention development are key in ensuring that a greater amount of racial, ethnic, and gender diverse autistic individuals are included in the research and that the research is addressing the needs of these individuals and groups. We call these groups a diversity advisory board. A diversity advisory board will help improve diversity in autism research and intervention development by making sure that autism researchers (1) are intentional about addressing issues of diversity in their research and (2) are able to recruit a greater number of autistic individuals with diverse identities, and (3) by giving greater consideration to the context of diverse autistic individuals which will help autism-focused interventions work better in community settings. We give a short description of these arguments and ideas for how to form and use a diversity advisory board. En ligne : https://doi.org/10.1177/13623613221133633 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

Short report: The role of oral hypersensitivity in feeding behaviors of young autistic children / Kelsey THOMPSON in Autism, 27-4 (May 2023)  

Public ISBD [article]  inAutism > 27-4 (May 2023) . - p.1157-1162 Titre : Short report: The role of oral hypersensitivity in feeding behaviors of young autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Kelsey THOMPSON, Auteur ; Anna WALLISCH, Auteur ; Sallie NOWELL, Auteur ; Jessica MEREDITH, Auteur ; Brian BOYD, Auteur Article en page(s) : p.1157-1162 Langues : Anglais (eng) Mots-clés : autism spectrum disorders,nutrition/feeding,pre-school children,sensory impairments Index. décimale : PER Périodiques Résumé : Feeding problems are common among autistic children and are linked to negative health consequences. Therefore, understanding feeding problems and factors that influence these behaviors is important for developing supports for children and families. While certain sensory processing patterns are commonly associated with feeding problems, less is known about the link between sensory processing and feeding behaviors in autism, as well as how parent behaviors and feelings during mealtime differ based on child sensory preferences. This research examined two groups of young autistic children who were reported to be picky eaters by their parents: those with and those without oral hypersensitivity. Children with oral hypersensitivity had more difficulty with food acceptance, and their parents reported more negative feelings around feeding their child. However, the two groups of children (oral hypersensitive and not) did not differ in their medical/oral motor symptoms, mealtime behavior, or parent use of strategies at mealtimes. This research supports the need for personalized treatment strategies based on the child?s sensory preferences to support both the child and parent in managing mealtimes.Lay abstractFeeding problems are common among autistic children and are linked to negative health consequences. Therefore, understanding feeding problems and factors that influence these behaviors is important for developing supports for children and families. While certain sensory processing patterns are commonly associated with feeding problems, less is known about the link between sensory processing and feeding behaviors in autism, as well as how parent behaviors and feelings during mealtime differ based on child sensory preferences. This research examined two groups of young autistic children who were reported to be picky eaters by their parents: those with and those without oral hypersensitivity. Children with oral hypersensitivity had more difficulty with food acceptance and their parents reported more negative feelings around feeding their child. However, the two groups of children (oral hypersensitive and not) did not differ in their medical/oral motor symptoms, mealtime behavior, or parent use of strategies at mealtimes. This research supports the need for personalized treatment strategies based on the child?s sensory preferences to support both the child and parent in managing mealtimes. En ligne : https://doi.org/10.1177/13623613221135091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] Short report: The role of oral hypersensitivity in feeding behaviors of young autistic children [Texte imprimé et/ou numérique] / Kelsey THOMPSON, Auteur ; Anna WALLISCH, Auteur ; Sallie NOWELL, Auteur ; Jessica MEREDITH, Auteur ; Brian BOYD, Auteur . - p.1157-1162. Langues : Anglais (eng) in Autism > 27-4 (May 2023) . - p.1157-1162 Mots-clés : autism spectrum disorders,nutrition/feeding,pre-school children,sensory impairments Index. décimale : PER Périodiques Résumé : Feeding problems are common among autistic children and are linked to negative health consequences. Therefore, understanding feeding problems and factors that influence these behaviors is important for developing supports for children and families. While certain sensory processing patterns are commonly associated with feeding problems, less is known about the link between sensory processing and feeding behaviors in autism, as well as how parent behaviors and feelings during mealtime differ based on child sensory preferences. This research examined two groups of young autistic children who were reported to be picky eaters by their parents: those with and those without oral hypersensitivity. Children with oral hypersensitivity had more difficulty with food acceptance, and their parents reported more negative feelings around feeding their child. However, the two groups of children (oral hypersensitive and not) did not differ in their medical/oral motor symptoms, mealtime behavior, or parent use of strategies at mealtimes. This research supports the need for personalized treatment strategies based on the child?s sensory preferences to support both the child and parent in managing mealtimes.Lay abstractFeeding problems are common among autistic children and are linked to negative health consequences. Therefore, understanding feeding problems and factors that influence these behaviors is important for developing supports for children and families. While certain sensory processing patterns are commonly associated with feeding problems, less is known about the link between sensory processing and feeding behaviors in autism, as well as how parent behaviors and feelings during mealtime differ based on child sensory preferences. This research examined two groups of young autistic children who were reported to be picky eaters by their parents: those with and those without oral hypersensitivity. Children with oral hypersensitivity had more difficulty with food acceptance and their parents reported more negative feelings around feeding their child. However, the two groups of children (oral hypersensitive and not) did not differ in their medical/oral motor symptoms, mealtime behavior, or parent use of strategies at mealtimes. This research supports the need for personalized treatment strategies based on the child?s sensory preferences to support both the child and parent in managing mealtimes. En ligne : https://doi.org/10.1177/13623613221135091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

The impact of parenting stress and cultural orientation on communication skills in minimally verbal children with autism spectrum disorders: A comparative study in India and the US / Suma SUSWARAM in Research in Autism Spectrum Disorders, 112 (April 2024)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 112 (April 2024) . - p.102337 Titre : The impact of parenting stress and cultural orientation on communication skills in minimally verbal children with autism spectrum disorders: A comparative study in India and the US Type de document : Texte imprimé et/ou numérique Auteurs : Suma SUSWARAM, Auteur ; Nancy C. BRADY, Auteur ; Brian BOYD, Auteur Article en page(s) : p.102337 Langues : Anglais (eng) Mots-clés : Minimal verbal  Autism Spectrum Disorders (ASD)  Communication skills  Parenting stress  Culture  Parent-reported Index. décimale : PER Périodiques Résumé : Background Assessing the impact of intrinsic and extrinsic factors on communication skill development in minimally verbal children with Autism Spectrum Disorders (MV-ASD) is crucial, yet limited research exists on cultural variations of these factors. This study explored the associations between parenting stress, cultural orientation, and communication skills in children with MV-ASD from India and the US. Methods Data were collected through parent-report questionnaires and standardized assessments. Participants included parents of children with MV-ASD from India and the US. The study examined the relationship between parenting stress, cultural orientation, and communication skills in these cultural communities. Results Parenting stress exhibited a negative association with communication skills in both the Indian and US groups of children with MV-ASD. Cultural orientation was identified as a moderator in the relationship when child?s communication skills predicted variability in parenting stress. Conclusions This study emphasizes the influence of parenting stress and cultural orientation on the development of communication skills in children with MV-ASD across cultural communities. Understanding these factors can aid in addressing the unique challenges faced by these children and inform culturally sensitive interventions. En ligne : https://doi.org/10.1016/j.rasd.2024.102337 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524 [article] The impact of parenting stress and cultural orientation on communication skills in minimally verbal children with autism spectrum disorders: A comparative study in India and the US [Texte imprimé et/ou numérique] / Suma SUSWARAM, Auteur ; Nancy C. BRADY, Auteur ; Brian BOYD, Auteur . - p.102337. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 112 (April 2024) . - p.102337 Mots-clés : Minimal verbal  Autism Spectrum Disorders (ASD)  Communication skills  Parenting stress  Culture  Parent-reported Index. décimale : PER Périodiques Résumé : Background Assessing the impact of intrinsic and extrinsic factors on communication skill development in minimally verbal children with Autism Spectrum Disorders (MV-ASD) is crucial, yet limited research exists on cultural variations of these factors. This study explored the associations between parenting stress, cultural orientation, and communication skills in children with MV-ASD from India and the US. Methods Data were collected through parent-report questionnaires and standardized assessments. Participants included parents of children with MV-ASD from India and the US. The study examined the relationship between parenting stress, cultural orientation, and communication skills in these cultural communities. Results Parenting stress exhibited a negative association with communication skills in both the Indian and US groups of children with MV-ASD. Cultural orientation was identified as a moderator in the relationship when child?s communication skills predicted variability in parenting stress. Conclusions This study emphasizes the influence of parenting stress and cultural orientation on the development of communication skills in children with MV-ASD across cultural communities. Understanding these factors can aid in addressing the unique challenges faced by these children and inform culturally sensitive interventions. En ligne : https://doi.org/10.1016/j.rasd.2024.102337 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

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