Effects of Delay, Question Type, and Socioemotional Support on Episodic Memory Retrieval by Children with Autism Spectrum Disorder / Telma Sousa ALMEIDA in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1111-1130 Titre : Effects of Delay, Question Type, and Socioemotional Support on Episodic Memory Retrieval by Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Telma Sousa ALMEIDA, Auteur ; Michael E. LAMB, Auteur ; Emma J. WEISBLATT, Auteur Article en page(s) : p.1111-1130 Langues : Anglais (eng) Mots-clés : Autism  Delay  Eyewitness testimony  Question types  Socioemotional support Index. décimale : PER Périodiques Résumé : Twenty-seven autistic children and 32 typically developing (TD) peers were questioned about an experienced event after a two-week delay and again after a two-month delay, using the Revised National Institute of Child Health and Human Development (NICHD) Investigative Interview Protocol. Recall prompts elicited more detailed and more accurate responses from children than recognition prompts. Autistic children recalled fewer correct narrative details than TD peers when questioned using open invitations, cued invitations, and directive questions. Nonetheless, they were as accurate as TD peers when responding to all types of prompts. The informativeness and accuracy of children's reports remained unchanged over time. Social support was beneficial when children were interviewed for the first time but not after a longer delay. En ligne : http://dx.doi.org/10.1007/s10803-018-3815-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386 [article] Effects of Delay, Question Type, and Socioemotional Support on Episodic Memory Retrieval by Children with Autism Spectrum Disorder [texte imprimé] / Telma Sousa ALMEIDA, Auteur ; Michael E. LAMB, Auteur ; Emma J. WEISBLATT, Auteur . - p.1111-1130. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-3 (March 2019) . - p.1111-1130 Mots-clés : Autism  Delay  Eyewitness testimony  Question types  Socioemotional support Index. décimale : PER Périodiques Résumé : Twenty-seven autistic children and 32 typically developing (TD) peers were questioned about an experienced event after a two-week delay and again after a two-month delay, using the Revised National Institute of Child Health and Human Development (NICHD) Investigative Interview Protocol. Recall prompts elicited more detailed and more accurate responses from children than recognition prompts. Autistic children recalled fewer correct narrative details than TD peers when questioned using open invitations, cued invitations, and directive questions. Nonetheless, they were as accurate as TD peers when responding to all types of prompts. The informativeness and accuracy of children's reports remained unchanged over time. Social support was beneficial when children were interviewed for the first time but not after a longer delay. En ligne : http://dx.doi.org/10.1007/s10803-018-3815-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=386

'Instruments are good at eliciting information; scores are very dangerous': The perspectives of clinical professionals regarding neurodevelopmental assessment / Barry COUGHLAN in Autism, 27-4 (May 2023)  

Public ISBD [article]  inAutism > 27-4 (May 2023) . - p.905-915 Titre : 'Instruments are good at eliciting information; scores are very dangerous': The perspectives of clinical professionals regarding neurodevelopmental assessment Type de document : texte imprimé Auteurs : Barry COUGHLAN, Auteur ; Matt WOOLGAR, Auteur ; Emma J. WEISBLATT, Auteur ; Robbie DUSCHINSKY, Auteur Article en page(s) : p.905-915 Langues : Anglais (eng) Mots-clés : attention deficit hyperactivity disorder,autism,clinical reasoning,qualitative,decision-making,diagnostic upgrading Index. décimale : PER Périodiques Résumé : Clinical judgement is a crucial part of autism and attention deficit hyperactivity disorder (ADHD) assessments. This study aims to harness insights from psychology and sociology to explore clinical perspectives and assessment practices of autism and attention deficit hyperactivity disorder. Qualitative interviews were conducted with health care professionals (n=17). Interviews were conducted between January and May 2019. Data were analysed using a thematic approach. Themes were sorted into two interrelated categories (1) approaches to diagnosis (2) elements of diagnosis. Approaches to diagnosis were comprised of the following subthemes: nature of diagnosis, application of diagnosis: natural and pragmatic, revisiting conceptualisations: sub-optimal practice & unhelpful diagnoses, autism and attention deficit hyperactivity disorder. Elements of diagnosis contained three related subthemes: contextualising standardised assessments, triangulating material, organisational factors. There is sometimes a pragmatic as well as nosological dimension to diagnosis. Competing desires for consistency and utility add further complexity to neurodevelopmental assessment.Lay abstractAutism and attention deficit hyperactivity disorder are common behaviourally diagnosed conditions. One of the key aspects of diagnosis is clinical judgement. Yet despite decades of research, it is only in recent times that researchers have started exploring clinicians' perspectives on diagnosing these conditions. We aimed to add to this body of knowledge by conducting interviews with 17 experienced health care professionals in the United Kingdom to hear their perspectives on diagnosing autism and attention deficit hyperactivity disorder. Clinicians reflected that for some children and young people, diagnosis is reasonably straightforward; however, in other situations, decisions are made on more pragmatic grounds (i.e. will this be helpful). We identified some differences of opinion between professionals and organisation which adds to the complexity of applying a diagnosis. We recommend several areas for future research and point to some practical and philosophical implications of the work. En ligne : https://doi.org/10.1177/13623613221121413 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] 'Instruments are good at eliciting information; scores are very dangerous': The perspectives of clinical professionals regarding neurodevelopmental assessment [texte imprimé] / Barry COUGHLAN, Auteur ; Matt WOOLGAR, Auteur ; Emma J. WEISBLATT, Auteur ; Robbie DUSCHINSKY, Auteur . - p.905-915. Langues : Anglais (eng) in Autism > 27-4 (May 2023) . - p.905-915 Mots-clés : attention deficit hyperactivity disorder,autism,clinical reasoning,qualitative,decision-making,diagnostic upgrading Index. décimale : PER Périodiques Résumé : Clinical judgement is a crucial part of autism and attention deficit hyperactivity disorder (ADHD) assessments. This study aims to harness insights from psychology and sociology to explore clinical perspectives and assessment practices of autism and attention deficit hyperactivity disorder. Qualitative interviews were conducted with health care professionals (n=17). Interviews were conducted between January and May 2019. Data were analysed using a thematic approach. Themes were sorted into two interrelated categories (1) approaches to diagnosis (2) elements of diagnosis. Approaches to diagnosis were comprised of the following subthemes: nature of diagnosis, application of diagnosis: natural and pragmatic, revisiting conceptualisations: sub-optimal practice & unhelpful diagnoses, autism and attention deficit hyperactivity disorder. Elements of diagnosis contained three related subthemes: contextualising standardised assessments, triangulating material, organisational factors. There is sometimes a pragmatic as well as nosological dimension to diagnosis. Competing desires for consistency and utility add further complexity to neurodevelopmental assessment.Lay abstractAutism and attention deficit hyperactivity disorder are common behaviourally diagnosed conditions. One of the key aspects of diagnosis is clinical judgement. Yet despite decades of research, it is only in recent times that researchers have started exploring clinicians' perspectives on diagnosing these conditions. We aimed to add to this body of knowledge by conducting interviews with 17 experienced health care professionals in the United Kingdom to hear their perspectives on diagnosing autism and attention deficit hyperactivity disorder. Clinicians reflected that for some children and young people, diagnosis is reasonably straightforward; however, in other situations, decisions are made on more pragmatic grounds (i.e. will this be helpful). We identified some differences of opinion between professionals and organisation which adds to the complexity of applying a diagnosis. We recommend several areas for future research and point to some practical and philosophical implications of the work. En ligne : https://doi.org/10.1177/13623613221121413 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures / Jeremy R. PARR in Autism Research, 8-5 (October 2015)  

Public ISBD [article]  inAutism Research > 8-5 (October 2015) . - p.522-533 Titre : New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures Type de document : texte imprimé Auteurs : Jeremy R. PARR, Auteur ; Maretha V. DE JONGE, Auteur ; Simon WALLACE, Auteur ; Andrew PICKLES, Auteur ; Michael RUTTER, Auteur ; Ann LE COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; Kerstin WITTEMEYER, Auteur ; Helen MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; Lennart PEDERSEN, Auteur ; Torben ISAGER, Auteur ; Fritz POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; Emma WEISBLATT, Auteur ; Jonathan GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; Gillian BAIRD, Auteur ; Anthony J. BAILEY, Auteur Article en page(s) : p.522-533 Langues : Anglais (eng) Mots-clés : broader autism phenotype  informant interview  self-report interview  interrater reliability  retest reliability Index. décimale : PER Périodiques Résumé : Clinical genetic studies confirm the broader autism phenotype (BAP) in some relatives of individuals with autism, but there are few standardized assessment measures. We developed three BAP measures (informant interview, self-report interview, and impression of interviewee observational scale) and describe the development strategy and findings from the interviews. International Molecular Genetic Study of Autism Consortium data were collected from families containing at least two individuals with autism. Comparison of the informant and self-report interviews was restricted to samples in which the interviews were undertaken by different researchers from that site (251 UK informants, 119 from the Netherlands). Researchers produced vignettes that were rated blind by others. Retest reliability was assessed in 45 participants. Agreement between live scoring and vignette ratings was very high. Retest stability for the interviews was high. Factor analysis indicated a first factor comprising social-communication items and rigidity (but not other repetitive domain items), and a second factor comprised mainly of reading and spelling impairments. Whole scale Cronbach's alphas were high for both interviews. The correlation between interviews for factor 1 was moderate (adult items 0.50; childhood items 0.43); Kappa values for between-interview agreement on individual items were mainly low. The correlations between individual items and total score were moderate. The inclusion of several factor 2 items lowered the overall Cronbach's alpha for the total set. Both interview measures showed good reliability and substantial stability over time, but the findings were better for factor 1 than factor 2. We recommend factor 1 scores be used for characterising the BAP. Autism Res 2015, 8: 522–533. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270 [article] New Interview and Observation Measures of the Broader Autism Phenotype: Description of Strategy and Reliability Findings for the Interview Measures [texte imprimé] / Jeremy R. PARR, Auteur ; Maretha V. DE JONGE, Auteur ; Simon WALLACE, Auteur ; Andrew PICKLES, Auteur ; Michael RUTTER, Auteur ; Ann LE COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; Kerstin WITTEMEYER, Auteur ; Helen MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; Lennart PEDERSEN, Auteur ; Torben ISAGER, Auteur ; Fritz POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; Emma WEISBLATT, Auteur ; Jonathan GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; Gillian BAIRD, Auteur ; Anthony J. BAILEY, Auteur . - p.522-533. Langues : Anglais (eng) in Autism Research > 8-5 (October 2015) . - p.522-533 Mots-clés : broader autism phenotype  informant interview  self-report interview  interrater reliability  retest reliability Index. décimale : PER Périodiques Résumé : Clinical genetic studies confirm the broader autism phenotype (BAP) in some relatives of individuals with autism, but there are few standardized assessment measures. We developed three BAP measures (informant interview, self-report interview, and impression of interviewee observational scale) and describe the development strategy and findings from the interviews. International Molecular Genetic Study of Autism Consortium data were collected from families containing at least two individuals with autism. Comparison of the informant and self-report interviews was restricted to samples in which the interviews were undertaken by different researchers from that site (251 UK informants, 119 from the Netherlands). Researchers produced vignettes that were rated blind by others. Retest reliability was assessed in 45 participants. Agreement between live scoring and vignette ratings was very high. Retest stability for the interviews was high. Factor analysis indicated a first factor comprising social-communication items and rigidity (but not other repetitive domain items), and a second factor comprised mainly of reading and spelling impairments. Whole scale Cronbach's alphas were high for both interviews. The correlation between interviews for factor 1 was moderate (adult items 0.50; childhood items 0.43); Kappa values for between-interview agreement on individual items were mainly low. The correlations between individual items and total score were moderate. The inclusion of several factor 2 items lowered the overall Cronbach's alpha for the total set. Both interview measures showed good reliability and substantial stability over time, but the findings were better for factor 1 than factor 2. We recommend factor 1 scores be used for characterising the BAP. Autism Res 2015, 8: 522–533. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1466 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=270

New Interview and Observation Measures of the Broader Autism Phenotype: Impressions of Interviewee Measure / Andrew PICKLES in Journal of Autism and Developmental Disorders, 43-9 (September 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-9 (September 2013) . - p.2082-2089 Titre : New Interview and Observation Measures of the Broader Autism Phenotype: Impressions of Interviewee Measure Type de document : texte imprimé Auteurs : Andrew PICKLES, Auteur ; Jeremy R. PARR, Auteur ; Michael RUTTER, Auteur ; Maretha V. DE JONGE, Auteur ; S. WALLACE, Auteur ; Ann LE COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; Kerstin WITTEMEYER, Auteur ; Helen MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; Lennart PEDERSEN, Auteur ; T. ISAGER, Auteur ; Fritz POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; Emma WEISBLATT, Auteur ; Jonathan GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; Anthony J. BAILEY, Auteur Article en page(s) : p.2082-2089 Langues : Anglais (eng) Mots-clés : Broader autism phenotype  Observer rating  Test–retest  Factor analysis  Social functioning Index. décimale : PER Périodiques Résumé : A 20 item observational measure of social functioning, the Impression of Interviewee rating scale, is one of three measures devised to assess the broader autism phenotype. The sample studied included families containing at least two individuals with autism spectrum disorder; observations were undertaken by the researcher who interviewed the subject. An exploratory factor analysis suggested a single factor was most appropriate (Cronbach’s α of 0.78). There was a modest but significant retest correlation of 0.42. Correlations between live ratings and blind consensus ratings of vignettes were high (0.93). Correlations with the interview measures were moderate but statistically significant. In conclusion, the observational scale provides a promising start but further work is required before general use can be recommended. En ligne : http://dx.doi.org/10.1007/s10803-013-1810-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212 [article] New Interview and Observation Measures of the Broader Autism Phenotype: Impressions of Interviewee Measure [texte imprimé] / Andrew PICKLES, Auteur ; Jeremy R. PARR, Auteur ; Michael RUTTER, Auteur ; Maretha V. DE JONGE, Auteur ; S. WALLACE, Auteur ; Ann LE COUTEUR, Auteur ; Herman VAN ENGELAND, Auteur ; Kerstin WITTEMEYER, Auteur ; Helen MCCONACHIE, Auteur ; Bernadette ROGE, Auteur ; Carine MANTOULAN, Auteur ; Lennart PEDERSEN, Auteur ; T. ISAGER, Auteur ; Fritz POUSTKA, Auteur ; Sven BÖLTE, Auteur ; Patrick BOLTON, Auteur ; Emma WEISBLATT, Auteur ; Jonathan GREEN, Auteur ; Katerina PAPANIKOLAOU, Auteur ; Anthony J. BAILEY, Auteur . - p.2082-2089. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-9 (September 2013) . - p.2082-2089 Mots-clés : Broader autism phenotype  Observer rating  Test–retest  Factor analysis  Social functioning Index. décimale : PER Périodiques Résumé : A 20 item observational measure of social functioning, the Impression of Interviewee rating scale, is one of three measures devised to assess the broader autism phenotype. The sample studied included families containing at least two individuals with autism spectrum disorder; observations were undertaken by the researcher who interviewed the subject. An exploratory factor analysis suggested a single factor was most appropriate (Cronbach’s α of 0.78). There was a modest but significant retest correlation of 0.42. Correlations between live ratings and blind consensus ratings of vignettes were high (0.93). Correlations with the interview measures were moderate but statistically significant. In conclusion, the observational scale provides a promising start but further work is required before general use can be recommended. En ligne : http://dx.doi.org/10.1007/s10803-013-1810-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=212

Overcoming hurdles to intervention studies with autistic children with profound communication difficulties and their families / Ailbhe MCKINNEY in Autism, 25-6 (August 2021)  

Public ISBD [article]  inAutism > 25-6 (August 2021) . - p.1627-1639 Titre : Overcoming hurdles to intervention studies with autistic children with profound communication difficulties and their families Type de document : texte imprimé Auteurs : Ailbhe MCKINNEY, Auteur ; Emma J. WEISBLATT, Auteur ; Kathryn L. HOTSON, Auteur ; Zahra BILAL AHMED, Auteur ; Claudia DIAS, Auteur ; Dorit BENSHALOM, Auteur ; Juliet FOSTER, Auteur ; Suzanne MURPHY, Auteur ; Sofia S. VILLAR, Auteur ; Matthew K. BELMONTE, Auteur Article en page(s) : p.1627-1639 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  Child  Communication  Humans  Intellectual Disability/therapy  Parents  autism  clinical trial  inclusion  intellectual disability  intervention  minimally verbal  nonverbal  of interest with respect to the research, authorship and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Autistic children who speak few or no words or who have an intellectual disability are the most in need of new understandings and treatments, but the most often left out of the research that can bring these benefits. Researchers perceive difficulties around compliance with instructions, testing, challenging behaviours and family stress. Although research with these children can indeed be difficult, their continuing exclusion is unethical and unacceptable. Drawing on our experiences testing a possible treatment for children with profound autism, we provide 10 practical guidelines related to (1) interacting physically, (2) combining play and testing, (3) responding to challenging behaviour, (4) finding suitable tests, (5) relationships with parents, (6) relationships with siblings, (7) involving stakeholders, (8) planning the testing times, (9) the role of the clinical supervisor and (10) recruiting and retaining participants. We hope that these guidelines will prepare and embolden other research teams to work with profoundly autistic children, ending their historical exclusion from research. These guidelines also could be useful for conducting research with children with intellectual disabilities. En ligne : http://dx.doi.org/10.1177/1362361321998916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Overcoming hurdles to intervention studies with autistic children with profound communication difficulties and their families [texte imprimé] / Ailbhe MCKINNEY, Auteur ; Emma J. WEISBLATT, Auteur ; Kathryn L. HOTSON, Auteur ; Zahra BILAL AHMED, Auteur ; Claudia DIAS, Auteur ; Dorit BENSHALOM, Auteur ; Juliet FOSTER, Auteur ; Suzanne MURPHY, Auteur ; Sofia S. VILLAR, Auteur ; Matthew K. BELMONTE, Auteur . - p.1627-1639. Langues : Anglais (eng) in Autism > 25-6 (August 2021) . - p.1627-1639 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  Child  Communication  Humans  Intellectual Disability/therapy  Parents  autism  clinical trial  inclusion  intellectual disability  intervention  minimally verbal  nonverbal  of interest with respect to the research, authorship and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Autistic children who speak few or no words or who have an intellectual disability are the most in need of new understandings and treatments, but the most often left out of the research that can bring these benefits. Researchers perceive difficulties around compliance with instructions, testing, challenging behaviours and family stress. Although research with these children can indeed be difficult, their continuing exclusion is unethical and unacceptable. Drawing on our experiences testing a possible treatment for children with profound autism, we provide 10 practical guidelines related to (1) interacting physically, (2) combining play and testing, (3) responding to challenging behaviour, (4) finding suitable tests, (5) relationships with parents, (6) relationships with siblings, (7) involving stakeholders, (8) planning the testing times, (9) the role of the clinical supervisor and (10) recruiting and retaining participants. We hope that these guidelines will prepare and embolden other research teams to work with profoundly autistic children, ending their historical exclusion from research. These guidelines also could be useful for conducting research with children with intellectual disabilities. En ligne : http://dx.doi.org/10.1177/1362361321998916 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Overcoming hurdles to intervention studies with autistic children with profound communication difficulties and their families / Ailbhe MCKINNEY in Autism, 26-6 (August 2022)  

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